{"id":3553,"date":"2014-08-21T00:24:46","date_gmt":"2014-08-21T00:24:46","guid":{"rendered":"https:\/\/lpfch.org\/compassion-innovation-collaboration\/"},"modified":"2024-10-23T16:26:26","modified_gmt":"2024-10-23T16:26:26","slug":"compassion-innovation-collaboration","status":"publish","type":"post","link":"http:\/\/lpfch.org\/vi\/impact-stories\/compassion-innovation-collaboration\/","title":{"rendered":"L\u00f2ng tr\u1eafc \u1ea9n, \u0110\u1ed5i m\u1edbi, H\u1ee3p t\u00e1c"},"content":{"rendered":"

X\u00e9t v\u1ec1 nhi\u1ec1u m\u1eb7t, Mateo Kohler \u1edf San Jose l\u00e0 m\u1ed9t c\u1eadu b\u00e9 9 tu\u1ed5i \u0111i\u1ec3n h\u00ecnh. C\u1eadu b\u00e9 th\u00edch ch\u01a1i b\u00f3ng \u0111\u00e1 v\u00e0 t\u1eadp taekwondo, v\u00e0 c\u00f3 th\u1ec3 r\u1ea5t m\u00ea tr\u00f2 ch\u01a1i \u0111i\u1ec7n t\u1eed. Nh\u01b0ng c\u1eadu b\u00e9 c\u0169ng c\u00f3 ch\u00fat g\u00ec \u0111\u00f3 b\u00ed \u1ea9n.<\/span><\/p>\n

\u0110\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n m\u1eafc m\u1ed9t lo\u1ea1i b\u1ec7nh b\u1ea1ch c\u1ea7u lymphoblastic c\u1ea5p t\u00ednh hi\u1ebfm g\u1eb7p ch\u1ec9 hai tu\u1ea7n tr\u01b0\u1edbc sinh nh\u1eadt l\u1ea7n th\u1ee9 n\u0103m, Mateo kh\u00f4ng \u0111\u00e1p \u1ee9ng v\u1edbi ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb ti\u00eau chu\u1ea9n, v\u00e0 kh\u00f4ng t\u00ecm \u0111\u01b0\u1ee3c t\u1ebf b\u00e0o g\u1ed1c ph\u00f9 h\u1ee3p \u0111\u1ec3 gh\u00e9p. Mateo ph\u1ea3i n\u1eb1m vi\u1ec7n nhi\u1ec1u tu\u1ea7n, r\u1ed3i l\u1ea1i ph\u1ea3i \u0111i kh\u00e1m \u0111\u1ecbnh k\u1ef3 h\u00e0ng tu\u1ea7n, hai tu\u1ea7n m\u1ed9t l\u1ea7n trong nhi\u1ec1u n\u0103m. C\u1eadu b\u00e9 \u0111\u01b0\u1ee3c \u0111\u01b0a v\u00e0o m\u1ed9t th\u1eed nghi\u1ec7m h\u00f3a tr\u1ecb \u0111\u1ea7y h\u1ee9a h\u1eb9n.<\/p>\n

\u201cNh\u1eefng lo\u1ea1i thu\u1ed1c hi\u1ec7u qu\u1ea3 v\u1edbi nh\u1eefng \u0111\u1ee9a tr\u1ebb kh\u00e1c l\u1ea1i kh\u00f4ng hi\u1ec7u qu\u1ea3 v\u1edbi con trai t\u00f4i,\u201d m\u1eb9 c\u1ee7a Mateo, Traci Kohler, chia s\u1ebb. \u201cC\u00e1c b\u00e1c s\u0129 c\u1ee7a Mateo t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard r\u1ea5t am hi\u1ec3u nh\u1eefng ph\u00e1t hi\u1ec7n m\u1edbi nh\u1ea5t, n\u00ean h\u1ecd c\u00f3 th\u1ec3 linh ho\u1ea1t h\u01a1n trong suy ngh\u0129 v\u00e0 \u0111\u01b0a con ra kh\u1ecfi th\u1eed nghi\u1ec7m thay v\u00ec \u00e1p d\u1ee5ng ph\u01b0\u01a1ng ph\u00e1p \u2018ch\u1edd \u0111\u1ee3i v\u00e0 xem x\u00e9t\u2019. T\u00f4i ngh\u0129 ch\u00fang t\u00f4i th\u1ef1c s\u1ef1 may m\u1eafn khi h\u1ecd c\u00f3 th\u1ec3 suy ngh\u0129 v\u01b0\u1ee3t ra ngo\u00e0i khu\u00f4n kh\u1ed5 v\u00e0 \u1ee7ng h\u1ed9 nh\u1eefng g\u00ec t\u1ed1t nh\u1ea5t cho con trai t\u00f4i.\u201d<\/p>\n

