{"id":15531,"date":"2019-04-10T19:44:31","date_gmt":"2019-04-10T19:44:31","guid":{"rendered":"https:\/\/lpfch.org\/meet-kruz-and-paizlee-your-summer-scamper-patient-heroes\/"},"modified":"2019-04-10T19:44:31","modified_gmt":"2019-04-10T19:44:31","slug":"meet-kruz-and-paizlee-your-summer-scamper-patient-heroes","status":"publish","type":"post","link":"http:\/\/lpfch.org\/vi\/impact-stories\/meet-kruz-and-paizlee-your-summer-scamper-patient-heroes\/","title":{"rendered":"G\u1eb7p g\u1ee1 Kruz v\u00e0 Paizlee, nh\u1eefng anh h\u00f9ng b\u1ec7nh nh\u00e2n m\u00f9a h\u00e8 c\u1ee7a b\u1ea1n"},"content":{"rendered":"<p class=\"\" data-rte-preserve-empty=\"true\" style=\"white-space:pre-wrap;\">\n<p class=\"\" style=\"white-space:pre-wrap;\">B\u1ea1n c\u00f3 nghe th\u1ea5y kh\u00f4ng? \u0110\u00f3 l\u00e0 ti\u1ebfng reo h\u00f2 c\u1ee7a h\u00e0ng ng\u00e0n ng\u01b0\u1eddi t\u1eeb Alabama c\u1ed5 v\u0169 Kruz v\u00e0 Paizlee. H\u1ecd c\u00f3 m\u1ed9t c\u1ed9ng \u0111\u1ed3ng ng\u01b0\u1eddi h\u00e2m m\u1ed9 cu\u1ed3ng nhi\u1ec7t \u1edf qu\u00ea nh\u00e0, v\u00e0 kh\u00f4ng kh\u00f3 \u0111\u1ec3 nh\u1eadn ra h\u1ecd \u0111\u00e3 truy\u1ec1n c\u1ea3m h\u1ee9ng cho bi\u1ebft bao ng\u01b0\u1eddi xa l\u1ea1 c\u00f9ng nhau v\u00ec m\u1ed9t m\u1ee5c ti\u00eau chung.&nbsp;<\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">Hai anh ch\u1ecb em n\u00e0y l\u00e0 hai trong s\u1ed1 n\u0103m tr\u1ebb em \u1edf Hoa K\u1ef3 m\u1eafc ch\u1ee9ng lo\u1ea1n s\u1ea3n x\u01b0\u01a1ng mi\u1ec5n d\u1ecbch Schimke (SIOD), m\u1ed9t r\u1ed1i lo\u1ea1n \u0111a h\u1ec7 th\u1ed1ng di truy\u1ec1n theo ki\u1ec3u l\u1eb7n nhi\u1ec5m s\u1eafc th\u1ec3 th\u01b0\u1eddng. SIOD \u1ea3nh h\u01b0\u1edfng \u0111\u1ebfn c\u01a1 th\u1ec3 theo nhi\u1ec1u c\u00e1ch, bao g\u1ed3m suy th\u1eadn, h\u1ec7 mi\u1ec5n d\u1ecbch suy y\u1ebfu v\u00e0 lo\u1ea1n s\u1ea3n x\u01b0\u01a1ng h\u00f4ng.<\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">\u201cKh\u1ea3 n\u0103ng c\u1ea3 Kruz v\u00e0 Paizlee \u0111\u1ec1u m\u1eafc SIOD l\u00e0 1\/80 tri\u1ec7u\u201d, m\u1eb9 c\u1ee7a hai b\u00e9, Jessica, chia s\u1ebb. C\u00f4 v\u00e0 ch\u1ed3ng, Kyle, \u0111\u00e3 t\u1ea1m th\u1eddi chuy\u1ec3n gia \u0111\u00ecnh t\u1eeb Muscle Shoals \u0111\u1ebfn Palo Alto \u0111\u1ec3 c\u00e1c con \u0111\u01b0\u1ee3c ch\u0103m s\u00f3c t\u1ed1t nh\u1ea5t v\u00e0 c\u00f3 c\u01a1 h\u1ed9i cho m\u1ed9t t\u01b0\u01a1ng lai t\u01b0\u01a1i s\u00e1ng h\u01a1n. H\u1ecd \u0111\u00e3 x\u00e2y d\u1ef1ng m\u1ed1i quan h\u1ec7 ch\u1eb7t ch\u1ebd v\u1edbi c\u00e1c nh\u00e0 nghi\u00ean c\u1ee9u t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard v\u00e0 kh\u00f4ng ng\u1eebng n\u1ed7 l\u1ef1c g\u00e2y qu\u1ef9 cho nghi\u00ean c\u1ee9u SIOD.