{"id":15507,"date":"2018-03-16T16:13:34","date_gmt":"2018-03-16T16:13:34","guid":{"rendered":"https:\/\/lpfch.org\/meet-celeste-and-alexia-your-2018-patient-heroes-for-neonatology-research\/"},"modified":"2024-10-24T22:42:19","modified_gmt":"2024-10-24T22:42:19","slug":"meet-celeste-and-alexia-your-2018-patient-heroes-for-neonatology-research","status":"publish","type":"post","link":"https:\/\/lpfch.org\/es\/impact-stories\/meet-celeste-and-alexia-your-2018-patient-heroes-for-neonatology-research\/","title":{"rendered":"Les presentamos a Celeste y Alexia, sus Hero\u00ednas Pacientes de 2018 para la Investigaci\u00f3n en Neonatolog\u00eda."},"content":{"rendered":"<p>&nbsp;<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Criss ten\u00eda 23 semanas de embarazo de sus hijas gemelas, Alexia y Celeste, cuando las pruebas prenatales mostraron que las beb\u00e9s ten\u00edan signos de defectos card\u00edacos cong\u00e9nitos.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">En medio del duelo por el diagn\u00f3stico, Criss y su esposo, Americo, tambi\u00e9n descubrieron que hab\u00eda esperanza: su m\u00e9dico en Roseville les recomend\u00f3 que buscaran la ayuda del equipo de atenci\u00f3n experta del Lucile Packard Children&#039;s Hospital Stanford.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\u201cEn cuesti\u00f3n de d\u00edas, estaba cruzando las puertas del hospital que cambiar\u00eda nuestras vidas para siempre\u201d, dice Criss.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">En el Hospital Infantil Packard, Criss se reuni\u00f3 con obstetras, neonat\u00f3logos, genetistas y un nefr\u00f3logo, quienes realizaron una serie de an\u00e1lisis de sangre, muestras de orina, ecograf\u00edas para medir el crecimiento fetal y, finalmente, la tan esperada ecograf\u00eda para detectar los defectos card\u00edacos de las gemelas. Las anomal\u00edas observadas en el coraz\u00f3n, los ri\u00f1ones y el cord\u00f3n umbilical de las ni\u00f1as eran compatibles con el s\u00edndrome de deleci\u00f3n 22q11.2, un trastorno cromos\u00f3mico que puede afectar pr\u00e1cticamente cualquier parte del cuerpo.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\u201cEl diagn\u00f3stico de 22q nos permiti\u00f3 prepararnos para el nacimiento de las ni\u00f1as y discutir los tratamientos necesarios junto con cirug\u00edas a coraz\u00f3n abierto para reparar sus defectos card\u00edacos cong\u00e9nitos\u201d, dice Criss.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Inmediatamente despu\u00e9s de nacer, Alexia y Celeste recibieron atenci\u00f3n m\u00e9dica de un equipo que esperaba su llegada a nuestra unidad de cuidados intensivos neonatales (UCIN). Durante su crucial primera semana de vida, el equipo de la UCIN monitore\u00f3 sus corazones, ri\u00f1ones y nutrici\u00f3n, y vigil\u00f3 la aparici\u00f3n de diversos problemas m\u00e9dicos que pueden presentarse en ni\u00f1os con 22q. En cuesti\u00f3n de meses, ambas se sometieron a cirug\u00edas a coraz\u00f3n abierto.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">&quot;Si no fuera por el equipo de Packard Children&#039;s, no s\u00e9 c\u00f3mo habr\u00edamos abordado los problemas de salud de las ni\u00f1as&quot;, afirma Criss. &quot;La cantidad de conocimiento que poseen los profesionales de Stanford es realmente incre\u00edble&quot;.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Hoy, Alexia y Celeste esperan con ansias su s\u00e9ptimo cumplea\u00f1os en julio.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">\u201cA los donantes que apoyan a Packard Children&#039;s: sus donaciones permiten que investigaciones vitales contin\u00faen\u201d, a\u00f1ade Criss. \u201cSus donaciones ayudan a familias como la m\u00eda a recibir servicios esenciales para sus hijos. \u00a1Les dan esperanza a las familias y a muchos pacientes una segunda oportunidad!\u201d<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\">Acomp\u00e1\u00f1enos el 24 de junio mientras Celeste y Alexia participan en su primer Summer Scamper. Gracias a su apoyo, la investigaci\u00f3n en neonatolog\u00eda salva la vida de beb\u00e9s como ellos todos los d\u00edas en nuestro hospital.<\/p>\n<p>Celeste y Alexia son #WhyWeScamper.<\/p>\n<p class=\"\" style=\"white-space: pre-wrap;\"><a href=\"https:\/\/my.supportlpch.org\/event\/the-8th-annual-summer-scamper\/e164417?utm_source=Events&amp;utm_medium=email&amp;utm_term=0_f08bb2418b-e380ba9c05-&amp;utm_campaign=e380ba9c05-AUTOMATION__1\" target=\"_blank\" rel=\"noopener\">Inscr\u00edbete hoy mismo en la 8\u00aa edici\u00f3n anual de la Carrera de Verano<\/a> el domingo 24 de junio de 2018, y brindar apoyo, cuidado, consuelo y curas para m\u00e1s ni\u00f1os como Celeste y Alexia.<\/p>","protected":false},"excerpt":{"rendered":"<p>&nbsp; Criss estaba embarazada de 23 semanas de sus gemelas, Alexia y Celeste, cuando las pruebas prenatales mostraron que las beb\u00e9s ten\u00edan signos de cardiopat\u00eda cong\u00e9nita\u2026<\/p>","protected":false},"author":17,"featured_media":15508,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[23],"class_list":["post-15507","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-summer-scamper-heroes"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - 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