C\u00e1ch ti\u1ebfp c\u1eadn linh ho\u1ea1t \u0111\u00f3 l\u00e0 \u0111\u1eb7c \u0111i\u1ec3m n\u1ed5i b\u1eadt c\u1ee7a Trung t\u00e2m Bass v\u1ec1 Ung th\u01b0 v\u00e0 B\u1ec7nh m\u00e1u \u1edf Tr\u1ebb em, n\u01a1i l\u00f2ng tr\u1eafc \u1ea9n, s\u1ef1 \u0111\u1ed5i m\u1edbi v\u00e0 s\u1ef1 h\u1ee3p t\u00e1c \u0111\u01b0\u1ee3c k\u1ebft h\u1ee3p \u0111\u1ec3 mang l\u1ea1i k\u1ebft qu\u1ea3 t\u1ed1t nh\u1ea5t cho tr\u1ebb em m\u1eafc b\u1ec7nh ung th\u01b0 v\u00e0 c\u00e1c b\u1ec7nh \u0111e d\u1ecda t\u00ednh m\u1ea1ng kh\u00e1c.<\/p>\n

\u201cTr\u1ebb em c\u00f2n c\u1ea3 cu\u1ed9c \u0111\u1eddi ph\u00eda tr\u01b0\u1edbc, v\u00ec v\u1eady \u0111i\u1ec1u quan tr\u1ecdng l\u00e0 ch\u00fang ta ph\u1ea3i \u00fd th\u1ee9c r\u00f5 r\u00e0ng v\u1ec1 c\u00e1ch ch\u0103m s\u00f3c c\u00e1c em\u201d, Gi\u00e1m \u0111\u1ed1c trung t\u00e2m, Ti\u1ebfn s\u0129, B\u00e1c s\u0129 Kathleen Sakamoto, cho bi\u1ebft. \u201c\u0110\u00f3 l\u00e0 l\u1ee3i th\u1ebf c\u1ee7a vi\u1ec7c \u0111\u1eb7t tr\u1ee5 s\u1edf t\u1ea1i m\u1ed9t n\u01a1i t\u1eadn t\u00e2m v\u1edbi m\u1ecdi kh\u00eda c\u1ea1nh c\u1ee7a vi\u1ec7c hi\u1ec3u bi\u1ebft v\u00e0 \u0111i\u1ec1u tr\u1ecb ung th\u01b0 nhi khoa.\u201d<\/p>\n

Nh\u1eadn th\u1ee9c m\u1edbi<\/h2>\n

T\u1ecda l\u1ea1c trong m\u1ed9t b\u1ec7nh vi\u1ec7n nhi khoa h\u00e0n l\u00e2m, Trung t\u00e2m Bass c\u00f3 th\u1ec3 ti\u1ebfp c\u1eadn m\u1ed9t lo\u1ea1t c\u00e1c ngu\u1ed3n l\u1ef1c tr\u00ed tu\u1ec7 v\u00e0 c\u00f4ng ngh\u1ec7. V\u00e0 v\u00ec B\u1ec7nh vi\u1ec7n Nhi Packard l\u00e0 m\u1ed9t ph\u1ea7n c\u1ee7a c\u1ed9ng \u0111\u1ed3ng y khoa l\u1edbn h\u01a1n nh\u01b0ng g\u1eafn k\u1ebft ch\u1eb7t ch\u1ebd t\u1ea1i Stanford, n\u00ean c\u00e1c nh\u00e0 nghi\u00ean c\u1ee9u t\u1eeb c\u00e1c chuy\u00ean khoa kh\u00e1c nhau d\u1ec5 d\u00e0ng l\u00e0m vi\u1ec7c c\u00f9ng nhau v\u00e0 chia s\u1ebb nh\u1eefng g\u00f3c nh\u00ecn \u0111\u1ed9c \u0111\u00e1o. H\u1ecd \u0111ang c\u00f9ng nhau n\u1ed7 l\u1ef1c \u0111\u1ec3 hi\u1ec3u r\u00f5 h\u01a1n v\u1ec1 c\u00e1c y\u1ebfu t\u1ed1 nguy c\u01a1 quan tr\u1ecdng, c\u0169ng nh\u01b0 sinh h\u1ecdc v\u00e0 c\u01a1 ch\u1ebf c\u1ee7a m\u1ed9t s\u1ed1 lo\u1ea1i ung th\u01b0 \u1edf tr\u1ebb em.<\/p>\n

Sakamoto, Gi\u00e1o s\u01b0 Shelagh Galligan t\u1ea1i Tr\u01b0\u1eddng Y Stanford, cho bi\u1ebft th\u00eam: "\u0110i\u1ec1u \u0111\u00f3 gi\u00fap cho y h\u1ecdc chuy\u1ec3n d\u1ecbch di\u1ec5n ra d\u1ec5 d\u00e0ng h\u01a1n".<\/p>\n

