{"id":21390,"date":"2025-06-23T18:30:19","date_gmt":"2025-06-23T18:30:19","guid":{"rendered":"https:\/\/lpfch.org\/?p=21390"},"modified":"2025-07-15T23:19:55","modified_gmt":"2025-07-15T23:19:55","slug":"donor-support-advances-new-treatment-for-eb-a-rare-and-painful-skin-disease","status":"publish","type":"post","link":"https:\/\/lpfch.org\/ja\/impact-stories\/donor-support-advances-new-treatment-for-eb-a-rare-and-painful-skin-disease\/","title":{"rendered":"\u5bc4\u4ed8\u8005\u306e\u652f\u63f4\u306b\u3088\u308a\u3001EB\u3068\u3044\u3046\u5e0c\u5c11\u304b\u3064\u75db\u307f\u3092\u4f34\u3046\u76ae\u819a\u75be\u60a3\u306e\u65b0\u3057\u3044\u6cbb\u7642\u6cd5\u304c\u9032\u6b69"},"content":{"rendered":"

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2017\u5e74\u3001\u7814\u7a76\u5ba4\u3067\u767a\u898b\u3055\u308c\u305f\u6210\u679c\u3092\u81e8\u5e8a\u73fe\u5834\u306b\u5fdc\u7528\u3059\u308b\u3068\u3044\u3046\u4f7f\u547d\u3092\u63b2\u3052\u3066CDCM\u304c\u8a2d\u7acb\u3055\u308c\u307e\u3057\u305f\u3002CDCM\u306e\u7814\u7a76\u8005\u3067\u3042\u308b\u30bf\u30f3\u6c0f\u306f\u3001\u6570\u5e74\u5f8c\u306b\u7b2c3\u76f8\u81e8\u5e8a\u8a66\u9a13\u3092\u958b\u59cb\u3057\u307e\u3057\u305f\u3002\u76ae\u819a\u79fb\u690d\u306f<\/span>\u3053\u308c\u306f CDCM \u304b\u3089\u751f\u307e\u308c\u305f\u6700\u521d\u306e FDA \u627f\u8a8d\u88fd\u54c1\u3067\u3042\u308a\u3001\u3053\u306e\u6a5f\u95a2\u306b\u3068\u3063\u3066\u5927\u304d\u306a\u7bc0\u76ee\u3068\u306a\u308a\u307e\u3059\u3002<\/span>\u00a0<\/span><\/p>\n

\u5f7c\u3089\u306e\u767a\u898b\u306f\u3001\u3055\u3089\u306b\u5927\u304d\u306a\u30d6\u30ec\u30fc\u30af\u30b9\u30eb\u30fc\u306b\u3064\u306a\u304c\u308b\u53ef\u80fd\u6027\u304c\u3042\u308a\u307e\u3059\u3002EB\u4ee5\u5916\u306b\u3082\u3001\u3053\u306e\u6cbb\u7642\u6cd5\u306f\u3001\u56a2\u80de\u6027\u7dda\u7dad\u75c7\u3001\u5fc3\u8840\u7ba1\u75be\u60a3\u3001\u795e\u7d4c\u5909\u6027\u75be\u60a3\u3001\u907a\u4f1d\u6027\u764c\u306a\u3069\u3001\u5358\u4e00\u306e\u907a\u4f1d\u5b50\u306b\u7570\u5e38\u304c\u3042\u308b\u4ed6\u306e\u907a\u4f1d\u6027\u75be\u60a3\u306e\u6cbb\u7642\u306b\u5f79\u7acb\u3064\u77e5\u898b\u3092\u30b9\u30bf\u30f3\u30d5\u30a9\u30fc\u30c9\u5927\u5b66\u306b\u3082\u305f\u3089\u3059\u53ef\u80fd\u6027\u304c\u3042\u308a\u307e\u3059\u3002\u00a0<\/span>\u00a0<\/span><\/p>\n

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\u30d1\u30fc\u30eb\u30fb\u30b8\u30e3\u30e0\u306e\u30a8\u30c7\u30a3\u30fb\u30f4\u30a7\u30c0\u30fc\u306e\u3088\u3046\u306a\u8457\u540d\u4eba\u306b\u3088\u3063\u3066\u3001EB\u3078\u306e\u95a2\u5fc3\u304c\u9ad8\u307e\u3063\u3066\u3044\u308b\u6642\u671f\u3067\u3082\u3042\u308a\u307e\u3059\u3002\u5f7c\u306e\u65b0\u3057\u3044\u30c9\u30ad\u30e5\u30e1\u30f3\u30bf\u30ea\u30fc\u306f\u3001 <\/span>\u6642\u9593\u306e\u554f\u984c<\/span><\/i><\/a>\u306f\u3001\u5f7c\u306e\u521d\u306e\u30bd\u30ed\u30c4\u30a2\u30fc\u3092\u8ffd\u3063\u305f\u4f5c\u54c1\u3067\u3001EB\u3068\u30bf\u30f3\u306e\u7814\u7a76\u306e\u65c5\u306b\u5f71\u97ff\u3092\u53d7\u3051\u305f\u4eba\u3005\u306e\u7269\u8a9e\u3082\u53ce\u9332\u3055\u308c\u3066\u304a\u308a\u3001\u4eca\u6708\u521d\u3081\u306b\u30c8\u30e9\u30a4\u30d9\u30c3\u30ab\u6620\u753b\u796d\u3067\u521d\u516c\u958b\u3055\u308c\u305f\u3002\u00a0<\/span>\u00a0<\/span><\/p>","protected":false},"excerpt":{"rendered":"

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