{"id":3880,"date":"2017-05-03T19:47:49","date_gmt":"2017-05-03T19:47:49","guid":{"rendered":"https:\/\/lpfch.org\/translating-discoveries-into-curesfaster\/"},"modified":"2024-02-14T14:07:36","modified_gmt":"2024-02-14T14:07:36","slug":"translating-discoveries-into-curesfaster","status":"publish","type":"post","link":"http:\/\/lpfch.org\/vi\/impact-stories\/translating-discoveries-into-curesfaster\/","title":{"rendered":"Bi\u1ebfn nh\u1eefng kh\u00e1m ph\u00e1 th\u00e0nh ph\u01b0\u01a1ng ph\u00e1p ch\u1eefa b\u1ec7nh\u2014Nhanh h\u01a1n"},"content":{"rendered":"

C\u00e1c con c\u1ee7a Mary Leonard lu\u00f4n bi\u1ebft khi n\u00e0o b\u00e0 l\u00e0m vi\u1ec7c \u1edf b\u1ec7nh vi\u1ec7n. Ch\u00fang nh\u1eadn \u0111\u01b0\u1ee3c nh\u1eefng tin nh\u1eafn b\u1ea5t ng\u1edd t\u1eeb b\u00e0, nh\u1eafc nh\u1edf ch\u00fang ph\u1ea3i nh\u00ecn c\u1ea3 hai h\u01b0\u1edbng tr\u01b0\u1edbc khi b\u0103ng qua \u0111\u01b0\u1eddng. Th\u01b0\u1eddng l\u00e0 v\u00e0o nh\u1eefng ng\u00e0y b\u00e0 \u0111i qua khoa ch\u0103m s\u00f3c \u0111\u1eb7c bi\u1ec7t nhi khoa v\u00e0 \u0111\u01b0\u1ee3c nh\u1eafc nh\u1edf s\u00e2u s\u1eafc v\u1ec1 m\u1ee9c \u0111\u1ed9 t\u00e0n ph\u00e1 c\u1ee7a ch\u1ea5n th\u01b0\u01a1ng v\u00e0 b\u1ec7nh t\u1eadt \u1edf tr\u1ebb em.<\/p>\n

\u201cC\u00e1c con t\u00f4i 22 v\u00e0 24 tu\u1ed5i,\u201d Leonard n\u00f3i. \u201cNh\u01b0ng vai tr\u00f2 b\u00e1c s\u0129 nhi khoa c\u1ee7a t\u00f4i lu\u00f4n ch\u1ecbu \u1ea3nh h\u01b0\u1edfng s\u00e2u s\u1eafc t\u1eeb vai tr\u00f2 l\u00e0m cha m\u1eb9.\u201d<\/p>\n

Th\u00e1ng 7 n\u0103m ngo\u00e1i, Leonard tr\u1edf th\u00e0nh ng\u01b0\u1eddi ph\u1ee5 n\u1eef \u0111\u1ea7u ti\u00ean \u0111\u1ea3m nhi\u1ec7m v\u1ecb tr\u00ed B\u00e1c s\u0129 tr\u01b0\u1edfng Adalyn Jay t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford, \u0111\u1ed3ng th\u1eddi l\u00e0 Gi\u00e1o s\u01b0 ki\u00eam Tr\u01b0\u1edfng khoa Nhi khoa Arline v\u00e0 Pete Harman t\u1ea1i Tr\u01b0\u1eddng Y \u0110\u1ea1i h\u1ecdc Stanford. Hi\u1ec7n b\u00e0 \u0111ang d\u1eabn d\u1eaft nghi\u00ean c\u1ee9u s\u1ee9c kh\u1ecfe b\u00e0 m\u1eb9 v\u00e0 tr\u1ebb em b\u01b0\u1edbc v\u00e0o m\u1ed9t k\u1ef7 nguy\u00ean th\u1ef1c s\u1ef1 th\u00fa v\u1ecb.<\/p>\n

