{"id":21390,"date":"2025-06-23T18:30:19","date_gmt":"2025-06-23T18:30:19","guid":{"rendered":"https:\/\/lpfch.org\/?p=21390"},"modified":"2025-07-15T23:19:55","modified_gmt":"2025-07-15T23:19:55","slug":"donor-support-advances-new-treatment-for-eb-a-rare-and-painful-skin-disease","status":"publish","type":"post","link":"https:\/\/lpfch.org\/ar\/impact-stories\/donor-support-advances-new-treatment-for-eb-a-rare-and-painful-skin-disease\/","title":{"rendered":"\u062f\u0639\u0645 \u0627\u0644\u0645\u0627\u0646\u062d\u064a\u0646 \u064a\u0633\u0627\u0647\u0645 \u0641\u064a \u062a\u0637\u0648\u064a\u0631 \u0639\u0644\u0627\u062c \u062c\u062f\u064a\u062f \u0644\u0645\u0631\u0636 EB\u060c \u0648\u0647\u0648 \u0645\u0631\u0636 \u062c\u0644\u062f\u064a \u0646\u0627\u062f\u0631 \u0648\u0645\u0624\u0644\u0645"},"content":{"rendered":"<p><span data-contrast=\"none\">\u0623\u0635\u0628\u062d \u0644\u062f\u0649 \u0627\u0644\u0639\u0627\u0626\u0644\u0627\u062a \u0627\u0644\u062a\u064a 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href=\"https:\/\/med.stanford.edu\/news\/all-news\/2025\/06\/epidermolysis-bullosa.html\"><span data-contrast=\"none\">\u0646\u064f\u0634\u0631\u062a \u0641\u064a <\/span><i><span data-contrast=\"none\">\u0645\u062c\u0644\u0629 \u0644\u0627\u0646\u0633\u064a\u062a<\/span><\/i><\/a><span data-contrast=\"none\">\u0648\u062a\u0638\u0647\u0631 \u0647\u0630\u0647 \u0627\u0644\u062f\u0631\u0627\u0633\u0629 \u0627\u0644\u062f\u0648\u0631 \u0627\u0644\u062d\u064a\u0648\u064a \u0627\u0644\u0630\u064a \u0644\u0639\u0628\u0647 \u0627\u0644\u0628\u0627\u062d\u062b\u0648\u0646 \u0641\u064a \u0643\u0644\u064a\u0629 \u0627\u0644\u0637\u0628 \u0628\u062c\u0627\u0645\u0639\u0629 \u0633\u062a\u0627\u0646\u0641\u0648\u0631\u062f \u0641\u064a \u062a\u0637\u0648\u064a\u0631 \u0627\u0644\u0639\u0644\u0627\u062c \u0627\u0644\u062c\u062f\u064a\u062f.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span 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data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<section class=\"component component-cta impact-story-cta full-width-cta  no-image scheme-red\" >\n  <div class=\"module-container\">\n    <div class=\"component-cta-container\">\n      <div class=\"component-cta-wrapper\">\n        <h2 class=\"component-cta-title\">\n          &quot;\u0644\u0642\u062f \u0643\u0627\u0646 \u062f\u0639\u0645 \u0627\u0644\u0645\u0627\u0646\u062d\u064a\u0646 \u0645\u0641\u064a\u062f\u064b\u0627...&quot;\n        <\/h2>\n\n                  <p class=\"component-cta-description\">\n            \u0645\u062c\u062a\u0645\u0639\u0646\u0627 \u0627\u0644\u0645\u0627\u0646\u062d \u064a\u064f\u0645\u0643\u0651\u0646 \u0645\u0646 \u062a\u062d\u0642\u064a\u0642 \u0625\u0646\u062c\u0627\u0632\u0627\u062a \u0643\u0647\u0630\u0647. \u0633\u0627\u0647\u0645 \u0641\u064a \u062f\u0641\u0639 \u0639\u062c\u0644\u0629 \u0627\u0644\u0627\u0628\u062a\u0643\u0627\u0631\u0627\u062a \u0627\u0644\u0645\u0633\u062a\u0642\u0628\u0644\u064a\u0629 \u0641\u064a \u0645\u062c\u0627\u0644 \u0635\u062d\u0629 \u0627\u0644\u0637\u0641\u0644.