{"id":3563,"date":"2014-08-25T20:29:17","date_gmt":"2014-08-25T20:29:17","guid":{"rendered":"https:\/\/lpfch.org\/all-grown-up-from-tiny-transplant-patient-to-thriving-young-adult\/"},"modified":"2024-02-14T14:06:45","modified_gmt":"2024-02-14T14:06:45","slug":"all-grown-up-from-tiny-transplant-patient-to-thriving-young-adult","status":"publish","type":"post","link":"https:\/\/lpfch.org\/es\/impact-stories\/all-grown-up-from-tiny-transplant-patient-to-thriving-young-adult\/","title":{"rendered":"Todo un adulto: De peque\u00f1o paciente trasplantado a joven adulto pr\u00f3spero"},"content":{"rendered":"<p>Miranda Ashland es una chica muy ocupada. Una estudiante de \u00faltimo a\u00f1o de secundaria de Saratoga, est\u00e1 llenando solicitudes para la universidad y protagonizando la producci\u00f3n de Oliver! de su escuela. Incluso gan\u00f3 recientemente un concurso de comer pasteles durante la semana del esp\u00edritu escolar.<br \/>Con esta agenda tan apretada, Miranda a\u00fan encuentra tiempo para otra prioridad importante: apoyar al Lucile Packard Children&#039;s Hospital de Stanford, el lugar que le dio una segunda oportunidad de vida.<\/p>\n<h2>Motivo de esperanza<\/h2>\n<p>La familia Ashland lleg\u00f3 por primera vez al Packard Children&#039;s Hospital en 1995, cuando Miranda ten\u00eda tan solo dos meses y padec\u00eda atresia biliar, una enfermedad cong\u00e9nita grave que provoca insuficiencia hep\u00e1tica. Tras reunirse con especialistas en trasplantes, sus padres, Michele y Tom, sintieron una nueva emoci\u00f3n: alivio.<\/p>\n<p>\u201cSab\u00eda que estaba entre expertos\u201d, recuerda Michele. \u201cCuando vas a Packard, escuchas ese tono subyacente de: &#039;Sabemos qu\u00e9 hacer y vamos a cuidar de tu hijo&#039;\u201d.<br \/>La beb\u00e9 Miranda recibi\u00f3 un trasplante de h\u00edgado con \u00e9xito y pas\u00f3 casi un mes recuper\u00e1ndose en el hospital. Su dedicado equipo de atenci\u00f3n en el Packard Children&#039;s se convirti\u00f3 en una familia m\u00e1s, acompa\u00f1\u00e1ndola de cerca durante sus chequeos regulares y ayud\u00e1ndola a superar complicaciones postrasplante que podr\u00edan haber tenido un desenlace tr\u00e1gico. Hoy, Miranda atribuye su buena salud a 18 a\u00f1os de atenci\u00f3n excepcional.<\/p>\n<h2>Las familias primero<\/h2>\n<p>En Packard Children&#039;s, la atenci\u00f3n a los pacientes no se limita a brindar una medicina de primer nivel. El hospital valora la atenci\u00f3n centrada en la familia, que la reconoce como socia en el bienestar de su hijo. Este enfoque, se\u00f1ala Michele, permite a las familias comprender mejor el tratamiento de su hijo y a los m\u00e9dicos comprender mejor su perspectiva.<br \/>Michele qued\u00f3 tan impresionada con este modelo que comenz\u00f3 a participar en el Consejo Asesor Familiar y finalmente se uni\u00f3 al personal de Packard.<\/p>\n<p>Actualmente, trabaja con otros padres de Packard aportando informaci\u00f3n para mejorar las pol\u00edticas y pr\u00e1cticas del hospital, y tambi\u00e9n ayuda a las familias a obtener la informaci\u00f3n que necesitan para cuidar mejor a sus hijos.<\/p>\n<p>Los abuelos de Miranda, Marilyn y Arden Anderson, tambi\u00e9n se sintieron inspirados a contribuir. Ambos son voluntarios del hospital desde hace mucho tiempo, y Marilyn pertenece a la Auxiliar de Palo Alto, que ayuda a recaudar fondos para el Hospital Infantil Packard.<\/p>\n<h2>Dando gracias<\/h2>\n<p>En septiembre, Miranda habl\u00f3 en la celebraci\u00f3n inaugural del proyecto de expansi\u00f3n de Packard Children&#039;s.<\/p>\n<p>&quot;Estoy muy emocionada por la expansi\u00f3n de este hospital&quot;, dijo ante un p\u00fablico que colmaba el lugar. &quot;Significa que m\u00e1s familias podr\u00e1n entrar, recibir la atenci\u00f3n que necesitan y tener la esperanza que les acompa\u00f1ar\u00e1 el resto de sus vidas&quot;.<\/p>\n<p>Miranda creci\u00f3 en el Hospital Infantil Packard. A\u00fan recuerda sus frecuentes viajes a la cafeter\u00eda para tomar yogur helado, &quot;con chispas&quot;, dice riendo. Hoy, en su transici\u00f3n a la edad adulta, se ha hecho cargo de sus necesidades m\u00e9dicas, desde llevar un registro de sus recetas hasta comunicarse por correo electr\u00f3nico con su equipo m\u00e9dico.<\/p>\n<p>\u201cSol\u00eda sacarme sangre sentada en el regazo de mi mam\u00e1\u201d, recuerda. \u201cEso fue hace mucho tiempo. Ahora tengo mi licencia de conducir y voy sola\u201d.<\/p>\n<p>Aunque se acerca su \u00faltima cita pedi\u00e1trica en el Packard Children&#039;s, est\u00e1 deseando conocer el nuevo hospital. Cuando lleg\u00f3 el momento de escribir su discurso para la ceremonia de inicio de obras, Miranda sab\u00eda exactamente lo que quer\u00eda decir.<\/p>\n<p>Pens\u00e9 en lo que significa la ampliaci\u00f3n y en lo que este hospital ha significado para mi familia. Esta era mi oportunidad de agradecerles.<\/p>","protected":false},"excerpt":{"rendered":"<p>Miranda Ashland es una chica muy ocupada. Una estudiante de \u00faltimo a\u00f1o de secundaria de Saratoga, est\u00e1 llenando solicitudes para la universidad y protagonizando la producci\u00f3n de su escuela de\u2026<\/p>","protected":false},"author":17,"featured_media":3564,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148,22],"class_list":["post-3563","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news","category-patient-stories"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>All Grown Up: From Tiny Transplant Patient to Thriving Young Adult - Lucile Packard Foundation for Children&#039;s Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lpfch.org\/es\/impact-stories\/all-grown-up-from-tiny-transplant-patient-to-thriving-young-adult\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"All Grown Up: From Tiny Transplant Patient to Thriving Young Adult\" \/>\n<meta property=\"og:description\" content=\"Miranda Ashland is one busy girl. 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