{"id":21149,"date":"2025-05-22T22:29:16","date_gmt":"2025-05-22T22:29:16","guid":{"rendered":"https:\/\/lpfch.org\/?p=21149"},"modified":"2025-05-22T22:31:50","modified_gmt":"2025-05-22T22:31:50","slug":"two-families-with-one-goal-find-bpan-treatments","status":"publish","type":"post","link":"https:\/\/lpfch.org\/km\/impact-stories\/two-families-with-one-goal-find-bpan-treatments\/","title":{"rendered":"\u1782\u17d2\u179a\u17bd\u179f\u17b6\u179a\u1796\u17b8\u179a\u178a\u17c2\u179b\u1798\u17b6\u1793\u1782\u17c4\u179b\u178a\u17c5\u178f\u17c2\u1798\u17bd\u1799\u17d6 \u179f\u17d2\u179c\u17c2\u1784\u179a\u1780\u1780\u17b6\u179a\u1796\u17d2\u1799\u17b6\u1794\u17b6\u179b BPAN"},"content":{"rendered":"

Zoe \u178a\u17c2\u179b\u1798\u17b6\u1793\u17a2\u17b6\u1799\u17bb 4 \u1786\u17d2\u1793\u17b6\u17c6\u1785\u17bc\u179b\u1785\u17b7\u178f\u17d2\u178f\u179b\u17d2\u1794\u17c2\u1784\u1795\u17d2\u1782\u17bb\u17c6\u179a\u17bc\u1794 \u1787\u17b7\u17c7\u1780\u1784\u17cb \u1793\u17b7\u1784\u1797\u17b6\u1796\u1799\u1793\u17d2\u178f Disney <\/span>\u1780\u1780<\/span><\/i>\u1781\u178e\u17c8\u1796\u17c1\u179b\u178a\u17c2\u179b Isabel \u17a2\u17b6\u1799\u17bb 11 \u1786\u17d2\u1793\u17b6\u17c6\u1785\u17bc\u179b\u1785\u17b7\u178f\u17d2\u178f\u1787\u17b7\u17c7\u179f\u17c1\u17c7 Minnie Mouse \u1793\u17b7\u1784\u1794\u17d2\u17a2\u17bc\u1793\u179f\u17d2\u179a\u17b8\u1796\u17b8\u179a\u1793\u17b6\u1780\u17cb\u179a\u1794\u179f\u17cb\u1793\u17b6\u1784\u17d4 \u1791\u17c4\u17c7\u1794\u17b8\u1787\u17b6\u1798\u1780\u1796\u17b8\u1782\u17d2\u179a\u17bd\u179f\u17b6\u179a\u1795\u17d2\u179f\u17c1\u1784\u1782\u17d2\u1793\u17b6\u1780\u17cf\u178a\u17c4\u1799 \u1780\u17cf Zoe \u1793\u17b7\u1784 Isabel \u1785\u17c2\u1780\u179a\u17c6\u179b\u17c2\u1780\u1785\u17d2\u179a\u17be\u1793\u1787\u17b6\u1784\u1794\u17bb\u1782\u17d2\u1782\u179b\u17b7\u1780\u179b\u1780\u17d2\u1781\u178e\u17c8\u179a\u179f\u17cb\u179a\u179c\u17be\u1780 \u1793\u17b7\u1784\u1794\u17d2\u178f\u17c1\u1787\u17d2\u1789\u17b6\u1785\u17b7\u178f\u17d2\u178f\u179a\u1794\u179f\u17cb\u1796\u17bd\u1780\u1782\u17c1\u2014<\/span>\u1796\u17bd\u1780\u1782\u17c1\u1791\u17b6\u17c6\u1784\u1796\u17b8\u179a\u1780\u17c6\u1796\u17bb\u1784\u179a\u17bb\u1780\u179a\u1780\u1787\u17b8\u179c\u17b7\u178f\u1787\u17b6\u1798\u17bd\u1799\u1793\u17b9\u1784\u1787\u17c6\u1784\u17ba\u179f\u179a\u179f\u17c3\u1794\u17d2\u179a\u179f\u17b6\u1791\u178a\u17c2\u179b\u1791\u17b6\u1780\u17cb\u1791\u1784\u1793\u17b9\u1784\u1794\u17d2\u179a\u17bc\u178f\u17c1\u17a2\u17ca\u17b8\u1793 betapropeller (BPAN) \u178a\u17c2\u179b\u1787\u17b6\u1787\u17c6\u1784\u17ba\u179f\u179a\u179f\u17c3\u1794\u17d2\u179a\u179f\u17b6\u1791\u178a\u17cf\u1780\u1798\u17d2\u179a \u1793\u17b7\u1784\u179a\u17b8\u1780\u1785\u1798\u17d2\u179a\u17be\u1793\u17d4<\/span>\u00a0<\/span><\/p>\n

