{"id":15552,"date":"2016-06-19T22:28:00","date_gmt":"2016-06-19T22:28:00","guid":{"rendered":"https:\/\/lpfch.org\/meet-trevor-your-2016-summer-scamper-patient-hero\/"},"modified":"2016-06-19T22:28:00","modified_gmt":"2016-06-19T22:28:00","slug":"meet-trevor-your-2016-summer-scamper-patient-hero","status":"publish","type":"post","link":"https:\/\/lpfch.org\/es\/impact-stories\/meet-trevor-your-2016-summer-scamper-patient-hero\/","title":{"rendered":"Conoce a Trevor, tu H\u00e9roe Paciente del Programa de Verano 2016."},"content":{"rendered":"

Tras ser diagnosticado con una enfermedad mitocondrial rara, Trevor recibi\u00f3 atenci\u00f3n de especialistas de Packard en gen\u00e9tica, neurolog\u00eda y gastroenterolog\u00eda. En 2010, pas\u00f3 m\u00e1s de seis meses en nuestra unidad de cuidados intensivos pedi\u00e1tricos mientras su equipo m\u00e9dico trabajaba en conjunto para comprender y controlar su trastorno del movimiento. Lamentablemente, aunque Trevor pudo ser dado de alta, falleci\u00f3 repentinamente en su casa en 2011 debido a complicaciones derivadas de la enfermedad. <\/p>\n

Nuestro Programa de Apoyo al Duelo y Orientaci\u00f3n Familiar, financiado gracias a la filantrop\u00eda, brind\u00f3 apoyo a la familia de Trevor, rode\u00e1ndolos de una comunidad de personas y familias compasivas y comprensivas. El padre de Trevor comenta: \u201cNuestra participaci\u00f3n en el Programa de Apoyo al Duelo y Orientaci\u00f3n Familiar y en el Campamento de Verano son maneras de honrar la memoria de Trevor y, al mismo tiempo, mostrar nuestra gratitud por la excelente atenci\u00f3n que recibi\u00f3 de todo el personal del Hospital Infantil Packard\u201d. <\/p>","protected":false},"excerpt":{"rendered":"

Tras ser diagnosticado con una enfermedad mitocondrial rara, Trevor recibi\u00f3 atenci\u00f3n de especialistas de Packard en gen\u00e9tica, neurolog\u00eda y gastroenterolog\u00eda. En 2010, Trevor gast\u00f3 m\u00e1s de\u2026<\/p>","protected":false},"author":17,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[23],"class_list":["post-15552","post","type-post","status-publish","format-standard","hentry","category-summer-scamper-heroes"],"acf":[],"yoast_head":"\nMeet Trevor, your 2016 Summer Scamper Patient Hero - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/es\/impact-stories\/meet-trevor-your-2016-summer-scamper-patient-hero\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Meet Trevor, your 2016 Summer Scamper Patient Hero\" \/>\n<meta property=\"og:description\" content=\"After being diagnosed with a rare mitochondrial disease, Trevor received care from Packard specialists in genetics, neurology, and gastroenterology. 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