{"id":3894,"date":"2017-06-08T16:42:27","date_gmt":"2017-06-08T16:42:27","guid":{"rendered":"https:\/\/lpfch.org\/mycah-lost-her-4-year-old-daughter-to-dipg-now-shes-fighting-back\/"},"modified":"2024-02-16T20:53:41","modified_gmt":"2024-02-16T20:53:41","slug":"mycah-lost-her-4-year-old-daughter-to-dipg-now-shes-fighting-back","status":"publish","type":"post","link":"https:\/\/lpfch.org\/ja\/impact-stories\/mycah-lost-her-4-year-old-daughter-to-dipg-now-shes-fighting-back\/","title":{"rendered":"\u30de\u30a4\u30ab\u3055\u3093\u306f4\u6b73\u306e\u5a18\u3092DIPG\u3067\u4ea1\u304f\u3057\u307e\u3057\u305f\u3002\u4eca\u3001\u5f7c\u5973\u306f\u7acb\u3061\u76f4\u308d\u3046\u3068\u596e\u95d8\u3057\u3066\u3044\u307e\u3059\u3002"},"content":{"rendered":"

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\u52df\u91d1\u6d3b\u52d5\u306b\u3064\u3044\u3066\u6559\u3048\u3066\u304f\u3060\u3055\u3044\u3002 \u30de\u30a4\u306e\u5947\u8de1<\/a>?<\/strong><\/p>\n

Maiy's Miracle\u306f\u3001DIPG\u3068\u306e\u95d8\u3044\u3092\u901a\u3057\u3066\u30de\u30a4\u30e4\u30f3\u30ca\u306b\u6700\u9ad8\u306e\u751f\u6d3b\u306e\u8cea\u3092\u63d0\u4f9b\u3059\u308b\u305f\u3081\u306b\u59cb\u307e\u308a\u307e\u3057\u305f\u3002\u79c1\u305f\u3061\u306f\u3001\u5f7c\u5973\u304c\u4f55\u4e00\u3064\u4e0d\u81ea\u7531\u306a\u304f\u904e\u3054\u305b\u308b\u3088\u3046\u306b\u3057\u3001\u5f7c\u5973\u3068\u4e00\u7dd2\u306b\u7279\u5225\u306a\u601d\u3044\u51fa\u3092\u4f5c\u308a\u305f\u3044\u3068\u9858\u3046\u4eba\u306a\u3089\u8ab0\u3068\u3067\u3082\u7d4c\u9a13\u3092\u5171\u6709\u3067\u304d\u308b\u3088\u3046\u306b\u3059\u308b\u3053\u3068\u3067\u3001\u305d\u306e\u5b9f\u73fe\u306b\u52aa\u3081\u307e\u3057\u305f\u3002Maiy's Miracle\u3092\u7d99\u7d9a\u3057\u3066\u307b\u3057\u3044\u3068\u3044\u3046\u5f7c\u5973\u306e\u9858\u3044\u3092\u53d7\u3051\u3001\u79c1\u305f\u3061\u306f\u73fe\u5728\u3001\u30de\u30a4\u30e4\u30f3\u30ca\u306e\u4eba\u751f\u3068DIPG\u3068\u306e\u95d8\u3044\u3092\u795d\u3046\u4f53\u9a13\u3092\u4f01\u753b\u3057\u3066\u3044\u307e\u3059\u30022017\u5e745\u670819\u65e5\u306820\u65e5\u306b\u306f\u3001\u30de\u30a4\u30e4\u30f3\u30ca\u306e\u8a3a\u65ad\u65e5\u3092\u8a18\u5ff5\u3057\u3066\u3001\u30de\u30a4\u30e4\u30f3\u30ca\u306e\u30d0\u30bf\u30d5\u30e9\u30a4\u30d0\u30fc\u30d9\u30ad\u30e5\u30fc\uff06\u30da\u30a4\u30f3\u30c8\u30d1\u30fc\u30c6\u30a3\u30fc\u3092\u958b\u50ac\u3057\u307e\u3057\u305f\u3002\u30d1\u30fc\u30c6\u30a3\u30fc\u306e\u7de0\u3081\u304f\u304f\u308a\u306b\u306f\u3001\u751f\u304d\u305f\u8776\u306e\u653e\u8776\u3068\u3001DIPG\u3092\u8e0a\u308b\u30de\u30a4\u30e4\u30f3\u30ca\u306e\u30d0\u30bf\u30d5\u30e9\u30a4\u30dc\u30fc\u30eb\u304c\u884c\u308f\u308c\u307e\u3057\u305f\u3002\u53cb\u4eba\u3084\u5bb6\u65cf\u306b\u306f\u3001\u500b\u4eba\u7528\u306e\u30d0\u30bf\u30d5\u30e9\u30a4\u30dc\u30c3\u30af\u30b9\u3092\u8cfc\u5165\u3057\u305f\u308a\u3001\u30da\u30a4\u30f3\u30c8\u3084\u690d\u683d\u6d3b\u52d5\u3078\u306e\u5bc4\u4ed8\u3092\u304a\u9858\u3044\u3057\u307e\u3057\u305f\u3002\u79c1\u305f\u3061\u306f\u3001MaiysMiracle.org \u3067 Maiyanna \u306e\u30d0\u30bf\u30d5\u30e9\u30a4 \u30dc\u30fc\u30eb\u306e\u30d9\u30f3\u30c0\u30fc \u30b9\u30da\u30fc\u30b9\u3092\u8ca9\u58f2\u3057\u307e\u3057\u305f\u3002\u53ce\u76ca\u306f\u3059\u3079\u3066 Maiyanna Marie Antoinette Clemons-McCarthy DIPG \u7814\u7a76\u751f\u5968\u5b66\u91d1\u306b\u5bc4\u4ed8\u3055\u308c\u307e\u3059\u3002<\/p>\n

