{"id":4081,"date":"2020-02-21T23:48:11","date_gmt":"2020-02-21T23:48:11","guid":{"rendered":"https:\/\/lpfch.org\/you-gave-me-a-future\/"},"modified":"2024-02-14T14:08:10","modified_gmt":"2024-02-14T14:08:10","slug":"you-gave-me-a-future","status":"publish","type":"post","link":"http:\/\/lpfch.org\/es\/impact-stories\/you-gave-me-a-future\/","title":{"rendered":"Me diste un futuro"},"content":{"rendered":"

Hola, Fondo para la Infancia<\/em> \u00a1Donantes! Soy Athena. Tengo casi 16 a\u00f1os y quiero compartir mi historia de c\u00f3mo el Lucile Packard Children's Hospital Stanford, y ustedes, me salvaron la vida.<\/p>\n

Nac\u00ed y crec\u00ed aqu\u00ed, en el \u00c1rea de la Bah\u00eda. Mi familia es, en cierto modo, la t\u00edpica de Silicon Valley. Mis padres son refugiados vietnamitas que huyeron del r\u00e9gimen comunista y se reasentaron en Estados Unidos a principios de los 80. Mi padre (en la foto de arriba) es ingeniero. Mi madre es dentista.<\/p>\n

Nuestra vida transcurri\u00f3 sin incidentes hasta que llegu\u00e9 al cuarto grado.<\/p>\n

Llevamos una vida bastante activa y divertida. Viaj\u00e1bamos mucho y nos encantaba el senderismo, y recuerdo que se me daba bastante bien.<\/p>\n

Un d\u00eda, mientras corr\u00eda durante la clase de educaci\u00f3n f\u00edsica, empec\u00e9 a sentir dolor en el pecho. Ten\u00eda el coraz\u00f3n acelerado y me costaba respirar. Pero segu\u00ed corriendo y no se lo cont\u00e9 a nadie.<\/p>\n

Un a\u00f1o y medio despu\u00e9s, estaba corriendo en la pista del colegio. Esta vez, me desmay\u00e9. Mis padres me llevaron al pediatra, quien no encontr\u00f3 nada anormal. As\u00ed que volv\u00ed a mi rutina.<\/p>\n

Un par de meses despu\u00e9s, me desmay\u00e9 de nuevo. Tras consultar con varios m\u00e9dicos, mi familia recurri\u00f3 al Hospital Infantil Packard en busca de ayuda.<\/p>\n

Mi viaje con los ni\u00f1os Packard<\/h3>\n

Me diagnosticaron una rara afecci\u00f3n card\u00edaca llamada miocardiopat\u00eda restrictiva, en la que el coraz\u00f3n se vuelve r\u00edgido e incapacitado para funcionar correctamente. La Dra. Beth Kaufman y su equipo amablemente guiaron a mi familia durante el diagn\u00f3stico y el tratamiento.<\/p>\n

Desafortunadamente, todav\u00eda no existe cura para esta enfermedad, excepto un trasplante.<\/p>\n

Esto fue un shock total, pero el personal nos gui\u00f3 mientras esperaba un nuevo coraz\u00f3n.<\/p>\n

Una noche de mayo de 2017, cuando estaba en s\u00e9ptimo grado, me despert\u00e9 llorando en medio de la noche. Mis padres entraron corriendo y me encontraron incapaz de hablar ni mover las extremidades. Llamaron al 911. Nuestro hospital local lo diagnostic\u00f3 como un derrame cerebral, pero nunca antes hab\u00edan tratado un derrame cerebral pedi\u00e1trico. Mi pap\u00e1 contact\u00f3 al Packard Children's. Enviaron una ambulancia a recogernos y de inmediato me llevaron a cirug\u00eda para extirpar un co\u00e1gulo. Despu\u00e9s de la cirug\u00eda, pude mover las extremidades derechas y la pierna izquierda de nuevo. Me dieron de alta cinco d\u00edas despu\u00e9s y comenc\u00e9 meses de rehabilitaci\u00f3n en otro hospital.<\/p>\n

Seis meses despu\u00e9s, mi condici\u00f3n empeor\u00f3 y regres\u00e9 al Packard Children's. Mi equipo m\u00e9dico decidi\u00f3 mantenerme hospitalizado mientras esperaba un nuevo coraz\u00f3n. Un mes despu\u00e9s, en diciembre, recib\u00ed un regalo de Navidad adelantado: un coraz\u00f3n sano que me quedaba perfecto.<\/p>\n

Yo era libre (m\u00e1s o menos)<\/h3>\n

Solo pas\u00e9 unos d\u00edas en el hospital despu\u00e9s del trasplante. Era libre. Pero no totalmente libre: estaba atrapado entre medicamentos, medidas de seguridad, mascarillas y, por mucho, lo m\u00e1s importante: el desinfectante de manos. Mi familia y mis m\u00e9dicos me ayudaron a comprender que estas precauciones eran por mi salud, bienestar y felicidad.<\/p>\n

Hoy estoy en casa y en segundo de secundaria. Sigo recibiendo atenci\u00f3n en el Packard Children's, pero dedico mi tiempo libre a bailar, hacer voluntariado con ni\u00f1os con autismo, dar clases particulares en la biblioteca local y ense\u00f1ar m\u00fasica.<\/p>\n

\u00bfQu\u00e9 viene despu\u00e9s?<\/h3>\n

En cuanto al futuro, no tengo un plan definido. Tengo 16 a\u00f1os. Pero lo que s\u00ed s\u00e9 es que tengo un futuro por delante. Tengo tiempo para hacer planes. Ser un ni\u00f1o de cardiolog\u00eda en el hospital me inspir\u00f3 a querer una carrera como cardi\u00f3logo pedi\u00e1trico. Ser un ni\u00f1o de cardiolog\u00eda en el Hospital Infantil Lucile Packard de Stanford me ha inspirado a elegir Stanford como mi primera opci\u00f3n universitaria.<\/p>\n

As\u00ed que, esa es mi historia en tan solo unos p\u00e1rrafos. Pero mi historia no es solo m\u00eda. Es la tuya tambi\u00e9n. Has estado ah\u00ed, entre bastidores.<\/p>\n

Espero que sepan que estoy aqu\u00ed, viva, gracias a su generosidad y compromiso con el hospital. Desde lo m\u00e1s profundo de mi coraz\u00f3n (adoptivo) y el de cientos de familias como la m\u00eda: gracias.<\/p>\n

Este art\u00edculo apareci\u00f3 originalmente en la edici\u00f3n de primavera de 2020 de la revista Actualizaci\u00f3n del Fondo para la Infancia.<\/a><\/em><\/p>\n

Cr\u00e9dito de la fotograf\u00eda: La familia Tran.<\/p>","protected":false},"excerpt":{"rendered":"

\u00a1Hola, donantes del Fondo para la Infancia! Soy Athena. Tengo casi 16 a\u00f1os y quiero compartir mi historia sobre c\u00f3mo el Lucile Packard Children's Hospital Stanford y...<\/p>","protected":false},"author":17,"featured_media":4082,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148,22],"class_list":["post-4081","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news","category-patient-stories","health_topic-heart","health_topic-transplant"],"acf":[],"yoast_head":"\nYou Gave Me a Future - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/es\/impact-stories\/you-gave-me-a-future\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"You Gave Me a Future\" \/>\n<meta property=\"og:description\" content=\"Hi, Children’s Fund donors! 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