{"id":3741,"date":"2015-12-03T23:04:33","date_gmt":"2015-12-03T23:04:33","guid":{"rendered":"https:\/\/lpfch.org\/supporting-the-whole-child-in-the-childrens-heart-center\/"},"modified":"2024-02-14T14:07:15","modified_gmt":"2024-02-14T14:07:15","slug":"supporting-the-whole-child-in-the-childrens-heart-center","status":"publish","type":"post","link":"https:\/\/lpfch.org\/es\/impact-stories\/supporting-the-whole-child-in-the-childrens-heart-center\/","title":{"rendered":"Apoyando al ni\u00f1o en su totalidad en el Centro Card\u00edaco Infantil"},"content":{"rendered":"

El Programa de Psicolog\u00eda Card\u00edaca garantiza que el cuidado de la salud mental sea una parte integral del proceso de curaci\u00f3n.<\/h3>\n

El coraz\u00f3n de Reina, de cuatro a\u00f1os, dej\u00f3 de latir un d\u00eda mientras estaba en su casa de Petaluma con sus padres. Su padre, Jorge, le practic\u00f3 RCP hasta que llegaron los param\u00e9dicos y la trasladaron en helic\u00f3ptero a un hospital. Reina, que hasta ese momento hab\u00eda llevado una vida completamente normal, fue diagnosticada con taquicardia ventricular polim\u00f3rfica catecolamin\u00e9rgica, un s\u00edndrome de arritmia hereditaria poco com\u00fan que puede causar la muerte s\u00fabita si no se trata. Por suerte, nuestro Equipo de electrofisiolog\u00eda y atenci\u00f3n de arritmias<\/a> Se especializa en casos como el de Reina y estaba listo para salvarla. <\/p>\n

Como esta historia<\/a> Seg\u00fan el Hospital Infantil Lucile Packard de Stanford, a Reina le implantaron un desfibrilador cardioversor implantable (DCI), un dispositivo que se coloca quir\u00fargicamente y que monitoriza continuamente su frecuencia card\u00edaca. El DCI consta de cables que transmiten se\u00f1ales el\u00e9ctricas del coraz\u00f3n a una peque\u00f1a computadora dentro de una caja met\u00e1lica. Es un dispositivo que le ha salvado la vida y le ha cambiado la vida. <\/p>\n

En la mayor\u00eda de los casos, un DAI monitoriza la frecuencia card\u00edaca de un paciente con arritmia sin que este lo note. Pero cuando el dispositivo detecta que la frecuencia card\u00edaca se ha acelerado de forma anormal, administra una potente descarga el\u00e9ctrica que normaliza el ritmo card\u00edaco. <\/p>\n

Esa carga salva vidas, pero se ha descrito como similar a \u201crecibir una patada en el pecho\u201d. El paciente puede sentir que le han quitado el aire y necesita tiempo para recuperarse. <\/p>\n

La posibilidad de que una frecuencia card\u00edaca anormalmente r\u00e1pida active el dispositivo en cualquier momento preocupa a los pacientes y a sus familias. Actividades que antes eran divertidas, como practicar un deporte o ir de excursi\u00f3n, pueden volverse impredecibles y aterradoras.<\/p>\n

\u00abLa respuesta emocional al recibir un DAI var\u00eda de un paciente a otro, pero un tema com\u00fan es la incertidumbre o la ansiedad\u00bb, explica Lauren Mikula Schneider, doctora en Psicolog\u00eda, profesora cl\u00ednica adjunta del Hospital Infantil Lucile Packard de Stanford y una de las fundadoras del Programa de Psicolog\u00eda Card\u00edaca, que lleva un a\u00f1o en funcionamiento en nuestro Centro Card\u00edaco Infantil. El programa, financiado por donaciones, garantiza que el bienestar psicol\u00f3gico de los pacientes con DAI sea parte integral de su atenci\u00f3n cl\u00ednica. <\/p>\n

\u201cEl apoyo de nuestros donantes ha permitido que psic\u00f3logos est\u00e9n presentes en el Centro Card\u00edaco Infantil y nos brinda la oportunidad de desarrollar nuevas pr\u00e1cticas e investigaciones que ayudar\u00e1n a los ni\u00f1os y sus familias a adaptarse a su nueva realidad\u201d, afirma Schneider. Ella y un equipo que incluye a la Dra. Anne Dubin, profesora de cardiolog\u00eda pedi\u00e1trica; el Dr. Scott Ceresnak, profesor adjunto de cardiolog\u00eda pedi\u00e1trica; la Dra. Kara Motonaga, profesora cl\u00ednica adjunta de cardiolog\u00eda pedi\u00e1trica; el Dr. Korey Hood, profesor cl\u00ednico de psiquiatr\u00eda y ciencias del comportamiento, as\u00ed como de endocrinolog\u00eda y diabetes; el Dr. Richard Shaw, profesor de psiquiatr\u00eda y ciencias del comportamiento; Tony Trela, enfermero registrado, m\u00e1ster en ciencias de enfermer\u00eda y enfermero practicante certificado; y Debra Hanisch, enfermera registrada y enfermera pedi\u00e1trica certificada, crearon el programa para ampliar el \u00e9xito de un evento anual de un d\u00eda llamado Connecting, donde pacientes card\u00edacos se re\u00fanen con otros pacientes y profesionales m\u00e9dicos para compartir experiencias e inspirarse para superar las limitaciones de vivir con un DAI (desfibrilador autom\u00e1tico implantable). <\/p>\n