Y h\u1ecdc chuy\u1ec3n d\u1ecbch l\u00e0 s\u1ef1 t\u01b0\u01a1ng t\u00e1c qua l\u1ea1i gi\u1eefa c\u00e1c nh\u00e0 khoa h\u1ecdc c\u01a1 b\u1ea3n v\u00e0 l\u00e2m s\u00e0ng v\u1edbi c\u00e1c chuy\u00ean gia ch\u0103m s\u00f3c b\u1ec7nh nh\u00e2n, m\u1ed9t s\u1ef1 t\u01b0\u01a1ng t\u00e1c gi\u00fap \u0111\u1ea9y nhanh qu\u00e1 tr\u00ecnh \u00e1p d\u1ee5ng c\u00e1c kh\u00e1m ph\u00e1 v\u00e0o c\u00f4ng ngh\u1ec7, ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb, ch\u1ea9n \u0111o\u00e1n ho\u1eb7c m\u1ee5c ti\u00eau \u0111i\u1ec1u tr\u1ecb m\u1edbi.<\/p>\n

C\u00e1c chuy\u00ean gia c\u1ee7a Trung t\u00e2m Bass h\u1ee3p t\u00e1c v\u1edbi c\u00e1c \u0111\u1ed3ng nghi\u1ec7p t\u1ea1i B\u1ec7nh vi\u1ec7n & Ph\u00f2ng kh\u00e1m Stanford, c\u0169ng nh\u01b0 c\u00e1c chuy\u00ean gia trong c\u00e1c chuy\u00ean ng\u00e0nh phi y khoa nh\u01b0 k\u1ef9 thu\u1eadt, v\u1eadt l\u00fd v\u00e0 h\u00f3a h\u1ecdc. Trung t\u00e2m c\u0169ng c\u00f3 m\u1ed1i quan h\u1ec7 v\u1edbi Thung l\u0169ng Silicon, n\u01a1i nhi\u1ec1u c\u00f4ng ty d\u01b0\u1ee3c ph\u1ea9m v\u00e0 c\u00f4ng ngh\u1ec7 cao v\u1eabn g\u1eafn b\u00f3 ch\u1eb7t ch\u1ebd v\u1edbi ngu\u1ed3n g\u1ed1c Stanford c\u1ee7a h\u1ecd.<\/p>\n

B\u1ec7nh vi\u1ec7n Nhi Packard n\u1ed5i ti\u1ebfng v\u1edbi vi\u1ec7c th\u00fac \u0111\u1ea9y c\u00e1c ph\u01b0\u01a1ng ph\u00e1p ti\u1ebfp c\u1eadn m\u1edbi trong vi\u1ec7c ph\u00e1t tri\u1ec3n li\u1ec7u ph\u00e1p v\u00e0 ch\u1ea9n \u0111o\u00e1n y khoa. Ranh gi\u1edbi l\u00e2m s\u00e0ng d\u1ec5 d\u00e0ng v\u01b0\u1ee3t qua, v\u00e0 b\u1ec7nh vi\u1ec7n c\u00f3 chung m\u1ed9t n\u1ec1n v\u0103n h\u00f3a \u0111\u1ed5i m\u1edbi v\u00e0 giao ti\u1ebfp, thu h\u00fat nhi\u1ec1u nh\u00e0 khoa h\u1ecdc, b\u00e1c s\u0129 v\u00e0 ng\u01b0\u1eddi ch\u0103m s\u00f3c h\u00e0ng \u0111\u1ea7u th\u1ebf gi\u1edbi.<\/p>\n

Ti\u1ebfn s\u0129 Michael Jeng, Tr\u01b0\u1edfng khoa Huy\u1ebft h\u1ecdc Nhi, cho bi\u1ebft: "Vi\u1ec7c t\u1ea1o ra m\u00f4i tr\u01b0\u1eddng ph\u00f9 h\u1ee3p bao g\u1ed3m vi\u1ec7c x\u00e2y d\u1ef1ng m\u1ed9t m\u1ea1ng l\u01b0\u1edbi khuy\u1ebfn kh\u00edch tinh th\u1ea7n l\u00e3nh \u0111\u1ea1o, giao ti\u1ebfp v\u00e0 l\u00e0m vi\u1ec7c nh\u00f3m. Ch\u00fang t\u00f4i c\u00f3 m\u1ed1i quan h\u1ec7 \u0111\u1ed1i t\u00e1c ch\u1eb7t ch\u1ebd v\u1edbi b\u1ec7nh vi\u1ec7n ng\u01b0\u1eddi l\u1edbn v\u00e0 ti\u1ebfp c\u1eadn t\u1ea5t c\u1ea3 c\u00e1c d\u1ecbch v\u1ee5 m\u00e0 b\u1ec7nh nh\u00e2n c\u00f3 th\u1ec3 c\u1ea7n. K\u1ebft qu\u1ea3 l\u00e0 k\u1ebft qu\u1ea3 \u0111i\u1ec1u tr\u1ecb t\u1ed1t h\u01a1n cho b\u1ec7nh nh\u00e2n v\u00e0 ph\u01b0\u01a1ng ph\u00e1p ti\u1ebfp c\u1eadn to\u00e0n di\u1ec7n h\u01a1n \u0111\u1ed1i v\u1edbi ch\u1ea5t l\u01b0\u1ee3ng cu\u1ed9c s\u1ed1ng c\u1ee7a h\u1ecd."<\/p>\n

