{"id":3911,"date":"2017-08-28T23:51:05","date_gmt":"2017-08-28T23:51:05","guid":{"rendered":"https:\/\/lpfch.org\/your-support-helps-edgars-family-through-their-most-difficult-times\/"},"modified":"2024-02-14T14:07:42","modified_gmt":"2024-02-14T14:07:42","slug":"your-support-helps-edgars-family-through-their-most-difficult-times","status":"publish","type":"post","link":"https:\/\/lpfch.org\/es\/impact-stories\/your-support-helps-edgars-family-through-their-most-difficult-times\/","title":{"rendered":"Tu apoyo ayuda a la familia de Edgar a superar sus momentos m\u00e1s dif\u00edciles."},"content":{"rendered":"

Cuando la familia de Edgar supo que su querido hijo de 14 a\u00f1os ten\u00eda c\u00e1ncer, se vieron inmersos en una vor\u00e1gine de incertidumbre. De repente, su vida se convirti\u00f3 en un mar de m\u00e9dicos, enfermeras, cirug\u00edas, quimioterapia, miedo y tantas cosas que no comprend\u00edan. Pero una presencia tranquilizadora los ha acompa\u00f1ado en todo momento: la trabajadora social Tovah Toomasson, LCSW, a quien llaman su \u00ab\u00e1ngel de la guarda\u00bb.<\/p>\n

\u201cTovah nos ayuda a sobrellevar las dificultades y cuando no sabemos qu\u00e9 est\u00e1 pasando\u201d, dice Felisa, la madre de Edgar, a trav\u00e9s de una int\u00e9rprete m\u00e9dica. \u201cNos ayuda a encontrar alojamiento cerca del hospital, nos ayuda con las facturas y nos mantiene informados sobre el estado de salud de los m\u00e9dicos\u201d.<\/p>\n

Toomasson visita a Edgar, un ni\u00f1o encantador que adora el f\u00fatbol y ir al cine con sus amigos, mientras lucha contra el c\u00e1ncer en el Hospital Infantil Lucile Packard de Stanford. \u00bfSu misi\u00f3n? Apoyar a familias como la de Edgar, cuyas vidas se han visto trastornadas por la enfermedad de su hijo.<\/p>\n

Toomasson explica que antes de que una familia como la de Edgar pueda superar el aspecto emocional de la enfermedad y la hospitalizaci\u00f3n, deben tener satisfechas sus necesidades b\u00e1sicas, desde la vivienda y el transporte hasta el cuidado de los hermanos.<\/p>\n

\u00abLa mayor\u00eda de las familias con las que trabajo eran perfectamente autosuficientes antes de que su hijo enfermara\u00bb, dice Toomasson. \u00abPero, seg\u00fan el diagn\u00f3stico, es muy com\u00fan que un padre o una madre deje de trabajar para estar con el ni\u00f1o en el hospital. Con el alto coste de la vida en el \u00c1rea de la Bah\u00eda, \u00bfcu\u00e1ntas familias podr\u00edan afrontarlo sin problemas?\u00bb.<\/p>\n

El Hospital Infantil Packard atiende a todos los ni\u00f1os necesitados de la zona, independientemente de la situaci\u00f3n econ\u00f3mica de sus familias o de su capacidad para costear el tratamiento. Gracias al generoso apoyo de donantes como usted, los trabajadores sociales de nuestro hospital est\u00e1n ah\u00ed para ayudar a las familias en los momentos m\u00e1s dif\u00edciles.<\/p>\n

\u201cHablamos con las familias incluso antes de que reciban el diagn\u00f3stico\u201d, dice Toomasson. \u201cAnalizamos posibles escenarios y lo que podr\u00edan necesitar. Y luego, una vez que hay un diagn\u00f3stico, vemos c\u00f3mo podemos ayudarles a aliviarles la carga\u201d.<\/p>\n

Felisa incluso record\u00f3 una ocasi\u00f3n en que su esposo, Lorenzo, estaba tan preocupado por Edgar que su estr\u00e9s se manifest\u00f3 en dolores de est\u00f3mago y presi\u00f3n arterial alta. \u201cTovah le dijo: 'Tu salud tambi\u00e9n es importante', y se asegur\u00f3 de que recibiera tratamiento m\u00e9dico\u201d.<\/p>\n

Sus donaciones son muy apreciadas por Toomasson, sus compa\u00f1eros trabajadores sociales y los pacientes a quienes atienden. \u00abCada granito de arena cuenta\u00bb, dice. \u00abUna tarjeta de gasolina $25 podr\u00eda permitir que una familia vaya y venga de la cl\u00ednica tres veces. Eso es de gran ayuda\u00bb. <\/p>\n

Adem\u00e1s de satisfacer las necesidades b\u00e1sicas de las familias, los trabajadores sociales tambi\u00e9n act\u00faan como profesionales de salud mental con licencia, brindando asesoramiento, intervenci\u00f3n en crisis o coordinaci\u00f3n de la atenci\u00f3n para ayudar a comprender el complejo y abrumador sistema de atenci\u00f3n m\u00e9dica.<\/p>\n

\u201cDesempe\u00f1amos muchos roles diferentes\u201d, dice Toomasson. \u201cApoyamos a las familias en todo lo que podemos y tenemos el privilegio de verlas incluso despu\u00e9s de que salen del hospital. Es muy gratificante escuchar a un padre decir: 'Usted fue la primera persona que nos hizo sentir que pod\u00edamos superar esto'\u201d.<\/p>\n

C\u00f3mo puedes ayudar<\/strong><\/p>\n

Tu apoyo brinda a los pacientes y sus familias atenci\u00f3n m\u00e9dica vital, as\u00ed como servicios sociales que les ayudan a superar momentos dif\u00edciles. Haz tu mejor donaci\u00f3n al Fondo para la Infancia en supportLPCH.org\/donate.<\/a><\/p>\n

Este art\u00edculo apareci\u00f3 por primera vez en el n\u00famero de oto\u00f1o de 2017 de la Actualizaci\u00f3n del Fondo para la Infancia<\/a>.<\/em><\/p>","protected":false},"excerpt":{"rendered":"

Cuando la familia de Edgar se enter\u00f3 de que su dulce hijo de 14 a\u00f1os ten\u00eda c\u00e1ncer, se encontraron en un torbellino de incertidumbre. Su vida se convirti\u00f3 repentinamente en un mar\u2026<\/p>","protected":false},"author":17,"featured_media":3912,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148],"class_list":["post-3911","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news"],"acf":[],"yoast_head":"\nYour Support Helps Edgar’s Family Through Their Most Difficult Times - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/es\/impact-stories\/your-support-helps-edgars-family-through-their-most-difficult-times\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Your Support Helps Edgar’s Family Through Their Most Difficult Times\" \/>\n<meta property=\"og:description\" content=\"When Edgar’s family learned that their sweet 14-year-old boy had cancer, they found themselves in a swirl of uncertainty. 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