Th\u1eadt tr\u00f9ng h\u1ee3p, b\u1edfi B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard c\u0169ng l\u00e0 th\u00e0nh qu\u1ea3 s\u00e1ng t\u1ea1o c\u1ee7a m\u1ed9t ng\u01b0\u1eddi ph\u1ee5 n\u1eef c\u00f3 t\u1ea7m nh\u00ecn xa. N\u0103m 1987, Lucile Salter Packard v\u00e0 ch\u1ed3ng, David Packard, \u0111\u00e3 \u0111\u00f3ng g\u00f3p ti\u1ec1n s\u00e1ng l\u1eadp \u0111\u1ec3 x\u00e2y d\u1ef1ng b\u1ec7nh vi\u1ec7n. "\u01af\u1edbc m\u01a1 c\u1ee7a t\u00f4i", b\u00e0 Packard t\u1eebng n\u00f3i, "l\u00e0 50 n\u0103m n\u1eefa, nh\u1eefng c\u0103n b\u1ec7nh th\u1eddi th\u01a1 \u1ea5u g\u00e2y ra bi\u1ebft bao \u0111au kh\u1ed5 s\u1ebd bi\u1ebfn m\u1ea5t." <\/p>\n

Trong 30 n\u0103m qua, ch\u00fang ta \u0111\u00e3 \u0111\u1ea1t \u0111\u01b0\u1ee3c nh\u1eefng ti\u1ebfn b\u1ed9 v\u01b0\u1ee3t b\u1eadc trong vi\u1ec7c hi\u1ec7n th\u1ef1c h\u00f3a gi\u1ea5c m\u01a1 \u0111\u00f3. Tr\u1ebb em \u0111ang s\u1ed1ng s\u00f3t sau c\u0103n b\u1ec7nh b\u1ea1ch c\u1ea7u t\u1eebng g\u00e2y t\u1eed vong. Tr\u1ebb em sinh ra v\u1edbi d\u1ecb t\u1eadt tim b\u1ea9m sinh v\u00e0 x\u01a1 nang \u0111ang s\u1ed1ng \u0111\u1ebfn tu\u1ed5i tr\u01b0\u1edfng th\u00e0nh. V\u00e0 c\u00e1c b\u1ec7nh nh\u01b0 b\u1ea1i li\u1ec7t v\u00e0 lao, v\u1ed1n t\u1eebng l\u00e0 c\u00f4ng vi\u1ec7c h\u00e0ng ng\u00e0y c\u1ee7a c\u00e1c b\u00e1c s\u0129 nhi khoa, ph\u1ea7n l\u1edbn \u0111\u00e3 tr\u1edf th\u00e0nh l\u1ecbch s\u1eed.<\/p>\n

Leonard \u0111\u00e3 ch\u1ee9ng ki\u1ebfn s\u1ef1 ti\u1ebfn tri\u1ec3n n\u00e0y m\u1ed9t c\u00e1ch c\u1eadn c\u1ea3nh trong c\u00f4ng vi\u1ec7c c\u1ee7a m\u00ecnh v\u1edbi t\u01b0 c\u00e1ch l\u00e0 m\u1ed9t b\u00e1c s\u0129 chuy\u00ean khoa th\u1eadn nhi. Nhi\u1ec1u n\u0103m tr\u01b0\u1edbc, c\u00f4 \u0111\u00e3 ch\u0103m s\u00f3c m\u1ed9t c\u1eadu b\u00e9 - c\u00f9ng tu\u1ed5i v\u1edbi con trai m\u00ecnh - sinh ra \u0111\u00e3 m\u1eafc m\u1ed9t c\u0103n b\u1ec7nh th\u1eadn di truy\u1ec1n r\u1ea5t hi\u1ebfm g\u1eb7p. C\u1eadu b\u00e9 li\u00ean t\u1ee5c ph\u1ea3i v\u1eadt l\u1ed9n v\u1edbi nh\u1eefng c\u01a1n cao huy\u1ebft \u00e1p, suy th\u1eadn, thi\u1ebfu m\u00e1u, suy tim v\u00e0 c\u00e1c bi\u1ebfn ch\u1ee9ng nguy hi\u1ec3m \u0111\u1ebfn t\u00ednh m\u1ea1ng kh\u00e1c. <\/p>\n

