Centro Bass para el C\u00e1ncer Infantil y las Enfermedades de la Sangre<\/a>Ubicado en el nuevo quinto piso del Hospital Infantil Lucile Packard de Stanford, Sarah y Hayden son conocidos como Mamasaurus y Haydensaurus, y tienen camisetas para demostrarlo, cortes\u00eda del personal.<\/p>\n\u201cTenemos tres hijos y, hasta el a\u00f1o pasado, ni siquiera hab\u00edamos ido a urgencias. La enfermedad m\u00e1s grave que hab\u00edamos tenido era conjuntivitis\u201d, dice Sarah.<\/p>\n
En septiembre de 2019, Hayden se puso amarillo. Ten\u00eda ictericia severa y su h\u00edgado estaba fallando. Lo derivaron al Hospital Infantil Packard, donde le diagnosticaron hepatitis autoinmune. Los hepat\u00f3logos lo incluyeron de inmediato en la lista de espera para un trasplante de h\u00edgado, pero afortunadamente no lo necesit\u00f3. Nuevos medicamentos ayudaron a que su h\u00edgado sanara y le dieron el alta.<\/p>\n
Sin embargo, la primavera pasada, al comienzo de la pandemia, Hayden desarroll\u00f3 anemia apl\u00e1sica grave, una enfermedad rara en la que el cuerpo deja de producir suficientes c\u00e9lulas sangu\u00edneas nuevas. La anemia apl\u00e1sica afecta a una de cada 20\u00a0000 personas al a\u00f1o en Estados Unidos. La insuficiencia hep\u00e1tica puede desencadenarla en ni\u00f1os.<\/p>\n
\u201cLa anemia apl\u00e1sica es rara, pero todo lo que tratamos es raro; as\u00ed que, desde nuestro punto de vista aqu\u00ed en el Centro Bass, no es rara\u201d, dice Ami Shah, MD, hemat\u00f3logo-onc\u00f3logo.<\/p>\n
Recibir un tratamiento con c\u00e9lulas madre durante una pandemia<\/h3>\n
Hayden regres\u00f3 al Centro Bass, que ofrece a las familias esperanza de recibir tratamiento para el c\u00e1ncer y las enfermedades de la sangre en casos donde antes hab\u00eda muy poca. El tratamiento para la anemia apl\u00e1sica consiste en terapia inmunosupresora y medicamentos, y, si esto no funciona, un trasplante de c\u00e9lulas madre.<\/p>\n
\u201cLa COVID-19 no nos ha frenado en absoluto. De hecho, estamos m\u00e1s ocupados que nunca\u201d, afirma el Dr. Shah. \u201cEl personal se ha volcado para afrontar el doble reto de estar extraordinariamente ocupados durante la pandemia\u201d. <\/p>\n
La unidad de trasplante de c\u00e9lulas madre, de reciente creaci\u00f3n y con 24 camas, trata enfermedades raras y antes intratables mediante trasplantes de c\u00e9lulas madre tanto convencionales como experimentales. Este oto\u00f1o, el Hospital Infantil Packard celebr\u00f3 su trasplante n\u00famero 1000 de c\u00e9lulas madre pedi\u00e1trico.<\/p>\n
\u201cA veces, nuestros pacientes son los \u00fanicos uno o dos en el mundo con una enfermedad en particular, por lo que nos unimos para pensar cr\u00edticamente, investigar e innovar para ofrecer tratamientos y curas de vanguardia\u201d, dice el Dr. Shah.<\/p>\n
Cuando los niveles de c\u00e9lulas sangu\u00edneas de Hayden no mejoraron, lo incluyeron en la lista de espera para un trasplante de c\u00e9lulas madre y de inmediato le asignaron tres donantes no emparentados. Pero la pandemia cambi\u00f3 el funcionamiento del proceso de trasplante.<\/p>\n
\u201cLos tres donantes se retiraron, algo que nunca me hab\u00eda sucedido como m\u00e9dico. Con la COVID-19, la gente, con raz\u00f3n, desconf\u00eda de estar cerca de personas enfermas en un hospital. Normalmente, podr\u00edamos buscar donantes fuera de Estados Unidos, pero con las restricciones de viaje, esa opci\u00f3n no era viable\u201d, afirma el Dr. Shah.<\/p>\n
Hayden volvi\u00f3 a tomar medicamentos hasta que se encontraran nuevos donantes. El Dr. Shah prepar\u00f3 a dos donantes simult\u00e1neamente, por si alguno contra\u00eda COVID-19. El 29 de octubre de 2020, Hayden se someti\u00f3 a un trasplante de c\u00e9lulas madre.<\/p>\n
\u201cAprendimos que Stanford siempre tiene un plan A y un plan B en marcha simult\u00e1neamente. Nos impresion\u00f3 mucho el nivel de atenci\u00f3n que recibimos y solo tenemos cosas positivas que decir sobre nuestra experiencia\u201d, dice Sarah. \u201cNos sentimos muy queridos y cuidados. Todos, desde los m\u00e9dicos, enfermeras y especialistas en desarrollo infantil hasta los trabajadores sociales y terapeutas, fueron incre\u00edbles\u201d.<\/p>\n
