{"id":8635,"date":"2016-01-26T21:17:45","date_gmt":"2016-01-26T21:17:45","guid":{"rendered":"https:\/\/lpfch.org\/celeste-and-alexias-story\/"},"modified":"2024-01-31T23:44:16","modified_gmt":"2024-01-31T23:44:16","slug":"celeste-and-alexias-story","status":"publish","type":"post","link":"https:\/\/lpfch.org\/es\/impact-stories\/celeste-and-alexias-story\/","title":{"rendered":"\u201cAl fin y al cabo, somos una familia normal.\u201d"},"content":{"rendered":"<h2>Conoce a Celeste y Alexia de Marysville, CA.<\/h2>\n<p>Celeste y Alexia viven con el s\u00edndrome de deleci\u00f3n 22q.<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/01\/_df36709.jpg\" alt=\"Celeste and Alexia Madrigal\" \/><\/p>\n<p>Celeste y Alexia Madrigal nacieron sin un ri\u00f1\u00f3n y ambas sufrieron complicaciones card\u00edacas que requirieron cirug\u00eda a coraz\u00f3n abierto. Su desarrollo f\u00edsico y del habla tambi\u00e9n se han visto retrasados. Aqu\u00ed, las ni\u00f1as asisten a fisioterapia en Roseville, California. Su madre, Criss, y su hermano, Geo, observan. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df36719-2.jpg\" alt=\"Celeste and Alexia Madrigal\" \/><\/p>\n<p>Los Madrigal viven en una zona remota de Marysville, California. Todas las citas de los gemelos est\u00e1n al menos a 72 kil\u00f3metros de distancia. Debido a los largos viajes, una cita t\u00edpica de una hora ocupa casi tres horas del d\u00eda. En 2015, Criss registr\u00f3 que la familia condujo m\u00e1s de 16.000 kil\u00f3metros para ir a las citas m\u00e9dicas. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df36740.jpg\" alt=\"Celeste and Alexia Madrigal\" \/><\/p>\n<p>El abuelo de las gemelas, Daniel, desempe\u00f1a un papel fundamental en el cuidado de las ni\u00f1as. Daniel viene a la casa Madrigal todas las ma\u00f1anas entre las 5 y las 6 de la ma\u00f1ana para preparar a sus nietos para la escuela, dejarlos en la escuela y llevar a las gemelas a sus citas. &quot;El abuelo ha sido un \u00e1ngel del cielo para ayudarnos con las gemelas&quot;, dice su madre, Criss. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df36873.jpg\" alt=\"Celeste and Alexia Madrigal\" \/><\/p>\n<p>Criss con su hija, Alexia, y un instructor en una clase de terapia de nataci\u00f3n. El centro, Butchie&#039;s Pool en Yuba City, tuvo que cerrar en 2016 debido a dificultades econ\u00f3micas. Ofrec\u00eda terapia de nataci\u00f3n a adultos y ni\u00f1os con discapacidad durante 38 a\u00f1os. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df15301-2.jpg\" alt=\"Celeste and Alexia Madrigal\" \/><\/p>\n<p>Celeste y Alexia esperan a su mam\u00e1, Criss, en terapia de nataci\u00f3n en Yuba City, California. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df37021.jpg\" alt=\"Celeste and Alexia Madrigal\" \/><\/p>\n<p>Criss Madrigal y su padre, Daniel, revisan el papeleo de las gemelas. Los Madrigal han pagado de su bolsillo entre 10.000 y 1.400 millones de d\u00f3lares al a\u00f1o por el cuidado de las gemelas desde su nacimiento. Ahora, con 4 a\u00f1os, las ni\u00f1as empezaron a hablar hace poco. Les vendr\u00eda bien la terapia del habla, pero los costos son prohibitivos. &quot;Muchos servicios se basan en los ingresos y llegamos justo al punto de no cumplir los requisitos, pero los servicios siguen siendo demasiado caros para nosotras&quot;, dice Criss. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df37046.jpg\" alt=\"Celeste and Alexia Madrigal\" \/><\/p>\n<p>La condici\u00f3n de las gemelas, el s\u00edndrome de deleci\u00f3n 22q, tambi\u00e9n hace que sus dientes sean susceptibles a las caries. Celeste ya se ha sometido a una restauraci\u00f3n dental completa. Sus padres, Americo y Criss, deben cepillarles los dientes despu\u00e9s de cada comida. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<h2>Mapa de cuidados de Celeste y Alexia<\/h2>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/madrigal-care-map_crop.jpg\" alt=\"Alexia and Celeste's care map\" \/><\/p>\n<p>El \u201cmapa de atenci\u00f3n\u201d de Celeste y Alexia, que ilustra la complicada red de atenci\u00f3n y cobertura m\u00e9dica, as\u00ed como los servicios educativos y de apoyo necesarios para los ni\u00f1os con complejidad m\u00e9dica y sus familias.<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>Les presentamos a Celeste y Alexia, de Marysville, California. Celeste y Alexia viven con el s\u00edndrome de deleci\u00f3n 22q. Ambas nacieron sin un ri\u00f1\u00f3n\u2026<\/p>","protected":false},"author":17,"featured_media":10610,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[20],"class_list":["post-8635","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-cyshcn-stories"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>&quot;At the end of the day, we are a normal family.&quot; - Lucile Packard Foundation for Children&#039;s Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/es\/impact-stories\/celeste-and-alexias-story\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"&quot;At the end of the day, we are a normal family.&quot;\" \/>\n<meta property=\"og:description\" content=\"Meet Celeste and Alexia from Marysville, CA. 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