{"id":21390,"date":"2025-06-23T18:30:19","date_gmt":"2025-06-23T18:30:19","guid":{"rendered":"https:\/\/lpfch.org\/?p=21390"},"modified":"2025-07-15T23:19:55","modified_gmt":"2025-07-15T23:19:55","slug":"donor-support-advances-new-treatment-for-eb-a-rare-and-painful-skin-disease","status":"publish","type":"post","link":"https:\/\/lpfch.org\/fa\/impact-stories\/donor-support-advances-new-treatment-for-eb-a-rare-and-painful-skin-disease\/","title":{"rendered":"\u062d\u0645\u0627\u06cc\u062a \u062e\u06cc\u0631\u06cc\u0646\u060c \u062f\u0631\u0645\u0627\u0646 \u062c\u062f\u06cc\u062f\u06cc \u0631\u0627 \u0628\u0631\u0627\u06cc \u0628\u06cc\u0645\u0627\u0631\u06cc \u067e\u0648\u0633\u062a\u06cc EB\u060c \u06cc\u06a9 \u0628\u06cc\u0645\u0627\u0631\u06cc \u0646\u0627\u062f\u0631 \u0648 \u062f\u0631\u062f\u0646\u0627\u06a9 \u067e\u0648\u0633\u062a\u06cc\u060c \u0627\u0631\u0627\u0626\u0647 \u0645\u06cc\u200c\u062f\u0647\u062f."},"content":{"rendered":"<p><span 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class=\"component component-cta impact-story-cta full-width-cta  no-image scheme-red\" >\n  <div class=\"module-container\">\n    <div class=\"component-cta-container\">\n      <div class=\"component-cta-wrapper\">\n        <h2 class=\"component-cta-title\">\n          \u00ab\u062d\u0645\u0627\u06cc\u062a \u062e\u06cc\u0631\u06cc\u0646 \u0628\u0633\u06cc\u0627\u0631 \u0645\u0624\u062b\u0631 \u0628\u0648\u062f...\u00bb\n        <\/h2>\n\n                  <p class=\"component-cta-description\">\n            \u062c\u0627\u0645\u0639\u0647 \u0627\u0647\u062f\u0627\u06a9\u0646\u0646\u062f\u06af\u0627\u0646 \u0645\u0627\u060c \u0686\u0646\u06cc\u0646 \u067e\u06cc\u0634\u0631\u0641\u062a\u200c\u0647\u0627\u06cc\u06cc \u0631\u0627 \u0645\u0645\u06a9\u0646 \u0645\u06cc\u200c\u0633\u0627\u0632\u0646\u062f. \u0646\u0648\u0622\u0648\u0631\u06cc\u200c\u0647\u0627\u06cc \u0628\u0639\u062f\u06cc \u062f\u0631 \u0633\u0644\u0627\u0645\u062a \u06a9\u0648\u062f\u06a9\u0627\u0646 \u0631\u0627 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\u0627\u062d\u0633\u0627\u0633 \u062e\u06cc\u0644\u06cc \u0628\u0647\u062a\u0631\u06cc \u062f\u0627\u0631\u0645.\u00bb<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">\u0628\u0631\u0627\u0648\u0646 \u06cc\u06a9\u06cc \u0627\u0632 \u06f1\u06f1 \u0646\u0641\u0631\u06cc \u0627\u0633\u062a \u06a9\u0647 \u062f\u0631 \u0627\u06cc\u0646 \u0645\u0637\u0627\u0644\u0639\u0647 \u0634\u0631\u06a9\u062a \u06a9\u0631\u062f\u0646\u062f \u0648 \u0627\u06a9\u062b\u0631 \u0622\u0646\u0647\u0627 \u0648\u0631\u0642\u0647\u200c\u0647\u0627\u06cc \u0698\u0646\u200c\u062f\u0631\u0645\u0627\u0646\u06cc \u0631\u0627 \u062f\u0631 \u0686\u0646\u062f\u06cc\u0646 \u0646\u0642\u0637\u0647 \u0627\u0632 \u067e\u0648\u0633\u062a \u062e\u0648\u062f \u062f\u0631\u06cc\u0627\u0641\u062a \u06a9\u0631\u062f\u0646\u062f.