D\u01b0\u1edbi m\u1ed9t m\u00e1i nh\u00e0<\/h2>\n

M\u1ed7i b\u00e1c s\u0129 t\u1ea1i Trung t\u00e2m Bass \u0111\u1ec1u tham gia nghi\u00ean c\u1ee9u l\u00e2m s\u00e0ng, m\u1ed9t ph\u01b0\u01a1ng ti\u1ec7n quan tr\u1ecdng \u0111\u1ec3 ph\u00e1t tri\u1ec3n c\u00e1c ph\u00e1c \u0111\u1ed3 v\u00e0 ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb m\u1edbi. B\u1ec7nh vi\u1ec7n Nhi Packard c\u0169ng tham gia s\u00e2u r\u1ed9ng v\u00e0o Nh\u00f3m Ung th\u01b0 Tr\u1ebb em (COG), m\u1ed9t t\u1eadp \u0111o\u00e0n qu\u1ed1c t\u1ebf h\u1ee3p nh\u1ea5t c\u00e1c nghi\u00ean c\u1ee9u l\u00e2m s\u00e0ng v\u1ec1 ung th\u01b0 nhi khoa. B\u1ec7nh nh\u00e2n \u0111\u01b0\u1ee3c ti\u1ebfp c\u1eadn c\u00e1c ph\u00e1c \u0111\u1ed3 m\u1edbi tr\u01b0\u1edbc khi ch\u00fang \u0111\u01b0\u1ee3c ph\u1ed5 bi\u1ebfn r\u1ed9ng r\u00e3i v\u00e0 gi\u00fap \u0111\u1ee1 ng\u01b0\u1eddi kh\u00e1c b\u1eb1ng c\u00e1ch \u0111\u00f3ng g\u00f3p v\u00e0o nghi\u00ean c\u1ee9u y khoa.<\/p>\n

\u201cH\u1ea7u h\u1ebft khoa h\u1ecdc v\u1ec1 ung th\u01b0 t\u1eadp trung v\u00e0o ng\u01b0\u1eddi l\u1edbn, nh\u01b0ng ung th\u01b0 \u1edf tr\u1ebb em l\u1ea1i kh\u00e1c\u201d, Ti\u1ebfn s\u0129 Neyessa Marina, gi\u00e1m \u0111\u1ed1c ph\u00f2ng kh\u00e1m huy\u1ebft h\u1ecdc v\u00e0 ung th\u01b0 ngo\u1ea1i tr\u00fa ki\u00eam tr\u01b0\u1edfng khoa ung th\u01b0 nhi, cho bi\u1ebft. \u201cCh\u00fang t\u00f4i v\u1eabn \u0111ang t\u00ecm hi\u1ec3u ph\u01b0\u01a1ng ph\u00e1p n\u00e0o hi\u1ec7u qu\u1ea3 v\u00e0 ph\u01b0\u01a1ng ph\u00e1p n\u00e0o c\u00f3 th\u1ec3 \u00e1p d\u1ee5ng. \u0110\u1ec3 l\u00e0m \u0111\u01b0\u1ee3c \u0111i\u1ec1u \u0111\u00f3, ch\u00fang t\u00f4i c\u1ea7n h\u1ee3p t\u00e1c v\u1edbi c\u00e1c t\u1ed5 ch\u1ee9c kh\u00e1c \u0111\u1ec3 c\u00f3 \u0111\u01b0\u1ee3c s\u1ed1 l\u01b0\u1ee3ng ng\u01b0\u1eddi tham gia c\u1ea7n thi\u1ebft cho c\u00e1c th\u1eed nghi\u1ec7m l\u00e2m s\u00e0ng c\u00f3 \u00fd ngh\u0129a\u201d, Marina, \u0111\u1ed3ng th\u1eddi l\u00e0 nh\u00e0 nghi\u00ean c\u1ee9u ch\u00ednh c\u1ee7a COG, cho bi\u1ebft th\u00eam.<\/p>\n