&nbsp;<\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">\u201cCh\u00fang t\u00f4i n\u1ed7 l\u1ef1c m\u1ed7i ng\u00e0y kh\u00f4ng ch\u1ec9 \u0111\u1ec3 mang l\u1ea1i cho Kruz v\u00e0 Paizlee m\u1ed9t cu\u1ed9c s\u1ed1ng \u0111\u1ea7y h\u1ee9a h\u1eb9n m\u00e0 c\u00f2n \u0111\u1ec3 mang \u0111\u1ebfn cho nh\u1eefng \u0111\u1ee9a tr\u1ebb kh\u00e1c tr\u00ean to\u00e0n th\u1ebf gi\u1edbi m\u1ed9t c\u01a1 h\u1ed9i,\u201d Jessica n\u00f3i. \u201cVi\u1ec7c ti\u1ebfp t\u1ee5c t\u00e0i tr\u1ee3 l\u00e0 v\u00f4 c\u00f9ng quan tr\u1ecdng \u0111\u1ed1i v\u1edbi m\u1ed9t c\u0103n b\u1ec7nh c\u1ef1c k\u1ef3 hi\u1ebfm g\u1eb7p nh\u01b0 v\u1eady. S\u1ef1 h\u1ed7 tr\u1ee3 c\u1ee7a c\u00e1c b\u1ea1n \u0111\u00e3 c\u1ee9u s\u1ed1ng nh\u1eefng sinh m\u1ea1ng qu\u00fd gi\u00e1.\u201d<\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">V\u00ec SIOD d\u1eabn \u0111\u1ebfn suy th\u1eadn, Kruz v\u00e0 Paizlee s\u1ebd \u0111\u01b0\u1ee3c gh\u00e9p th\u1eadn t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard. Hi\u1ec7n t\u1ea1i, Kruz \u0111ang ch\u1ea1y th\u1eadn nh\u00e2n t\u1ea1o v\u00e0 Paizlee \u0111ang \u0111\u01b0\u1ee3c \u0111\u1ed9i ng\u0169 chuy\u00ean khoa th\u1eadn c\u1ee7a ch\u00fang t\u00f4i theo d\u00f5i v\u00e0 \u0111i\u1ec1u tr\u1ecb. M\u1ed9t c\u00e1ch kh\u00e1c \u0111\u1ec3 SIOD bi\u1ec3u hi\u1ec7n l\u00e0 s\u1ef1 thi\u1ebfu h\u1ee5t t\u1ebf b\u00e0o T, d\u1eabn \u0111\u1ebfn h\u1ec7 mi\u1ec5n d\u1ecbch suy y\u1ebfu. Kruz g\u1ea7n \u0111\u00e2y l\u00e0 b\u1ec7nh nh\u00e2n SIOD \u0111\u1ea7u ti\u00ean \u0111\u01b0\u1ee3c gh\u00e9p t\u1ebf b\u00e0o g\u1ed1c t\u1ea1o m\u00e1u \u0111\u1ed3ng lo\u1ea1i. Paizlee \u0111ang \u0111\u01b0\u1ee3c \u0111\u00e1nh gi\u00e1 \u0111\u1ec3 gh\u00e9p t\u1ebf b\u00e0o g\u1ed1c. Trong t\u01b0\u01a1ng lai, hai anh em c\u0169ng s\u1ebd c\u1ea7n ph\u1eabu thu\u1eadt t\u00e1i t\u1ea1o kh\u1edbp h\u00e1ng \u0111\u1ec3 \u0111i\u1ec1u tr\u1ecb lo\u1ea1n s\u1ea3n.<\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">\u201cStanford v\u00e0 Ti\u1ebfn s\u0129 David Lewis \u0111\u00e3 r\u1ea5t vui l\u00f2ng ti\u1ebfp nh\u1eadn nghi\u00ean c\u1ee9u SIOD v\u00e0o n\u0103m 2017, nh\u1edd \u0111\u00f3 ch\u00fang t\u00f4i \u0111\u01b0\u1ee3c g\u1eb7p g\u1ee1 nh\u1eefng b\u00e1c s\u0129 tuy\u1ec7t v\u1eddi, nh\u1eefng ng\u01b0\u1eddi hi\u1ec7n l\u00e0 \u0111\u1ed9i ng\u0169 gh\u00e9p t\u1ebf b\u00e0o g\u1ed1c v\u00e0 gh\u00e9p th\u1eadn c\u1ee7a ch\u00fang t\u00f4i. Ti\u1ebfn s\u0129 Lewis (chuy\u00ean khoa mi\u1ec5n d\u1ecbch h\u1ecdc) v\u00e0 Ti\u1ebfn s\u0129 Bertania (chuy\u00ean khoa gh\u00e9p t\u1ebf b\u00e0o g\u1ed1c) \u0111\u00e3 d\u00e0nh r\u1ea5t nhi\u1ec1u th\u1eddi gian cho gia \u0111\u00ecnh ch\u00fang t\u00f4i, gi\u1ea3i th\u00edch t\u1eebng chi ti\u1ebft \u0111\u1ec3 \u0111\u1ea3m b\u1ea3o ch\u00fang t\u00f4i c\u1ea3m th\u1ea5y tho\u1ea3i m\u00e1i. Ch\u00fang t\u00f4i c\u1ea3m th\u1ea5y may m\u1eafn khi c\u00f3 Kruz v\u00e0 Paizlee t\u1ea1i c\u01a1 s\u1edf ch\u0103m s\u00f3c t\u1ed1t nh\u1ea5t th\u1ebf gi\u1edbi.