{"id":4187,"date":"2021-02-19T20:21:50","date_gmt":"2021-02-19T20:21:50","guid":{"rendered":"https:\/\/lpfch.org\/bucky-is-here-because-you-care\/"},"modified":"2024-02-14T14:08:26","modified_gmt":"2024-02-14T14:08:26","slug":"bucky-is-here-because-you-care","status":"publish","type":"post","link":"http:\/\/lpfch.org\/vi\/impact-stories\/bucky-is-here-because-you-care\/","title":{"rendered":"Bucky \u1edf \u0111\u00e2y v\u00ec b\u1ea1n quan t\u00e2m"},"content":{"rendered":"<p>&quot;Bucky th\u00edch nh\u1ea3y m\u00faa, xem &quot;Teletubbies&quot; v\u00e0 ch\u01a1i b\u1ea5t c\u1ee9 th\u1ee9 g\u00ec c\u00f3 b\u00e1nh xe&quot;, m\u1eb9 c\u1eadu b\u00e9, Anna Greunke, cho bi\u1ebft. &quot;L\u00fac n\u00e0o th\u1eb1ng b\u00e9 c\u0169ng vui v\u1ebb.&quot;<\/p>\n<p>Nh\u01b0ng khi Bucky \u0111\u01b0\u1ee3c 2 tu\u1ea7n tu\u1ed5i, Anna nh\u1eadn ra c\u00f3 \u0111i\u1ec1u g\u00ec \u0111\u00f3 kh\u00f4ng \u1ed5n. Ban \u0111\u1ea7u, Bucky r\u1ea5t vui v\u1ebb v\u00e0 n\u0103ng \u0111\u1ed9ng. &quot;Sau \u0111\u00f3, t\u00f4i c\u00f3 m\u1ed9t c\u1ea3m gi\u00e1c k\u1ef3 l\u1ea1&quot;, c\u00f4 k\u1ec3. &quot;Th\u1eb1ng b\u00e9 s\u1ee5t c\u00e2n m\u1eb7c d\u00f9 \u0103n u\u1ed1ng r\u1ea5t t\u1ed1t. \u0110i\u1ec1u n\u00e0y th\u1eadt v\u00f4 l\u00fd.&quot;<\/p>\n<p>Anna \u0111\u01b0a Bucky \u0111\u1ebfn b\u00e1c s\u0129 nhi khoa, v\u00e0 b\u00e1c s\u0129 khuy\u00ean h\u1ecd n\u00ean chuy\u1ec3n c\u1eadu b\u00e9 \u0111\u1ebfn m\u1ed9t b\u1ec7nh vi\u1ec7n l\u1edbn h\u01a1n g\u1ea7n qu\u00ea nh\u00e0 Patterson c\u1ee7a h\u1ecd. Khi \u0111\u1ebfn n\u01a1i, m\u1ed9t b\u00e1c s\u0129 n\u00f3i v\u1edbi Anna r\u1eb1ng \u00f4ng nghi ng\u1edd Bucky m\u1eafc m\u1ed9t c\u0103n b\u1ec7nh gan hi\u1ebfm g\u1eb7p, \u0111e d\u1ecda t\u00ednh m\u1ea1ng, g\u1ecdi l\u00e0 teo \u0111\u01b0\u1eddng m\u1eadt. Tr\u1ebb s\u01a1 sinh m\u1eafc ch\u1ee9ng teo \u0111\u01b0\u1eddng m\u1eadt kh\u00f4ng c\u00f3 s\u1ef1 k\u1ebft n\u1ed1i gi\u1eefa gan v\u00e0 ru\u1ed9t non, khi\u1ebfn m\u1eadt b\u1ecb \u1ee9 \u0111\u1ecdng v\u00e0 ph\u00e1 h\u1ee7y gan.<\/p>\n<p>C\u00e1c b\u00e1c s\u0129 c\u1ee7a Bucky d\u1ef1 \u0111\u1ecbnh sinh thi\u1ebft gan v\u00e0 ch\u1edd k\u1ebft qu\u1ea3 hai tu\u1ea7n. Sau \u0111\u00f3, h\u1ecd s\u1ebd c\u00e2n nh\u1eafc th\u1ef1c hi\u1ec7n m\u1ed9t ph\u1eabu thu\u1eadt chuy\u00ean khoa, g\u1ecdi l\u00e0 th\u1ee7 thu\u1eadt Kasai, \u0111\u1ec3 d\u1eabn m\u1eadt ra kh\u1ecfi gan.<\/p>\n<p>V\u00e0i ng\u00e0y sau, Anna nh\u1eadn th\u1ea5y Bucky kh\u00f4ng kh\u1ecfe. May m\u1eafn thay, b\u1ea1n c\u00f4 l\u00e0m y t\u00e1 t\u1ea1i khoa gh\u00e9p gan nhi c\u1ee7a B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford, v\u00e0 Anna \u0111\u00e3 li\u00ean h\u1ec7 \u0111\u1ec3 xin l\u1eddi khuy\u00ean. &quot;C\u00f4 \u1ea5y n\u00f3i v\u1edbi t\u00f4i r\u1eb1ng t\u00f4i th\u1ef1c s\u1ef1 kh\u00f4ng n\u00ean \u0111\u1ee3i hai tu\u1ea7n&quot;, Anna k\u1ec3.