\u1799\u17bc\u179a\u17d7\u1791\u17c5 \u1780\u17bb\u1798\u17b6\u179a\u178a\u17c2\u179b\u1798\u17b6\u1793 BPAN \u1794\u17b6\u178f\u17cb\u1794\u1784\u17cb\u1787\u17c6\u1793\u17b6\u1789\u178a\u17c2\u179b\u1796\u17bd\u1780\u1782\u17c1\u1794\u17b6\u1793\u1794\u17d2\u179a\u17b9\u1784\u1794\u17d2\u179a\u17c2\u1784\u1799\u17c9\u17b6\u1784\u1781\u17d2\u179b\u17b6\u17c6\u1784\u178a\u17be\u1798\u17d2\u1794\u17b8\u1791\u1791\u17bd\u179b\u1794\u17b6\u1793 \u1780\u17b6\u179a\u17a2\u1797\u17b7\u179c\u178c\u17d2\u178d dystonia \u1795\u17b6\u1780\u1783\u17b8\u1793\u179f\u17bb\u1793 \u1793\u17b7\u1784\u1787\u17c6\u1784\u17ba\u179c\u1784\u17d2\u179c\u17c1\u1784\u17d4 \u1782\u17d2\u179a\u17bd\u179f\u17b6\u179a\u200b\u1791\u17b6\u17c6\u1784\u200b\u1796\u17b8\u179a\u200b\u1794\u17b6\u1793\u200b\u1794\u17d2\u178a\u17c1\u1787\u17d2\u1789\u17b6\u200b\u179f\u17d2\u179c\u17c2\u1784\u200b\u179a\u1780\u200b\u1785\u1798\u17d2\u179b\u17be\u1799 \u1793\u17b7\u1784\u200b\u1795\u17d2\u179b\u17bc\u179c\u200b\u1786\u17d2\u1796\u17c4\u17c7\u200b\u1791\u17c5\u200b\u1798\u17bb\u1781\u200b\u1794\u1793\u17d2\u1791\u17b6\u1794\u17cb\u200b\u1796\u17b8\u200b\u1780\u17b6\u179a\u200b\u1792\u17d2\u179c\u17be\u200b\u179a\u17c4\u1782\u200b\u179c\u17b7\u1793\u17b7\u1785\u17d2\u1786\u17d0\u1799\u200b\u179a\u1794\u179f\u17cb\u200b\u1780\u17bc\u1793\u200b\u179f\u17d2\u179a\u17b8\u17d4<\/span>\u00a0<\/span><\/p>\n

\u17aa\u1796\u17bb\u1780\u1798\u17d2\u178f\u17b6\u1799\u179a\u1794\u179f\u17cb Isabel \u1782\u17ba Kathryn \u1793\u17b7\u1784 Robert \u1794\u17b6\u1793\u1793\u17b7\u1799\u17b6\u1799\u1790\u17b6 "\u1799\u17be\u1784\u1794\u17b6\u1793\u178a\u17b9\u1784\u1790\u17b6\u178a\u17c4\u1799\u179f\u17b6\u179a\u178f\u17c2 BPAN \u1780\u1798\u17d2\u179a \u179c\u17b6\u178f\u17d2\u179a\u17bc\u179c\u1794\u17b6\u1793\u1782\u17c1\u1785\u17b6\u178f\u17cb\u1791\u17bb\u1780\u1790\u17b6\u1787\u17b6 "\u1787\u17c6\u1784\u17ba\u1780\u17c6\u1796\u17d2\u179a\u17b6" \u17d4 "\u1782\u17d2\u179a\u17bc\u1796\u17c1\u1791\u17d2\u1799\u178f\u17b7\u1785\u178f\u17bd\u1785\u179f\u17bc\u1798\u17d2\u1794\u17b8\u178f\u17c2\u1794\u17b6\u1793\u178a\u17b9\u1784\u17a2\u17c6\u1796\u17b8\u179c\u17b6 \u17a0\u17be\u1799\u179f\u17d2\u1791\u17be\u179a\u178f\u17c2\u1782\u17d2\u1798\u17b6\u1793\u1780\u17b6\u179a\u179f\u17d2\u179a\u17b6\u179c\u1787\u17d2\u179a\u17b6\u179c\u178e\u17b6\u1798\u17bd\u1799\u178a\u17c2\u179b\u178f\u17d2\u179a\u17bc\u179c\u1794\u17b6\u1793\u1792\u17d2\u179c\u17be\u178a\u17be\u1798\u17d2\u1794\u17b8\u17a2\u1797\u17b7\u179c\u178c\u17d2\u178d\u1780\u17b6\u179a\u1796\u17d2\u1799\u17b6\u1794\u17b6\u179b" \u17d4<\/span>\u00a0<\/span><\/p>\n

