{"id":3691,"date":"2015-09-17T16:06:06","date_gmt":"2015-09-17T16:06:06","guid":{"rendered":"https:\/\/lpfch.org\/one-mothers-words-our-familys-journey\/"},"modified":"2024-02-14T14:07:07","modified_gmt":"2024-02-14T14:07:07","slug":"one-mothers-words-our-familys-journey","status":"publish","type":"post","link":"https:\/\/lpfch.org\/es\/impact-stories\/one-mothers-words-our-familys-journey\/","title":{"rendered":"Palabras de una madre: El viaje de nuestra familia"},"content":{"rendered":"

Zoie Farmer, madre de Hyrum, de 10 a\u00f1os, comparti\u00f3 la experiencia de su familia mientras Hyrum lucha contra la leucemia con la ayuda de nuestro hospital. A continuaci\u00f3n, se incluye la transcripci\u00f3n del discurso de Zoie del 2 de septiembre, cuando Hyundai Hope on Wheels celebr\u00f3 su evento "Cada huella cuenta una historia" y entreg\u00f3 a nuestro hospital una subvenci\u00f3n de $250,000 para la investigaci\u00f3n del c\u00e1ncer infantil.<\/em><\/p>\n

\u201cCada huella cuenta una historia\u201d, y esta es la nuestra:<\/p>\n

En la madrugada del 20 de diciembre de 2012, nuestra familia de seis condujo dos horas hasta el Hospital Infantil Lucile Packard de Stanford. Mi esposo nos dej\u00f3 a Hyrum y a m\u00ed en esta misma puerta, justo aqu\u00ed, y le dije: \u00abNos vemos en unas horas\u00bb.<\/p>\n

Ver\u00e1s, solo nos hac\u00edan unas pruebas y ya nos \u00edbamos. Eran las 7 de la ma\u00f1ana. A las 10 de la ma\u00f1ana, Hyrum ya estaba recibiendo quimioterapia. La vida como la conoc\u00edamos hab\u00eda cambiado.  <\/p>\n

Hyrum ten\u00eda 7 a\u00f1os cuando le diagnosticaron una forma rara de leucemia llamada bifenot\u00edpica. No ten\u00edamos ni idea de a qu\u00e9 nos enfrent\u00e1bamos. Incluso los m\u00e9dicos no estaban seguros de c\u00f3mo proceder con su atenci\u00f3n. Oramos por ellos para que tomaran las decisiones correctas.<\/p>\n

El d\u00eda que le diagnosticaron a Hyrum, no pensaba en la investigaci\u00f3n ni en el dinero. No pensaba en la calidad de la atenci\u00f3n, ni en los informes patol\u00f3gicos ni en los \u00faltimos proyectos de investigaci\u00f3n... la verdad es que no pensaba en nada de eso.<\/p>\n

Pensaba en mi hijo, en mi familia y en c\u00f3mo \u00edbamos a superar f\u00edsica y emocionalmente los pr\u00f3ximos tres a\u00f1os de tratamiento. Me sent\u00eda abrumada, pero llena de esperanza. Sent\u00eda que Dios nos hab\u00eda tra\u00eddo a este hospital con m\u00e9dicos y enfermeras incre\u00edbles y un sinf\u00edn de personas m\u00e1s para cuidarnos. Mi trabajo era preocuparme por lo que m\u00e1s me importaba: mi familia.<\/p>\n

La belleza de la atenci\u00f3n de calidad reside en que no conoces su excelencia porque funciona a la perfecci\u00f3n en segundo plano. Es como una gran red que te respalda. Se trata de proyectos de investigaci\u00f3n, equipos m\u00e9dicos e instalaciones. Son m\u00e9dicos y enfermeras que se han incorporado a\u00f1os antes de que tu hijo reciba el diagn\u00f3stico. Cada uno de ellos es vital para tu experiencia.<\/p>\n

