{"id":15547,"date":"2020-05-19T21:45:12","date_gmt":"2020-05-19T21:45:12","guid":{"rendered":"https:\/\/lpfch.org\/meet-kaitlin-your-summer-scamper-patient-hero\/"},"modified":"2020-05-19T21:45:12","modified_gmt":"2020-05-19T21:45:12","slug":"meet-kaitlin-your-summer-scamper-patient-hero","status":"publish","type":"post","link":"http:\/\/lpfch.org\/es\/impact-stories\/meet-kaitlin-your-summer-scamper-patient-hero\/","title":{"rendered":"Conoce a Kaitlin, tu hero\u00edna paciente de Summer Scamper"},"content":{"rendered":"<p class=\"\" style=\"white-space:pre-wrap;\">Kaitlin, de dieciocho a\u00f1os, ha sido sometida a m\u00e1s cirug\u00edas de las que nadie deber\u00eda soportar.   <\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">En 2004, Kaitlin naci\u00f3 con un caso extremadamente raro de s\u00edndrome de bandas amni\u00f3ticas (SBA). El SBA se produce cuando una banda fibrosa se desprende de la bolsa amni\u00f3tica y se adhiere al beb\u00e9, provocando un retraso en el crecimiento o malformaciones. En la mayor\u00eda de los casos, el SBA afecta a las extremidades o los dedos, pero en el caso de Kaitlin, le afect\u00f3 al rostro con una fisura lateral y par\u00e1lisis facial.   <\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">Cuando Kaitlin ten\u00eda apenas cuatro d\u00edas de nacida, sus padres, Tom y Janine, se reunieron con el Dr. Stephen Schendel y el equipo de Anomal\u00edas Craneofaciales del Hospital Infantil Packard para comprender completamente su condici\u00f3n. El Dr. Schendel realiz\u00f3 la primera cirug\u00eda de Kaitlin cuando ten\u00eda solo doce semanas de edad.   <\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">Kaitlin ha recibido atenci\u00f3n m\u00e9dica de por vida en nuestro hospital y se ha sometido a 16 cirug\u00edas. Kaitlin se enorgullece de participar en la Carrera Virtual de Verano, creando conciencia y apoyando una causa muy importante para ella: el Fondo para la Infancia, que garantiza que todos los ni\u00f1os puedan recibir la misma excelente atenci\u00f3n que ella ha recibido.  <\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">Actualmente, Kaitlin cursa el segundo a\u00f1o de bachillerato y es una consumada patinadora art\u00edstica que compite a nivel intermedio.   <\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">Al hablar de sus modelos a seguir, Kaitlin menciona a Scott Hamilton, superviviente de c\u00e1ncer y tambi\u00e9n patinador, medallista de oro ol\u00edmpico.  <\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">\u201cHace unos a\u00f1os, Scott Hamilton cre\u00f3 una campa\u00f1a llamada &#039;We Get Up&#039; (Nos levantamos)\u201d, explica Kaitlin. \u201cEs una frase en la que pienso y que gu\u00eda mi vida a diario. Para m\u00ed, &#039;We Get Up&#039; no solo significa levantarme despu\u00e9s de una ca\u00edda en un doble axel, sino tambi\u00e9n dejar atr\u00e1s una mala puntuaci\u00f3n en un examen o recuperarme m\u00e1s r\u00e1pido y mejor que nunca de mi \u00faltima cirug\u00eda\u201d.  <\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">La actitud positiva de Kaitlin no solo se manifiesta al enfrentar sus problemas de salud, sino tambi\u00e9n cuando ayuda a otros pacientes en su misma situaci\u00f3n. Kaitlin es donante del Fondo para la Infancia y desea brindar esperanza a los pacientes y sus familias en el Hospital Infantil Packard.   <\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">Kaitlin incluso se ha propuesto estudiar en la Facultad de Medicina de la Universidad de Stanford, donde cree que su experiencia como paciente pedi\u00e1trica le ayudar\u00e1 a brindar una atenci\u00f3n compasiva a los dem\u00e1s.   <\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">\u201cGracias al personal tan atento del Hospital Infantil Packard, supe, incluso a los 6 a\u00f1os, que quer\u00eda hacer lo mismo por otras familias\u201d, dice Kaitlin. \u201cMi familia nunca ha tenido una mala experiencia en el Hospital Infantil Packard, y espero que cuando me dedique a la medicina pueda crear el mismo ambiente para la pr\u00f3xima generaci\u00f3n de ni\u00f1os\u201d.  <\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">Nos sentimos honrados de tener a Kaitlin con nosotros como Paciente Hero\u00edna del Programa de Verano de Scamper.<\/p>","protected":false},"excerpt":{"rendered":"<p>Kaitlin, de dieciocho a\u00f1os, ha pasado por m\u00e1s cirug\u00edas de las que nadie deber\u00eda soportar. En 2004, naci\u00f3 con un caso extremadamente raro de s\u00edndrome de bridas amni\u00f3ticas\u2026<\/p>","protected":false},"author":17,"featured_media":15548,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[23],"class_list":["post-15547","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-summer-scamper-heroes"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.3 (Yoast SEO v27.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Meet Kaitlin, your Summer Scamper Patient Hero - Lucile Packard Foundation for Children&#039;s Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/es\/impact-stories\/meet-kaitlin-your-summer-scamper-patient-hero\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Meet Kaitlin, your Summer Scamper Patient Hero\" \/>\n<meta property=\"og:description\" content=\"Eighteen-year-old Kaitlin has experienced more surgeries than anyone should ever withstand. 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