\u201cT\u00f4i \u0111\u00e3 \u0111\u01b0a anh \u1ea5y v\u00e0o vi\u1ec7n 14 l\u1ea7n,\u201d Leonard n\u00f3i. \u201c\u0110i\u1ec1u \u0111\u00e1ng ch\u00fa \u00fd l\u00e0 ng\u00e0y nay, gen g\u00e2y b\u1ec7nh cho anh \u1ea5y \u0111\u00e3 \u0111\u01b0\u1ee3c x\u00e1c \u0111\u1ecbnh v\u00e0 \u0111\u00e3 c\u00f3 ph\u01b0\u01a1ng ph\u00e1p ch\u1eefa tr\u1ecb. V\u1edbi m\u1ee9c \u0111\u1ed9 t\u00e0n ph\u00e1 kh\u1ee7ng khi\u1ebfp c\u1ee7a c\u0103n b\u1ec7nh n\u00e0y tr\u01b0\u1edbc \u0111\u00e2y, vi\u1ec7c ch\u00fang ta c\u00f3 ph\u01b0\u01a1ng ph\u00e1p ch\u1eefa tr\u1ecb g\u1ea7n nh\u01b0 l\u00e0 m\u1ed9t \u0111i\u1ec1u k\u1ef3 di\u1ec7u.\u201d <\/p>\n

C\u00f4 quy\u1ebft t\u00e2m l\u00e0m \u0111i\u1ec1u t\u01b0\u01a1ng t\u1ef1 cho r\u1ea5t nhi\u1ec1u tr\u1ebb em v\u1eabn \u0111ang ph\u1ea3i ch\u1ecbu \u0111\u1ef1ng nh\u1eefng th\u00e1ch th\u1ee9c to l\u1edbn. Ng\u00e0y nay, ch\u00fang ta g\u1ea7n nh\u01b0 kh\u00f4ng th\u1ec3 l\u00e0m g\u00ec cho tr\u1ebb em m\u1eafc m\u1ed9t s\u1ed1 kh\u1ed1i u n\u00e3o nguy hi\u1ec3m. Sinh non v\u1eabn l\u00e0 nguy\u00ean nh\u00e2n t\u1eed vong h\u00e0ng \u0111\u1ea7u \u1edf tr\u1ebb em d\u01b0\u1edbi 5 tu\u1ed5i tr\u00ean to\u00e0n th\u1ebf gi\u1edbi. V\u00e0 nhi\u1ec1u c\u0103n b\u1ec7nh b\u00ed \u1ea9n v\u1eabn ch\u01b0a th\u1ec3 ch\u1eefa kh\u1ecfi. <\/p>\n

Trong nghi\u00ean c\u1ee9u c\u1ee7a ri\u00eang m\u00ecnh v\u1ec1 s\u1ee9c kh\u1ecfe x\u01b0\u01a1ng, Leonard \u0111\u00e3 ch\u1ee9ng ki\u1ebfn nh\u1eefng ng\u01b0\u1eddi tr\u1ebb tu\u1ed5i t\u1eebng v\u01b0\u1ee3t qua c\u00e1c c\u0103n b\u1ec7nh nan y tr\u01b0\u1edbc \u0111\u00e2y, nh\u01b0ng gi\u1edd \u0111\u00e2y l\u1ea1i m\u1eafc ch\u1ee9ng lo\u00e3ng x\u01b0\u01a1ng, v\u1ed1n th\u01b0\u1eddng ch\u1ec9 x\u1ea3y ra \u1edf ng\u01b0\u1eddi cao tu\u1ed5i. "Gi\u1edd \u0111\u00e2y, khi \u0111\u00e3 l\u00e0 b\u00e1c s\u0129 tr\u01b0\u1edfng, t\u00f4i c\u00e0ng quan t\u00e2m h\u01a1n \u0111\u1ebfn c\u00e1i ch\u1ebft v\u00e0 n\u1ed7i \u0111au kh\u1ed5 c\u1ee7a b\u1ec7nh nh\u00e2n", Leonard n\u00f3i. "\u0110i\u1ec1u \u0111\u00f3 th\u00f4i th\u00fac t\u00f4i m\u1ed7i ng\u00e0y h\u1ed7 tr\u1ee3 c\u00e1c b\u00e1c s\u0129-nh\u00e0 khoa h\u1ecdc v\u00e0 b\u00e1c s\u0129 l\u00e2m s\u00e0ng \u0111\u1ea7y nhi\u1ec7t huy\u1ebft, nh\u1eefng ng\u01b0\u1eddi \u0111ang n\u1ed7 l\u1ef1c ph\u00e1t tri\u1ec3n v\u00e0 \u0111\u01b0a ra c\u00e1c ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb m\u1edbi nhanh nh\u1ea5t c\u00f3 th\u1ec3." <\/p>\n