\u52df\u91d1\u6d3b\u52d5\u3084\u30a4\u30d9\u30f3\u30c8\u3067\u4f55\u3092\u9054\u6210\u3057\u305f\u3044\u3067\u3059\u304b?<\/strong><\/p>\n

\u53c2\u52a0\u8005\u5168\u54e1\u304c\u5fd8\u308c\u3089\u308c\u306a\u3044\u4f53\u9a13\u3092\u5275\u308a\u51fa\u3059\u3053\u3068\u3067\u3001DIPG\u3078\u306e\u610f\u8b58\u3092\u9ad8\u3081\u3001\u523a\u6fc0\u3092\u4e0e\u3048\u305f\u3044\u3068\u601d\u3063\u3066\u3044\u307e\u3059\u3002\u307e\u305f\u3001\u56f0\u96e3\u306a\u6642\u671f\u3067\u3082\u4eba\u751f\u3092\u8b33\u6b4c\u3057\u3001\u5e0c\u671b\u3092\u6301\u3061\u7d9a\u3051\u308b\u3088\u3046\u3001\u4ed6\u306e\u53c2\u52a0\u8005\u306b\u3082\u52b1\u307e\u3057\u306e\u8a00\u8449\u3092\u5c4a\u3051\u305f\u3044\u3068\u601d\u3063\u3066\u3044\u307e\u3059\u3002\u4f55\u3088\u308a\u3082\u3001\u53c2\u52a0\u8005\u306e\u7686\u69d8\u306b\u3001\u30de\u30a4\u30a4\u306e\u30a8\u30c3\u30bb\u30f3\u30b9\u3092\u4f53\u73fe\u3057\u3001\u30de\u30a4\u30e4\u30f3\u30ca\u5968\u5b66\u91d1\u3092\u901a\u3058\u305fDIPG\u7814\u7a76\u306e\u9032\u6357\u72b6\u6cc1\u3092\u5171\u6709\u3059\u308b\u3053\u3068\u3067\u30012018\u5e74\u5ea6\u5968\u5b66\u91d1\u306e\u305f\u3081\u306e$6,000\u3092\u96c6\u3081\u308b\u30de\u30a4\u30a4\u30ba\u30fb\u30df\u30e9\u30af\u30eb\u306e\u53d6\u308a\u7d44\u307f\u3092\u652f\u63f4\u3057\u3066\u3044\u305f\u3060\u3051\u308c\u3070\u5e78\u3044\u3067\u3059\u3002<\/p>\n

\u6210\u529f\u3057\u305f Champion for Children \u306e\u52df\u91d1\u6d3b\u52d5\u8005\u3068\u3057\u3066\u3001\u52df\u91d1\u6d3b\u52d5\u3092\u59cb\u3081\u308b\u3053\u3068\u306b\u8208\u5473\u306e\u3042\u308b\u4ed6\u306e\u4eba\u306b\u4f55\u304b\u30a2\u30c9\u30d0\u30a4\u30b9\u306f\u3042\u308a\u307e\u3059\u304b?<\/strong><\/p>\n

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\u4ed6\u306e\u5bb6\u65cf\u3092\u52a9\u3051\u308b\u305f\u3081\u306b\u52df\u91d1\u6d3b\u52d5\u3092\u884c\u3046\u3053\u3068\u304c\u306a\u305c\u91cd\u8981\u306a\u306e\u3067\u3059\u304b\uff1f\u79c1\u305f\u3061\u304c\u30b1\u30a2\u3057\u3066\u3044\u308b\u5b50\u3069\u3082\u305f\u3061\u3068\u5bb6\u65cf\u306b\u3001\u3069\u306e\u3088\u3046\u306a\u5e0c\u671b\u3092\u62b1\u3044\u3066\u3044\u307e\u3059\u304b\uff1f<\/strong><\/p>\n

