{"id":17489,"date":"2024-06-12T22:56:11","date_gmt":"2024-06-12T22:56:11","guid":{"rendered":"https:\/\/lpfch.org\/?p=17489"},"modified":"2024-08-27T20:35:25","modified_gmt":"2024-08-27T20:35:25","slug":"neuroimmune-foundation-fuels-pans-research-at-stanford-and-beyond","status":"publish","type":"post","link":"http:\/\/lpfch.org\/vi\/impact-stories\/neuroimmune-foundation-fuels-pans-research-at-stanford-and-beyond\/","title":{"rendered":"Qu\u1ef9 Neuroimmune th\u00fac \u0111\u1ea9y nghi\u00ean c\u1ee9u PANS t\u1ea1i Stanford v\u00e0 h\u01a1n th\u1ebf n\u1eefa"},"content":{"rendered":"<p><span data-contrast=\"auto\">\u0110\u1ed1i v\u1edbi tr\u1ebb em m\u1eafc PANS (H\u1ed9i ch\u1ee9ng Th\u1ea7n kinh T\u00e2m th\u1ea7n Kh\u1edfi ph\u00e1t C\u1ea5p t\u00ednh Nhi khoa), cu\u1ed9c s\u1ed1ng c\u00f3 th\u1ec3 thay \u0111\u1ed5i ch\u1ec9 sau m\u1ed9t \u0111\u00eam. PANS, m\u1ed9t t\u00ecnh tr\u1ea1ng s\u1ee9c kh\u1ecfe h\u00e0nh vi mi\u1ec5n d\u1ecbch, th\u01b0\u1eddng \u0111\u01b0\u1ee3c bi\u1ec3u hi\u1ec7n b\u1eb1ng s\u1ef1 kh\u1edfi ph\u00e1t \u0111\u1ed9t ng\u1ed9t c\u00e1c tri\u1ec7u ch\u1ee9ng th\u1ea7n kinh t\u00e2m th\u1ea7n suy nh\u01b0\u1ee3c - m\u1ed9t s\u1ef1 thay \u0111\u1ed5i \u0111\u00e1ng s\u1ee3 v\u00e0 \u0111\u00e1ng s\u1ee3 \u0111\u1ed1i v\u1edbi b\u1ec7nh nh\u00e2n v\u00e0 gia \u0111\u00ecnh h\u1ecd. Tuy nhi\u00ean, m\u1eb7c d\u00f9 c\u1ea7n \u0111\u01b0\u1ee3c ch\u0103m s\u00f3c kh\u1ea9n c\u1ea5p, v\u1eabn c\u00f2n r\u1ea5t nhi\u1ec1u r\u00e0o c\u1ea3n. Th\u1ee9 nh\u1ea5t, b\u1ec7nh c\u00f3 th\u1ec3 kh\u00f3 ch\u1ea9n \u0111o\u00e1n. Th\u1ee9 hai, kho\u1ea3ng c\u00e1ch v\u1ec1 tr\u00ecnh \u0111\u1ed9 h\u1ecdc v\u1ea5n l\u00e0 ph\u1ed5 bi\u1ebfn do c\u00e1c b\u00e1c s\u0129 l\u00e2m s\u00e0ng ch\u1eadm tr\u1ec5 so v\u1edbi nh\u1eefng ti\u1ebfn b\u1ed9 trong nghi\u00ean c\u1ee9u PANS, v\u1ed1n \u0111\u00e3 ph\u00e1t tri\u1ec3n m\u1ea1nh m\u1ebd trong th\u1eadp k\u1ef7 qua. K\u1ebft qu\u1ea3 l\u00e0, c\u00e1c gia \u0111\u00ecnh th\u01b0\u1eddng ph\u1ea3i \u0111\u1ed1i m\u1eb7t v\u1edbi s\u1ef1 ho\u00e0i nghi v\u00e0 nh\u1eefng th\u00e1ch th\u1ee9c \u0111\u00e1ng k\u1ec3 khi t\u00ecm ki\u1ebfm s\u1ef1 ch\u0103m s\u00f3c c\u00f3 hi\u1ec3u bi\u1ebft. May m\u1eafn thay, b\u1ed1i c\u1ea3nh \u0111ang thay \u0111\u1ed5i, nh\u1edd nh\u1eefng n\u1ed7 l\u1ef1c \u0111\u1ea7y nhi\u1ec7t huy\u1ebft c\u1ee7a c\u00e1c b\u00e1c s\u0129 l\u00e2m s\u00e0ng, nh\u00e0 nghi\u00ean c\u1ee9u v\u00e0 c\u00e1c t\u1ed5 ch\u1ee9c nh\u01b0 <\/span><a href=\"https:\/\/neuroimmune.org\/\"><span data-contrast=\"none\">Qu\u1ef9 Neuroimmune<\/span><\/a><span data-contrast=\"auto\">.