{"id":18705,"date":"2024-10-07T23:29:22","date_gmt":"2024-10-07T23:29:22","guid":{"rendered":"https:\/\/lpfch.org\/?p=18705"},"modified":"2025-05-22T21:10:47","modified_gmt":"2025-05-22T21:10:47","slug":"the-sweet-sound-of-music-therapy","status":"publish","type":"post","link":"https:\/\/lpfch.org\/es\/impact-stories\/the-sweet-sound-of-music-therapy\/","title":{"rendered":"El dulce sonido de la musicoterapia"},"content":{"rendered":"

Si conoces a Ryan, de 8 a\u00f1os, probablemente tambi\u00e9n conozcas a Serafina. Serafina es una gata atigrada naranja de peluche de tama\u00f1o natural con un toque atrevido, igual que Ryan.\u00a0<\/strong><\/p>\n

Cuando Ryan recibi\u00f3 una visita a su cama de Andrew M. Levy, musicoterapeuta <\/em>Emily Offenkrantz, MT-BC, UCIN-MT, Serafina bail\u00f3 y toc\u00f3 el xil\u00f3fono con entusiasmo. Ryan y Emily rieron juntos mientras Emily rasgueaba la guitarra e inventaron una canci\u00f3n divertida sobre Serafina.<\/p>\n

Emily y su m\u00fasica hab\u00edan cambiado todo para Ryan.<\/p>\n

Ryan ha pasado por muchas cosas en su corta vida. A los 18 meses le diagnosticaron anemia de Fanconi (AF), una afecci\u00f3n causada por mutaciones en genes que intervienen en la reparaci\u00f3n del ADN. Ryan vivi\u00f3 bajo la amenaza de desarrollar insuficiencia de m\u00e9dula \u00f3sea, c\u00e1ncer y muchos otros problemas sist\u00e9micos.<\/p>\n

Su familia, que vive en Chandler, Arizona, se enter\u00f3 de que los investigadores de Stanford estaban siendo pioneros en un tratamiento que incluye trasplantes de c\u00e9lulas madre de un familiar del paciente y no requiere radiaci\u00f3n, que es particularmente peligrosa para quienes padecen AF.<\/p>\n

\u201cTodos los que le\u00edmos en Stanford fueron cient\u00edficos estelares y figuras clave en esta investigaci\u00f3n\u201d, dice Carly, la madre de Ryan. \u201cSolicitamos una consulta virtual y luego fuimos al hospital en 2021 para una consulta completa con hemat\u00f3logos, audi\u00f3logos, cardi\u00f3logos, endocrin\u00f3logos y otros profesionales\u201d.<\/p>\n

Se hace un plan<\/strong><\/p>\n

Ryan se encontraba bien en ese momento, y los m\u00e9dicos la animaron a regresar a casa y seguir disfrutando de las actividades normales de su infancia, como jugar con su hermano mayor, Christian, o acurrucarse con su gato de verdad, Bridger. Mientras tanto, el equipo, dirigido por el Dr. Rajni Agarwal, elabor\u00f3 un plan de acci\u00f3n para la eventualidad de que la condici\u00f3n de Ryan empeorara y necesitara un trasplante de c\u00e9lulas madre.<\/p>\n

La hermana mayor de Ryan, Mikayla, no lo dud\u00f3 cuando supo que pod\u00eda proporcionar c\u00e9lulas madre que salvar\u00edan vidas.<\/p>\n

En julio de 2023, la condici\u00f3n de Ryan cambi\u00f3. Hab\u00eda contra\u00eddo gripe unos meses antes y, dado que la influenza suele asociarse con la supresi\u00f3n de la producci\u00f3n de m\u00e9dula \u00f3sea, sus recuentos sangu\u00edneos tuvieron dificultades para recuperarse.<\/p>\n

La familia empac\u00f3 sus cosas en el auto y condujo desde Arizona hasta Palo Alto para que Ryan pudiera participar en un ensayo cl\u00ednico bajo el cuidado atento de Agarwal y otros reconocidos m\u00e9dicos cient\u00edficos, como la Dra. Agnieszka Czechowicz y la Dra. Alice Bertaina.<\/p>\n