\n          <\/p>\n        \n        <div class=\"component-cta-buttons\">\n                                    <a href=\"https:\/\/lpfch.org\/donate\/\"\n       class=\"component-cta-button btn btn-white\"      title=\"\u062a\u0628\u0631\u0639 \u0627\u0644\u0622\u0646\" >\n      \u062a\u0628\u0631\u0639 \u0627\u0644\u0622\u0646\n  \n  <\/a>\n                        \n                              <\/div>\n      <\/div>\n\n          <\/div>\n  <\/div>\n<\/section>\n\n<p><span data-contrast=\"none\">\u064a\u064f\u0635\u0627\u0628 \u0645\u0627 \u064a\u0635\u0644 \u0625\u0644\u0649 5000 \u0634\u062e\u0635 \u0641\u064a \u0627\u0644\u0648\u0644\u0627\u064a\u0627\u062a \u0627\u0644\u0645\u062a\u062d\u062f\u0629 \u0628\u0645\u0631\u0636 \u0627\u0644\u0641\u0642\u0627\u0639 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\u064a\u0639\u0627\u0646\u064a \u0645\u0631\u0636\u0649 \u0627\u0644\u0641\u0642\u0627\u0639 \u0627\u0644\u062c\u0644\u062f\u064a \u0627\u0644\u0641\u0642\u0627\u0639\u064a \u0627\u0644\u0634\u062f\u064a\u062f \u0645\u0646 \u062d\u0633\u0627\u0633\u064a\u0629 \u062c\u0644\u062f\u064a\u0629 \u0634\u062f\u064a\u062f\u0629\u060c \u0644\u062f\u0631\u062c\u0629 \u0623\u0646 \u0623\u062f\u0646\u0649 \u0644\u0645\u0633\u0629 \u0642\u062f \u062a\u0624\u062f\u064a \u0625\u0644\u0649 \u0638\u0647\u0648\u0631 \u0628\u062b\u0648\u0631\u060c \u0648\u0641\u064a \u0627\u0644\u0646\u0647\u0627\u064a\u0629\u060c \u062c\u0631\u0648\u062d \u0643\u0628\u064a\u0631\u0629 \u0645\u0641\u062a\u0648\u062d\u0629 \u0644\u0627 \u062a\u0644\u062a\u0626\u0645 \u0623\u0628\u062f\u064b\u0627\u060c \u0645\u0645\u0627 \u064a\u064f\u0633\u0628\u0628 \u0623\u0644\u0645\u064b\u0627 \u0634\u062f\u064a\u062f\u064b\u0627.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">\u0634\u0627\u0631\u0644\u0648\u062a \u0628\u0631\u0627\u0648\u0646\u060c \u0627\u0644\u0628\u0627\u0644\u063a\u0629 \u0645\u0646 \u0627\u0644\u0639\u0645\u0631 \u0639\u0634\u0631\u064a\u0646 \u0639\u0627\u0645\u064b\u0627 \u0645\u0646 \u0628\u0631\u0645\u0646\u063a\u0647\u0627\u0645\u060c \u0623\u0644\u0627\u0628\u0627\u0645\u0627\u060c \u062a\u0639\u0627\u0646\u064a \u0645\u0646 \u0623\u0644\u0645 \u0623\u0642\u0644 \u0628\u0643\u062b\u064a\u0631 \u0645\u0646 \u0645\u0631\u0636 \u0627\u0644\u0641\u0642\u0627\u0631 \u0627\u0644\u0644\u0627\u0635\u0642 \u0645\u0642\u0627\u0631\u0646\u0629\u064b \u0628\u0645\u0627 \u0643\u0627\u0646\u062a \u0639\u0644\u064a\u0647 \u0642\u0628\u0644 \u0627\u0646\u0636\u0645\u0627\u0645\u0647\u0627 \u0625\u0644\u0649 \u0627\u0644\u0645\u0631\u062d\u0644\u0629 \u0627\u0644\u062b\u0627\u0644\u062b\u0629 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data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">\u064a\u0642\u0648\u0644 \u0628\u0631\u0627\u0648\u0646: &quot;\u0644\u0642\u062f \u063a\u064a\u0651\u0631 \u0647\u0630\u0627 \u062d\u064a\u0627\u062a\u064a \u062d\u0642\u064b\u0627. \u0623\u0634\u0639\u0631 \u0628\u062a\u062d\u0633\u0646 \u0643\u0628\u064a\u0631&quot;.