{"id":8635,"date":"2016-01-26T21:17:45","date_gmt":"2016-01-26T21:17:45","guid":{"rendered":"https:\/\/lpfch.org\/celeste-and-alexias-story\/"},"modified":"2024-01-31T23:44:16","modified_gmt":"2024-01-31T23:44:16","slug":"celeste-and-alexias-story","status":"publish","type":"post","link":"https:\/\/lpfch.org\/ja\/impact-stories\/celeste-and-alexias-story\/","title":{"rendered":"\u300c\u7d50\u5c40\u306e\u3068\u3053\u308d\u3001\u79c1\u305f\u3061\u306f\u666e\u901a\u306e\u5bb6\u65cf\u3067\u3059\u3002\u300d"},"content":{"rendered":"<h2>\u30ab\u30ea\u30d5\u30a9\u30eb\u30cb\u30a2\u5dde\u30e1\u30a2\u30ea\u30fc\u30ba\u30d3\u30eb\u51fa\u8eab\u306e\u30bb\u30ec\u30b9\u30c6\u3068\u30a2\u30ec\u30af\u30b7\u30a2\u3092\u7d39\u4ecb\u3057\u307e\u3059\u3002<\/h2>\n<p>\u30bb\u30ec\u30b9\u30c6\u3068\u30a2\u30ec\u30af\u30b7\u30a2\u306f22q\u6b20\u5931\u75c7\u5019\u7fa4\u3092\u62b1\u3048\u3066\u751f\u304d\u3066\u3044\u307e\u3059\u3002<\/p>\n<p><img decoding=\"async\" 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src=\"\/wp-content\/uploads\/wpallimport\/files\/_df36719-2.jpg\" alt=\"Celeste and Alexia Madrigal\" 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decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df37046.jpg\" alt=\"Celeste and Alexia Madrigal\" \/><\/p>\n<p>\u53cc\u5b50\u306e22q\u6b20\u5931\u75c7\u5019\u7fa4\u3068\u3044\u3046\u75c5\u6c17\u3082\u3001\u866b\u6b6f\u306b\u306a\u308a\u3084\u3059\u3044\u539f\u56e0\u3068\u306a\u3063\u3066\u3044\u307e\u3059\u3002\u30bb\u30ec\u30b9\u30c6\u306f\u3059\u3067\u306b\u6b6f\u306e\u4fee\u5fa9\u624b\u8853\u3092\u53d7\u3051\u3066\u3044\u307e\u3059\u3002\u4e21\u89aa\u306e\u30a2\u30e1\u30ea\u30b3\u3068\u30af\u30ea\u30b9\u306f\u3001\u6bce\u98df\u5f8c\u306b\u53cc\u5b50\u306e\u6b6f\u3092\u78e8\u304b\u306a\u3051\u308c\u3070\u306a\u308a\u307e\u305b\u3093\u3002\uff08\u5199\u771f\uff1a\u30c7\u30a3\u30a2\u30f3\u30fb\u30d5\u30a3\u30c3\u30c4\u30e2\u30fc\u30ea\u30b9\uff09<\/p>\n<p>&nbsp;<\/p>\n<h2>\u30bb\u30ec\u30b9\u30c6\u3068\u30a2\u30ec\u30af\u30b7\u30a2\u306e\u30b1\u30a2\u30de\u30c3\u30d7<\/h2>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/madrigal-care-map_crop.jpg\" alt=\"Alexia and Celeste's care map\" \/><\/p>\n<p>\u30bb\u30ec\u30b9\u30c6\u3068\u30a2\u30ec\u30af\u30b7\u30a2\u306e\u300c\u30b1\u30a2 \u30de\u30c3\u30d7\u300d\u306f\u3001\u533b\u7642\u4e0a\u306e\u8907\u96d1\u306a\u554f\u984c\u3092\u62b1\u3048\u308b\u5b50\u3069\u3082\u3068\u305d\u306e\u5bb6\u65cf\u306b\u5fc5\u8981\u306a\u533b\u7642\u3068\u533b\u7642\u4fdd\u967a\u3001\u6559\u80b2\u3001\u30b5\u30dd\u30fc\u30c8 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Celeste and Alexia live with 22q deletion syndrome. 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