{"id":22789,"date":"2025-03-06T13:44:55","date_gmt":"2025-03-06T21:44:55","guid":{"rendered":"https:\/\/lpfch.org\/?p=22789"},"modified":"2026-02-03T16:01:22","modified_gmt":"2026-02-04T00:01:22","slug":"mikayla-7-san-francisco","status":"publish","type":"post","link":"http:\/\/lpfch.org\/tl\/impact-stories\/mikayla-7-san-francisco\/","title":{"rendered":"Kilalanin ang Iyong Bayani ng Pasyenteng Scamper sa Tag-init 2025: Mikayla, 7, San Francisco"},"content":{"rendered":"
Tala ng editor: Pinarangalan si Mikayla sa 2025 Summer Scamper bilang isa sa ating mga Bayani ng Pasyente.<\/i><\/span><\/div>\n
<\/div>\n
Artista, siklista, at nakatanggap ng transplant ng puso<\/div>\n
\n

Ang paglalakbay ng pitong taong gulang na si Mikayla ay nagkaroon ng malaking pagbabago sa kanyang buhay mga tatlong taon na ang nakalilipas. Naalala ng kanyang ina, si Stephanie, na sa unang apat na taon, si Mikayla ay tila malusog, walang anumang senyales ng mga problema sa puso. Ngunit sa isang regular na pagsusuri sa COVID sa edad na 4, nakita ng pediatrician ni Mikayla ang isang heart murmur. Hindi masyadong nag-alala ang doktor ngunit ipinadala sila sa isang cardiologist sa Stanford Medicine Children's Health para sa karagdagang pagsusuri.<\/span>\u00a0<\/span><\/p>\n

\u201cHindi ko inisip na ito ay isang malaking bagay, dahil tiniyak sa akin ng kanyang doktor na maraming tao ang ipinanganak na may mga bulungan,\u201d ang paggunita ni Stephanie. "Nagtrabaho pa ako noong araw na iyon, at dinala siya ng aking asawang si Mike sa doktor. At pagkatapos ay bigla akong nakatanggap ng tawag sa FaceTime, at ito ay ang cardiologist. Sinabi niya sa akin na si Mikayla ay may restrictive cardiomyopathy. Ang aking anak na babae ay mangangailangan ng isang transplant ng puso sa kalaunan upang mabuhay. Agad akong naiyak."<\/span>\u00a0<\/span><\/p>\n

Ang restrictive cardiomyopathy ay isang bihirang kondisyon na nagiging sanhi ng paninigas ng mga kalamnan ng puso at paghihigpit sa daloy ng dugo. Ang kondisyon sa puso ni Mikayla ay resulta ng isang genetic mutation, na nauugnay sa MYH7 gene. Ang mga sintomas, tulad ng hirap sa paghinga at pagkapagod, na napansin ng pamilya ngunit hindi nauugnay, ay ngayon ay naging makatwiran na.<\/span>\u00a0<\/span><\/p>\n

Isinugod si Mikayla sa Lucile Packard Children's Hospital Stanford, kung saan kinumpirma ng mga doktor ang kanyang diagnosis at agad na kumilos. Ikinonekta siya ng team sa isang Berlin Heart, isang mekanikal na aparato na tumutulong sa pagpapaagos ng dugo kapag masyadong mahina ang puso. Bagama't nagbigay ito ng tulong kay Mikayla, nakulong din siya sa ospital dahil sa limitadong paggalaw, na mahirap para sa isang batang bata.<\/span>\u00a0<\/span><\/p>\n

"Ang mahigpit na cardiomyopathy ay isang isa-sa-isang-milyong kondisyon," sabi ni Stephanie. "Ito ang pinakabihirang uri ng cardiomyopathy, ngunit nakilala na namin ang dalawa pang bata na mayroon din nito at nakarating na sa Packard Children's."<\/span>\u00a0<\/span><\/p>\n

Sa Betty Irene Moore Children's Heart Center sa Stanford, isang nangunguna sa mga pediatric heart transplant, nakatanggap si Mikayla ng espesyal na pangangalaga mula sa isang pangkat na kilala sa mga resulta nito. Bilang bahagi ng programang Pediatric Advanced Cardiac Therapies (PACT), ang pangangalaga kay Mikayla ay maayos, sumasaklaw sa lahat ng aspeto ng kanyang paggamot, mula sa diagnosis hanggang sa kanyang transplant at paggaling.<\/span>\u00a0<\/span><\/p>\n

Isang mahalagang bahagi ng emosyonal na suporta kay Mikayla ay nagmula kay Christine Tao, isang espesyalista sa buhay ng bata. Gumamit si Christine ng paglalaro, mga pamamaraan ng distraction, at art therapy upang matulungan si Mikayla na makayanan ang mga medikal na pamamaraan. Mabilis na naging malapit si Mikayla kay Christine, na gumanap ng mahalagang papel sa mga mahihirap na sandali, kabilang na noong kinailangang sumailalim si Mikayla sa operasyon at mga pamamaraan.<\/span>\u00a0<\/span><\/p>\n