\u201cExiste una gran cantidad de investigaciones sobre la ansiedad y la depresi\u00f3n que se presentan en ni\u00f1os y sus familias tras la implantaci\u00f3n de un DAI, pero se est\u00e1 haciendo muy poco para aliviar estos problemas. Este programa es el primer paso para ayudar a abordar los problemas psicol\u00f3gicos reales que enfrenta esta poblaci\u00f3n\u201d, afirma Dubin, director del servicio de arritmias pedi\u00e1tricas. <\/p>\n

No es raro que un ni\u00f1o pregunte: "\u00bfPor qu\u00e9 a m\u00ed?" tras recibir un diagn\u00f3stico y un dispositivo que le cambian la vida. Mientras los cardi\u00f3logos trabajan para restablecer la funci\u00f3n fisiol\u00f3gica del coraz\u00f3n, Schneider y sus colegas se re\u00fanen con los pacientes y sus familias para brindarles apoyo emocional. Antes del diagn\u00f3stico que llev\u00f3 a la implantaci\u00f3n del DAI, el ni\u00f1o pudo haber sufrido un paro card\u00edaco. Es comprensible que esto sea traum\u00e1tico para los padres y hermanos, y que sean frecuentes las reacciones similares al TEPT. <\/p>\n

\u201cNuestro objetivo es tratar al paciente en su totalidad, no solo el problema card\u00edaco que lo llev\u00f3 a nuestra atenci\u00f3n en primer lugar\u201d, explica Dubin. \u201cSi bien es fundamental garantizar que un paciente no sufra un evento que ponga en peligro su vida, es igualmente importante tratar de asegurar que tenga una buena calidad de vida\u201d.<\/p>\n

El equipo se re\u00fane con cada familia cuyo hijo ha recibido un DAI (desfibrilador autom\u00e1tico implantable). <\/p>\n

\u201cHablamos sobre sus preocupaciones acerca de c\u00f3mo se adaptar\u00e1n al dispositivo y c\u00f3mo esto afectar\u00e1 a su familia durante el resto de sus vidas\u201d, dice Schneider.<\/p>\n

Para los pacientes que necesitan apoyo continuo para superar la depresi\u00f3n o la ansiedad, el equipo de Psicolog\u00eda Card\u00edaca ofrece sesiones individuales semanales o mensuales, seg\u00fan la situaci\u00f3n de cada paciente. A medida que los pacientes se adaptan a su nueva realidad e integran el DAI en su vida y futuro, las citas se reducen y suelen coincidir con las revisiones cl\u00ednicas anuales. <\/p>\n

\u201cQueremos normalizar la integraci\u00f3n de la psicolog\u00eda en la atenci\u00f3n cl\u00ednica de los pacientes del Centro Cardiol\u00f3gico y de otras \u00e1reas\u201d, a\u00f1ade Schneider. \u201cNuestro modelo es singular, y somos uno de los primeros hospitales pedi\u00e1tricos en integrar psic\u00f3logos en una cl\u00ednica de electrofisiolog\u00eda y arritmias. Podemos ver a cada paciente al menos una vez al a\u00f1o para garantizar su bienestar integral, incluyendo su salud mental. Esperamos que, cuanto m\u00e1s integrados est\u00e9n los psic\u00f3logos en la cl\u00ednica, m\u00e1s accesibles seremos para todos los pacientes\u201d.<\/p>\n

Para apoyar la atenci\u00f3n excepcional en nuestro Centro Card\u00edaco Infantil, visite supportlpch.org\/heart<\/a>. <\/em><\/p>","protected":false},"excerpt":{"rendered":"

El Programa de Psicolog\u00eda Card\u00edaca garantiza que el cuidado de la salud mental sea parte integral del proceso de sanaci\u00f3n. El coraz\u00f3n de Reina, de cuatro a\u00f1os, dej\u00f3 de latir un d\u00eda\u2026<\/p>","protected":false},"author":17,"featured_media":3742,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[22],"class_list":["post-3741","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories","health_topic-heart"],"acf":[],"yoast_head":"\nSupporting the whole child in the Children’s Heart Center - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lpfch.org\/es\/impact-stories\/supporting-the-whole-child-in-the-childrens-heart-center\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Supporting the whole child in the Children’s Heart Center\" \/>\n<meta property=\"og:description\" content=\"The Cardiac Psychology Program ensures that caring for mental health is an integral part of the healing process. 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