<\/span><\/p>\n<p><span data-contrast=\"auto\">\u0110\u01b0\u1ee3c th\u00e0nh l\u1eadp v\u00e0o n\u0103m 2018, Qu\u1ef9 Neuroimmune phi l\u1ee3i nhu\u1eadn \u0111\u00e3 h\u1ed7 tr\u1ee3 \u0111\u00e0o t\u1ea1o h\u00e0ng ng\u00e0n b\u00e1c s\u0129 l\u00e2m s\u00e0ng v\u00e0 x\u00e2y d\u1ef1ng m\u1ed9t m\u1ea1ng l\u01b0\u1edbi gia \u0111\u00ecnh b\u1ec7nh nh\u00e2n tuy xa x\u00f4i nh\u01b0ng g\u1eafn b\u00f3. Qu\u1ef9 c\u0169ng \u0111\u00e3 cung c\u1ea5p ngu\u1ed3n t\u00e0i tr\u1ee3 \u0111\u00e1ng k\u1ec3 \u0111\u1ec3 th\u00fac \u0111\u1ea9y nghi\u00ean c\u1ee9u PANS\u2014v\u00e0 Ph\u00f2ng kh\u00e1m S\u1ee9c kh\u1ecfe H\u00e0nh vi Mi\u1ec5n d\u1ecbch Stanford (IBH) v\u00e0 Ch\u01b0\u01a1ng tr\u00ecnh PANS l\u00e0 nh\u1eefng \u0111\u01a1n v\u1ecb nh\u1eadn t\u00e0i tr\u1ee3 v\u00f4 c\u00f9ng bi\u1ebft \u01a1n. Ti\u1ebfn s\u0129 Jennifer Frankovich, ng\u01b0\u1eddi \u0111\u1ee9ng \u0111\u1ea7u ph\u00f2ng kh\u00e1m v\u00e0 ch\u01b0\u01a1ng tr\u00ecnh nghi\u00ean c\u1ee9u, cho bi\u1ebft: \u201cQu\u1ef9 Neuroimmune kh\u00f4ng ch\u1ec9 gi\u00fap th\u00fac \u0111\u1ea9y nghi\u00ean c\u1ee9u, m\u00e0 c\u00f2n \u1ea5n t\u01b0\u1ee3ng h\u01a1n n\u1eefa, h\u1ecd \u0111\u00e3 gi\u00fap h\u00e0ng ng\u00e0n gia \u0111\u00ecnh ti\u1ebfp c\u1eadn d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c s\u1ee9c kh\u1ecfe nh\u1edd nh\u1eefng n\u1ed7 l\u1ef1c gi\u00e1o d\u1ee5c l\u00e2m s\u00e0ng to l\u1edbn c\u1ee7a m\u00ecnh.\u201d<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Ph\u00f2ng kh\u00e1m Stanford IBH l\u00e0 ph\u00f2ng kh\u00e1m PANS \u0111a chuy\u00ean khoa \u0111\u1ea7u ti\u00ean tr\u00ean th\u1ebf gi\u1edbi, cung c\u1ea5p m\u00f4 h\u00ecnh ch\u0103m s\u00f3c l\u00e2m s\u00e0ng cho t\u00ecnh tr\u1ea1ng b\u1ec7nh l\u00fd t\u00e2m th\u1ea7n ph\u1ee9c t\u1ea1p n\u00e0y. S\u1ef1 h\u1ed7 tr\u1ee3 t\u1eeb thi\u1ec7n \u0111\u00e3 \u0111\u00f3ng vai tr\u00f2 quan tr\u1ecdng trong vi\u1ec7c gi\u00fap Ph\u00f2ng kh\u00e1m Stanford IBH v\u00e0 Ch\u01b0\u01a1ng tr\u00ecnh PANS d\u1eabn \u0111\u1ea7u nh\u1eefng ti\u1ebfn b\u1ed9 trong ch\u0103m s\u00f3c, \u0111\u1eb7c bi\u1ec7t l\u00e0 khi c\u00e1c nghi\u00ean c\u1ee9u PANS ban \u0111\u1ea7u g\u1eb7p kh\u00f3 kh\u0103n trong vi\u1ec7c t\u00ecm ch\u1ed7 \u0111\u1ee9ng trong h\u1ec7 th\u1ed1ng y t\u1ebf.