M\u1ed9t nh\u00e0 nghi\u00ean c\u1ee9u h\u00e0ng \u0111\u1ea7u t\u1ea1i COG, Ti\u1ebfn s\u0129 Y khoa Clare Twist, \u0111ang c\u1ea3i ti\u1ebfn ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb u nguy\u00ean b\u00e0o th\u1ea7n kinh, lo\u1ea1i ung th\u01b0 \u0111\u1eb7c ph\u1ed5 bi\u1ebfn nh\u1ea5t \u1edf tr\u1ebb em ngo\u00e0i h\u1ec7 th\u1ea7n kinh trung \u01b0\u01a1ng. Twist g\u1ea7n \u0111\u00e2y \u0111\u00e3 d\u1eabn \u0111\u1ea7u m\u1ed9t nghi\u00ean c\u1ee9u v\u1ec1 li\u1ec7u ph\u00e1p c\u01b0\u1eddng \u0111\u1ed9 t\u01b0\u01a1ng \u0111\u1ed1i th\u1ea5p, m\u1ed9t chi\u1ebfn l\u01b0\u1ee3c nh\u1eb1m gi\u1ea3m \u0111\u1ed9c t\u00ednh v\u00e0 c\u00e1c t\u00e1c d\u1ee5ng ph\u1ee5 mu\u1ed9n c\u1ee7a \u0111i\u1ec1u tr\u1ecb. L\u00e0 gi\u00e1m \u0111\u1ed1c ch\u01b0\u01a1ng tr\u00ecnh u nguy\u00ean b\u00e0o th\u1ea7n kinh c\u1ee7a Trung t\u00e2m Bass, b\u00e0 c\u0169ng gi\u00e1m s\u00e1t c\u00e1c nghi\u00ean c\u1ee9u nh\u1eb1m ph\u00e1t tri\u1ec3n c\u00e1c th\u1eed nghi\u1ec7m ban \u0111\u1ea7u cho m\u1ed9t s\u1ed1 li\u1ec7u ph\u00e1p m\u1edbi \u0111\u1ea7y h\u1ee9a h\u1eb9n.<\/p>\n

H\u01a1n 80% b\u1ec7nh nh\u00e2n c\u1ee7a Trung t\u00e2m Bass tham gia th\u1eed nghi\u1ec7m l\u00e2m s\u00e0ng, v\u00e0 s\u1ef1 tham gia c\u1ee7a h\u1ecd t\u1ea1o ra t\u00e1c \u0111\u1ed9ng \u0111\u00e1ng k\u1ec3. C\u00e1c th\u1eed nghi\u1ec7m l\u00e2m s\u00e0ng li\u00ean quan tr\u1ef1c ti\u1ebfp \u0111\u1ebfn nh\u1eefng ti\u1ebfn b\u1ed9 trong ph\u1eabu thu\u1eadt, h\u00f3a tr\u1ecb v\u00e0 x\u1ea1 tr\u1ecb, gi\u00fap c\u1ea3i thi\u1ec7n k\u1ebft qu\u1ea3 \u0111i\u1ec1u tr\u1ecb cho b\u1ec7nh nh\u00e2n ung th\u01b0 tr\u00ean to\u00e0n th\u1ebf gi\u1edbi.<\/p>\n

"Ti\u1ebfn b\u1ed9 trong vi\u1ec7c \u0111i\u1ec1u tr\u1ecb ung th\u01b0 \u1edf tr\u1ebb em l\u00e0 m\u1ed9t trong nh\u1eefng c\u00e2u chuy\u1ec7n th\u00e0nh c\u00f4ng l\u1edbn c\u1ee7a y h\u1ecdc hi\u1ec7n \u0111\u1ea1i", Link, chuy\u00ean gia v\u1ec1 u lympho v\u00e0 sarcoma, cho bi\u1ebft. "Ung th\u01b0 nhi khoa c\u00f3 th\u1ec3 l\u00e0 h\u00ecnh m\u1eabu cho vi\u1ec7c chi\u1ebfn th\u1eafng ung th\u01b0 \u1edf ng\u01b0\u1eddi l\u1edbn."<\/p>\n