Leonard \u0111ang \u1edf \u0111\u00fang n\u01a1i, \u0111\u00fang th\u1eddi \u0111i\u1ec3m. H\u00f4m nay, l\u1ea7n \u0111\u1ea7u ti\u00ean, khoa h\u1ecdc \u0111\u00e3 ti\u1ebfn b\u1ed9 \u0111\u1ebfn m\u1ee9c ch\u00fang ta c\u00f3 th\u1ec3 th\u1ef1c hi\u1ec7n \u0111\u01b0\u1ee3c \u01b0\u1edbc m\u01a1 c\u1ee7a Lucile, theo nh\u1eefng c\u00e1ch r\u1ea5t th\u1ef1c t\u1ebf m\u00e0 ch\u1ec9 m\u1ed9t th\u1eadp k\u1ef7 tr\u01b0\u1edbc \u0111\u00e2y kh\u00f4ng th\u1ec3 t\u01b0\u1edfng t\u01b0\u1ee3ng \u0111\u01b0\u1ee3c. C\u00e1c k\u1ef9 thu\u1eadt m\u1edbi nh\u01b0 t\u1ebf b\u00e0o g\u1ed1c v\u00e0 li\u1ec7u ph\u00e1p gen \u0111ang ph\u00e1t tri\u1ec3n v\u1edbi t\u1ed1c \u0111\u1ed9 ch\u01b0a t\u1eebng c\u00f3, mang \u0111\u1ebfn ti\u1ec1m n\u0103ng ch\u1eefa kh\u1ecfi h\u00e0ng tr\u0103m c\u0103n b\u1ec7nh \u0111ang \u1ea3nh h\u01b0\u1edfng \u0111\u1ebfn h\u00e0ng tri\u1ec7u tr\u1ebb em tr\u00ean to\u00e0n th\u1ebf gi\u1edbi. <\/p>\n

Leonard n\u00f3i: \u201cGi\u1edd \u0111\u00e2y, ch\u00fang ta c\u00f3 th\u1ec3 h\u00ecnh dung ra m\u1ed9t t\u01b0\u01a1ng lai, khi ch\u00fang ta c\u00f3 th\u1ec3 d\u1ef1 \u0111o\u00e1n v\u00e0 ng\u0103n ng\u1eeba nh\u1eefng d\u1ecb t\u1eadt b\u1ea9m sinh v\u00e0 b\u1ec7nh t\u1eadt nghi\u00eam tr\u1ecdng \u1edf tr\u1ebb em tr\u01b0\u1edbc khi ch\u00fang x\u1ea3y ra. V\u00e0 khi b\u1ec7nh t\u1eadt \u1eadp \u0111\u1ebfn, ch\u00fang ta s\u1ebd kh\u00f4ng ch\u1ec9 \u0111i\u1ec1u tr\u1ecb m\u00e0 c\u00f2n ch\u1eefa kh\u1ecfi ho\u00e0n to\u00e0n \u2013 gi\u1eef cho tr\u1ebb em v\u00e0 b\u00e0 m\u1eb9 kh\u1ecfe m\u1ea1nh kh\u00f4ng ch\u1ec9 h\u00f4m nay m\u00e0 c\u00f2n su\u1ed1t \u0111\u1eddi.\u201d <\/p>\n