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">\u0648\u064a\u0639\u062f \u0628\u0631\u0627\u0648\u0646 \u0648\u0627\u062d\u062f\u064b\u0627 \u0645\u0646 11 \u0634\u062e\u0635\u064b\u0627 \u0634\u0627\u0631\u0643\u0648\u0627 \u0641\u064a \u0627\u0644\u062f\u0631\u0627\u0633\u0629\u060c \u0648\u062a\u0644\u0642\u0649 \u0645\u0639\u0638\u0645\u0647\u0645 \u0623\u0648\u0631\u0627\u0642 \u0627\u0644\u0639\u0644\u0627\u062c \u0627\u0644\u062c\u064a\u0646\u064a 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\u062a\u064f\u0632\u0631\u0639 \u0627\u0644\u062e\u0644\u0627\u064a\u0627 \u0627\u0644\u0645\u0639\u062f\u0644\u0629 \u0648\u0631\u0627\u062b\u064a\u064b\u0627 \u0641\u064a \u0635\u0641\u0627\u0626\u062d \u062c\u0644\u062f\u064a\u0629 \u0628\u062d\u062c\u0645 \u0628\u0637\u0627\u0642\u0629 \u0627\u0626\u062a\u0645\u0627\u0646 \u062a\u0642\u0631\u064a\u0628\u064b\u0627. \u062b\u0645 \u062a\u064f\u0632\u0631\u0639 \u0635\u0641\u0627\u0626\u062d \u062e\u0644\u0627\u064a\u0627 \u0627\u0644\u062c\u0644\u062f \u0627\u0644\u0645\u0639\u0627\u0644\u062c\u0629 \u062c\u0631\u0627\u062d\u064a\u064b\u0627 \u0639\u0644\u0649 \u062c\u0631\u0648\u062d \u0627\u0644\u0645\u0631\u064a\u0636 \u063a\u064a\u0631 \u0627\u0644\u0645\u0644\u062a\u0626\u0645\u0629. \u064a\u0648\u0641\u0631 \u0647\u0630\u0627 \u0627\u0644\u0639\u0644\u0627\u062c \u0627\u0644\u062e\u0644\u0648\u064a \u0645\u0635\u062f\u0631\u064b\u0627 \u0637\u0648\u064a\u0644 \u0627\u0644\u0623\u0645\u062f 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\u0627\u0644\u0639\u0644\u0627\u062c\u064a \u0648\u0627\u0644\u0646\u0647\u0627\u0626\u064a (CDCM) \u0648\u0645\u0624\u0633\u0633\u0629 &quot;\u0625\u0646\u062f\u064a\u0627\u0646\u0627\u0628\u0648\u0644\u064a\u0633 \u0643\u0648\u0644\u064a\u062f\u062c&quot;: &quot;\u0639\u0646\u062f\u0645\u0627 \u062a\u0631\u0649 \u0627\u0644\u0645\u0631\u0636\u0649 \u0627\u0644\u0630\u064a\u0646 \u064a\u0639\u064a\u0634\u0648\u0646 \u0645\u0639 \u0645\u0631\u0636 \u0625\u0646\u062f\u064a\u0627\u0646\u0627\u0628\u0648\u0644\u064a\u0633 \u0648\u0645\u062f\u0649 \u0625\u0639\u0627\u0642\u0629 \u0647\u0630\u0627 \u0627\u0644\u0645\u0631\u0636\u060c \u0641\u0625\u0646\u0643 \u0633\u062a\u0641\u0639\u0644 \u0643\u0644 \u0645\u0627 \u0641\u064a \u0648\u0633\u0639\u0643 \u0644\u0645\u0633\u0627\u0639\u062f\u062a\u0647\u0645&quot;. <\/span><i><span data-contrast=\"none\">\u064a\u0648\u062c\u064a\u0646 \u0648\u063a\u0644\u0648\u0631\u064a\u0627 \u0628\u0627\u0648\u0631 \u0623\u0633\u062a\u0627\u0630 \u0627\u0644\u0623\u0645\u0631\u0627\u0636 \u0627\u0644\u062c\u0644\u062f\u064a\u0629<\/span><\/i><span data-contrast=\"none\">&quot;\u0627\u0644\u0622\u0646 \u0644\u062f\u064a\u0646\u0627 \u0627\u0644\u062d\u0644 \u0627\u0644\u0630\u064a \u064a\u0645\u0643\u0646\u0647 \u0625\u0635\u0644\u0627\u062d \u0627\u0644\u062c\u0644\u062f \u0627\u0644\u062a\u0627\u0644\u0641 \u0628\u0634\u0643\u0644 \u062f\u0627\u0626\u0645.&quot;<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">\u0644\u0645 \u064a\u062d\u062f\u062b \u0630\u0644\u0643 \u0628\u064a\u0646 \u0639\u0634\u064a\u0629 \u0648\u0636\u062d\u0627\u0647\u0627. \u0641\u0642\u062f \u0646\u0642\u0644 \u0627\u0644\u062f\u0643\u062a\u0648\u0631 \u062c\u064a\u0646 \u0628\u0627\u0648\u0631\u060c \u0648\u0647\u0648 \u0627\u0644\u0622\u0646 \u0623\u0633\u062a\u0627\u0630 \u0641\u062e\u0631\u064a \u0641\u064a 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data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>\u0623\u0635\u0628\u062d\u062a \u0627\u0644\u0639\u0627\u0626\u0644\u0627\u062a \u0627\u0644\u062a\u064a \u062a\u0639\u0627\u0646\u064a \u0645\u0646 \u0625\u062d\u062f\u0649 \u0623\u0643\u062b\u0631 \u0627\u0644\u0623\u0645\u0631\u0627\u0636 \u0627\u0644\u062c\u0644\u062f\u064a\u0629 \u0625\u0631\u0647\u0627\u0642\u064b\u0627 \u0644\u062f\u064a\u0647\u0627 \u0627\u0644\u0622\u0646 \u0627\u0644\u0645\u0632\u064a\u062f \u0645\u0646 \u0627\u0644\u0623\u0645\u0644. \u0641\u0642\u062f \u0623\u0638\u0647\u0631\u062a \u062f\u0631\u0627\u0633\u0629 \u0633\u0631\u064a\u0631\u064a\u0629 \u0645\u0646 \u0627\u0644\u0645\u0631\u062d\u0644\u0629 \u0627\u0644\u062b\u0627\u0644\u062b\u0629 \u0645\u0624\u062e\u0631\u064b\u0627 \u0623\u0646 \u0627\u0644\u062c\u064a\u0646\u0627\u062a...<\/p>","protected":false},"author":7,"featured_media":21391,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148,164],"class_list":["post-21390","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news","category-research"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.3 (Yoast SEO v27.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Donor Support Advances New Treatment for EB, a Rare and Painful Skin Disease - Lucile Packard Foundation for Children&#039;s Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/ar\/impact-stories\/donor-support-advances-new-treatment-for-eb-a-rare-and-painful-skin-disease\/\" \/>\n<meta property=\"og:locale\" content=\"ar_AR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Donor Support Advances New Treatment for EB, a Rare and Painful Skin Disease\" \/>\n<meta property=\"og:description\" content=\"Families living with one of the most debilitating skin conditions now have more reason for hope. 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