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">\u0627\u06cc\u0646 \u062f\u0631\u0645\u0627\u0646 \u062c\u062f\u06cc\u062f \u0634\u0627\u0645\u0644 \u0628\u0631\u062f\u0627\u0634\u062a\u0646 \u06cc\u06a9 \u0646\u0645\u0648\u0646\u0647 \u06a9\u0648\u0686\u06a9 \u0627\u0632 \u067e\u0648\u0633\u062a \u0633\u0627\u0644\u0645 \u0628\u06cc\u0645\u0627\u0631 \u0648 \u0627\u0633\u062a\u0641\u0627\u062f\u0647 \u0627\u0632 \u06cc\u06a9 \u0648\u06cc\u0631\u0648\u0633 \u0628\u0631\u0627\u06cc \u0627\u0646\u062a\u0642\u0627\u0644 \u06cc\u06a9 \u06a9\u067e\u06cc \u0633\u0627\u0644\u0645 \u0627\u0632 \u0698\u0646 \u062c\u0647\u0634\u200c\u06cc\u0627\u0641\u062a\u0647 \u0628\u0647 \u0633\u0644\u0648\u0644\u200c\u0647\u0627\u06cc \u067e\u0648\u0633\u062a \u0628\u06cc\u0645\u0627\u0631 \u062f\u0631 \u0622\u0632\u0645\u0627\u06cc\u0634\u06af\u0627\u0647 \u0627\u0633\u062a. 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\u067e\u06cc\u0648\u0646\u062f \u0632\u062f\u0647 \u0645\u06cc\u200c\u0634\u0648\u0646\u062f. \u0627\u06cc\u0646 \u0633\u0644\u0648\u0644\u200c\u062f\u0631\u0645\u0627\u0646\u06cc \u0645\u0646\u0628\u0639 \u0637\u0648\u0644\u0627\u0646\u06cc\u200c\u0645\u062f\u062a\u06cc \u0627\u0632 \u06a9\u0644\u0627\u0698\u0646 \u0646\u0648\u0639 VII \u0631\u0627 \u0641\u0631\u0627\u0647\u0645 \u0645\u06cc\u200c\u06a9\u0646\u062f \u0648 \u0632\u062e\u0645\u200c\u0647\u0627\u06cc \u0645\u0632\u0645\u0646 \u0648 \u062f\u0631\u062f\u0646\u0627\u06a9 \u0628\u06cc\u0645\u0627\u0631 \u0631\u0627 \u0628\u0647\u0628\u0648\u062f \u0645\u06cc\u200c\u0628\u062e\u0634\u062f.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">\u062f\u06a9\u062a\u0631 \u0622\u0646\u062a\u0648\u0646\u06cc \u0627\u0648\u0631\u0648\u060c \u0645\u062f\u06cc\u0631 \u0645\u0634\u062a\u0631\u06a9 \u0648 \u0628\u0646\u06cc\u0627\u0646\u06af\u0630\u0627\u0631 \u0645\u0631\u06a9\u0632 \u067e\u0632\u0634\u06a9\u06cc \u062f\u0631\u0645\u0627\u0646\u06cc \u0648 \u0642\u0637\u0639\u06cc (CDCM) \u0648 ... \u0645\u06cc\u200c\u06af\u0648\u06cc\u062f: \u00ab\u0648\u0642\u062a\u06cc \u0628\u06cc\u0645\u0627\u0631\u0627\u0646\u06cc \u0631\u0627 \u0645\u06cc\u200c\u0628\u06cc\u0646\u06cc\u062f \u06a9\u0647 \u0628\u0627 \u0628\u06cc\u0645\u0627\u0631\u06cc \u067e\u0631\u0648\u0627\u0646\u0647\u200c\u0627\u06cc (EB) \u0632\u0646\u062f\u06af\u06cc \u0645\u06cc\u200c\u06a9\u0646\u0646\u062f \u0648 \u0627\u06cc\u0646 \u0628\u06cc\u0645\u0627\u0631\u06cc \u0686\u0642\u062f\u0631 \u0646\u0627\u062a\u0648\u0627\u0646\u200c\u06a9\u0646\u0646\u062f\u0647 \u0627\u0633\u062a\u060c \u062a\u0645\u0627\u0645 \u062a\u0644\u0627\u0634 \u062e\u0648\u062f \u0631\u0627 \u0628\u0631\u0627\u06cc \u06a9\u0645\u06a9 \u0628\u0647 \u0622\u0646\u0647\u0627 \u0627\u0646\u062c\u0627\u0645 \u062e\u0648\u0627\u0647\u06cc\u062f \u062f\u0627\u062f.