Ryan conoce a Emily<\/strong><\/p>\n

Terapeutas musicales certificados como Offenkrantz, apoyados por la filantrop\u00eda, incluidas sus donaciones a la Fondo para la Infancia<\/em>\u2014son los miembros cruciales del equipo de atenci\u00f3n de Packard Children's. <\/strong>Utilizan instrumentos y t\u00e9cnicas musicales para consolar a los pacientes y sus familias, reducir la ansiedad y el estr\u00e9s, apoyar procedimientos m\u00e9dicos dif\u00edciles y m\u00e1s.<\/p>\n

\u201cCuando llegamos al Packard Children's, Ryan luchaba por no tener control sobre lo que estaba sucediendo\u201d, dice Carly. \u201cNo tomaba ning\u00fan medicamento. Emily pudo venir, ganarse la confianza de Ryan y ayudarla a superar esos momentos dif\u00edciles\u201d.<\/p>\n

El regalo de toda una vida<\/strong><\/p>\n

El 2 de agosto de 2023, Ryan recibi\u00f3 las c\u00e9lulas de su hermana. El equipo m\u00e9dico prepar\u00f3 un cartel de "\u00a1Feliz D\u00eda del Trasplante!" con notas de aliento.<\/p>\n

Hubo muchas noches de insomnio durante el aislamiento de 100 d\u00edas que sigui\u00f3. Emily imparti\u00f3 sesiones que se volvieron m\u00e1s importantes que nunca para combatir la soledad y el malestar de Ryan y ayudarla a recuperar las fuerzas que el tratamiento le hab\u00eda quitado.<\/p>\n

Cuando el equipo de atenci\u00f3n autoriz\u00f3 a Ryan a regresar a casa, ella r\u00e1pidamente se puso al d\u00eda con sus abrazos de Bridger y con ser la ni\u00f1a emp\u00e1tica y cari\u00f1osa que ama a los animales y le escribe notas a su hermano.<\/p>\n

En agosto, Ryan regres\u00f3 para su cita tras el trasplante. Estaba encantada de ver a su compasivo y brillante equipo m\u00e9dico, que contribuy\u00f3 con todo, desde opciones de tratamiento innovadoras hasta canciones reconfortantes.<\/p>\n

"Quieres que la gente luche por tu hijo con la misma intensidad que t\u00fa", dice Carly.<\/p>\n

GRACIAS por ser parte del equipo que hace todo lo posible por ni\u00f1os como Ryan.<\/strong><\/p>\n

\u00bfQuieres ayudar a m\u00e1s ni\u00f1os como Ryan?<\/strong><\/p>\n

Nuestro hospital depende de donantes como usted para garantizar que todos los ni\u00f1os reciban la extraordinaria atenci\u00f3n integral que necesitan: mente, cuerpo y esp\u00edritu. Para marcar la diferencia, visite https:\/\/lpfch.org\/donate\/<\/strong><\/a>.<\/p>\n

Esta historia apareci\u00f3 originalmente en la edici\u00f3n de oto\u00f1o de 2024 de Actualizaci\u00f3n del Fondo para la Infancia<\/em>.<\/p>","protected":false},"excerpt":{"rendered":"

Si conoces a Ryan, de 8 a\u00f1os, seguramente tambi\u00e9n conoces a Serafina. Serafina es una gata atigrada naranja de peluche a tama\u00f1o natural con un toque de picard\u00eda\u2026<\/p>","protected":false},"author":7,"featured_media":18720,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[22],"class_list":["post-18705","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories"],"acf":[],"yoast_head":"\nThe Sweet Sound of Music Therapy - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/es\/impact-stories\/the-sweet-sound-of-music-therapy\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The Sweet Sound of Music Therapy\" \/>\n<meta property=\"og:description\" content=\"If you\u2019ve met 8-year-old Ryan, you\u2019ve likely met Serafina, too. 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