\u201cNang kailanganin ni Mikayla na sumailalim sa isang procedure, hindi na kami makakabalik sa surgery center kasama siya, pero kaya ni Christine,\u201d paggunita ni Stephanie. \u201cNapagtanto ko noon kung gaano kahalaga si Christine\u2014pumupunta siya sa hindi namin kaya at binibigyan niya ng suporta at distraction si Mikayla, kaya hindi siya natakot.\u201d<\/span>\u00a0<\/span><\/p>\n

Labis ang pasasalamat ni Stephanie kay Christine kaya't hinirang niya ito bilang isang\u00a0<\/span>Bayani ng Ospital<\/a>.<\/p>\n

Noong Hunyo 9, 2023, pagkatapos ng ilang buwan ng paghihintay, nakatanggap ang pamilya ng tawag na may available na heart transplant. Pagkalipas ng dalawang araw, sumailalim si Mikayla sa kanyang heart transplant, at kahanga-hanga ang kanyang paggaling. Isang linggo lamang pagkatapos ng operasyon, nakalabas na siya sa intensive care unit at nakauwi pagsapit ng kalagitnaan ng Hulyo.<\/span>\u00a0<\/span><\/p>\n

Sinabi ng lahat, pagkatapos ng iba't ibang mga hadlang, isang hemorrhagic stroke, at dalawang open-heart surgeries, kasama ang kanyang transplant, si Mikayla ay gumugol ng 111 araw sa Packard Children's Hospital. Patuloy niyang nakikita ang team para sa pagsubaybay upang matiyak na maganda ang tibok ng kanyang bagong puso sa loob niya nang may kaunting komplikasyon.<\/span>\u00a0<\/span><\/p>\n

\u201cNakakatuwang makita kung gaano kahusay ang kalagayan ni Mikayla,\u201d sabi ni Seth Hollander, MD, direktor medikal ng Heart Transplant Program. \u201cBagama't kakailanganin niyang uminom ng mga gamot upang maiwasan ang pagtanggi at magpatingin sa aming mga dalubhasang cardiologist sa buong buhay niya, maaari niyang asahan na mabubuhay siya nang may kaunting mga paghihigpit. Maaari siyang pumasok sa paaralan, maglaro, maglakbay, at masiyahan sa oras kasama ang kanyang mga kaibigan at pamilya.\u201d<\/span>\u00a0<\/span><\/p>\n

Ngayong taon, si Mikayla ay magiging<\/span>\u00a0pinarangalan bilang isang\u00a0<\/span>Summer Scamper Patient Hero sa 5k, fun run para sa mga bata, at Family Festival\u00a0<\/span>sa\u00a0<\/span>Sabado, Hunyo 21, na kumikilala sa kanyang tapang at lakas sa buong paglalakbay niya.<\/span>\u00a0<\/span><\/p>\n

Sa ngayon, si Mikayla, na ngayon ay nasa unang baitang, ay nasisiyahan sa pagsakay sa kanyang scooter at pagbibisikleta, pagkanta, pagsayaw, at paggawa ng mga gawang-kamay. Kamakailan lamang, isinama nina Stephanie at Mike si Mikayla sa bakasyon sa unang pagkakataon simula nang ma-diagnose siya na may sakit, at ito ay isang masayang okasyon.<\/span>\u00a0<\/span><\/p>\n

\u201cHindi ko alam kung ano ang gagawin namin kung wala ang lahat ng pangangalaga at suporta na natanggap namin mula sa koponan ng Stanford,\u201d sabi ni Stephanie. "Lahat sila ay kamangha-mangha. Hindi ko talaga alam kung ano ang mangyayari kung wala sila, at hindi lamang ang pangangalaga ni Mikayla\u2014nalampasan din nila kami sa mga emosyonal na hamon."<\/span>\u00a0<\/span><\/p>\n

Taglay ang bagong puso at optimistikong kinabukasan, si Mikayla ay may mga pangarap na mas malaki kaysa dati. Nang tanungin kung ano ang gusto niyang maging paglaki niya, hindi nag-atubiling sumagot si Mikayla: \u201cGusto kong maging doktor sa Stanford!\u201d<\/span>\u00a0<\/span><\/p>\n

Dahil sa nagliligtas-buhay na pangangalaga sa Lucile Packard Children's Hospital, umuunlad si Mikayla, at bukas ang kanyang kinabukasan.<\/span>\u00a0<\/span><\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

Tala ng editor: Pinarangalan si Mikayla sa 2025 Summer Scamper bilang isa sa ating mga Patient Heroes. Ang pitong taong gulang na si Mikayla ay artista, scooter rider, at nakatanggap ng heart transplant...<\/p>","protected":false},"author":16,"featured_media":22790,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[22,23],"class_list":["post-22789","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories","category-summer-scamper-heroes","health_topic-heart"],"acf":[],"yoast_head":"\nMeet Your 2025 Summer Scamper Patient Hero: Mikayla, 7, San Francisco - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/tl\/impact-stories\/mikayla-7-san-francisco\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Meet Your 2025 Summer Scamper Patient Hero: Mikayla, 7, San Francisco\" \/>\n<meta property=\"og:description\" content=\"Editor’s note: Mikayla was honored at the 2025 Summer Scamper as one of our Patient Heroes. 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