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Qu\u1ef9 Neuroimmune \u0111\u00e3 kh\u1edfi \u0111\u1ed9ng hai s\u00e1ng ki\u1ebfn nghi\u00ean c\u1ee9u l\u1edbn do Ti\u1ebfn s\u0129 Frankovich d\u1eabn \u0111\u1ea7u. D\u1ef1 \u00e1n \u0111\u1ea7u ti\u00ean s\u1ebd gi\u00fap hi\u1ec3u s\u00e2u h\u01a1n v\u1ec1 c\u00e1c lo\u1ea1i thu\u1ed1c PANS th\u01b0\u1eddng d\u00f9ng b\u1eb1ng c\u00e1ch thu th\u1eadp d\u1eef li\u1ec7u v\u1ec1 hi\u1ec7u qu\u1ea3 c\u1ee7a thu\u1ed1c DMARD (thu\u1ed1c ch\u1ed1ng th\u1ea5p kh\u1edbp t\u00e1c d\u1ee5ng ch\u1eadm) tr\u00ean h\u01a1n 500 b\u1ec7nh nh\u00e2n m\u1eafc PANS v\u00e0 c\u00e1c b\u1ec7nh l\u00fd li\u00ean quan. Ngo\u00e0i ra, Qu\u1ef9 Neuroimmune \u0111ang h\u1ed7 tr\u1ee3 m\u1ed9t d\u1ef1 \u00e1n v\u1ec1 h\u1ec7 vi sinh v\u1eadt \u0111\u01b0\u1eddng ru\u1ed9t do nh\u00f3m c\u1ee7a Ti\u1ebfn s\u0129 Frankovich d\u1eabn \u0111\u1ea7u, h\u1ee3p t\u00e1c v\u1edbi c\u00e1c nh\u00e0 nghi\u00ean c\u1ee9u t\u1eeb \u0110\u1ea1i h\u1ecdc California, Santa Cruz. M\u1ee5c ti\u00eau c\u1ee7a d\u1ef1 \u00e1n n\u00e0y l\u00e0 thu th\u1eadp m\u1ea3ng b\u00e1m trong mi\u1ec7ng t\u1eeb nh\u1eefng b\u1ec7nh nh\u00e2n m\u1eafc PANS v\u00e0 c\u00e1c b\u1ec7nh l\u00fd li\u00ean quan (trong c\u00e1c \u0111\u1ee3t b\u00f9ng ph\u00e1t c\u0169ng nh\u01b0 khi \u0111\u00e3 h\u1ed3i ph\u1ee5c) v\u00e0 so s\u00e1nh v\u1edbi c\u00e1c m\u1eabu t\u1eeb tr\u1ebb em kh\u1ecfe m\u1ea1nh. M\u1ea3ng b\u00e1m - c\u00f3 th\u1ec3 \u0111\u00f3ng vai tr\u00f2 nh\u01b0 m\u1ed9t h\u1ed3 s\u01a1 \u0111\u1ecba ch\u1ea5t v\u1ec1 c\u00e1c ca nhi\u1ec5m tr\u00f9ng g\u1ea7n \u0111\u00e2y - s\u1ebd cho ph\u00e9p c\u00e1c nh\u00e0 nghi\u00ean c\u1ee9u n\u00e0y x\u00e1c \u0111\u1ecbnh c\u00e1c lo\u00e0i vi khu\u1ea9n c\u1ee5 th\u1ec3 c\u00f3 vai tr\u00f2 trong PANS v\u00e0 c\u00e1c b\u1ec7nh l\u00fd li\u00ean quan.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Anna Conkey, gi\u00e1m \u0111\u1ed1c \u0111i\u1ec1u h\u00e0nh v\u00e0 ng\u01b0\u1eddi s\u00e1ng l\u1eadp Qu\u1ef9 Neuroimmune, cho bi\u1ebft t\u1ed5 ch\u1ee9c \u0111\u00e3 ch\u1ecdn h\u1ed7 tr\u1ee3 c\u00f4ng vi\u1ec7c c\u1ee7a Ti\u1ebfn s\u0129 Frankovich t\u1ea1i Stanford kh\u00f4ng ch\u1ec9 v\u00ec &quot;c\u00f4 \u1ea5y l\u00e0 <\/span><span data-contrast=\"none\">\u0111\u01b0\u1ee3c coi r\u1ed9ng r\u00e3i l\u00e0 \u201cchuy\u00ean gia c\u00f3 th\u1ea9m quy\u1ec1n h\u00e0ng \u0111\u1ea7u\u201d trong l\u0129nh v\u1ef1c ch\u0103m s\u00f3c v\u00e0 nghi\u00ean c\u1ee9u PANS, nh\u01b0ng ch\u00ednh l\u00e0 nh\u1edd s\u1ef1 h\u00e0o ph\u00f3ng c\u1ee7a Ti\u1ebfn s\u0129 Frankovich trong vi\u1ec7c chia s\u1ebb chuy\u00ean m\u00f4n v\u00e0 ki\u1ebfn th\u1ee9c \u0111\u1ec3 th\u00fac \u0111\u1ea9y l\u0129nh v\u1ef1c n\u00e0y ph\u00e1t tri\u1ec3n.