El 19 de noviembre de 2020, Hayden fue dado de alta del hospital. \u00c9l y su madre permanecen cerca para poder acudir al Centro Bass a realizarse pruebas peri\u00f3dicas y controlar el estado de su h\u00edgado y la evoluci\u00f3n de su recuento de plaquetas.<\/p>\n
\u201cSu recuento de plaquetas era de 127 pocas semanas despu\u00e9s del trasplante y sigue aumentando\u201d, dice Sarah. \u201cLo normal es 150, as\u00ed que con estos n\u00fameros, \u00a1no me lo creo!\u201d.<\/p>\n
El h\u00edgado de Hayden tiene buen aspecto y sus m\u00e9dicos son cautelosamente optimistas.<\/p>\n
\u201cSi las cosas siguen as\u00ed, este es un tratamiento curativo para Hayden\u201d, dice el Dr. Shah.<\/p>\n
La pandemia no empa\u00f1a la magia del quinto piso.<\/h3>\n
Hayden se sinti\u00f3 como en casa en el quinto piso, donde cebras, elefantes, jirafas y otros animales de safari te dan la bienvenida. Su amor por los animales no se limita a los dinosaurios. Le encantan todo tipo de animales, reptiles, aves e insectos.<\/p>\n
\u201cTenemos una nueva y fant\u00e1stica \u00e1rea de juegos para nuestros pacientes de c\u00e9lulas madre, pero est\u00e1 cerrada debido a la pandemia. Todos colaboraron y se pusieron creativos para mantener a los ni\u00f1os entretenidos y felices de nuevas maneras\u201d, dice el Dr. Shah.<\/p>\n
Los especialistas en desarrollo infantil ofrecieron un taller para hacer slime, donde Hayden y otros ni\u00f1os recibieron kits para preparar la masa juntos virtualmente desde la seguridad de sus habitaciones. El equipo se esforz\u00f3 por jugar y realizar actividades divertidas con Hayden. El Dr. Shah lo ret\u00f3 a buscar historias tradicionales indias sobre Diwali, lo cual hizo con gusto.<\/p>\n
\u201cSus m\u00e9dicos y enfermeras le trajeron a Hayden im\u00e1genes de sus animales favoritos, como perezosos, dinosaurios y serpientes. Saben que es inteligente, as\u00ed que lo desafiaron a encontrar respuestas a preguntas relacionadas con animales\u201d, dice Sarah.<\/p>\n
La COVID-19 no ha interrumpido la tradici\u00f3n del Centro Bass de despedir a los ni\u00f1os con una gran fiesta al salir del hospital. Hay globos, serpentinas, burbujas y matracas. Todo el personal firma una tarjeta grande, expresando su apoyo. Con mascarillas, se alinean en los pasillos y vitorean y bailan al ritmo de la canci\u00f3n favorita del ni\u00f1o mientras este sale. Como era de esperar, Hayden eligi\u00f3 una canci\u00f3n con tem\u00e1tica animal: \u00abWho Let the Dogs Out\u00bb, de Baha Men.<\/p>\n
\u201cFue algo muy especial. Salir del hospital marc\u00f3 un gran hito\u201d, dice Sarah. \u201cEs agridulce porque te encari\u00f1as con todos y esperas no volver a verlos, pero son como de la familia\u201d.<\/p>\n
Hace poco, Hayden recibi\u00f3 autorizaci\u00f3n para usar juguetes con ruedas. Su pap\u00e1, Jeff, lo sorprendi\u00f3 con un patinete. Pronto, Hayden y Sarah volver\u00e1n a casa, donde podr\u00e1 retomar la rutina de gastar bromas con su hermana Angela, de 9 a\u00f1os, y jugar con Lego con su hermanito Colton, de 2. Hayden los ha extra\u00f1ado mucho, ya que no les permit\u00edan visitarlo en el hospital debido a la COVID-19. Sin embargo, irse no es f\u00e1cil.<\/p>\n
\u2014No quiero ir \u2014dice Hayden\u2014. Me caen bien mis amigos del hospital.<\/p>","protected":false},"excerpt":{"rendered":"
Hayden, de 7 a\u00f1os, esboza una sonrisa ir\u00f3nica mientras se acurruca contra su madre, Sarah, y hace que sus dinosaurios de peluche realicen acrobacias sobre su cuerpo\u2026.<\/p>","protected":false},"author":17,"featured_media":4182,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[22],"class_list":["post-4181","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories","health_topic-pediatric-cancer","health_topic-transplant"],"acf":[],"yoast_head":"\n
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