No fue hasta hace poco que me di cuenta de que no solo los m\u00e9dicos y las enfermeras de Stanford hab\u00edan desempe\u00f1ado un papel incre\u00edble en nuestro tratamiento, sino que los a\u00f1os de investigaci\u00f3n y financiaci\u00f3n para dicha investigaci\u00f3n hab\u00edan sido cruciales en la recuperaci\u00f3n de mi hijo. \u00bfD\u00f3nde estar\u00edamos sin su ayuda?<\/p>\n

Ver\u00e1n, Hyundai Hope on Wheels ha estado financiando la investigaci\u00f3n del c\u00e1ncer infantil en Estados Unidos desde 1998, \u00a1siete a\u00f1os antes de que mi hijo naciera! Esa investigaci\u00f3n hizo posible que recibiera la mejor atenci\u00f3n aquella ma\u00f1ana de diciembre de 2012. Catorce a\u00f1os antes de que cruz\u00e1ramos esa puerta, alguien se preocup\u00f3 por nosotros. Alguien nos estaba dando una mano que desconoc\u00edamos.<\/p>\n

S\u00e9 que Dios est\u00e1 en cada detalle de nuestras vidas. Hemos visto su mano a trav\u00e9s de ustedes, quienes nos ayudan. A muchos de ustedes nunca los hemos conocido personalmente. Pero ustedes marcan la diferencia en nuestras vidas. Marcan la diferencia en las familias que entran hoy por esas puertas. Cada uno de nosotros forma parte de esa gran red de apoyo y esperanza.<\/p>\n

\u00bfC\u00f3mo agradeces a quienes salvan vidas? \u00bfC\u00f3mo agradeces a quienes salvan la vida de tu hijo?<\/p>\n

Hoy Hyrum est\u00e1 bien. Tiene 10 a\u00f1os. Dice que quiere ser maquinista o arquitecto. Le encantan los Legos. Y le encanta bromear con sus tres hermanitas. Y sabe lo afortunado que es de estar vivo. Y nuestra familia es m\u00e1s fuerte. Hemos sido bendecidos en los momentos dif\u00edciles y dulces de este viaje gracias a ti.<\/p>\n

Despu\u00e9s de hoy, Hyrum habr\u00e1 completado casi 140 semanas de quimioterapia. \u00a1Pi\u00e9nsenlo! \u00a1140 semanas! \u00a1Y solo faltan ocho! Hoy, volveremos a cruzar esas puertas y recibiremos quimioterapia.<\/p>\n

Al principio, no est\u00e1bamos seguros de c\u00f3mo evolucionar\u00eda el tratamiento de Hyrum. Desconoc\u00edamos mucho sobre su leucemia. Pero s\u00e9 que el camino que tomaron los m\u00e9dicos fue inspirador y perfecto para nuestro Hyrum. Estoy muy agradecido por su servicio y por los innumerables otros: m\u00e9dicos, enfermeras, investigadores y generosos donantes que dedican su tiempo y energ\u00eda para bendecir a mi familia y las vidas de ni\u00f1os y familias de todo el mundo. <\/p>\n

Gracias. <\/p>","protected":false},"excerpt":{"rendered":"