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Ngo\u00e0i vi\u1ec7c th\u00fac \u0111\u1ea9y c\u00e1c d\u1ef1 \u00e1n DMARD v\u00e0 h\u1ec7 vi sinh v\u1eadt, Qu\u1ef9 Neuroimmune c\u00f2n h\u1ed7 tr\u1ee3 \u0111\u1ea3m b\u1ea3o ngu\u1ed3n t\u00e0i tr\u1ee3 t\u1eeb Ti\u1ec3u bang B\u1eafc Carolina \u0111\u1ec3 ph\u00e1t tri\u1ec3n ch\u01b0\u01a1ng tr\u00ecnh v\u00e0 t\u00e0i li\u1ec7u \u0111\u00e0o t\u1ea1o l\u00e2m s\u00e0ng, v\u1edbi m\u1ee5c ti\u00eau cu\u1ed1i c\u00f9ng l\u00e0 m\u1edf r\u1ed9ng n\u0103ng l\u1ef1c \u0111\u00e0o t\u1ea1o v\u00e0 \u0111i\u1ec1u tr\u1ecb cho b\u00e1c s\u0129 tr\u00ean to\u00e0n qu\u1ed1c. Trong s\u1ed1 c\u00e1c l\u1ee3i \u00edch kh\u00e1c, kho\u1ea3n t\u00e0i tr\u1ee3 n\u00e0y s\u1ebd t\u00e0i tr\u1ee3 cho c\u00e1c h\u1ecdc gi\u1ea3 l\u00e2m s\u00e0ng PANS \u0111\u1ea7u ti\u00ean t\u1ea1i Stanford\u2014v\u00e0 c\u00f3 th\u1ec3 l\u00e0 tr\u00ean to\u00e0n th\u1ebf gi\u1edbi, g\u00f3p ph\u1ea7n x\u00e2y d\u1ef1ng PANS th\u00e0nh m\u1ed9t l\u0129nh v\u1ef1c m\u00e0 c\u00e1c b\u00e1c s\u0129 t\u00e0i n\u0103ng v\u00e0 ham h\u1ecdc h\u1ecfi c\u00f3 th\u1ec3 h\u1ecdc h\u1ecfi \u0111\u1ec3 cung c\u1ea5p d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c d\u1ef1a tr\u00ean b\u1eb1ng ch\u1ee9ng cho b\u1ec7nh nh\u00e2n m\u1eafc PANS v\u00e0 c\u00e1c b\u1ec7nh l\u00fd li\u00ean quan. C\u00e1c h\u1ecdc gi\u1ea3 s\u1ebd \u0111\u01b0\u1ee3c h\u1ecdc h\u1ecfi th\u00f4ng qua quan s\u00e1t tr\u1ef1c ti\u1ebfp t\u1ea1i Ph\u00f2ng kh\u00e1m IBH Stanford, c\u0169ng nh\u01b0 c\u00e1c b\u00e0i gi\u1ea3ng, h\u1ed9i th\u1ea3o v\u00e0 bu\u1ed5i \u0111\u00e1nh gi\u00e1 ca b\u1ec7nh do c\u00e1c chuy\u00ean gia trong l\u0129nh v\u1ef1c n\u00e0y ch\u1ee7 tr\u00ec.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">Conkey cho bi\u1ebft, \u201cM\u1ee5c ti\u00eau ch\u00ednh c\u1ee7a Neuroimmune Foundation l\u00e0 th\u00fac \u0111\u1ea9y t\u1ed1c \u0111\u1ed9 m\u00e0 c\u00e1c b\u00e1c s\u0129 b\u01b0\u1edbc v\u00e0o l\u0129nh v\u1ef1c n\u00e0y \u0111\u1ec3 chu\u1ea9n b\u1ecb cung c\u1ea5p d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c chu \u0111\u00e1o, c\u00f3 t\u01b0 duy ti\u1ebfn b\u1ed9 cho b\u1ec7nh nh\u00e2n m\u1eafc c\u00e1c b\u1ec7nh l\u00fd th\u1ea7n kinh mi\u1ec5n d\u1ecbch.