Ch\u1eafc ch\u1eafn \u0111\u00f3 l\u00e0 m\u1ed9t m\u1ee5c ti\u00eau x\u1ee9ng \u0111\u00e1ng, nh\u01b0ng c\u1ea7n nh\u1eefng g\u00ec \u0111\u1ec3 \u0111\u1ea1t \u0111\u01b0\u1ee3c n\u00f3? M\u1ecdi kh\u00e1m ph\u00e1 khoa h\u1ecdc tr\u00ean th\u1ebf gi\u1edbi \u0111\u1ec1u v\u00f4 \u00edch n\u1ebfu kh\u00f4ng c\u00f3 c\u00e1ch n\u00e0o chuy\u1ec3n h\u00f3a nh\u1eefng hi\u1ec3u bi\u1ebft t\u1eeb ph\u00f2ng th\u00ed nghi\u1ec7m th\u00e0nh c\u00e1c ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb v\u00e0 ch\u1eefa kh\u1ecfi b\u1ec7nh th\u1ef1c t\u1ebf cho b\u1ec7nh nh\u00e2n. \u0110\u00f3 ch\u00ednh l\u00e0 l\u00fac Leonard v\u00e0 s\u1ef1 h\u1ed7 tr\u1ee3 c\u1ee7a b\u1ea1n ph\u00e1t huy t\u00e1c d\u1ee5ng. <\/p>\n

X\u00e2y d\u1ef1ng \u0111\u1ed9ng c\u01a1 cho kh\u00e1m ph\u00e1 <\/h3>\n

T\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Philadelphia, n\u01a1i b\u00e0 \u0111\u00e3 l\u00e0m vi\u1ec7c 25 n\u0103m tr\u01b0\u1edbc khi \u0111\u1ebfn Stanford v\u00e0o n\u0103m 2014, Leonard \u0111\u00e3 l\u00e3nh \u0111\u1ea1o V\u0103n ph\u00f2ng Nghi\u00ean c\u1ee9u L\u00e2m s\u00e0ng v\u00e0 Chuy\u1ec3n d\u1ecbch, n\u01a1i cung c\u1ea5p ngu\u1ed3n l\u1ef1c, m\u00f4i tr\u01b0\u1eddng, ho\u1ea1t \u0111\u1ed9ng v\u00e0 \u0111\u00e0o t\u1ea1o \u0111\u1ec3 h\u1ed7 tr\u1ee3 v\u00e0 th\u00fac \u0111\u1ea9y nghi\u00ean c\u1ee9u l\u00e2m s\u00e0ng v\u00e0 chuy\u1ec3n d\u1ecbch c\u1ee7a h\u01a1n 300 nh\u00e0 nghi\u00ean c\u1ee9u ch\u00ednh. T\u1ea1i \u0110\u1ea1i h\u1ecdc Stanford, n\u01a1i Leonard c\u0169ng l\u00e0 gi\u00e1m \u0111\u1ed1c Vi\u1ec7n Nghi\u00ean c\u1ee9u S\u1ee9c kh\u1ecfe Tr\u1ebb em, b\u00e0 \u0111\u1eb7t m\u1ee5c ti\u00eau x\u00e2y d\u1ef1ng n\u1ec1n kinh t\u1ebf quy m\u00f4 t\u01b0\u01a1ng t\u1ef1. \u0110\u1ed9i ng\u0169 gi\u1ea3ng vi\u00ean v\u00e0 tr\u01b0\u1eddng c\u1ee7a Stanford v\u1ed1n \u0111\u00e3 n\u1ed5i ti\u1ebfng v\u1edbi c\u00e1c gi\u1ea3i Nobel v\u00e0 \u0111\u1ee9ng \u0111\u1ea7u danh s\u00e1ch c\u00e1c tr\u01b0\u1eddng \u0111\u1ea1i h\u1ecdc h\u00e0ng \u0111\u1ea7u trong l\u0129nh v\u1ef1c y h\u1ecdc, khoa h\u1ecdc sinh h\u1ecdc v\u00e0 k\u1ef9 thu\u1eadt. B\u01b0\u1edbc ti\u1ebfp theo l\u00e0 huy \u0111\u1ed9ng t\u1ea5t c\u1ea3 nh\u1eefng thi\u00ean t\u00e0i khoa h\u1ecdc \u0111\u00f3 \u0111\u1ec3 gi\u1ea3i quy\u1ebft c\u00e1c v\u1ea5n \u0111\u1ec1 s\u1ee9c kh\u1ecfe c\u1ee7a c\u00e1c b\u00e0 m\u1eb9 t\u01b0\u01a1ng lai v\u00e0 tr\u1ebb em. <\/p>\n