Zoie Farmer, madre de Hyrum, de 10 a\u00f1os, comparti\u00f3 la experiencia de su familia mientras Hyrum lucha contra la leucemia con la ayuda de nuestro hospital. A continuaci\u00f3n, un\u2026<\/p>","protected":false},"author":17,"featured_media":14661,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[22],"class_list":["post-3691","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories","health_topic-pediatric-cancer","engagement_type-corporate-giving"],"acf":[],"yoast_head":"\nOne mother’s words: Our family’s journey - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lpfch.org\/es\/impact-stories\/one-mothers-words-our-familys-journey\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"One mother’s words: Our family’s journey\" \/>\n<meta property=\"og:description\" content=\"Zoie Farmer, mother of 10-year-old Hyrum, shared her family’s journey as Hyrum has battled leukemia with the help of our hospital. The following is a...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/lpfch.org\/es\/impact-stories\/one-mothers-words-our-familys-journey\/\" \/>\n<meta property=\"og:site_name\" content=\"Lucile Packard Foundation for Children's Health\" \/>\n<meta property=\"article:published_time\" content=\"2015-09-17T16:06:06+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-14T14:07:07+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/02\/photo2_1.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"522\" \/>\n\t<meta property=\"og:image:height\" content=\"280\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"admin\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"admin\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/\"},\"author\":{\"name\":\"admin\",\"@id\":\"https:\/\/lpfch.org\/km\/#\/schema\/person\/0c27ee3a03f60d4845413e6163db996c\"},\"headline\":\"One mother’s words: Our family’s journey\",\"datePublished\":\"2015-09-17T16:06:06+00:00\",\"dateModified\":\"2024-02-14T14:07:07+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/\"},\"wordCount\":813,\"commentCount\":0,\"image\":{\"@id\":\"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/02\/photo2_1.jpg\",\"articleSection\":[\"Patient Stories\"],\"inLanguage\":\"es-ES\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/\",\"url\":\"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/\",\"name\":\"One mother’s words: Our family’s journey - Lucile Packard Foundation for Children's Health\",\"isPartOf\":{\"@id\":\"https:\/\/lpfch.org\/km\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/02\/photo2_1.jpg\",\"datePublished\":\"2015-09-17T16:06:06+00:00\",\"dateModified\":\"2024-02-14T14:07:07+00:00\",\"author\":{\"@id\":\"https:\/\/lpfch.org\/km\/#\/schema\/person\/0c27ee3a03f60d4845413e6163db996c\"},\"breadcrumb\":{\"@id\":\"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#breadcrumb\"},\"inLanguage\":\"es-ES\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"es-ES\",\"@id\":\"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#primaryimage\",\"url\":\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/02\/photo2_1.jpg\",\"contentUrl\":\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/02\/photo2_1.jpg\",\"width\":522,\"height\":280},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/lpfch.org\/hy\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"One mother’s…\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/lpfch.org\/km\/#website\",\"url\":\"https:\/\/lpfch.org\/km\/\",\"name\":\"Lucile Packard Foundation for Children's Health\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/lpfch.org\/km\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es-ES\"},{\"@type\":\"Person\",\"@id\":\"https:\/\/lpfch.org\/km\/#\/schema\/person\/0c27ee3a03f60d4845413e6163db996c\",\"name\":\"admin\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es-ES\",\"@id\":\"https:\/\/secure.gravatar.com\/avatar\/01a869e9508babcb1c66b6b41356b4ef63d5326e5b27c38b27ed4a46b8e36b9f?s=96&d=mm&r=g\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/01a869e9508babcb1c66b6b41356b4ef63d5326e5b27c38b27ed4a46b8e36b9f?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/01a869e9508babcb1c66b6b41356b4ef63d5326e5b27c38b27ed4a46b8e36b9f?s=96&d=mm&r=g\",\"caption\":\"admin\"},\"sameAs\":[\"https:\/\/lpfch.org\/wp\"],\"url\":\"https:\/\/lpfch.org\/es\/impact-stories\/author\/admin\/\"}]}<\/script>\n<!