<\/p>\n<h3>M\u1ed9t c\u1eeda s\u1ed5 quan tr\u1ecdng<\/h3>\n<p>Anna ngay l\u1eadp t\u1ee9c chuy\u1ec3n Bucky \u0111\u1ebfn B\u1ec7nh vi\u1ec7n Nhi Packard. Khi h\u1ecd \u0111\u1ebfn v\u00e0o l\u00fac n\u1eeda \u0111\u00eam, m\u1ed9t b\u00e1c s\u0129 ph\u1eabu thu\u1eadt \u0111\u00e3 g\u1eb7p h\u1ecd v\u00e0 th\u1ea3o lu\u1eadn c\u00e1c b\u01b0\u1edbc ti\u1ebfp theo. &quot;Th\u1eddi \u0111i\u1ec3m ph\u1eabu thu\u1eadt r\u1ea5t quan tr\u1ecdng&quot;, b\u00e1c s\u0129 nhi khoa v\u1ec1 gan Leina Alrabadi cho bi\u1ebft. N\u1ebfu ph\u1eabu thu\u1eadt Kasai \u0111\u01b0\u1ee3c th\u1ef1c hi\u1ec7n trong v\u00f2ng 45 ng\u00e0y \u0111\u1ea7u \u0111\u1eddi, ca ph\u1eabu thu\u1eadt c\u00f3 c\u01a1 h\u1ed9i ph\u1ee5c h\u1ed3i l\u01b0u l\u01b0\u1ee3ng m\u1eadt v\u00e0 gi\u1ea3m thi\u1ec3u t\u1ed5n th\u01b0\u01a1ng gan cao h\u01a1n nhi\u1ec1u.<\/p>\n<p>M\u1ed9t nh\u00f3m chuy\u00ean gia \u0111a chuy\u00ean khoa g\u1ed3m c\u00e1c chuy\u00ean gia v\u1ec1 gan nhi khoa, ph\u1eabu thu\u1eadt, X-quang can thi\u1ec7p v\u00e0 \u0111i\u1ec1u d\u01b0\u1ee1ng \u0111\u00e3 v\u00e0o cu\u1ed9c. Bucky \u0111\u01b0\u1ee3c ph\u1eabu thu\u1eadt ba ng\u00e0y sau \u0111\u00f3, khi m\u1edbi 33 ng\u00e0y tu\u1ed5i, tr\u1edf th\u00e0nh b\u1ec7nh nh\u00e2n nh\u1ecf tu\u1ed5i nh\u1ea5t \u0111\u01b0\u1ee3c ph\u1eabu thu\u1eadt Kasai t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard.<\/p>\n<h3>M\u1ed9t ng\u00e0y mai \u0111\u1ea7y h\u1ee9a h\u1eb9n<\/h3>\n<p>May m\u1eafn thay, ca ph\u1eabu thu\u1eadt c\u1ee7a Bucky \u0111\u00e3 th\u00e0nh c\u00f4ng. M\u1eb7c d\u00f9 ph\u01b0\u01a1ng ph\u00e1p Kasai kh\u00f4ng th\u1ec3 ch\u1eefa kh\u1ecfi b\u1ec7nh teo \u0111\u01b0\u1eddng m\u1eadt, Bucky v\u1eabn c\u00f3 th\u1ec3 gi\u1eef \u0111\u01b0\u1ee3c gan t\u1ef1 nhi\u00ean l\u00e2u h\u01a1n v\u00e0 c\u00f3 kh\u1ea3 n\u0103ng tr\u00e1nh \u0111\u01b0\u1ee3c vi\u1ec7c ph\u1ea3i gh\u00e9p gan trong t\u01b0\u01a1ng lai.<\/p>\n<p>Hi\u1ec7n t\u1ea1i, b\u00e9 \u0111\u00e3 18 th\u00e1ng tu\u1ed5i v\u00e0 gan c\u1ee7a b\u00e9 ho\u1ea1t \u0111\u1ed9ng t\u1ed1t. B\u00e9 ch\u1ec9 c\u1ea7n d\u00f9ng m\u1ed9t lo\u1ea1i thu\u1ed1c v\u00e0 quay l\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard ba th\u00e1ng m\u1ed9t l\u1ea7n \u0111\u1ec3 ki\u1ec3m tra. \u0110\u1ed9i ng\u0169 ch\u0103m s\u00f3c c\u1ee7a b\u00e9 lu\u00f4n gi\u1eef li\u00ean l\u1ea1c ch\u1eb7t ch\u1ebd v\u1edbi Anna v\u00e0 c\u00e1c b\u00e1c s\u0129 \u0111\u1ecba ph\u01b0\u01a1ng \u0111\u1ec3 \u0111\u1ea3m b\u1ea3o x\u00e9t nghi\u1ec7m m\u00e1u c\u1ee7a b\u00e9 v\u1eabn b\u00ecnh th\u01b0\u1eddng v\u00e0 s\u1ef1 ph\u00e1t tri\u1ec3n c\u0169ng nh\u01b0 t\u0103ng tr\u01b0\u1edfng c\u1ee7a b\u00e9 \u0111ang \u0111i \u0111\u00fang h\u01b0\u1edbng.