{"id":4313,"date":"2022-12-17T00:38:23","date_gmt":"2022-12-17T00:38:23","guid":{"rendered":"https:\/\/lpfch.org\/an-invaluable-legacy\/"},"modified":"2024-02-14T14:08:49","modified_gmt":"2024-02-14T14:08:49","slug":"an-invaluable-legacy","status":"publish","type":"post","link":"http:\/\/lpfch.org\/vi\/impact-stories\/an-invaluable-legacy\/","title":{"rendered":"M\u1ed9t di s\u1ea3n v\u00f4 gi\u00e1"},"content":{"rendered":"<p>Barbara Sourkes v\u00e0 Harvey Cohen s\u1eafp ngh\u1ec9 h\u01b0u v\u1edbi vai tr\u00f2 l\u00e0 nh\u1eefng ng\u01b0\u1eddi ti\u00ean phong trong l\u0129nh v\u1ef1c ch\u0103m s\u00f3c gi\u1ea3m nh\u1eb9 nhi khoa.&nbsp;<\/p>\n<p>Khi Harvey Cohen, Ti\u1ebfn s\u0129, B\u00e1c s\u0129 Y khoa, Tr\u01b0\u1edfng khoa Nhi t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Lucile Packard Stanford v\u00e0 l\u00e0 Tr\u01b0\u1edfng khoa Nhi t\u1ea1i Stanford v\u00e0o cu\u1ed1i nh\u1eefng n\u0103m 1990, m\u1ed9t b\u00e1c s\u0129 nhi khoa \u0111\u00e3 \u0111\u1eb7t c\u00e2u h\u1ecfi cho \u00f4ng: &quot;Ch\u00fang ta ph\u1ea3i l\u00e0m g\u00ec khi bi\u1ebft m\u00ecnh kh\u00f4ng th\u1ec3 ch\u1eefa kh\u1ecfi b\u1ec7nh cho \u0111\u1ee9a tr\u1ebb? L\u00e0m th\u1ebf n\u00e0o \u0111\u1ec3 gi\u00fap \u0111\u1ee1 gia \u0111\u00ecnh?&quot; Ch\u01b0\u01a1ng tr\u00ecnh ch\u0103m s\u00f3c \u0111\u1eb7c bi\u1ec7t c\u1ee7a b\u1ec7nh vi\u1ec7n \u0111ang \u0111\u01b0\u1ee3c m\u1edf r\u1ed9ng, v\u00e0 c\u00e1c b\u00e1c s\u0129 g\u1eb7p ph\u1ea3i ng\u00e0y c\u00e0ng nhi\u1ec1u tr\u1ebb em m\u1eafc c\u00e1c b\u1ec7nh l\u00fd ng\u00e0y c\u00e0ng nghi\u00eam tr\u1ecdng.&nbsp;&nbsp;<\/p>\n<p>Cohen, ng\u01b0\u1eddi t\u1eebng l\u00e0 gi\u00e1m \u0111\u1ed1c, cho bi\u1ebft: \u201cR\u00f5 r\u00e0ng l\u00e0 ch\u00fang t\u00f4i c\u1ea7n m\u1ed9t ch\u01b0\u01a1ng tr\u00ecnh nh\u1eafm m\u1ee5c ti\u00eau c\u1ee5 th\u1ec3 v\u00e0o nhu c\u1ea7u c\u1ee7a tr\u1ebb em m\u1eafc c\u00e1c b\u1ec7nh ph\u1ee9c t\u1ea1p m\u00e3n t\u00ednh ho\u1eb7c \u0111e d\u1ecda t\u00ednh m\u1ea1ng v\u00e0 gia \u0111\u00ecnh c\u1ee7a c\u00e1c em\u201d.      <em>Deborah E. Addicott \u2013 Gi\u00e1o s\u01b0 Nhi khoa Gia \u0111\u00ecnh John A. Kriewall v\u00e0 Elizabeth A. Haehl<\/em> t\u1ea1i Stanford k\u1ec3 t\u1eeb khi t\u1eeb b\u1ecf vai tr\u00f2 l\u00e3nh \u0111\u1ea1o v\u00e0o n\u0103m 2006.&nbsp;&nbsp;<\/p>\n<p>Cohen \u0111\u00e3 th\u00e0nh l\u1eadp m\u1ed9t nh\u00f3m \u0111\u1eb7c nhi\u1ec7m \u0111\u1ec3 gi\u1ea3i quy\u1ebft v\u1ea5n \u0111\u1ec1 c\u1ea5p b\u00e1ch n\u00e0y. M\u1ed9t \u0111\u00e1nh gi\u00e1 nhu c\u1ea7u, do Nancy Contro, LCSW, d\u1eabn \u0111\u1ea7u, \u0111\u00e3 thu th\u1eadp th\u00f4ng tin t\u1eeb c\u1ea3 gia \u0111\u00ecnh ng\u01b0\u1eddi b\u1ec7nh v\u00e0 nh\u00e2n vi\u00ean b\u1ec7nh vi\u1ec7n v\u1ec1 kinh nghi\u1ec7m v\u00e0 \u0111\u1ec1 xu\u1ea5t c\u1ee7a h\u1ecd nh\u1eb1m c\u1ea3i thi\u1ec7n d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c gi\u1ea3m nh\u1eb9. Nh\u1eefng ph\u00e1t hi\u1ec7n n\u00e0y, \u0111\u01b0\u1ee3c c\u00f4ng b\u1ed1 tr\u00ean c\u00e1c t\u1ea1p ch\u00ed nhi khoa uy t\u00edn, \u0111\u00e3 \u0111\u1eb7t n\u1ec1n m\u00f3ng cho vi\u1ec7c th\u00e0nh l\u1eadp ch\u01b0\u01a1ng tr\u00ecnh Ch\u0103m s\u00f3c Gi\u1ea3m nh\u1eb9 Tr\u1ebb em Packard.&nbsp;&nbsp;<\/p>\n<p>Ngay t\u1eeb \u0111\u1ea7u, Cohen \u0111\u00e3 d\u1ef1a v\u00e0o ho\u1ea1t \u0111\u1ed9ng t\u1eeb thi\u1ec7n, b\u1eaft \u0111\u1ea7u v\u1edbi s\u1ef1 h\u1ed7 tr\u1ee3 h\u00e0o ph\u00f3ng c\u1ee7a John Kriewall v\u00e0 Betsy Haehl. \u00d4ng \u0111\u00e3 chi\u00eau m\u1ed9 Barbara Sourkes, Ti\u1ebfn s\u0129, m\u1ed9t nh\u00e0 t\u00e2m l\u00fd h\u1ecdc tr\u1ebb em t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Montreal, m\u1ed9t nh\u00e0 l\u00e3nh \u0111\u1ea1o l\u00e2m s\u00e0ng v\u00e0 t\u00e1c gi\u1ea3 n\u1ed5i ti\u1ebfng qu\u1ed1c t\u1ebf trong l\u0129nh v\u1ef1c ch\u0103m s\u00f3c gi\u1ea3m nh\u1eb9 nhi khoa. Khi Sourkes \u0111\u1ebfn v\u00e0o n\u0103m 2001, b\u00e0 \u0111\u01b0\u1ee3c b\u1ed5 nhi\u1ec7m l\u00e0m ng\u01b0\u1eddi \u0111\u1ea7u ti\u00ean<em> John A. Kriewall v\u00e0 Elizabeth A. Haehl Gi\u00e1m \u0111\u1ed1c Ch\u0103m s\u00f3c Gi\u1ea3m nh\u1eb9 Nhi khoa<\/em>.