\u00bb <\/span><i><span data-contrast=\"none\">\u06cc\u0648\u062c\u06cc\u0646 \u0648 \u06af\u0644\u0648\u0631\u06cc\u0627 \u0628\u0627\u0648\u0626\u0631\u060c \u0627\u0633\u062a\u0627\u062f \u067e\u0648\u0633\u062a\u200c\u0634\u0646\u0627\u0633\u06cc<\/span><\/i><span data-contrast=\"none\">\u00ab\u062d\u0627\u0644\u0627 \u0645\u0627 \u0631\u0627\u0647\u200c\u062d\u0644\u06cc \u062f\u0627\u0631\u06cc\u0645 \u06a9\u0647 \u0645\u06cc\u200c\u062a\u0648\u0627\u0646\u062f \u067e\u0648\u0633\u062a \u0622\u0633\u06cc\u0628\u200c\u062f\u06cc\u062f\u0647\u200c\u06cc \u0622\u0646\u0647\u0627 \u0631\u0627 \u0628\u0647\u200c\u0637\u0648\u0631 \u062f\u0627\u0626\u0645 \u062a\u0631\u0645\u06cc\u0645 \u06a9\u0646\u062f.\u00bb<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">\u0627\u06cc\u0646 \u0627\u062a\u0641\u0627\u0642 \u06cc\u06a9 \u0634\u0628\u0647 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data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">\u062a\u0627\u0646\u06af \u0645\u06cc\u200c\u06af\u0648\u06cc\u062f: \u00ab\u0647\u0631 \u0645\u0648\u0641\u0642\u06cc\u062a\u06cc\u060c \u0647\u0631 \u062f\u0631\u0645\u0627\u0646\u06cc\u060c \u0647\u0631 \u062f\u0631\u0645\u0627\u0646\u06cc \u062f\u0631 \u0628\u06cc\u0645\u0627\u0631\u06cc \u067e\u0631\u0648\u0627\u0646\u0647\u200c\u0627\u06cc\u060c \u062f\u0631\u06cc\u0686\u0647\u200c\u0647\u0627 \u0648 \u0627\u0645\u06a9\u0627\u0646 \u062f\u0631\u0645\u0627\u0646 \u0633\u0627\u06cc\u0631 \u0628\u06cc\u0645\u0627\u0631\u06cc\u200c\u0647\u0627\u06cc \u0698\u0646\u062a\u06cc\u06a9\u06cc \u067e\u06cc\u0686\u06cc\u062f\u0647 \u0631\u0627 \u0628\u0627\u0632 \u062e\u0648\u0627\u0647\u062f \u06a9\u0631\u062f. \u0628\u06cc\u0645\u0627\u0631\u06cc \u067e\u0631\u0648\u0627\u0646\u0647\u200c\u0627\u06cc \u0642\u0631\u0627\u0631 \u0627\u0633\u062a 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\u0646\u0648\u06cc\u062f \u0627\u0648\u0644\u06cc\u0647 \u0631\u0627 \u0646\u0634\u0627\u0646 \u062f\u0627\u062f \u0648 \u0628\u0647 \u062c\u0630\u0628 \u0633\u0631\u0645\u0627\u06cc\u0647\u200c\u06af\u0630\u0627\u0631\u0627\u0646 \u0628\u0632\u0631\u06af\u200c\u062a\u0631\u060c \u0627\u0632 \u062c\u0645\u0644\u0647 Abeona Therapeutics\u060c \u0628\u0646\u06cc\u0627\u062f \u062a\u062d\u0642\u06cc\u0642\u0627\u062a \u067e\u0632\u0634\u06a9\u06cc Epidermolysis Bullosa \u0648 \u0645\u0634\u0627\u0631\u06a9\u062a \u062a\u062d\u0642\u06cc\u0642\u0627\u062a\u06cc EB\u060c \u06a9\u0645\u06a9 \u06a9\u0631\u062f. \u0628\u0627 \u062a\u06a9\u06cc\u0647 \u0628\u0631 \u0627\u06cc\u0646 \u062d\u0631\u06a9\u062a\u060c \u062e\u0627\u0646\u0648\u0627\u062f\u0647\u200c\u06cc \u0646\u06cc\u06a9\u0648\u06a9\u0627\u0631 Bowei Lee \u0627\u062e\u06cc\u0631\u0627\u064b \u0628\u0647 \u0627\u0641\u062a\u062e\u0627\u0631 \u0627\u0648 \u0647\u062f\u06cc\u0647\u200c\u06cc \u0642\u0627\u0628\u0644 \u062a\u0648\u062c\u0647\u06cc \u0628\u0647 ... \u0627\u0647\u062f\u0627 \u06a9\u0631\u062f\u0646\u062f.