{"id":24192,"date":"2026-05-29T08:39:14","date_gmt":"2026-05-29T15:39:14","guid":{"rendered":"https:\/\/lpfch.org\/?p=24192"},"modified":"2026-05-29T11:13:19","modified_gmt":"2026-05-29T18:13:19","slug":"turning-hope-into-action","status":"publish","type":"post","link":"https:\/\/lpfch.org\/fa\/impact-stories\/turning-hope-into-action\/","title":{"rendered":"\u062a\u0628\u062f\u06cc\u0644 \u0627\u0645\u06cc\u062f \u0628\u0647 \u0639\u0645\u0644\u00a0"},"content":{"rendered":"

Will to Cure ALD began with one family\u2019s journey. When Tyler and Taylor Hall welcomed their son, William, a routine newborn screening revealed he had adrenoleukodystrophy (ALD)\u2014a rare genetic disease that can affect the brain, spinal cord, and adrenal system.<\/span>\u00a0<\/span><\/p>\n

W<\/span>hen they learned that no cure existed and that research funding for ALD is limited, the Halls chose to act. They founded <\/span>Will to\u00a0Cure ALD<\/span><\/a>\u00a0in late 2024\u00a0to ensure that no family\u00a0has to\u00a0experience this diagnosis without hope.<\/span>\u00a0<\/span><\/p>\n

The couple has raised more than $2.6 million from family and friends who have rallied behind their mission. From that funding, their foundation recently gave the Stanford School of Medicine $175,000 to advance three research projects focused on ALD. They also funded projects at five other ALD centers of excellence across the country.<\/span>\u00a0<\/span><\/p>\n

\u201cBy bringing together the brightest minds in the field, we are accelerating the timeline for lifesaving breakthroughs and bringing tangible hope to families waiting for answers,\u201d Tyler says.<\/span>\u00a0<\/span><\/p>\n

At Stanford, Will to Cure ALD chose to support <\/span>Keith Van Haren, MD<\/span><\/a>, an associate professor of neurology and a national leader in ALD research, who leads the <\/span>Van Haren Lab<\/span><\/a>.\u00a0Their research<\/span>\u00a0has led to an exciting\u00a0and unexpected\u00a0discovery<\/span>.<\/span>\u00a0<\/span><\/p>\n

\u201cWe found\u00a0strong activation of an immune pathway\u00a0in our mouse model\u00a0that had not previously been linked to ALD,\u201d says Van Haren. \u201cThis gift lets us ask whether that same signature exists in children with the disease, and if it does, whether there are existing drugs or dietary therapies that could be quickly repurposed for boys affected by ALD.\u201d<\/span>\u00a0<\/span><\/p>\n

Ultimately, the Halls are optimistic that this research will generate the data and scientific momentum needed to attract more significant funding from sources like the National Institutes of Health.<\/span><\/p>\n

\"A
William recently turned 2. His family continues to raise money for ALD research to help all children with this rare disease have bright futures.<\/figcaption><\/figure>\n

At the family\u2019s home in Dallas, Texas, William recently turned 2 and is thriving. He loves being outdoors, playing baseball\u2014which he calls \u201cwhack\u201d\u2014watching football, and keeping up with his big sister, Emma.<\/span>\u00a0<\/span><\/p>\n

\u201cHe\u2019s funny, loving, and happy, which is exactly what drives us,\u201d Tyler says. \u201cSeeing him that way makes it impossible to do anything less than everything we can to protect his future.\u201d<\/span>\u00a0<\/span><\/p>","protected":false},"excerpt":{"rendered":"

Will to Cure ALD began with one family\u2019s journey. When Tyler and Taylor Hall welcomed their son, William, a routine newborn screening revealed he had…<\/p>","protected":false},"author":8,"featured_media":24193,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[21,164],"class_list":["post-24192","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-donor-stories","category-research"],"acf":[],"yoast_head":"\nTurning Hope Into Action\u00a0 - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lpfch.org\/fa\/impact-stories\/turning-hope-into-action\/\" \/>\n<meta property=\"og:locale\" content=\"fa_IR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Turning Hope Into Action\u00a0\" \/>\n<meta property=\"og:description\" content=\"Will to Cure ALD began with one family\u2019s journey. 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