Leonard t\u1eadp trung v\u00e0o vi\u1ec7c x\u00e2y d\u1ef1ng c\u01a1 s\u1edf h\u1ea1 t\u1ea7ng v\u00e0 n\u0103ng l\u1ef1c c\u1ea7n thi\u1ebft \u0111\u1ec3 bi\u1ebfn nghi\u00ean c\u1ee9u th\u00e0nh ph\u01b0\u01a1ng ph\u00e1p ch\u1eefa tr\u1ecb. C\u00f3 th\u1ec3 \u0111\u00e2y kh\u00f4ng ph\u1ea3i l\u00e0 \u0111i\u1ec1u khoa h\u1ecdc vi\u1ec5n t\u01b0\u1edfng \u0111ang g\u00e2y s\u1ed1t tr\u00ean c\u00e1c m\u1eb7t b\u00e1o, nh\u01b0ng c\u00f4 \u1ea5y \u0111ang mi\u1ec7t m\u00e0i l\u00e0m vi\u1ec7c h\u1eadu tr\u01b0\u1eddng \u0111\u1ec3 h\u01b0\u1edbng d\u1eabn v\u00e0 trang b\u1ecb cho m\u1ed9t th\u1ebf h\u1ec7 c\u00e1c nh\u00e0 nghi\u00ean c\u1ee9u ch\u1ed1ng l\u1ea1i b\u1ec7nh t\u1eadt. <\/p>\n

B\u1ea1n bi\u1ebft c\u1ea3m gi\u00e1c khi l\u00e1i m\u1ed9t chi\u1ebfc xe tuy\u1ec7t v\u1eddi ch\u1ee9? Ch\u1ec9 c\u1ea7n b\u01b0\u1edbc v\u00e0o, m\u1ecdi th\u1ee9 \u0111\u1ec1u v\u1eadn h\u00e0nh tr\u01a1n tru. N\u00f3 \u0111\u01b0a b\u1ea1n t\u1eeb \u0111i\u1ec3m A \u0111\u1ebfn \u0111i\u1ec3m B m\u1ed9t c\u00e1ch li\u1ec1n m\u1ea1ch \u0111\u1ebfn n\u1ed7i b\u1ea1n th\u1eadm ch\u00ed kh\u00f4ng c\u1ea7n ph\u1ea3i ngh\u0129 \u0111\u1ebfn nh\u1eefng g\u00ec \u0111ang di\u1ec5n ra b\u00ean d\u01b0\u1edbi n\u1eafp capo. <\/p>\n

\u0110\u00f3 ch\u00ednh l\u00e0 m\u1ee5c ti\u00eau m\u00e0 Leonard h\u01b0\u1edbng \u0111\u1ebfn t\u1ea1i Stanford cho nghi\u00ean c\u1ee9u s\u1ee9c kh\u1ecfe tr\u1ebb em v\u00e0 b\u00e0 m\u1eb9: m\u1ed9t c\u1ed7 m\u00e1y kh\u00e1m ph\u00e1 t\u1ed1t h\u01a1n, v\u1eadn h\u00e0nh tr\u01a1n tru nh\u01b0 m\u1ed9t c\u1ed7 m\u00e1y \u0111\u01b0\u1ee3c tra d\u1ea7u k\u1ef9 l\u01b0\u1ee1ng, ho\u1ea1t \u0111\u1ed9ng m\u1ed9t c\u00e1ch c\u00f3 h\u1ec7 th\u1ed1ng v\u00e0 hi\u1ec7u qu\u1ea3. \u201c\u0110i\u1ec1u khi\u1ebfn t\u00f4i ph\u1ea5n kh\u00edch nh\u1ea5t hi\u1ec7n nay,\u201d c\u00f4 n\u00f3i, \u201cl\u00e0 nh\u00ecn th\u1ea5y tia l\u1eeda \u0111am m\u00ea nghi\u00ean c\u1ee9u \u1edf c\u00e1c th\u1ef1c t\u1eadp sinh tr\u1ebb. T\u00f4i mu\u1ed1n l\u00e0m m\u1ecdi th\u1ee9 c\u00f3 th\u1ec3 \u0111\u1ec3 h\u1ed7 tr\u1ee3 c\u00e1c em ph\u00e1t huy h\u1ebft ti\u1ec1m n\u0103ng.\u201d M\u1ee5c ti\u00eau c\u1ee7a c\u00f4 l\u00e0 cho ph\u00e9p c\u00e1c nh\u00e0 khoa h\u1ecdc t\u1eadp trung v\u00e0o nghi\u00ean c\u1ee9u thay v\u00ec ph\u1ea3i l\u1eafp r\u00e1p m\u1ed9t c\u1ed7 m\u00e1y m\u1edbi m\u1ed7i l\u1ea7n. <\/p>\n