V\u00ed d\u1ee5, Jeng \u0111\u00e3 tham gia v\u00e0o m\u1ed9t nghi\u00ean c\u1ee9u \u0111a \u0111\u1ecba \u0111i\u1ec3m nh\u1eb1m \u0111\u00e1nh gi\u00e1 ph\u01b0\u01a1ng ph\u00e1p hi\u1ec7u qu\u1ea3 h\u01a1n \u0111\u1ec3 s\u1eed d\u1ee5ng deferasirox, m\u1ed9t lo\u1ea1i thu\u1ed1c \u0111\u01b0\u1ee3c s\u1eed d\u1ee5ng \u0111\u1ec3 lo\u1ea1i b\u1ecf s\u1eaft kh\u1ecfi c\u01a1 th\u1ec3. S\u1ef1 t\u00edch t\u1ee5 s\u1eaft c\u00f3 th\u1ec3 g\u00e2y t\u1ed5n th\u01b0\u01a1ng gan, tim v\u00e0 h\u1ec7 n\u1ed9i ti\u1ebft \u1edf nh\u1eefng b\u1ec7nh nh\u00e2n c\u1ea7n truy\u1ec1n m\u00e1u th\u01b0\u1eddng xuy\u00ean, v\u00e0 c\u00e1c lo\u1ea1i thu\u1ed1c tr\u01b0\u1edbc \u0111\u00e2y ch\u1ec9 c\u00f3 th\u1ec3 \u0111\u01b0\u1ee3c ti\u00eam qua kim ti\u00eam - \u0111i\u1ec1u m\u00e0 tr\u1ebb em r\u1ea5t gh\u00e9t. Nghi\u00ean c\u1ee9u c\u1ee7a Jeng \u0111\u00e3 gi\u00fap c\u1ea3i thi\u1ec7n ch\u1ea5t l\u01b0\u1ee3ng cu\u1ed9c s\u1ed1ng cho nh\u1eefng b\u1ec7nh nh\u00e2n n\u00e0y b\u1eb1ng c\u00e1ch ch\u1ee9ng minh hi\u1ec7u qu\u1ea3 c\u1ee7a m\u1ed9t lo\u1ea1i thu\u1ed1c u\u1ed1ng mang l\u1ea1i l\u1ee3i \u00edch t\u01b0\u01a1ng t\u1ef1.<\/p>\n

Ti\u1ebfn s\u0129 Rajni Agarwal-Hashmi, Tr\u01b0\u1edfng khoa v\u00e0 Gi\u00e1m \u0111\u1ed1c l\u00e2m s\u00e0ng c\u1ee7a ch\u01b0\u01a1ng tr\u00ecnh gh\u00e9p t\u1ebf b\u00e0o g\u1ed1c nhi khoa, \u0111ang ph\u00e1t tri\u1ec3n c\u00e1c ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb h\u1ed9i ch\u1ee9ng vi\u00eam ph\u1ed5i v\u00f4 c\u0103n (IPS), m\u1ed9t bi\u1ebfn ch\u1ee9ng nghi\u00eam tr\u1ecdng \u1ea3nh h\u01b0\u1edfng \u0111\u1ebfn ph\u1ed5i sau gh\u00e9p t\u1ebf b\u00e0o g\u1ed1c. M\u1ed9t th\u1eadp k\u1ef7 tr\u01b0\u1edbc, 80% tr\u1ebb em m\u1eafc IPS t\u1eed vong; ng\u00e0y nay con s\u1ed1 \u0111\u00f3 \u0111\u00e3 gi\u1ea3m xu\u1ed1ng c\u00f2n 30%.<\/p>\n

\u201cNh\u1eefng ti\u1ebfn b\u1ed9 nh\u01b0 th\u1ebf n\u00e0y di\u1ec5n ra \u1edf \u0111\u00e2y l\u00e0 nh\u1edd c\u00f3 nhi\u1ec1u chuy\u00ean m\u00f4n v\u00e0 c\u01a1 s\u1edf h\u1ea1 t\u1ea7ng r\u1ea5t m\u1ea1nh m\u1ebd c\u00f9ng chung tay g\u00f3p s\u1ee9c,\u201d Agarwal-Hashmi n\u00f3i. \u201cN\u00f3 \u0111\u01b0\u1ee3c thi\u1ebft k\u1ebf \u0111\u1ec3 ph\u00e1t tri\u1ec3n c\u00e1c giao th\u1ee9c m\u1edbi v\u00e0 c\u00e1c li\u1ec7u ph\u00e1p \u0111\u1ed9t ph\u00e1.\u201d<\/p>\n

L\u1edbn l\u00ean t\u1ed1t \u0111\u1eb9p<\/h2>\n

Nhi\u1ec1u b\u00e1c s\u0129 t\u1ea1i Trung t\u00e2m Bass c\u0169ng l\u00e0 c\u00e1c nh\u00e0 khoa h\u1ecdc t\u1ebf b\u00e0o g\u1ed1c \u0111ang n\u1ed7 l\u1ef1c t\u00ecm hi\u1ec3u c\u00e1ch s\u1eed d\u1ee5ng c\u00e1c \u0111\u1eb7c t\u00ednh t\u00e1i t\u1ea1o \u0111\u1ed9c \u0111\u00e1o c\u1ee7a nh\u1eefng t\u1ebf b\u00e0o n\u00e0y. B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Packard th\u1ef1c hi\u1ec7n h\u01a1n 40 ca gh\u00e9p t\u1ebf b\u00e0o g\u1ed1c m\u1ed7i n\u0103m \u0111\u1ec3 \u0111i\u1ec1u tr\u1ecb b\u1ec7nh b\u1ea1ch c\u1ea7u ho\u1eb7c c\u00e1c b\u1ec7nh ung th\u01b0 kh\u00e1c, c\u0169ng nh\u01b0 m\u1ed9t s\u1ed1 b\u1ec7nh suy gi\u1ea3m mi\u1ec5n d\u1ecbch di truy\u1ec1n, v\u00e0 l\u00e0 m\u1ed9t trong nh\u1eefng b\u1ec7nh vi\u1ec7n \u0111\u1ea7u ti\u00ean cung c\u1ea5p d\u1ecbch v\u1ee5 gh\u00e9p t\u1ee7y x\u01b0\u01a1ng cho tr\u1ebb em h\u01a1n 20 n\u0103m tr\u01b0\u1edbc. Kinh nghi\u1ec7m v\u00e0 nh\u1eefng c\u1ea3i ti\u1ebfn li\u00ean t\u1ee5c \u0111ang ti\u1ebfp t\u1ee5c m\u1edf r\u1ed9ng quy tr\u00ecnh c\u1ee9u s\u1ed1ng n\u00e0y, gi\u00fap t\u1ef7 l\u1ec7 s\u1ed1ng s\u00f3t ng\u00e0y c\u00e0ng t\u0103ng.<\/p>\n