\u201d<\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">L\u00e0 nh\u1eefng anh ch\u1ecb em \u0111\u1ea7u ti\u00ean m\u1eafc SIOD tr\u00ean c\u1ea3 n\u01b0\u1edbc, h\u1ecd \u0111\u00e3 tr\u1edf th\u00e0nh \u0111\u1ea1i s\u1ee9 cho c\u0103n b\u1ec7nh n\u00e0y v\u00e0 chia s\u1ebb kinh nghi\u1ec7m c\u1ee7a m\u00ecnh th\u00f4ng qua qu\u1ef9 Kruzn for a Kure c\u1ee7a gia \u0111\u00ecnh. \u201cQu\u1ef9 Kruzn for a Kure \u0111ang cung c\u1ea5p kinh ph\u00ed nghi\u00ean c\u1ee9u c\u1ee9u s\u1ed1ng \u0111\u1ec3 gi\u00fap nh\u1eefng \u0111\u1ee9a tr\u1ebb n\u00e0y c\u00f3 \u0111\u01b0\u1ee3c k\u1ebf ho\u1ea1ch \u0111i\u1ec1u tr\u1ecb v\u00e0 c\u01a1 h\u1ed9i s\u1ed1ng l\u00e2u h\u01a1n. L\u1ea7n \u0111\u1ea7u ti\u00ean, nghi\u00ean c\u1ee9u v\u1ec1 SIOD t\u1ea1i Stanford c\u00f3 c\u01a1 h\u1ed9i \u0111\u1ea7y h\u1ee9a h\u1eb9n \u0111\u1ec3 th\u1ef1c s\u1ef1 ch\u1eefa kh\u1ecfi c\u0103n b\u1ec7nh nan y n\u00e0y. Ch\u00fang t\u00f4i v\u00f4 c\u00f9ng bi\u1ebft \u01a1n c\u00e1c nh\u00e0 t\u00e0i tr\u1ee3 \u0111\u00e3 h\u1ed7 tr\u1ee3 Kruz, Paizlee v\u00e0 nh\u1eefng tr\u1ebb em kh\u00e1c m\u1eafc SIOD.\u201d<\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">V\u00e0 ch\u00fang t\u00f4i c\u0169ng v\u00f4 c\u00f9ng bi\u1ebft \u01a1n. Nh\u1eefng ng\u01b0\u1eddi \u1ee7ng h\u1ed9 Kruz v\u00e0 Paizlee l\u00ean \u0111\u1ebfn h\u00e0ng ng\u00e0n ng\u01b0\u1eddi, v\u00e0 ch\u00fang t\u00f4i r\u1ea5t vinh d\u1ef1 khi c\u00f3 r\u1ea5t nhi\u1ec1u b\u1ea1n \u0111\u1ed3ng h\u00e0nh c\u00f9ng ch\u00fang t\u00f4i t\u1eeb xa!&nbsp;<\/p>\n<p>Kruz v\u00e0 Paizlee l\u00e0 #WhyWeScamper.<\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\"><a href=\"https:\/\/my.supportlpch.org\/event\/the-9th-annual-summer-scamper\/e223403?utm_source=WebsiteScamper&amp;utm_medium=Home&amp;utm_content=topnav&amp;utm_campaign=2019ScamperReg&amp;c_src=WebsiteScamper&amp;c_src2=Home-topnav-2019ScamperReg&amp;_ga=2.218812954.2073933834.1553146566-952074517.1550343012\" target=\"_blank\" rel=\"noopener\">\u0110\u0103ng k\u00fd Scamper<\/a>&nbsp;v\u00e0 h\u1ed7 tr\u1ee3 ch\u0103m s\u00f3c, an \u1ee7i v\u00e0 ch\u1eefa tr\u1ecb cho nhi\u1ec1u tr\u1ebb em nh\u01b0 Kruz v\u00e0 Paizlee.<\/p>","protected":false},"excerpt":{"rendered":"<p>B\u1ea1n c\u00f3 nghe th\u1ea5y kh\u00f4ng? \u0110\u00f3 l\u00e0 ti\u1ebfng reo h\u00f2 c\u1ee7a h\u00e0ng ng\u00e0n ng\u01b0\u1eddi t\u1eeb Alabama c\u1ed5 v\u0169 cho Kruz v\u00e0 Paizlee. H\u1ecd th\u1eadt l\u00e0\u2026<\/p>","protected":false},"author":17,"featured_media":15532,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[23],"class_list":["post-15531","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-summer-scamper-heroes"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.3 (Yoast SEO v27.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Meet Kruz and Paizlee, your Summer Scamper Patient Heroes - Lucile Packard Foundation for Children&#039;s Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lpfch.org\/vi\/impact-stories\/meet-kruz-and-paizlee-your-summer-scamper-patient-heroes\/\" \/>\n<meta property=\"og:locale\" content=\"vi_VN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Meet Kruz and Paizlee, your Summer Scamper Patient Heroes\" \/>\n<meta property=\"og:description\" content=\"Do you hear that? That\u2019s the sound of thousands of people cheering on Kruz and Paizlee all the way from Alabama. 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