&nbsp;&nbsp;<\/p>\n<p>Ch\u01b0\u01a1ng tr\u00ecnh \u0111\u01b0\u1ee3c \u0111\u1eb7t t\u1ea1i khoa Ch\u0103m s\u00f3c \u0110\u1eb7c bi\u1ec7t v\u00ec c\u00f3 r\u1ea5t nhi\u1ec1u v\u1ea5n \u0111\u1ec1 ch\u0103m s\u00f3c gi\u1ea3m nh\u1eb9 ph\u00e1t sinh t\u1ea1i khoa n\u00e0y trong vi\u1ec7c ch\u0103m s\u00f3c tr\u1ebb em m\u1eafc nhi\u1ec1u lo\u1ea1i b\u1ec7nh kh\u00e1c nhau. V\u1ecb tr\u00ed n\u00e0y \u0111\u00e3 x\u00f3a tan quan ni\u1ec7m r\u1eb1ng ch\u0103m s\u00f3c gi\u1ea3m nh\u1eb9 ch\u1ec9 d\u00e0nh cho b\u1ec7nh nh\u00e2n ung th\u01b0.&nbsp;&nbsp;<\/p>\n<h3>M\u1ed9t s\u00e1ng ki\u1ebfn \u0111a ng\u00e0nh&nbsp;&nbsp;<\/h3>\n<p>Ch\u01b0\u01a1ng tr\u00ecnh Ch\u0103m s\u00f3c Gi\u1ea3m nh\u1eb9 t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard l\u00e0 m\u1ed9t trong nh\u1eefng ch\u01b0\u01a1ng tr\u00ecnh \u0111\u1ea7u ti\u00ean nh\u01b0 v\u1eady tr\u00ean to\u00e0n qu\u1ed1c. Sourkes \u0111\u00e3 t\u1eadp h\u1ee3p m\u1ed9t \u0111\u1ed9i ng\u0169 t\u1eeb nhi\u1ec1u chuy\u00ean ng\u00e0nh kh\u00e1c nhau: y khoa, \u0111i\u1ec1u d\u01b0\u1ee1ng, t\u00e2m l\u00fd h\u1ecdc, c\u00f4ng t\u00e1c x\u00e3 h\u1ed9i, m\u1ee5c v\u1ee5, \u0111\u1eddi s\u1ed1ng tr\u1ebb em, qu\u1ea3n l\u00fd ca b\u1ec7nh v\u00e0 gi\u00e1o d\u1ee5c. &quot;\u0110\u00e2y kh\u00f4ng ph\u1ea3i l\u00e0 c\u00f4ng vi\u1ec7c c\u1ee7a ri\u00eang m\u1ed9t ng\u00e0nh ngh\u1ec1 n\u00e0o c\u1ea3&quot;, b\u00e0 n\u00f3i. &quot;V\u1edbi nh\u1eefng th\u00e1ch th\u1ee9c m\u00e0 tr\u1ebb em v\u00e0 gia \u0111\u00ecnh n\u00e0y g\u1eb7p ph\u1ea3i, \u0111i\u1ec1u thi\u1ebft y\u1ebfu l\u00e0 ch\u00fang ta ph\u1ea3i c\u00f3 \u0111\u01b0\u1ee3c c\u00e0ng nhi\u1ec1u g\u00f3c nh\u00ecn c\u00e0ng t\u1ed1t.&nbsp;&nbsp;<\/p>\n<p>\u201c\u0110\u00e3 c\u00f3 r\u1ea5t nhi\u1ec1u gi\u00e1o d\u1ee5c gi\u1ea3i th\u00edch r\u1eb1ng ch\u0103m s\u00f3c gi\u1ea3m nh\u1eb9 d\u00e0nh cho b\u1ea5t k\u1ef3 tr\u1ebb em b\u1ecb b\u1ec7nh n\u1eb7ng n\u00e0o \u2014 d\u00f9 l\u00e0 c\u00e1i ch\u1ebft c\u1eadn k\u1ec1 hay l\u00e0 m\u1ed1i \u0111e d\u1ecda ti\u1ec1m \u1ea9n r\u1eb1ng tr\u1ebb c\u00f3 th\u1ec3 kh\u00f4ng s\u1ed1ng h\u1ebft cu\u1ed9c \u0111\u1eddi b\u00ecnh