{"id":20393,"date":"2025-03-18T19:25:25","date_gmt":"2025-03-18T19:25:25","guid":{"rendered":"https:\/\/lpfch.org\/?p=20393"},"modified":"2025-05-22T18:30:41","modified_gmt":"2025-05-22T18:30:41","slug":"virtual-cafe-series-the-future-of-care-for-children-with-medical-complexity","status":"publish","type":"post","link":"https:\/\/lpfch.org\/ko\/impact-stories\/virtual-cafe-series-the-future-of-care-for-children-with-medical-complexity\/","title":{"rendered":"\uac00\uc0c1 \uce74\ud398 \uc2dc\ub9ac\uc988: \uc758\ub8cc\uc801 \ubcf5\uc7a1\uc131\uc744 \uc9c0\ub2cc \uc5b4\ub9b0\uc774\ub97c \uc704\ud55c \uce58\ub8cc\uc758 \ubbf8\ub798"},"content":{"rendered":"

The Future of Care for Children with Medical Complexity (CMC) Virtual Cafe Series is a family-partnered, inter-disciplinary series of presentations by nationally recognized experts in the care of CMC. Hosted by Boston University School of Social Work\u2019s Center for Innovation in Social Work and Health (CISWH), six virtual cafes took place from March to December 2024, with the goals of advancing actionable systems change in policy, clinical practice, research, and interdisciplinary education to improve child and family quality of life and wellbeing.<\/span>\u00a0<\/span><\/p>\n

The typical format of the cafe sessions included informative presentations followed by breakout sessions. In these breakouts, attendees had the opportunity to discuss topics that matter most to CMC and their families, ask questions, and share perspectives. The cafe discussions and related products were shaped by thoughtful engagement of an interdisciplinary faculty, <\/span>the majority of whom identified as family and\/or caregivers of CMC and children and youth with special health care needs (CYSHCN). \u00a0Participants included family partners, pediatric primary and specialty care providers, researchers, advocates, payers, maternal and child health professionals, state and federal agency staff, and others. <\/span>\u00a0<\/span><\/p>\n

This cafe series built on learnings from the 2022 Future of Care for Children with Medical Complexity National Convening and the <\/span>Collaborative Improvement and Innovation Network to Advance Care for CMC (CMC CoIIN) Pediatrics journal supplement<\/span>.<\/span><\/a>\u00a0<\/span><\/p>\n

In this impact story, we highlight key insights and recommendations from each cafe discussion and <\/span>share what the team behind the series has planned as next steps. <\/span>\u00a0<\/span><\/p>\n

Cafe 1: Where We Are Now and Where We Need to Go<\/span><\/b><\/a>\u00a0<\/span><\/p>\n

The first cafe provided an overview of key topics, major frameworks, and emerging trends to advance quality of life and well-being of CMC and their families. Speakers outlined the <\/span>Blueprint for Change<\/span><\/a>, a framework to advance the system of care for CYSHCN, and the <\/span>CMC Collaborative Improvement and Innovation Network (CoIIN)<\/span><\/a>, <\/span>which tested and spread promising care delivery strategies and payment models for CMC. <\/span>\u00a0<\/span><\/p>\n

Speaker Cara Coleman enco<\/span>uraged attendees to think of disability not from a medical perspective, which views a person\u2019s disability as an impairment inherent to their own limitations, but rather from a social perspective, which views a person\u2019s disability in the context of societal and environmental barriers that prevent full participation in society. <\/span>\u00a0<\/span><\/p>\n

\u201cUsing more narrative practices, building narrative competencies, and understanding how to listen and tell stories that drive systems change might be some ways… to get us to improved results.\u201d <\/span>\u00a0<\/span><\/p>\n

\u2013 Cara Coleman, JD, MPH, founder of the <\/span>Bluebird Way Foundation<\/span><\/a> \u00a0<\/span><\/p>\n

Attendees were prompted to discuss where the smallest change can make the biggest difference in the care of CMC, and how to leverage care innovation. \u00a0<\/span>\u00a0<\/span><\/p>\n