Nh\u1eefng th\u1ee9 \u1ea9n b\u00ean trong, s\u1ebd \u0111\u1ea9y nhanh vi\u1ec7c kh\u00e1m ph\u00e1 ra c\u00e1c ph\u01b0\u01a1ng ph\u00e1p ch\u1eefa tr\u1ecb m\u1edbi, bao g\u1ed3m h\u1ed7 tr\u1ee3 tuy\u1ec3n d\u1ee5ng nh\u1eefng ng\u01b0\u1eddi tham gia th\u1eed nghi\u1ec7m l\u00e2m s\u00e0ng \u0111\u00e1p \u1ee9ng c\u00e1c ti\u00eau ch\u00ed nghi\u00eam ng\u1eb7t cho t\u1eebng giao th\u1ee9c; l\u1eadp ng\u00e2n s\u00e1ch v\u00e0 b\u00e1o c\u00e1o \u0111\u1ec3 \u0111\u00e1p \u1ee9ng c\u00e1c y\u00eau c\u1ea7u c\u1ee7a nh\u00e0 t\u00e0i tr\u1ee3 v\u00e0 c\u01a1 quan qu\u1ea3n l\u00fd; th\u1ed1ng k\u00ea sinh h\u1ecdc v\u00e0 qu\u1ea3n l\u00fd d\u1eef li\u1ec7u; gi\u00e1m s\u00e1t \u0111\u1ec3 t\u0103ng c\u01b0\u1eddng an to\u00e0n cho b\u1ec7nh nh\u00e2n; v\u00e0 \u0111\u00e0o t\u1ea1o cho th\u1ebf h\u1ec7 \u0111i\u1ec1u tra vi\u00ean \u0111\u1ee7 ti\u00eau chu\u1ea9n ti\u1ebfp theo. <\/p>\n

\u0110\u00e2y l\u00e0 m\u1ed9t n\u1ec1n t\u1ea3ng nghi\u00ean c\u1ee9u kh\u1ed5ng l\u1ed3, tuy kh\u00f4ng m\u1ea5y h\u1ea5p d\u1eabn nh\u01b0ng l\u1ea1i v\u00f4 c\u00f9ng c\u1ea7n thi\u1ebft, kh\u00f4ng ch\u1ec9 \u0111\u1ecbnh h\u00ecnh t\u01b0\u01a1ng lai c\u1ee7a nhi khoa m\u00e0 c\u00f2n c\u00f3 kh\u1ea3 n\u0103ng thay \u0111\u1ed5i cu\u1ed9c s\u1ed1ng c\u1ee7a h\u00e0ng tri\u1ec7u tr\u1ebb em. <\/p>\n

Tuy nhi\u00ean, th\u00e0nh c\u00f4ng kh\u00f4ng ph\u1ea3i l\u00e0 \u0111i\u1ec1u t\u1ea5t y\u1ebfu. Ng\u00e2n s\u00e1ch ch\u00ednh ph\u1ee7 cho nghi\u00ean c\u1ee9u y khoa \u0111\u00e3 gi\u1ea3m d\u1ea7n trong nhi\u1ec1u th\u1eadp k\u1ef7, v\u00e0 kh\u00f4ng \u0111\u1ee7 trang tr\u1ea3i chi ph\u00ed c\u01a1 s\u1edf h\u1ea1 t\u1ea7ng c\u01a1 b\u1ea3n c\u1ea7n thi\u1ebft cho vi\u1ec7c ho\u00e0n th\u00e0nh c\u00e1c nghi\u00ean c\u1ee9u. T\u1ea1i Hoa K\u1ef3, ho\u1ea1t \u0111\u1ed9ng t\u1eeb thi\u1ec7n hi\u1ec7n l\u00e0 ngu\u1ed3n t\u00e0i tr\u1ee3 quan tr\u1ecdng nh\u1ea5t cho c\u00e1c nghi\u00ean c\u1ee9u c\u01a1 b\u1ea3n, giai \u0111o\u1ea1n \u0111\u1ea7u v\u00e0 th\u1eed nghi\u1ec7m l\u00e2m s\u00e0ng. N\u1ebfu kh\u00f4ng c\u00f3 n\u00f3, nghi\u00ean c\u1ee9u s\u1ebd b\u1ecb \u0111\u00ecnh tr\u1ec7, v\u00e0 r\u1ea5t \u00edt ph\u01b0\u01a1ng ph\u00e1p ch\u1eefa tr\u1ecb th\u1ef1c s\u1ef1 c\u00f3 th\u1ec3 \u0111\u1ebfn \u0111\u01b0\u1ee3c v\u1edbi nh\u1eefng tr\u1ebb em c\u1ea7n ch\u00fang. <\/p>\n