DIPG\u3092\u7d4c\u9a13\u3059\u308b\u4ed6\u306e\u5bb6\u65cf\u306b\u3001\u4e00\u4eba\u3063\u5b50\u3092\u4ea1\u304f\u3057\u305f\u30b7\u30f3\u30b0\u30eb\u30de\u30b6\u30fc\u3068\u3057\u3066\u3001\u4eba\u751f\u3068\u4eba\u751f\u3078\u306e\u611f\u8b1d\u306e\u6c17\u6301\u3061\u304c\u9014\u5207\u308c\u3066\u3044\u306a\u3044\u3053\u3068\u3092\u77e5\u3063\u3066\u3082\u3089\u3046\u305f\u3081\u306b\u3001\u52df\u91d1\u6d3b\u52d5\u3092\u884c\u3046\u3053\u3068\u306f\u79c1\u306b\u3068\u3063\u3066\u91cd\u8981\u3067\u3059\u3002\u5b9f\u969b\u3001DIPG\u3092\u901a\u3057\u3066\u3001\u79c1\u306f\u81ea\u5206\u306e\u4f7f\u547d\u3092\u898b\u3064\u3051\u307e\u3057\u305f\u3002\u305d\u308c\u306f\u3001\u4fe1\u4ef0\u3092\u901a\u3057\u3066\u3001\u305d\u3057\u3066\u4ed6\u8005\u3092\u52a9\u3051\u308b\u3053\u3068\u3067\u5e73\u548c\u3092\u6c42\u3081\u308b\u3053\u3068\u3067\u3059\u3002DIPG\u306b\u9650\u3089\u306a\u3044\u3053\u3068\u3067\u3082\u82e6\u3057\u3093\u3067\u3044\u308b\u4eba\u305f\u3061\u306f\u3001\u79c1\u306e\u52aa\u529b\u306b\u52b1\u307e\u3055\u308c\u3001\u305d\u308c\u304c\u6700\u7d42\u7684\u306b\u79c1\u81ea\u8eab\u306e\u52b1\u307f\u306b\u306a\u308a\u307e\u3059\u3002\u307e\u305f\u3001DIPG\u306e\u7814\u7a76\u306f\u4e3b\u306bMaiy's Miracle\u306e\u3088\u3046\u306a\u6c11\u9593\u8ca1\u56e3\u3084\u500b\u4eba\u306e\u5bc4\u4ed8\u306b\u3088\u3063\u3066\u8cc7\u91d1\u63d0\u4f9b\u3055\u308c\u3066\u3044\u308b\u3068\u3044\u3046\u4e8b\u5b9f\u304c\u3001\u79c1\u304c\u52df\u91d1\u6d3b\u52d5\u3092\u884c\u3046\u52d5\u6a5f\u3068\u306a\u3063\u3066\u3044\u307e\u3059\u3002\u305d\u3046\u3059\u308c\u3070\u3001\u6b21\u306b\u30e2\u30f3\u30b8\u30a7\u535a\u58eb\u306b\u52a9\u3051\u3092\u6c42\u3081\u3066\u96fb\u8a71\u3092\u304b\u3051\u3066\u304f\u308b\u5bb6\u65cf\u306f\u3001\u535a\u58eb\u304c\u5b50\u4f9b\u3068\u5bb6\u65cf\u306b\u3068\u3063\u3066\u5e0c\u671b\u306e\u6301\u3066\u308b\u65b9\u5411\u3078\u5c0e\u3044\u3066\u304f\u308c\u308b\u3068\u3044\u3046\u3001\u8208\u596e\u3068\u5b89\u5fc3\u306e\u58f0\u3092\u5f97\u3089\u308c\u308b\u3067\u3057\u3087\u3046\u3002<\/p>\n