Chuy\u00ean m\u00f4n \u0111\u00f3 \u0111\u00e3 gi\u00fap Braden Fransham \u1edf San Jose, ng\u01b0\u1eddi sinh ra m\u1eafc h\u1ed9i ch\u1ee9ng Wiskott-Aldrich, m\u1ed9t c\u0103n b\u1ec7nh hi\u1ebfm g\u1eb7p \u1ea3nh h\u01b0\u1edfng \u0111\u1ebfn c\u00e1c t\u1ebf b\u00e0o m\u00e1u v\u00e0 t\u1ebf b\u00e0o c\u1ee7a h\u1ec7 mi\u1ec5n d\u1ecbch. \u0110\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n l\u00fac 6 th\u00e1ng tu\u1ed5i, ph\u1ea3i m\u1ea5t h\u01a1n m\u1ed9t n\u0103m c\u1eadu b\u00e9 m\u1edbi t\u00ecm \u0111\u01b0\u1ee3c ng\u01b0\u1eddi hi\u1ebfn t\u1ee7y ph\u00f9 h\u1ee3p v\u00e0 \u0111\u01b0\u1ee3c gh\u00e9p t\u1ee7y th\u00e0nh c\u00f4ng. M\u1eb9 c\u1ee7a c\u1eadu, Sonya Palmer, cho bi\u1ebft n\u0103m n\u0103m \u0111\u1ea7u \u0111\u1eddi c\u1ee7a c\u1eadu b\u00e9 tr\u00e0n ng\u1eadp nh\u1eefng ng\u00e0y n\u1eb1m vi\u1ec7n d\u00e0i ng\u00e0y, nh\u1eefng l\u1ea7n kh\u00e1m b\u1ec7nh v\u00e0 thu\u1ed1c \u1ee9c ch\u1ebf mi\u1ec5n d\u1ecbch. Hi\u1ec7n t\u1ea1i, Braden l\u00e0 m\u1ed9t c\u1eadu b\u00e9 8 tu\u1ed5i tr\u00e0n \u0111\u1ea7y n\u0103ng l\u01b0\u1ee3ng, v\u00e0 gia \u0111\u00ecnh c\u1eadu \u0111\u00e3 vui v\u1ebb hi\u1ebfn m\u00e1u v\u00e0 m\u00f4 \u0111\u1ec3 c\u00e1c nh\u00e0 nghi\u00ean c\u1ee9u c\u00f3 th\u1ec3 t\u00ecm hi\u1ec3u th\u00eam v\u1ec1 \u0111\u1ed9t bi\u1ebfn gen g\u00e2y ra c\u0103n b\u1ec7nh n\u00e0y.<\/p>\n

\u0110\u1ec3 m\u1edf r\u1ed9ng ngu\u1ed3n hi\u1ebfn t\u1eb7ng, Agarwal-Hashmi \u0111\u00e3 th\u00e0nh l\u1eadp ch\u01b0\u01a1ng tr\u00ecnh m\u00e1u cu\u1ed1ng r\u1ed1n t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard. M\u00e1u cu\u1ed1ng r\u1ed1n, \u0111\u01b0\u1ee3c t\u00ecm th\u1ea5y trong nhau thai v\u00e0 d\u00e2y r\u1ed1n sau khi sinh, l\u00e0 ngu\u1ed3n t\u1ebf b\u00e0o g\u1ed1c d\u1ed3i d\u00e0o, c\u00f3 th\u1ec3 bi\u1ec7t h\u00f3a th\u00e0nh nhi\u1ec1u lo\u1ea1i t\u1ebf b\u00e0o m\u00e1u kh\u00e1c nhau v\u00e0 t\u00e1i t\u1ea1o h\u1ec7 mi\u1ec5n d\u1ecbch b\u1ecb t\u1ed5n th\u01b0\u01a1ng. "Ch\u01b0\u01a1ng tr\u00ecnh n\u00e0y m\u1edf r\u1ed9ng ngu\u1ed3n hi\u1ebfn t\u1eb7ng cho b\u1ea5t k\u1ef3 lo\u1ea1i gh\u00e9p t\u1ebf b\u00e0o g\u1ed1c n\u00e0o", b\u00e0 n\u00f3i. "\u0110i\u1ec1u \u0111\u00f3 c\u00f3 ngh\u0129a l\u00e0 m\u1ed7i tr\u1ebb em \u0111\u1ec1u c\u00f3 m\u1ed9t ng\u01b0\u1eddi hi\u1ebfn t\u1eb7ng."<\/p>\n