\u201cCh\u00fang ta \u0111ang \u1edf ng\u01b0\u1ee1ng c\u1eeda c\u1ee7a nh\u1eefng \u0111\u1ed9t ph\u00e1 l\u1edbn trong \u0111i\u1ec1u tr\u1ecb nhi\u1ec1u b\u1ec7nh nguy hi\u1ec3m \u0111\u1ebfn t\u00ednh m\u1ea1ng \u1edf tr\u1ebb em\u201d, b\u00e0 n\u00f3i. \u201cVi\u1ec7c thi\u1ebfu kinh ph\u00ed s\u1ebd l\u00e0m ch\u1eadm l\u1ea1i nh\u1eefng \u0111\u1ed9ng l\u1ef1c \u0111\u01b0a nh\u1eefng kh\u00e1m ph\u00e1 n\u00e0y v\u00e0o ch\u0103m s\u00f3c l\u00e2m s\u00e0ng. <\/p>\n

\u201cNh\u01b0ng v\u1edbi s\u1ef1 h\u1ed7 tr\u1ee3 t\u1eeb thi\u1ec7n,\u201d Leonard n\u00f3i th\u00eam, \u201cch\u00fang ta c\u00f3 th\u1ec3 \u0111\u1ea1t \u0111\u01b0\u1ee3c \u0111i\u1ec1u \u0111\u00f3 nhanh h\u01a1n.\u201d<\/p>\n

B\u00e0i vi\u1ebft n\u00e0y l\u1ea7n \u0111\u1ea7u ti\u00ean xu\u1ea5t hi\u1ec7n tr\u00ean \u1ea5n b\u1ea3n M\u00f9a xu\u00e2n n\u0103m 2017 c\u1ee7a Tin t\u1ee9c tr\u1ebb em Lucile Packard<\/a>.<\/em><\/p>\n

T\u00ecm hi\u1ec3u th\u00eam v\u1ec1 nghi\u00ean c\u1ee9u c\u1ee7a Mary Leonard:
C\u00f3 h\u1ea1i cho x\u01b0\u01a1ng: S\u1ed1 ng\u01b0\u1eddi m\u1eafc b\u1ec7nh m\u00e3n t\u00ednh \u1edf tr\u1ebb em t\u1ea1i supportLPCH.org\/bone<\/a><\/b><\/p>","protected":false},"excerpt":{"rendered":"

C\u00e1c con c\u1ee7a Mary Leonard lu\u00f4n bi\u1ebft khi n\u00e0o b\u00e0 l\u00e0m vi\u1ec7c \u1edf b\u1ec7nh vi\u1ec7n. Ch\u00fang nh\u1eadn \u0111\u01b0\u1ee3c tin nh\u1eafn b\u1ea5t ng\u1edd t\u1eeb b\u00e0, nh\u1eafc nh\u1edf ch\u00fang ph\u1ea3i nh\u00ecn c\u1ea3 hai h\u01b0\u1edbng\u2026<\/p>","protected":false},"author":17,"featured_media":3881,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148],"class_list":["post-3880","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news"],"acf":[],"yoast_head":"\nTranslating Discoveries into Cures—Faster - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lpfch.org\/vi\/impact-stories\/translating-discoveries-into-curesfaster\/\" \/>\n<meta property=\"og:locale\" content=\"vi_VN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Translating Discoveries into Cures—Faster\" \/>\n<meta property=\"og:description\" content=\"Mary Leonard’s own children always know when she’s working in the hospital. 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