\u1787\u17b6\u1780\u17b6\u179a\u1786\u17d2\u179b\u17be\u1799\u178f\u1794 \u1782\u17bc\u179f\u17d2\u1793\u17c1\u17a0\u17cd\u1791\u17b6\u17c6\u1784\u1796\u17b8\u179a\u1794\u17b6\u1793\u1794\u17be\u1780\u178a\u17c6\u178e\u17be\u179a\u1780\u17b6\u179a Isabel's Chance \u178a\u17c2\u179b\u1787\u17b6\u17a2\u1784\u17d2\u1782\u1780\u17b6\u179a\u1798\u17b7\u1793\u179a\u1780\u1794\u17d2\u179a\u17b6\u1780\u17cb\u1785\u17c6\u178e\u17c1\u1789\u178a\u17c2\u179b\u17a7\u1791\u17d2\u1791\u17b7\u179f\u178a\u179b\u17cb\u1780\u17b6\u179a\u179a\u17c3\u17a2\u1784\u17d2\u1782\u17b6\u179f\u1790\u179c\u17b7\u1780\u17b6\u179f\u1798\u17d2\u179a\u17b6\u1794\u17cb\u1780\u17b6\u179a\u179f\u17d2\u179a\u17b6\u179c\u1787\u17d2\u179a\u17b6\u179c BPAN \u17d4<\/span>\u00a0<\/span><\/p>\n

\u17aa\u1796\u17bb\u1780\u1798\u17d2\u178f\u17b6\u1799\u179a\u1794\u179f\u17cb Zoe \u1782\u17ba Sherri \u1793\u17b7\u1784 Peter \u1780\u17cf\u1794\u17d2\u178f\u17c1\u1787\u17d2\u1789\u17b6\u1785\u17b6\u178f\u17cb\u179c\u17b7\u1792\u17b6\u1793\u1780\u17b6\u179a\u1795\u1784\u178a\u17c2\u179a\u17d4 \u1796\u17bd\u1780\u1782\u17c1\u1794\u17b6\u1793\u1784\u17b6\u1780\u1791\u17c5\u179a\u1780 Juliet Knowles, MD, PhD \u178a\u17c2\u179b\u1787\u17b6\u1782\u17d2\u179a\u17bc\u1796\u17c1\u1791\u17d2\u1799\u179c\u17b7\u1791\u17d2\u1799\u17b6\u179f\u17b6\u179f\u17d2\u178f\u17d2\u179a\u1793\u17c5 Stanford \u178a\u17c2\u179b\u1794\u17b6\u1793\u1798\u17be\u179b\u1790\u17c2 Zoe \u17d4 \u1796\u17bd\u1780\u1782\u17c1\u1793\u17b7\u1799\u17b6\u1799\u1790\u17b6 "\u1799\u17be\u1784\u1793\u17b9\u1784\u1798\u17b7\u1793\u1791\u1791\u17bd\u179b\u1799\u1780\u1790\u17b6\u1782\u17d2\u1798\u17b6\u1793\u1780\u17b6\u179a\u1796\u17d2\u1799\u17b6\u1794\u17b6\u179b\u1791\u17c1" \u17d4 "\u17a2\u179a\u1782\u17bb\u178e \u179b\u17c4\u1780\u179c\u17c1\u1787\u17d2\u1787\u1794\u178e\u17d2\u178c\u17b7\u178f Knowles \u1794\u17b6\u1793\u1785\u17c2\u1780\u179a\u17c6\u179b\u17c2\u1780\u1797\u17b6\u1796\u1794\u1793\u17d2\u1791\u17b6\u1793\u17cb \u1793\u17b7\u1784\u1785\u17c6\u178e\u1784\u17cb\u1785\u17c6\u178e\u17bc\u179b\u1785\u17b7\u178f\u17d2\u178f\u179a\u1794\u179f\u17cb\u1799\u17be\u1784\u1780\u17d2\u1793\u17bb\u1784\u1780\u17b6\u179a\u179f\u17d2\u179c\u17c2\u1784\u179a\u1780\u178a\u17c6\u178e\u17c4\u17c7\u179f\u17d2\u179a\u17b6\u1799\u17d4"<\/span>\u00a0<\/span><\/p>\n