-- \/ Yoast SEO Premium plugin. -->","yoast_head_json":{"title":"One mother’s words: Our family’s journey - Lucile Packard Foundation for Children's Health","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/lpfch.org\/es\/impact-stories\/one-mothers-words-our-familys-journey\/","og_locale":"es_ES","og_type":"article","og_title":"One mother’s words: Our family’s journey","og_description":"Zoie Farmer, mother of 10-year-old Hyrum, shared her family’s journey as Hyrum has battled leukemia with the help of our hospital. The following is a...","og_url":"https:\/\/lpfch.org\/es\/impact-stories\/one-mothers-words-our-familys-journey\/","og_site_name":"Lucile Packard Foundation for Children's Health","article_published_time":"2015-09-17T16:06:06+00:00","article_modified_time":"2024-02-14T14:07:07+00:00","og_image":[{"width":522,"height":280,"url":"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/02\/photo2_1.jpg","type":"image\/jpeg"}],"author":"admin","twitter_card":"summary_large_image","twitter_misc":{"Written by":"admin","Est. reading time":"4 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#article","isPartOf":{"@id":"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/"},"author":{"name":"admin","@id":"https:\/\/lpfch.org\/km\/#\/schema\/person\/0c27ee3a03f60d4845413e6163db996c"},"headline":"One mother’s words: Our family’s journey","datePublished":"2015-09-17T16:06:06+00:00","dateModified":"2024-02-14T14:07:07+00:00","mainEntityOfPage":{"@id":"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/"},"wordCount":813,"commentCount":0,"image":{"@id":"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#primaryimage"},"thumbnailUrl":"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/02\/photo2_1.jpg","articleSection":["Patient Stories"],"inLanguage":"es-ES","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/","url":"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/","name":"One mother’s words: Our family’s journey - Lucile Packard Foundation for Children's Health","isPartOf":{"@id":"https:\/\/lpfch.org\/km\/#website"},"primaryImageOfPage":{"@id":"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#primaryimage"},"image":{"@id":"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#primaryimage"},"thumbnailUrl":"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/02\/photo2_1.jpg","datePublished":"2015-09-17T16:06:06+00:00","dateModified":"2024-02-14T14:07:07+00:00","author":{"@id":"https:\/\/lpfch.org\/km\/#\/schema\/person\/0c27ee3a03f60d4845413e6163db996c"},"breadcrumb":{"@id":"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#breadcrumb"},"inLanguage":"es-ES","potentialAction":[{"@type":"ReadAction","target":["https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/"]}]},{"@type":"ImageObject","inLanguage":"es-ES","@id":"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#primaryimage","url":"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/02\/photo2_1.jpg","contentUrl":"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/02\/photo2_1.jpg","width":522,"height":280},{"@type":"BreadcrumbList","@id":"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/lpfch.org\/hy\/"},{"@type":"ListItem","position":2,"name":"One mother’s…"}]},{"@type":"WebSite","@id":"https:\/\/lpfch.org\/km\/#website","url":"https:\/\/lpfch.org\/km\/","name":"Fundaci\u00f3n Lucile Packard para la Salud Infantil","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/lpfch.org\/km\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es-ES"},{"@type":"Person","@id":"https:\/\/lpfch.org\/km\/#\/schema\/person\/0c27ee3a03f60d4845413e6163db996c","name":"administraci\u00f3n","image":{"@type":"ImageObject","inLanguage":"es-ES","@id":"https:\/\/secure.gravatar.com\/avatar\/01a869e9508babcb1c66b6b41356b4ef63d5326e5b27c38b27ed4a46b8e36b9f?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/01a869e9508babcb1c66b6b41356b4ef63d5326e5b27c38b27ed4a46b8e36b9f?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/01a869e9508babcb1c66b6b41356b4ef63d5326e5b27c38b27ed4a46b8e36b9f?s=96&d=mm&r=g","caption":"admin"},"sameAs":["https:\/\/lpfch.org\/wp"],"url":"https:\/\/lpfch.org\/es\/impact-stories\/author\/admin\/"}]}},"_links":{"self":[{"href":"https:\/\/lpfch.org\/es\/wp-json\/wp\/v2\/posts\/3691","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/lpfch.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/lpfch.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/lpfch.org\/es\/wp-json\/wp\/v2\/users\/17"}],"replies":[{"embeddable":true,"href":"https:\/\/lpfch.org\/es\/wp-json\/wp\/v2\/comments?post=3691"}],"version-history":[{"count":1,"href":"https:\/\/lpfch.org\/es\/wp-json\/wp\/v2\/posts\/3691\/revisions"}],"predecessor-version":[{"id":14207,"href":"https:\/\/lpfch.org\/es\/wp-json\/wp\/v2\/posts\/3691\/revisions\/14207"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/lpfch.org\/es\/wp-json\/wp\/v2\/media\/14661"}],"wp:attachment":[{"href":"https:\/\/lpfch.org\/es\/wp-json\/wp\/v2\/media?parent=3691"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/lpfch.org\/es\/wp-json\/wp\/v2\/categories?post=3691"}],"curies":[{"name":"gracias","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}