{"id":3851,"date":"2016-11-22T23:34:43","date_gmt":"2016-11-22T23:34:43","guid":{"rendered":"https:\/\/lpfch.org\/parents-get-a-behind-the-scenes-look-at-their-daughters-donated-brain-tumor-cells\/"},"modified":"2024-02-14T14:07:32","modified_gmt":"2024-02-14T14:07:32","slug":"parents-get-a-behind-the-scenes-look-at-their-daughters-donated-brain-tumor-cells","status":"publish","type":"post","link":"https:\/\/lpfch.org\/es\/impact-stories\/parents-get-a-behind-the-scenes-look-at-their-daughters-donated-brain-tumor-cells\/","title":{"rendered":"Los padres obtienen una mirada tras bambalinas a las c\u00e9lulas del tumor cerebral donadas a su hija."},"content":{"rendered":"<p>Katherine King, conocida por m\u00e1s de 30.000 <a href=\"https:\/\/www.facebook.com\/KatherineTheBrave\/\" target=\"_blank\" rel=\"noopener\">Facebook<\/a>      Katherine, conocida como la Valiente, fue diagnosticada con glioma pontino intr\u00ednseco difuso (DIPG) el 2 de junio de 2015. El DIPG es un tumor del tronco encef\u00e1lico que crece a lo largo de las c\u00e9lulas nerviosas del cerebro, lo que lo hace inoperable. El DIPG tiene una tasa de supervivencia del 1%; la mediana de supervivencia para los ni\u00f1os diagnosticados con DIPG es de nueve meses. Tras luchar valientemente durante 12 meses, Katherine falleci\u00f3 el 6 de junio de 2016. Sus padres, Jaime y David, decidieron donar su cerebro y el tumor cerebral a la Dra. Michelle Monje-Deisseroth, profesora adjunta de Neurolog\u00eda en la Facultad de Medicina de la Universidad de Stanford. La Dra. Monje-Deisseroth es una investigadora de renombre mundial en el campo del DIPG, que busca mejores tratamientos para los ni\u00f1os diagnosticados con esta enfermedad, as\u00ed como una cura para esta devastadora afecci\u00f3n. &nbsp;<\/p>\n<p>Jaime y David visitaron recientemente a la Dra. Monje-Deisseroth para obtener m\u00e1s informaci\u00f3n sobre la investigaci\u00f3n del DIPG y la donaci\u00f3n de tejido tumoral, y para observar el crecimiento de las c\u00e9lulas tumorales de Katherine en frascos especializados en el laboratorio de la Dra. Monje-Deisseroth. A Jaime y David se uni\u00f3 Libby Kranz, cofundadora de Unravel Pediatric Cancer, una organizaci\u00f3n sin fines de lucro que trabaja para difundir informaci\u00f3n sobre la dura realidad del c\u00e1ncer infantil y el devastador impacto de la falta de financiaci\u00f3n para la investigaci\u00f3n. Libby es una incansable defensora que recauda fondos para la investigaci\u00f3n del DIPG y la concientizaci\u00f3n sobre la enfermedad. &nbsp;<\/p>\n<p>Tras conocer varios de los proyectos de investigaci\u00f3n que dirige la Dra. Monje-Deisseroth, los Kings preguntaron sobre la donaci\u00f3n de tejido tumoral. La Dra. Monje-Deisseroth les explic\u00f3 que el tejido tumoral donado para investigaci\u00f3n cient\u00edfica puede estudiarse de muchas maneras y no solo se utiliza para desarrollar l\u00edneas celulares tumorales. De hecho, un porcentaje muy bajo de tejido tumoral DIPG donado crece y se convierte en una l\u00ednea celular. La Dra. Monje-Deisseroth enfatiz\u00f3 que existen muchos otros usos para el tejido tumoral donado. Los investigadores pueden observar las c\u00e9lulas al microscopio para conocer mejor la estructura de las c\u00e9lulas DIPG. Se puede secuenciar el ADN y el ARN del tumor completo y de c\u00e9lulas individuales para obtener informaci\u00f3n gen\u00e9tica. El tejido tumoral tambi\u00e9n puede depositarse en un banco de tejidos para estudios futuros, mediante t\u00e9cnicas que a\u00fan no se han imaginado. Todas estas formas de estudiar el tejido tumoral ayudan a los investigadores a comprender mejor el DIPG y pueden contribuir a mejorar su tratamiento.      &nbsp;<\/p>\n<p>Finalmente, lleg\u00f3 el momento de que Jaime y David vieran las c\u00e9lulas que ahora crecen en el laboratorio de la Dra. Monje-Deisseroth a partir del tumor DIPG de Katherine. Fue un momento emotivo, pero los Kings se sintieron alentados por el hecho de que Katherine seguir\u00e1 teniendo un impacto en el mundo a trav\u00e9s de la investigaci\u00f3n del DIPG. Su esperanza es que el legado de Katherine contribuya a mejorar los tratamientos para otros ni\u00f1os diagnosticados con DIPG y, en \u00faltima instancia, a encontrar una cura.<\/p>\n<p>Para apoyar la importante investigaci\u00f3n de la Dra. Monje-Deisseroth sobre el DIPG y para honrar a Katherine, visite      <a href=\"https:\/\/my.supportlpch.org\/fundraise?fcid=747343\" target=\"_blank\" rel=\"noopener\">mi.supportlpch.org\/fundraise?fcid=747343<\/a>. &nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>A Katherine King, conocida por sus m\u00e1s de 30.000 seguidores en Facebook como Katherine la Valiente, le diagnosticaron glioma pontino intr\u00ednseco difuso (DIPG) el 2 de junio\u2026<\/p>","protected":false},"author":17,"featured_media":3852,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[22],"class_list":["post-3851","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - 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