{"id":3639,"date":"2015-02-25T17:05:04","date_gmt":"2015-02-25T17:05:04","guid":{"rendered":"https:\/\/lpfch.org\/diabetes-one-familys-fight-for-normal\/"},"modified":"2024-02-14T14:06:57","modified_gmt":"2024-02-14T14:06:57","slug":"diabetes-one-familys-fight-for-normal","status":"publish","type":"post","link":"https:\/\/lpfch.org\/es\/impact-stories\/diabetes-one-familys-fight-for-normal\/","title":{"rendered":"Diabetes: La lucha de una familia por la \u201cnormalidad\u201d"},"content":{"rendered":"

Tierra Bergh, una madre ocupada de cinco hijos, todav\u00eda recuerda v\u00edvidamente este momento de hace nueve a\u00f1os: \u201cMaleki se despert\u00f3, me mir\u00f3 y me pregunt\u00f3 por qu\u00e9 est\u00e1bamos en el hospital\u201d.<\/p>\n

Su hijo Maleki, que entonces ten\u00eda 3 a\u00f1os, lleg\u00f3 al Hospital Infantil Lucile Packard de Stanford esa ma\u00f1ana de marzo de 2006 pr\u00e1cticamente inconsciente. Gracias a la r\u00e1pida respuesta del Dr. Darrell Wilson, jefe de endocrinolog\u00eda pedi\u00e1trica y profesor de endocrinolog\u00eda en la Facultad de Medicina de la Universidad de Stanford, Maleki comenz\u00f3 el tratamiento para la diabetes tipo 1. Tierra y su esposo, Michael, se encontraron repentinamente en un nuevo mundo de pinchazos en los dedos e inyecciones de insulina.<\/p>\n

Maleki y su familia pasaron cinco d\u00edas en el hospital, donde tambi\u00e9n aprendieron sobre una nueva prueba de anticuerpos que podr\u00eda ayudar a predecir si un ni\u00f1o desarrollar\u00e1 diabetes tipo 1.<\/p>\n

Hab\u00eda un cinco por ciento de probabilidades de que uno de los hermanos de Maleki tambi\u00e9n tuviera la enfermedad. Contra todo pron\u00f3stico, los Bergh descubrieron que la hermana de Maleki, Marae, tambi\u00e9n portaba los anticuerpos.<\/p>\n

A medida que la familia aprendi\u00f3 a cuidar a Maleki y a adaptarse a su nueva \u201cnormalidad\u201d, confiaron en Wilson y en su colega, el Dr. Bruce Buckingham, profesor de endocrinolog\u00eda pedi\u00e1trica, para recibir asesoramiento y apoyo constantes.<\/p>\n

En 2010, dice Tierra, la familia estaba en una boda cuando not\u00f3 que Marae iba mucho al ba\u00f1o y ten\u00eda mucha sed. Tierra us\u00f3 el medidor de glucosa de su hijo y vio que el nivel de glucosa en sangre de Marae era de 403, casi el doble del umbral de la diabetes.<\/p>\n

\"\"<\/p>\n

\u201cHice lo que la mayor\u00eda de las mam\u00e1s har\u00edan: llor\u00e9 un minuto y luego llam\u00e9 al Dr. Buckingham\u201d, recuerda Tierra.<\/p>\n

Los Bergh agradecen al equipo de nuestro hospital por ayudar a su familia no solo a sobrevivir, sino a prosperar, incluso cuando otra ni\u00f1a, Jaeda, de 6 a\u00f1os, tambi\u00e9n dio positivo en la prueba de anticuerpos. <\/p>\n

\u201cSiempre llevamos una lonchera llena de suministros para la diabetes y comida para casos de hipoglucemia\u201d, dice Tierra. \u201cLos ni\u00f1os est\u00e1n acostumbrados a medirse el az\u00facar 15 veces al d\u00eda y a inyectarse insulina seis veces al d\u00eda, incluso en p\u00fablico. Ya es algo natural para ellos\u201d.<\/p>\n

En la actualidad, Maleki, de 12 a\u00f1os, lanza y juega como campocorto para un equipo de b\u00e9isbol itinerante y ha trabajado como embajador juvenil de la Asociaci\u00f3n Estadounidense de Diabetes. <\/p>\n

Marae, que ahora tiene 9 a\u00f1os, se ha enamorado de la equitaci\u00f3n. "Es muy terap\u00e9utico para ella", dice Tierra. <\/p>\n

La familia est\u00e1 comprometida a ayudar a encontrar una cura para la diabetes. Maleki y Marae asistieron recientemente a un campamento de verano especial donde participaron en un estudio dirigido por Buckingham. Los campistas \u2014todos ni\u00f1os con diabetes\u2014 recibieron medidores de glucosa continuos que permitieron al personal m\u00e9dico y a los investigadores monitorear a cada ni\u00f1o a distancia y estudiar la eficacia de un sistema automatizado de insulina. <\/p>\n

Y aunque la familia Bergh se mud\u00f3 a Idaho el a\u00f1o pasado, contin\u00faan participando en estudios en Stanford, regresando al \u00c1rea de la Bah\u00eda para hacerse pruebas y exploraciones. <\/p>\n

\u201cEstos m\u00e9dicos hacen cosas incre\u00edbles\u201d, dice Tierra. \u201cSolo espero que alg\u00fan d\u00eda haya una cura\u201d.<\/p>\n

Cr\u00e9dito de la fotograf\u00eda: Heather Walker de Heather Walker Photography heatherwalkerphotography.blogspot.com<\/a><\/em><\/p>\n

Este art\u00edculo apareci\u00f3 por primera vez en el n\u00famero de primavera de 2015 de la Actualizaci\u00f3n del Fondo para la Infancia<\/a>.<\/em><\/p>","protected":false},"excerpt":{"rendered":"

Tierra Bergh, una madre ocupada de cinco hijos, todav\u00eda recuerda v\u00edvidamente este momento de hace nueve a\u00f1os: \u201cMaleki se despert\u00f3, me mir\u00f3 y me pregunt\u00f3 por qu\u00e9\u2026<\/p>","protected":false},"author":17,"featured_media":10483,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148,22],"class_list":["post-3639","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news","category-patient-stories"],"acf":[],"yoast_head":"\nDiabetes: One Family’s Fight for “Normal” - 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