<\/p>\n<h3>S\u1ef1 h\u1ed7 tr\u1ee3 c\u1ee7a b\u1ea1n t\u1ea1i n\u01a1i l\u00e0m vi\u1ec7c<\/h3>\n<p>Anna cho bi\u1ebft c\u00f4 \u1ea5y c\u1ea3m th\u1ea5y \u0111\u01b0\u1ee3c h\u1ed7 tr\u1ee3 &quot;trong t\u1eebng b\u01b0\u1edbc \u0111i&quot; b\u1edfi \u0111\u1ed9i ng\u0169 ch\u0103m s\u00f3c tuy\u1ec7t v\u1eddi c\u1ee7a Bucky v\u00e0 nh\u1eefng ng\u01b0\u1eddi hi\u1ebfn t\u1eb7ng nh\u01b0 b\u1ea1n. Nh\u1eefng m\u00f3n qu\u00e0 c\u1ee7a b\u1ea1n d\u00e0nh cho      <em>Qu\u1ef9 tr\u1ebb em <\/em>h\u1ed7 tr\u1ee3 c\u00e1c ngu\u1ed3n l\u1ef1c thi\u1ebft y\u1ebfu nh\u01b0 nh\u00e2n vi\u00ean x\u00e3 h\u1ed9i, chuy\u00ean gia ch\u0103m s\u00f3c tr\u1ebb em v\u00e0 nhi\u1ec1u ng\u01b0\u1eddi kh\u00e1c gi\u00fap \u0111\u1ee1 c\u00e1c gia \u0111\u00ecnh v\u01b0\u1ee3t qua kh\u00f3 kh\u0103n khi n\u1eb1m vi\u1ec7n, gi\u00fap h\u1ecd t\u1eadp trung v\u00e0o nh\u1eefng \u0111i\u1ec1u quan tr\u1ecdng nh\u1ea5t.<\/p>\n<p>\u201cN\u1ebfu kh\u00f4ng c\u00f3 ng\u01b0\u1eddi hi\u1ebfn t\u1eb7ng, t\u00f4i kh\u00f4ng ngh\u0129 ch\u00fang t\u00f4i c\u00f3 th\u1ec3 \u1edf l\u1ea1i b\u1ec7nh vi\u1ec7n v\u1edbi Bucky,\u201d Anna n\u00f3i. \u201cT\u00f4i kh\u00f4ng ngh\u0129 ch\u00fang t\u00f4i c\u00f3 th\u1ec3 ch\u0103m s\u00f3c cho ch\u00e1u \u1edf m\u1ee9c \u0111\u1ed9 \u0111\u00f3. Nh\u1edd c\u00f3 ng\u01b0\u1eddi hi\u1ebfn t\u1eb7ng, tr\u1ebb em m\u1edbi c\u00f3 th\u1ec3 s\u1ed1ng s\u00f3t.\u201d<\/p>\n<p><em>Jodi Mouratis \u0111\u00e3 \u0111\u00f3ng g\u00f3p v\u00e0o b\u00e0i vi\u1ebft n\u00e0y.<\/em><\/p>\n<p><em>B\u00e0i vi\u1ebft n\u00e0y ban \u0111\u1ea7u xu\u1ea5t hi\u1ec7n trong \u1ea5n b\u1ea3n M\u00f9a xu\u00e2n n\u0103m 2021 c\u1ee7a&nbsp;<a      href=\"https:\/\/supportlpch.org\/publications\/fund-update\">C\u1eadp nh\u1eadt v\u1ec1 Qu\u1ef9 Tr\u1ebb em.<\/a><\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>&quot;Bucky th\u00edch nh\u1ea3y m\u00faa, xem &quot;Teletubbies&quot; v\u00e0 ch\u01a1i b\u1ea5t c\u1ee9 th\u1ee9 g\u00ec c\u00f3 b\u00e1nh xe&quot;, m\u1eb9 c\u1eadu b\u00e9, Anna Greunke, k\u1ec3 l\u1ea1i. &quot;L\u00fac n\u00e0o th\u1eb1ng b\u00e9 c\u0169ng vui v\u1ebb c\u1ea3.&quot; Nh\u01b0ng...<\/p>","protected":false},"author":17,"featured_media":4188,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148,22],"class_list":["post-4187","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news","category-patient-stories"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.3 (Yoast SEO v27.3) - 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