\u201d V\u00ec m\u1ee5c \u0111\u00edch n\u00e0y, <\/span><span data-contrast=\"auto\">Ti\u1ebfn s\u0129 Frankovich cho bi\u1ebft Qu\u1ef9 Neuroimmune \u0111\u00e3 x\u00e2y d\u1ef1ng m\u1ed9t ch\u01b0\u01a1ng tr\u00ecnh \u201cg\u00f3p ph\u1ea7n quan tr\u1ecdng\u201d trong vi\u1ec7c gi\u1ea3i quy\u1ebft nhu c\u1ea7u to l\u1edbn ch\u01b0a \u0111\u01b0\u1ee3c \u0111\u00e1p \u1ee9ng v\u1ec1 th\u00f4ng tin v\u00e0 ch\u0103m s\u00f3c PANS b\u1eb1ng c\u00e1ch ph\u1ed5 bi\u1ebfn ki\u1ebfn th\u1ee9c v\u00e0 t\u1ea1o \u0111i\u1ec1u ki\u1ec7n cho c\u00e1c m\u1ed1i quan h\u1ec7 h\u1ee3p t\u00e1c m\u1edbi v\u1edbi c\u00e1c b\u00e1c s\u0129 l\u00e2m s\u00e0ng v\u00e0 nh\u00e0 nghi\u00ean c\u1ee9u trong l\u0129nh v\u1ef1c n\u00e0y. Ti\u1ebfn s\u0129 Frankovich n\u00f3i: \u201cCh\u00fang t\u00f4i v\u00f4 c\u00f9ng bi\u1ebft \u01a1n s\u1ef1 h\u1ed7 tr\u1ee3 c\u1ee7a Qu\u1ef9 Neuroimmune, \u0111i\u1ec1u n\u00e0y \u0111ang mang l\u1ea1i hy v\u1ecdng v\u00e0 gi\u1ea3i ph\u00e1p cho c\u00e1c gia \u0111\u00ecnh tr\u00ean kh\u1eafp \u0111\u1ea5t n\u01b0\u1edbc v\u00e0 th\u1ebf gi\u1edbi.\u201d<\/span><span data-ccp-props=\"{&quot;134233117&quot;:true,&quot;134233118&quot;:true,&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>\u0110\u1ed1i v\u1edbi tr\u1ebb em m\u1eafc H\u1ed9i ch\u1ee9ng Th\u1ea7n kinh T\u00e2m th\u1ea7n Kh\u1edfi ph\u00e1t C\u1ea5p t\u00ednh \u1edf Tr\u1ebb em (PANS), cu\u1ed9c s\u1ed1ng c\u00f3 th\u1ec3 thay \u0111\u1ed5i ch\u1ec9 sau m\u1ed9t \u0111\u00eam. PANS, m\u1ed9t t\u00ecnh tr\u1ea1ng s\u1ee9c kh\u1ecfe h\u00e0nh vi mi\u1ec5n d\u1ecbch, th\u01b0\u1eddng \u0111\u01b0\u1ee3c bi\u1ec3u hi\u1ec7n b\u1eb1ng s\u1ef1 kh\u1edfi ph\u00e1t \u0111\u1ed9t ng\u1ed9t\u2026<\/p>","protected":false},"author":16,"featured_media":17490,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[164,1],"class_list":["post-17489","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-research","category-uncategorized"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Neuroimmune Foundation Fuels PANS Research at Stanford and Beyond - Lucile Packard Foundation for Children&#039;s Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lpfch.org\/vi\/impact-stories\/neuroimmune-foundation-fuels-pans-research-at-stanford-and-beyond\/\" \/>\n<meta property=\"og:locale\" content=\"vi_VN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Neuroimmune Foundation Fuels PANS Research at Stanford and Beyond\" \/>\n<meta property=\"og:description\" content=\"For children with PANS (Pediatric Acute-onset Neuropsychiatric Syndrome), life can change overnight. 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