th\u01b0\u1eddng,\u201d Sourkes n\u00f3i. \u201cCu\u1ed1i c\u00f9ng, ch\u01b0\u01a1ng tr\u00ecnh c\u0169ng bao g\u1ed3m c\u1ea3 tr\u1ebb em m\u1eafc c\u00e1c b\u1ec7nh m\u00e3n t\u00ednh ph\u1ee9c t\u1ea1p. T\u1ea5t c\u1ea3 nh\u1eefng tr\u1ebb em n\u00e0y \u0111\u1ec1u ph\u1ea3i \u0111\u1ed1i m\u1eb7t v\u1edbi nh\u1eefng bi\u1ebfn c\u1ed1 v\u1ec1 th\u1ec3 ch\u1ea5t v\u00e0 tinh th\u1ea7n c\u1ee7a b\u1ec7nh n\u1eb7ng \u2014 \u0111\u00f4i khi k\u00e9o d\u00e0i h\u00e0ng th\u1eadp k\u1ef7 \u2014 c\u0169ng nh\u01b0 gia \u0111\u00ecnh c\u00e1c em.\u201d&nbsp;&nbsp;<\/p>\n<p>Ch\u01b0\u01a1ng tr\u00ecnh n\u00e0y \u0111\u00f3ng vai tr\u00f2 nh\u01b0 m\u1ed9t phao c\u1ee9u sinh cho c\u00e1c gia \u0111\u00ecnh \u0111ang tr\u1ea3i qua nh\u1eefng t\u00ecnh hu\u1ed1ng \u0111au l\u00f2ng. Sau khi con trai 14 th\u00e1ng tu\u1ed5i c\u1ee7a Esther Levy, Andrew, \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n m\u1eafc m\u1ed9t d\u1ea1ng b\u1ec7nh b\u1ea1ch c\u1ea7u hi\u1ebfm g\u1eb7p v\u00e0o n\u0103m 2014, c\u00f4 cho bi\u1ebft cu\u1ed9c s\u1ed1ng c\u1ee7a m\u00ecnh \u0111\u00e3 tr\u1edf th\u00e0nh m\u1ed9t &quot;c\u01a1n \u00e1c m\u1ed9ng s\u1ed1ng&quot;. Cohen, Sourkes v\u00e0 c\u00e1c \u0111\u1ed3ng nghi\u1ec7p \u0111\u00e3 \u0111\u1ed3ng h\u00e0nh c\u00f9ng gia \u0111\u00ecnh trong su\u1ed1t qu\u00e1 tr\u00ecnh \u0111i\u1ec1u tr\u1ecb, ch\u0103m s\u00f3c gi\u1ea3m nh\u1eb9 v\u00e0 c\u1ea3 nh\u1eefng l\u00fac m\u1ea5t m\u00e1t ng\u01b0\u1eddi th\u00e2n. &quot;Vi\u1ec7c v\u01b0\u1ee3t qua c\u0103n b\u1ec7nh hi\u1ec3m ngh\u00e8o c\u1ee7a m\u1ed9t \u0111\u1ee9a tr\u1ebb kh\u00f4ng ch\u1ec9 l\u00e0 h\u1ed7 tr\u1ee3 \u0111\u1ee9a tr\u1ebb, m\u00e0 c\u00f2n l\u00e0 h\u1ed7 tr\u1ee3 gia \u0111\u00ecnh trong su\u1ed1t h\u00e0nh tr\u00ecnh ph\u00eda tr\u01b0\u1edbc&quot;, Levy chia s\u1ebb v\u00e0o n\u0103m 2017. &quot;T\u00f4i th\u1ef1c s\u1ef1 tin r\u1eb1ng \u0111\u1ed9i ng\u0169 ch\u0103m s\u00f3c gi\u1ea3m nh\u1eb9 ch\u00ednh l\u00e0 l\u00fd do t\u00f4i v\u1eabn c\u00f2n \u0111\u1ee9ng \u0111\u00e2y h\u00f4m nay.