Sherri \u1793\u17b7\u1784 Peter \u178f\u17d2\u179a\u17bc\u179c\u1794\u17b6\u1793\u1785\u17bc\u179b\u179a\u17bd\u1798\u178a\u17c4\u1799 Isabel's Chance \u1780\u17d2\u1793\u17bb\u1784\u1780\u17b6\u179a\u1794\u1784\u17d2\u1780\u17be\u178f\u17a2\u17c6\u178e\u17c4\u1799\u178a\u17cf\u179f\u17c6\u1781\u17b6\u1793\u17cb\u1798\u17bd\u1799\u178a\u17be\u1798\u17d2\u1794\u17b8\u1785\u17b6\u1794\u17cb\u1795\u17d2\u178f\u17be\u1798\u1780\u17b6\u179a\u1784\u17b6\u179a\u179a\u1794\u179f\u17cb Knowles \u1780\u17d2\u1793\u17bb\u1784\u1780\u17b6\u179a\u1794\u17d2\u179a\u1799\u17bb\u1791\u17d2\u1792\u1794\u17d2\u179a\u1786\u17b6\u17c6\u1784\u1793\u17b9\u1784 BPAN \u17d4 Knowles \u1794\u17b6\u1793\u1794\u17d2\u179a\u1798\u17bc\u179b\u1795\u17d2\u178f\u17bb\u17c6\u1780\u17d2\u179a\u17bb\u1798\u179f\u17d2\u179a\u17b6\u179c\u1787\u17d2\u179a\u17b6\u179c\u179b\u17c6\u178a\u17b6\u1794\u17cb\u1796\u17b7\u1797\u1796\u179b\u17c4\u1780\u178a\u17be\u1798\u17d2\u1794\u17b8\u179f\u17b7\u1780\u17d2\u179f\u17b6 BPAN \u1793\u17c5\u1780\u17d2\u1793\u17bb\u1784\u1780\u17c4\u179f\u17b7\u1780\u17b6\u178a\u17c2\u179b\u1780\u17be\u178f\u1785\u17c1\u1789\u1796\u17b8\u1798\u1793\u17bb\u179f\u17d2\u179f \u1793\u17b7\u1784\u1782\u17c6\u179a\u17bc\u179f\u178f\u17d2\u179c \u178a\u17c4\u1799\u178a\u17b6\u1780\u17cb\u1794\u1789\u17d2\u1785\u17bc\u179b\u1782\u17d2\u1793\u17b6\u1793\u17bc\u179c\u1795\u17c2\u1793\u1780\u17b6\u179a\u178a\u17c6\u1794\u17bc\u1784\u1794\u1784\u17d2\u17a2\u179f\u17cb\u178a\u17be\u1798\u17d2\u1794\u17b8\u1780\u17c6\u178e\u178f\u17cb\u17a2\u178f\u17d2\u178f\u179f\u1789\u17d2\u1789\u17b6\u178e\u17d4 <\/span>\u1780\u17b6\u179a\u1796\u17d2\u1799\u17b6\u1794\u17b6\u179b\u178a\u17c2\u179b\u1798\u17b6\u1793\u179f\u1780\u17d2\u178f\u17b6\u1793\u17bb\u1796\u179b\u178a\u17c2\u179b\u17a2\u17b6\u1785\u1795\u17d2\u179b\u17b6\u179f\u17cb\u1791\u17b8\u1799\u17c9\u17b6\u1784\u179b\u17bf\u1793\u1791\u17c5\u1780\u17b6\u179a\u179f\u17b6\u1780\u179b\u17d2\u1794\u1784\u1796\u17d2\u1799\u17b6\u1794\u17b6\u179b\u17d4<\/span>\u00a0<\/span><\/p>\n

\u179b\u17be\u179f\u1796\u17b8\u1780\u17b6\u179a\u1782\u17b6\u17c6\u1791\u17d2\u179a\u178a\u179b\u17cb\u1780\u17b6\u179a\u179f\u17d2\u179a\u17b6\u179c\u1787\u17d2\u179a\u17b6\u179c BPAN \u178a\u17c2\u179b\u1787\u17b6\u17a2\u17d2\u1793\u1780\u178f\u17d2\u179a\u17bd\u179f\u178f\u17d2\u179a\u17b6\u1799\u179a\u1794\u179f\u17cb Knowles \u1782\u17d2\u179a\u17bd\u179f\u17b6\u179a\u179a\u1794\u179f\u17cb Zoe \u1793\u17b7\u1784 Isabel \u1794\u17b6\u1793\u1780\u17d2\u179b\u17b6\u1799\u1787\u17b6\u17a2\u17d2\u1793\u1780\u178f\u179f\u17ca\u17bc\u1798\u178f\u17b7\u1798\u17b7\u1793\u1785\u17c1\u17c7\u1793\u17bf\u1799\u17a0\u178f\u17cb \u1785\u17c2\u1780\u179a\u17c6\u179b\u17c2\u1780\u179a\u17bf\u1784\u179a\u17c9\u17b6\u179c\u179a\u1794\u179f\u17cb\u1796\u17bd\u1780\u1782\u17c1 \u1793\u17b7\u1784\u1780\u17b6\u179a\u1784\u17b6\u179a\u178a\u17cf\u179f\u17c6\u1781\u17b6\u1793\u17cb\u1793\u17c1\u17c7\u1787\u17b6\u1798\u17bd\u1799\u1794\u178e\u17d2\u178f\u17b6\u1789\u179a\u1794\u179f\u17cb\u1796\u17bd\u1780\u1782\u17c1\u17d4 \u179f\u17bc\u1798\u17a2\u179a\u1782\u17bb\u178e Sherri, Peter, Kathryn \u1793\u17b7\u1784 Robert! \u1780\u17b6\u179a\u179b\u17c7\u1794\u1784\u17cb\u179a\u1794\u179f\u17cb\u17a2\u17d2\u1793\u1780\u1780\u17c6\u1796\u17bb\u1784\u1794\u1784\u17d2\u1780\u17be\u1793\u179b\u17d2\u1794\u17bf\u1793\u1786\u17d2\u1796\u17c4\u17c7\u1791\u17c5\u179a\u1780\u1780\u17b6\u179a\u1796\u17d2\u1799\u17b6\u1794\u17b6\u179b BPAN \u178a\u17cf\u1798\u17b6\u1793\u179f\u1780\u17d2\u178f\u17b6\u1793\u17bb\u1796\u179b \u1793\u17b7\u1784\u1795\u17d2\u178f\u179b\u17cb\u1780\u17d2\u178f\u17b8\u179f\u1784\u17d2\u1783\u17b9\u1798\u178a\u179b\u17cb\u1782\u17d2\u179a\u17bd\u179f\u17b6\u179a\u178a\u17bc\u1785\u1787\u17b6\u17a2\u17d2\u1793\u1780\u17d4<\/span>\u00a0<\/span><\/p>","protected":false},"excerpt":{"rendered":"

Zoe \u178a\u17c2\u179b\u1798\u17b6\u1793\u17a2\u17b6\u1799\u17bb 4 \u1786\u17d2\u1793\u17b6\u17c6\u1785\u17bc\u179b\u1785\u17b7\u178f\u17d2\u178f\u179b\u17d2\u1794\u17c2\u1784\u1795\u17d2\u1782\u17bb\u17c6\u179a\u17bc\u1794 \u1787\u17b7\u17c7\u1780\u1784\u17cb \u1793\u17b7\u1784\u1781\u17d2\u179f\u17c2\u1797\u17b6\u1796\u1799\u1793\u17d2\u178f Disney Frozen \u1781\u178e\u17c8\u178a\u17c2\u179b Isabel \u17a2\u17b6\u1799\u17bb 11 \u1786\u17d2\u1793\u17b6\u17c6\u1785\u17bc\u179b\u1785\u17b7\u178f\u17d2\u178f\u1780\u17b6\u179a\u1787\u17b7\u17c7\u179f\u17c1\u17c7 Minnie Mouse \u1793\u17b7\u1784\u1794\u17d2\u17a2\u17bc\u1793\u179f\u17d2\u179a\u17b8\u1796\u17b8\u179a\u1793\u17b6\u1780\u17cb\u179a\u1794\u179f\u17cb\u1793\u17b6\u1784\u17d4 \u1791\u17c4\u17c7\u1794\u17b8\u1787\u17b6\u2026<\/p>","protected":false},"author":7,"featured_media":21155,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[200],"class_list":["post-21149","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-thank-you-notes","health_topic-neurology"],"acf":[],"yoast_head":"\nTwo Families With One Goal: Find BPAN Treatments - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lpfch.org\/km\/impact-stories\/two-families-with-one-goal-find-bpan-treatments\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Two Families With One Goal: Find BPAN Treatments\" \/>\n<meta property=\"og:description\" content=\"Four-year-old Zoe loves puzzles, bike rides, and the Disney movie Frozen, while 11-year-old Isabel adores horseback riding, Minnie Mouse, and her two younger siblings. 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