Nh\u01b0ng th\u00e0nh c\u00f4ng lu\u00f4n \u0111i k\u00e8m nh\u1eefng th\u00e1ch th\u1ee9c m\u1edbi. C\u00e1c ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb ung th\u01b0 c\u0169ng c\u00f3 th\u1ec3 g\u00e2y ra nh\u1eefng t\u00e1c d\u1ee5ng ph\u1ee5 l\u00e2u d\u00e0i, \u1ea3nh h\u01b0\u1edfng \u0111\u1ebfn s\u1ee9c kh\u1ecfe v\u00e0 ch\u1ea5t l\u01b0\u1ee3ng cu\u1ed9c s\u1ed1ng c\u1ee7a tr\u1ebb sau n\u00e0y (xem ph\u1ea7n Cu\u1ed9c s\u1ed1ng sau ung th\u01b0). B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Packard cung c\u1ea5p d\u1ecbch v\u1ee5 theo d\u00f5i d\u00e0i h\u1ea1n v\u00e0 ch\u0103m s\u00f3c h\u1ed7 tr\u1ee3 li\u00ean t\u1ee5c \u0111\u1ec3 ng\u0103n ng\u1eeba b\u1ea5t k\u1ef3 bi\u1ebfn ch\u1ee9ng kh\u1edfi ph\u00e1t mu\u1ed9n n\u00e0o cho nh\u1eefng tr\u1ebb em s\u1ed1ng s\u00f3t sau ung th\u01b0.<\/p>\n

"Vi\u1ec7c \u0111i\u1ec1u tr\u1ecb hi\u1ec7n nay \u00edt c\u0103ng th\u1eb3ng h\u01a1n, t\u1eadp trung h\u01a1n, v\u00e0 k\u1ebft qu\u1ea3 t\u1ed1t h\u01a1n tr\u00ean m\u1ecdi ph\u01b0\u01a1ng di\u1ec7n", Agarwal-Hashmi n\u00f3i. "Tuy nhi\u00ean, li\u1ec7u ph\u00e1p \u0111i\u1ec1u tr\u1ecb c\u0169ng c\u00f3 nh\u1eefng h\u1eadu qu\u1ea3 nh\u1ea5t \u0111\u1ecbnh, v\u00e0 \u0111i\u1ec1u quan tr\u1ecdng l\u00e0 ch\u00fang ta ph\u1ea3i \u0111\u1ea3m b\u1ea3o nh\u1eefng \u0111\u1ee9a tr\u1ebb n\u00e0y l\u1edbn l\u00ean kh\u1ecfe m\u1ea1nh."<\/p>\n

\u0110\u00f3 l\u00e0 \u0111i\u1ec1u m\u00e0 Mateo, Braden v\u00e0 gia \u0111\u00ecnh h\u1ecd mong mu\u1ed1n th\u1ef1c hi\u1ec7n.<\/p>\n

B\u00e0i vi\u1ebft n\u00e0y xu\u1ea5t hi\u1ec7n tr\u00ean \u1ea5n ph\u1ea9m Lucile Packard Children's News v\u00e0o m\u00f9a thu n\u0103m 2012.<\/em><\/p>","protected":false},"excerpt":{"rendered":"

X\u00e9t v\u1ec1 nhi\u1ec1u m\u1eb7t, Mateo Kohler \u1edf San Jose l\u00e0 m\u1ed9t c\u1eadu b\u00e9 9 tu\u1ed5i \u0111i\u1ec3n h\u00ecnh. C\u1eadu b\u00e9 th\u00edch ch\u01a1i b\u00f3ng \u0111\u00e1 v\u00e0 t\u1eadp taekwondo, v\u00e0 c\u1eadu b\u00e9 c\u00f3 th\u1ec3\u2026<\/p>","protected":false},"author":17,"featured_media":3554,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148,22],"class_list":["post-3553","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news","category-patient-stories","health_topic-pediatric-cancer"],"acf":[],"yoast_head":"\nCompassion, Innovation, Collaboration - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/vi\/impact-stories\/compassion-innovation-collaboration\/\" \/>\n<meta property=\"og:locale\" content=\"vi_VN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Compassion, Innovation, Collaboration\" \/>\n<meta property=\"og:description\" content=\"In many ways, Mateo Kohler of San Jose is a typical 9-year-old. 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