{"id":8656,"date":"2016-03-12T00:17:59","date_gmt":"2016-03-12T00:17:59","guid":{"rendered":"https:\/\/lpfch.org\/dereks-story\/"},"modified":"2024-01-31T23:08:49","modified_gmt":"2024-01-31T23:08:49","slug":"dereks-story","status":"publish","type":"post","link":"https:\/\/lpfch.org\/es\/impact-stories\/dereks-story\/","title":{"rendered":"\u201cComo madre, siempre est\u00e1s pensando: \u00bfqu\u00e9 pasa si me pasa algo?\u201d"},"content":{"rendered":"<h2>Conozca a Derek de Shingletown, CA.<\/h2>\n<p>Derek vive con espina b\u00edfida, hidrocefalia y s\u00edndrome del intestino irritable.<br \/>\ny vejiga, y pies zambos bilaterales.<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/01\/_df37158.jpg\" alt=\"Derek Longwell\" \/><\/p>\n<p>Wendy Longwell y su familia viven en una granja de dos hect\u00e1reas en Shingletown, California. Ese d\u00eda, ella alimentaba con biber\u00f3n a sus lechones reci\u00e9n nacidos. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df37195.jpg\" alt=\"Derek Longwell\" \/><\/p>\n<p>El hijo de Wendy, Derek, ha tenido 42 cirug\u00edas en su vida. Sus cirug\u00edas recientes le han ayudado a aliviar la presi\u00f3n del l\u00edquido cefalorraqu\u00eddeo, pero es posible que pronto tambi\u00e9n necesite una cirug\u00eda de cadera. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df37203.jpg\" alt=\"Derek Longwell\" \/><\/p>\n<p>Derek cumpli\u00f3 21 a\u00f1os en 2016. Wendy ha pasado meses transfiri\u00e9ndolo de su red de atenci\u00f3n pedi\u00e1trica a la atenci\u00f3n para adultos. Tambi\u00e9n se ha convertido en su tutora legal para poder seguir autorizando su atenci\u00f3n m\u00e9dica. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df37263.jpg\" alt=\"Derek Longwell\" \/><\/p>\n<p>Derek con dos de las 11 mascotas de la familia: Baby, el perro, y Wilbur, el cerdo panz\u00f3n. Derek se distrae con facilidad y tiene problemas de memoria a corto plazo. Cuando Wendy no est\u00e1 en casa, su madre viene a quedarse con \u00e9l. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df37344.jpg\" alt=\"Derek Longwell\" \/><\/p>\n<p>Los Longwell tienen 78 animales de granja. Derek cuida de todos los conejos y caballos, mientras que Wendy cuida de los cerdos, las cabras, los patos y otras aves. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df37382.jpg\" alt=\"Derek Longwell\" \/><\/p>\n<p>Derek con las cabras de su granja. &quot;Es mi chica&quot;, dice de Precious, una cabra que a veces se sienta en su regazo. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df37453.jpg\" alt=\"Derek Longwell\" \/><\/p>\n<p>Derek se incorpor\u00f3 recientemente a la especialidad de adultos en el Centro M\u00e9dico de la Universidad de Stanford, a cinco horas de Shingletown. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df37476.jpg\" alt=\"Derek Longwell\" \/><\/p>\n<p>Derek es voluntario una vez a la semana en Rowell Family Empowerment del Norte de California en Redding, California. Wendy trabaja como consultora de padres en esta organizaci\u00f3n de apoyo para familias de ni\u00f1os con necesidades especiales. &quot;Es una mujer incre\u00edble&quot;, dice Derek sobre su madre. &quot;Es mi pilar fundamental. No podr\u00eda hacerlo solo&quot;. (Foto: Deanne Fitzmaurice)<\/p>\n<p>&nbsp;<\/p>\n<h2>Mapa de cuidados de Derek<\/h2>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/longwell-map.jpg\" alt=\"\" \/><\/p>\n<p>El \u201cmapa de atenci\u00f3n\u201d de Derek, que ilustra la complicada red de atenci\u00f3n y cobertura m\u00e9dica, as\u00ed como los servicios educativos y de apoyo necesarios para los ni\u00f1os con complejidad m\u00e9dica y sus familias.<\/p>","protected":false},"excerpt":{"rendered":"<p>Les presentamos a Derek, de Shingletown, California. Derek vive con espina b\u00edfida, hidrocefalia, vejiga e intestino neurog\u00e9nicos y pies zambos bilaterales. Wendy Longwell y su familia\u2026<\/p>","protected":false},"author":17,"featured_media":10584,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[20],"class_list":["post-8656","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-cyshcn-stories"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>&quot;As a mom, you\u2019re always thinking, what if something happens to me?&quot; - Lucile Packard Foundation for Children&#039;s Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lpfch.org\/es\/impact-stories\/dereks-story\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"&quot;As a mom, you\u2019re always thinking, what if something happens to me?&quot;\" \/>\n<meta property=\"og:description\" content=\"Meet Derek from Shingletown, CA. 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