&quot;&nbsp;&nbsp;<\/p>\n<p>Ch\u01b0\u01a1ng tr\u00ecnh c\u0169ng cung c\u1ea5p \u0111\u00e0o t\u1ea1o cho c\u00e1c th\u00e0nh vi\u00ean trong nh\u00f3m ch\u0103m s\u00f3c v\u00e0 h\u1ecdc vi\u00ean, gi\u00fap h\u1ecd hi\u1ec3u \u0111\u01b0\u1ee3c t\u00e1c \u0111\u1ed9ng c\u1ee7a vi\u1ec7c l\u00e0m vi\u1ec7c v\u1edbi nh\u1eefng tr\u1ebb em v\u00e0 gia \u0111\u00ecnh n\u00e0y \u0111\u1ed1i v\u1edbi b\u1ea3n th\u00e2n h\u1ecd.&nbsp;&nbsp;<\/p>\n<p>Qua th\u1eddi gian, nh\u1eefng m\u00f3n qu\u00e0 t\u1eeb c\u00e1c nh\u00e0 t\u00e0i tr\u1ee3 \u0111\u00e3 cho ph\u00e9p ch\u01b0\u01a1ng tr\u00ecnh b\u1ed5 sung th\u00eam nhi\u1ec1u s\u00e1ng ki\u1ebfn quan tr\u1ecdng. T\u1ea1p ch\u00ed Healing HeARTS \u0111\u0103ng t\u1ea3i nh\u1eefng h\u00ecnh \u1ea3nh v\u00e0 chia s\u1ebb \u0111\u1ea7y s\u00e1ng t\u1ea1o c\u1ee7a c\u00e1c em nh\u1ecf \u0111\u01b0\u1ee3c \u0111i\u1ec1u tr\u1ecb t\u1ea1i b\u1ec7nh vi\u1ec7n v\u00e0 anh ch\u1ecb em c\u1ee7a c\u00e1c em. Ng\u00e0y T\u01b0\u1edfng ni\u1ec7m v\u00e0 T\u00e1i hi\u1ebfn h\u00e0ng n\u0103m quy t\u1ee5 nh\u1eefng gia \u0111\u00ecnh c\u00f3 ng\u01b0\u1eddi th\u00e2n qua \u0111\u1eddi \u0111\u1ec3 t\u01b0\u1edfng nh\u1edb con em m\u00ecnh.&nbsp;&nbsp;<\/p>\n<h3>Di s\u1ea3n c\u1ee7a s\u1ef1 quan t\u00e2m&nbsp;&nbsp;<\/h3>\n<p>Khi Sourkes v\u00e0 Cohen, hi\u1ec7n t\u1ea1i      <em>Katie v\u00e0 Paul Dougherty Gi\u00e1m \u0111\u1ed1c Y khoa<\/em>, ngh\u1ec9 h\u01b0u v\u00e0o th\u00e1ng 8 n\u0103m 2023, h\u1ecd s\u1ebd \u0111\u1ec3 l\u1ea1i m\u1ed9t di s\u1ea3n v\u1ec1 chuy\u00ean m\u00f4n v\u00e0 s\u1ef1 ch\u0103m s\u00f3c. H\u1ecd hy v\u1ecdng ch\u01b0\u01a1ng tr\u00ecnh s\u1ebd ti\u1ebfp t\u1ee5c m\u1edf r\u1ed9ng b\u1eb1ng c\u00e1ch ph\u00e1t tri\u1ec3n \u0111\u1ed9i ng\u0169; d\u1ea5n th\u00e2n v\u00e0o nh\u1eefng l\u0129nh v\u1ef1c m\u1edbi, bao g\u1ed3m h\u1ed7 tr\u1ee3 c\u00e1c b\u1eadc cha m\u1eb9 t\u01b0\u01a1ng lai \u0111\u00e3 bi\u1ebft con m\u00ecnh m\u1eafc b\u1ec7nh l\u00fd nghi\u00eam tr\u1ecdng; v\u00e0 t\u0103ng c\u01b0\u1eddng h\u1ed7 tr\u1ee3 t\u1ea1i nh\u00e0 cho tr\u1ebb em. Trong t\u01b0\u01a1ng lai, ch\u01b0\u01a1ng tr\u00ecnh s\u1ebd tr\u1edf th\u00e0nh m\u1ed9t b\u1ed9 ph\u1eadn ri\u00eang bi\u1ec7t thu\u1ed9c Khoa Nhi\u2014Tr\u01b0\u1eddng Y v\u00e0 b\u1ec7nh vi\u1ec7n \u0111ang tuy\u1ec3n d\u1ee5ng tr\u01b0\u1edfng b\u1ed9 ph\u1eadn Ch\u0103m s\u00f3c Gi\u1ea3m nh\u1eb9 \u0111\u1ea7u ti\u00ean.