{"id":3924,"date":"2018-01-08T19:04:01","date_gmt":"2018-01-08T19:04:01","guid":{"rendered":"https:\/\/lpfch.org\/alexandras-quinceaera-giving-back-on-a-birthday\/"},"modified":"2024-02-14T14:07:44","modified_gmt":"2024-02-14T14:07:44","slug":"alexandras-quinceaera-giving-back-on-a-birthday","status":"publish","type":"post","link":"https:\/\/lpfch.org\/es\/impact-stories\/alexandras-quinceaera-giving-back-on-a-birthday\/","title":{"rendered":"Quincea\u00f1era de Alexandra: Retribuir en un cumplea\u00f1os"},"content":{"rendered":"<p>Alexandra ten\u00eda tan solo 10 d\u00edas de nacida cuando le diagnosticaron deficiencia de ornitina transcarbamilasa (OTC), una enfermedad rara que, en su caso, solo pod\u00eda curarse con un trasplante de h\u00edgado. Los m\u00e9dicos del Hospital Infantil Lucile Packard de Stanford colaboraron estrechamente con la familia de Alexandra para controlar su afecci\u00f3n hasta que pudieron realizarle el trasplante de h\u00edgado cuando Alexandra ten\u00eda 4 a\u00f1os. Desde entonces, Alexandra ha prosperado.&nbsp;<\/p>\n<p>El a\u00f1o pasado, durante su fiesta de quince a\u00f1os, Alexandra organiz\u00f3 un evento para recaudar fondos para nuestro hospital. En lugar de regalos en su d\u00eda especial, Alexandra pidi\u00f3 a sus amigos y familiares que donaran al fondo de servicios sociales de nuestro hospital.&nbsp;<\/p>\n<p>Alexandra recaud\u00f3 $2,255 para apoyar a nuestro equipo de servicios sociales en sus esfuerzos por apoyar a las familias mientras sus hijos reciben atenci\u00f3n en nuestro hospital. Servicios sociales utiliza donaciones como la de Alexandra para ofrecer ayuda con el transporte y comprar tarjetas de regalo para comestibles y gasolina para las familias de los pacientes.<\/p>\n<p>\u201cLas donaciones de nuestros generosos donantes como Alexandra ayudan a nuestras familias a cambiar su enfoque de preocuparse por las necesidades pr\u00e1cticas a ayudar a su hijo a sanar\u201d, comparte Denise Alloway, LCSW, una trabajadora social cl\u00ednica que apoya a pacientes de trasplante de h\u00edgado e intestino en nuestro hospital.<\/p>\n<p>\u201cMe siento inspirada a contribuir con el Packard Children&#039;s porque recib\u00ed mucho m\u00e1s de lo que jam\u00e1s podr\u00eda imaginar\u201d, dice Alexandra. \u201cAlguien tuvo la amabilidad de donarme mi h\u00edgado, sin recibir nada a cambio. Si no fuera por ellos, probablemente no estar\u00eda viva hoy\u201d.<\/p>\n<p>Hoy, Alexandra es una estudiante de preparatoria sana y feliz. Le encanta pasar tiempo con sus amigos, jugar con sus dos perros (Kira y Murray), nadar, esquiar, viajar y cantar.&nbsp;<\/p>\n<p>\u201cAlexandra est\u00e1 muy bien; no hay palabras que puedan expresar lo bien que est\u00e1\u201d, comparte el padre de Alexandra.&nbsp;<\/p>\n<p>\u201cSu salud es fuerte y estable. Sabe qui\u00e9n es y se siente c\u00f3moda con ella\u201d, a\u00f1ade su madre.<\/p>\n<p>\u00a1Gracias, Alexandra, por apoyar a nuestros pacientes en su d\u00eda especial!&nbsp;<\/p>\n<p><em>\u00bfTienes una idea para recaudar fondos? Empieza el 2018 con buen pie y convi\u00e9rtete en... <a href=\"http:\/\/championslpch.org\/\">Defensor de la infancia<\/a>.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>Alexandra ten\u00eda tan solo 10 d\u00edas cuando le diagnosticaron deficiencia de ornitina transcarbamilasa (OTC), una enfermedad rara que, en su caso, solo pod\u00eda ser\u2026<\/p>","protected":false},"author":17,"featured_media":3925,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[22],"class_list":["post-3924","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - 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