\u30b9\u30bf\u30f3\u30d5\u30a9\u30fc\u30c9\u5927\u5b66\u30eb\u30b7\u30fc\u30eb\u30fb\u30d1\u30c3\u30ab\u30fc\u30c9\u5c0f\u5150\u75c5\u9662\u3067\u30b1\u30a2\u3092\u53d7\u3051\u3066\u3044\u308b\u5b50\u3069\u3082\u305f\u3061\u3068\u305d\u306e\u3054\u5bb6\u65cf\u304c\u3001\u533b\u7642\u5f93\u4e8b\u8005\u305f\u3061\u3092\u3001\u73fe\u5728\u4e16\u754c\u3067\u53ef\u80fd\u306a\u9650\u308a\u6700\u826f\u306e\u6cbb\u7642\u6cd5\u3068\u30b1\u30a2\u3092\u63d0\u4f9b\u3057\u306a\u304c\u3089\u3001\u58ca\u6ec5\u7684\u306a\u5c0f\u5150\u304c\u3093\u306e\u64b2\u6ec5\u306b\u5c3d\u529b\u3059\u308b\u3001\u771f\u646f\u3067\u52e4\u52c9\u306a\u533b\u7642\u30b3\u30df\u30e5\u30cb\u30c6\u30a3\u306e\u4e00\u54e1\u3068\u3057\u3066\u8a8d\u8b58\u3057\u3066\u304f\u308c\u308b\u3053\u3068\u3092\u9858\u3063\u3066\u3044\u307e\u3059\u3002\u73fe\u5728\u306e\u30b9\u30bf\u30c3\u30d5\u306e\u7686\u3055\u3093\u304c\u65e2\u306b\u3053\u308c\u3092\u73fe\u5b9f\u306e\u3082\u306e\u306b\u3057\u3066\u3044\u308b\u3053\u3068\u306b\u7591\u3044\u306e\u4f59\u5730\u306f\u3042\u308a\u307e\u305b\u3093\u3002\u305d\u308c\u304c\u30de\u30a4\u306e\u5947\u8de1\u3067\u3059\u3002<\/p>\n

\u52df\u91d1\u6d3b\u52d5\u306e\u30a2\u30a4\u30c7\u30a2\u3092\u304a\u6301\u3061\u3067\u3059\u304b\uff1f\u30e1\u30fc\u30eb\u3067\u304a\u554f\u3044\u5408\u308f\u305b\u3044\u305f\u3060\u304f\u304b\u3001 \u30c1\u30e3\u30f3\u30d4\u30aa\u30f3\u30baLPCH.org<\/a> \u8a73\u7d30\u306b\u3064\u3044\u3066\u306f\u3053\u3061\u3089\u3092\u3054\u89a7\u304f\u3060\u3055\u3044\u3002<\/p>","protected":false},"excerpt":{"rendered":"

\u6bcd\u89aa\u306e\u30de\u30a4\u30ab\u30fb\u30af\u30ec\u30e2\u30f3\u30ba\u3055\u3093\u306f\u3001\u552f\u4e00\u306e\u5b50\u4f9b\u3067\u3042\u308b4\u6b73\u306e\u5a18\u30de\u30a4\u30a4\u3061\u3083\u3093\u3092\u3001\u4e3b\u306b\u5b50\u4f9b\u306b\u767a\u75c7\u3059\u308b\u307e\u308c\u306a\u624b\u8853\u4e0d\u80fd\u306a\u8133\u816b\u760d\u3067\u3042\u308b\u3073\u307e\u3093\u6027\u5185\u5728\u6027\u6a4b\u30b0\u30ea\u30aa\u30fc\u30de\u3067\u4ea1\u304f\u3057\u307e\u3057\u305f\u3002\u5f7c\u5973\u306f\u2026<\/p>","protected":false},"author":17,"featured_media":14845,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[22],"class_list":["post-3894","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories","health_topic-neurology","health_topic-pediatric-cancer"],"acf":[],"yoast_head":"\nMycah lost her 4-year-old daughter to DIPG. Now she\u2019s fighting back. - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lpfch.org\/ja\/impact-stories\/mycah-lost-her-4-year-old-daughter-to-dipg-now-shes-fighting-back\/\" \/>\n<meta property=\"og:locale\" content=\"ja_JP\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Mycah lost her 4-year-old daughter to DIPG. Now she\u2019s fighting back.\" \/>\n<meta property=\"og:description\" content=\"When mom Mycah Clemons lost her only child, 4-year-old Maiy, to Diffuse Intrinsic Pontine Glioma, a rare inoperable brain tumor that primarily affects children, she...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/lpfch.org\/ja\/impact-stories\/mycah-lost-her-4-year-old-daughter-to-dipg-now-shes-fighting-back\/\" \/>\n<meta property=\"og:site_name\" content=\"Lucile Packard Foundation for Children's Health\" \/>\n<meta property=\"article:published_time\" content=\"2017-06-08T16:42:27+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-16T20:53:41+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/02\/1_2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"522\" \/>\n\t<meta property=\"og:image:height\" content=\"280\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"admin\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"admin\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"7 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/lpfch.org\/impact-stories\/mycah-lost-her-4-year-old-daughter-to-dipg-now-shes-fighting-back\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/lpfch.org\/impact-stories\/mycah-lost-her-4-year-old-daughter-to-dipg-now-shes-fighting-back\/\"},\"author\":{\"name\":\"admin\",\"@id\":\"https:\/\/lpfch.org\/km\/#\/schema\/person\/0c27ee3a03f60d4845413e6163db996c\"},\"headline\":\"Mycah lost her 4-year-old daughter to DIPG. 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