<\/span><span data-contrast=\"auto\">\u062a\u062d\u0642\u06cc\u0642\u0627\u062a \u067e\u06cc\u0634\u0631\u0641\u062a\u0647 \u062f\u0631 \u0645\u0648\u0631\u062f \u0628\u06cc\u0645\u0627\u0631\u06cc \u067e\u0631\u0648\u0627\u0646\u0647\u200c\u0627\u06cc (EB) \u0648 \u0628\u06cc\u0645\u0627\u0631\u06cc\u200c\u0647\u0627\u06cc \u0646\u0627\u062f\u0631.\u00a0\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">\u0647\u0645\u0686\u0646\u06cc\u0646 \u0627\u06cc\u0646 \u0632\u0645\u0627\u0646\u060c \u0632\u0645\u0627\u0646 \u0627\u0641\u0632\u0627\u06cc\u0634 \u0622\u06af\u0627\u0647\u06cc \u062f\u0631 \u0645\u0648\u0631\u062f \u0628\u06cc\u0645\u0627\u0631\u06cc EB \u0627\u0633\u062a \u06a9\u0647 \u062a\u0648\u0633\u0637 \u0627\u0641\u0631\u0627\u062f \u0645\u0634\u0647\u0648\u0631\u06cc \u0645\u0627\u0646\u0646\u062f \u0627\u062f\u06cc \u0648\u062f\u0631 \u0627\u0632 \u06af\u0631\u0648\u0647 \u0645\u0648\u0633\u06cc\u0642\u06cc \u067e\u0631\u0644 \u062c\u0645 \u0647\u062f\u0627\u06cc\u062a \u0645\u06cc\u200c\u0634\u0648\u062f. \u0645\u0633\u062a\u0646\u062f \u062c\u062f\u06cc\u062f \u0627\u0648\u060c <\/span><a href=\"https:\/\/www.matteroftimefilm.com\/\"><i><span data-contrast=\"none\">\u0645\u0648\u0636\u0648\u0639 \u0632\u0645\u0627\u0646<\/span><\/i><\/a><span data-contrast=\"none\">\u06a9\u0647 \u0628\u0647 \u062f\u0646\u0628\u0627\u0644 \u0627\u0648\u0644\u06cc\u0646 \u062a\u0648\u0631 \u0627\u0646\u0641\u0631\u0627\u062f\u06cc \u0627\u0648\u060c \u0628\u0647 \u0647\u0645\u0631\u0627\u0647 \u062f\u0627\u0633\u062a\u0627\u0646\u200c\u0647\u0627\u06cc\u06cc \u0627\u0632 \u0627\u0641\u0631\u0627\u062f\u06cc \u06a9\u0647 \u062a\u062d\u062a \u062a\u0623\u062b\u06cc\u0631 \u0633\u0641\u0631 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Treatment for EB, a Rare and Painful Skin Disease - Lucile Packard Foundation for Children&#039;s Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/fa\/impact-stories\/donor-support-advances-new-treatment-for-eb-a-rare-and-painful-skin-disease\/\" \/>\n<meta property=\"og:locale\" content=\"fa_IR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Donor Support Advances New Treatment for EB, a Rare and Painful Skin Disease\" \/>\n<meta property=\"og:description\" content=\"Families living with one of the most debilitating skin conditions now have more reason for hope. 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