{"id":8643,"date":"2016-01-26T22:40:48","date_gmt":"2016-01-26T22:40:48","guid":{"rendered":"https:\/\/lpfch.org\/isabellas-story\/"},"modified":"2024-01-31T23:30:55","modified_gmt":"2024-01-31T23:30:55","slug":"isabellas-story","status":"publish","type":"post","link":"https:\/\/lpfch.org\/es\/impact-stories\/isabellas-story\/","title":{"rendered":"\u201cEs un rompecabezas. Es un juego de malabares. Y nadie lo va a resolver por ti.\u201d"},"content":{"rendered":"<h2>Les presento a Isabella de San Marcos, California.<\/h2>\n<p>Isabella vive con s\u00edndrome de Down, retraso en el desarrollo y una cardiopat\u00eda cong\u00e9nita.<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/01\/_df38013.jpg\" alt=\"Isabella Villafa\u00f1a\" \/><\/p>\n<p>April Villafa\u00f1a y su hija, Isabella, en su casa de San Marcos, California. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df37879.jpg\" alt=\"Isabella Villafa\u00f1a\" \/><\/p>\n<p>Isabella ha experimentado retrasos en el desarrollo, y April dice que es dif\u00edcil comunicarse con ella. Se sent\u00f3 a los 11 meses, gate\u00f3 a los 14 y camin\u00f3 a los dos a\u00f1os y medio. La mayor\u00eda de los beb\u00e9s con un desarrollo t\u00edpico alcanzan estos hitos a los 6, 10 y 18 meses. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df37849.jpg\" alt=\"Isabella Villafa\u00f1a\" \/><\/p>\n<p>Documentaci\u00f3n de Isabella para terapia del habla, ocupacional, f\u00edsica y equinoterapia, atenci\u00f3n especializada en cardiolog\u00eda, endocrinolog\u00eda, nutrici\u00f3n, gen\u00e9tica, audiolog\u00eda, otorrinolaringolog\u00eda y optometr\u00eda, junto con su plan educativo basado en necesidades. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df38020.jpg\" alt=\"Isabella Villafa\u00f1a\" \/><\/p>\n<p>April trabajaba como dise\u00f1adora de interiores antes de dar a luz a Isabella hace cuatro a\u00f1os. Quer\u00eda volver a trabajar, pero ahora tiene que quedarse en casa para cuidar de su hija. Isabella a\u00fan no controla esf\u00ednteres y necesita comidas especiales. \u00abLa mayor\u00eda de las guarder\u00edas no tienen el personal ni la formaci\u00f3n necesarios para cuidar a ni\u00f1os como Isabella. Y tambi\u00e9n es muy dif\u00edcil encontrar una ni\u00f1era que cuide a un ni\u00f1o con necesidades especiales en casa\u00bb. April dispone de 12 horas de permiso al mes, que agota r\u00e1pidamente en sus propias citas m\u00e9dicas. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df38097.jpg\" alt=\"Isabella Villafa\u00f1a\" \/><\/p>\n<p>Isabella monta a su yegua favorita, Mary, en el programa de equitaci\u00f3n terap\u00e9utica Reins en Fallbrook, California. La terapia con caballos ha ayudado a Isabella a fortalecer sus m\u00fasculos. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df38052_edit.jpg\" alt=\"\" \/><\/p>\n<p>Isabella fue operada a coraz\u00f3n abierto para corregir una cardiopat\u00eda cong\u00e9nita cuando ten\u00eda seis meses. Es posible que necesite otra cirug\u00eda durante su adolescencia. Su pulsera informa al personal m\u00e9dico sobre su afecci\u00f3n card\u00edaca. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<h2>Mapa de cuidados de Isabella<\/h2>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/villafana-care-map.jpg\" alt=\"Isabella Villafana care map\" \/><\/p>\n<p>El \u201cmapa de cuidados\u201d de Isabella ilustra la compleja red de atenci\u00f3n m\u00e9dica y cobertura, as\u00ed como los servicios educativos y de apoyo necesarios para los ni\u00f1os con necesidades m\u00e9dicas complejas y sus familias.<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>Les presentamos a Isabella, de San Marcos, California. Isabella tiene s\u00edndrome de Down, retraso en el desarrollo y una cardiopat\u00eda cong\u00e9nita. April Villafa\u00f1a y su hija, Isabella, en su\u2026<\/p>","protected":false},"author":17,"featured_media":10604,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[20],"class_list":["post-8643","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-cyshcn-stories"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>&quot;It&#039;s a puzzle. 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