&nbsp;&nbsp;<\/p>\n<p>Nh\u01b0 m\u1ed9t th\u00e0nh t\u1ef1u cu\u1ed1i c\u00f9ng, Sourkes (c\u00f9ng v\u1edbi hai \u0111\u1ed3ng nghi\u1ec7p) \u0111\u00e3 \u0111\u1ed3ng bi\u00ean t\u1eadp phi\u00ean b\u1ea3n th\u1ee9 hai c\u1ee7a cu\u1ed1n s\u00e1ch c\u1ee7a h\u1ecd,      <em>Ch\u0103m s\u00f3c gi\u1ea3m nh\u1eb9 nhi khoa li\u00ean ng\u00e0nh<\/em>M\u1ed9t trong nh\u1eefng ch\u01b0\u01a1ng c\u1ee7a b\u00e0 k\u1ebft th\u00fac b\u1eb1ng l\u1eddi t\u00e2m s\u1ef1 c\u1ee7a m\u1ed9t \u0111\u1ee9a tr\u1ebb 6 tu\u1ed5i: \u201cC\u1ea3m \u01a1n v\u00ec \u0111\u00e3 cho con s\u1ef1 s\u1ed1ng.\u201d Sourkes ti\u1ebfp t\u1ee5c: \u201cNh\u1eefng l\u1eddi n\u00e0y th\u1ec3 hi\u1ec7n b\u1ea3n ch\u1ea5t c\u1ee7a ch\u0103m s\u00f3c gi\u1ea3m nh\u1eb9 nhi khoa: &#039;mang l\u1ea1i s\u1ef1 s\u1ed1ng&#039; cho tr\u1ebb, b\u1ea5t k\u1ec3 cu\u1ed9c s\u1ed1ng \u1ea5y k\u00e9o d\u00e0i bao l\u00e2u. Ch\u00ednh cam k\u1ebft n\u00e0y l\u00e0 n\u1ec1n t\u1ea3ng cho m\u1ecdi c\u00f4ng vi\u1ec7c ch\u00fang t\u00f4i l\u00e0m v\u00e0 mang l\u1ea1i cho ch\u00fang t\u00f4i c\u1ea3m gi\u00e1c vi\u00ean m\u00e3n s\u00e2u s\u1eafc.\u201d&nbsp;<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>Barbara Sourkes v\u00e0 Harvey Cohen s\u1eafp ngh\u1ec9 h\u01b0u v\u1edbi t\u01b0 c\u00e1ch l\u00e0 nh\u1eefng ng\u01b0\u1eddi ti\u00ean phong trong l\u0129nh v\u1ef1c ch\u0103m s\u00f3c gi\u1ea3m nh\u1eb9 nhi khoa. Khi Harvey Cohen, Ti\u1ebfn s\u0129, B\u00e1c s\u0129, Ch\u00e1nh v\u0103n ph\u00f2ng t\u1ea1i Lucile Packard\u2026<\/p>","protected":false},"author":17,"featured_media":10533,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148],"class_list":["post-4313","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.3 (Yoast SEO v27.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>An Invaluable Legacy - 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