{"id":3775,"date":"2016-04-25T21:03:50","date_gmt":"2016-04-25T21:03:50","guid":{"rendered":"https:\/\/lpfch.org\/a-story-of-survival\/"},"modified":"2024-02-14T14:07:21","modified_gmt":"2024-02-14T14:07:21","slug":"a-story-of-survival","status":"publish","type":"post","link":"https:\/\/lpfch.org\/ko\/impact-stories\/a-story-of-survival\/","title":{"rendered":"\uc0dd\uc874\uc758 \uc774\uc57c\uae30"},"content":{"rendered":"

\ubaa8\ub4e0 \uac83\uc740 2011\ub144 4\uc6d4 5\uc77c, \uc0c8\ud06c\ub77c\uba58\ud1a0\uc5d0 \uc788\ub294 \uc18c\uc544 \uc2ec\uc7a5 \uc804\ubb38\uc758\ub97c \ub9cc\ub098 \ub2e4\ub978 \uc758\uc0ac\uc758 \uc18c\uacac\uc744 \ub4e3\uae30 \uc704\ud574 \uac14\uc744 \ub54c\ubd80\ud130 \uc2dc\uc791\ub418\uc5c8\uc2b5\ub2c8\ub2e4. \uc77c\ub780\uc131 \uc30d\ub465\uc774 \ub538 \uc54c\ub809\uc2dc\uc544\uc640 \uc140\ub808\uc2a4\ud2b8\ub97c \uc784\uc2e0 23\uc8fc\uc9f8\uc5d0, \ub85c\uc988\ube4c\uc5d0 \uc788\ub294 \uc758\uc0ac \uc120\uc0dd\ub2d8\uaed8\uc11c \ub450 \uc544\uc774 \ubaa8\ub450 \uc120\ucc9c\uc131 \uc2ec\uc7a5 \uae30\ud615 \uc9d5\ud6c4\ub97c \ubcf4\uc778\ub2e4\uace0 \ub9d0\uc500\ud558\uc168\uc2b5\ub2c8\ub2e4. \uc0c8 \uc2ec\uc7a5 \uc804\ubb38\uc758\ub294 \uc6b0\ub9ac\uac00 \uc6b0\ub824\ud588\ub358 \ubc14\ub97c \ud655\uc2e4\ud788 \ud655\uc778\ud574 \uc8fc\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n

\uc9c4\ub2e8 \uacb0\uacfc\uc5d0 \uc2ac\ud514\uc5d0 \uc7a0\uae34 \uc640\uc911\uc5d0\ub3c4 \uc800\ub294 \ud76c\ub9dd\uc774 \uc788\ub2e4\ub294 \uac83\uc744 \uc54c\uac8c \ub418\uc5c8\uc2b5\ub2c8\ub2e4. \uc2ec\uc7a5 \uc804\ubb38\uc758\uac00 \uc2a4\ud0e0\ud37c\ub4dc \ub8e8\uc2e4 \ud328\ucee4\ub4dc \uc5b4\ub9b0\uc774 \ubcd1\uc6d0\uc758 \uc804\ubb38 \uc758\ub8cc\uc9c4\uc758 \ub3c4\uc6c0\uc744 \ubc1b\uc544\ubcf4\ub77c\uace0 \uad8c\ud588\uae30 \ub54c\ubb38\uc785\ub2c8\ub2e4. \ub9dd\uc124\uc784 \uc5c6\uc774 \uc9c4\ub8cc \uc608\uc57d\uc744 \uc7a1\uc558\uc2b5\ub2c8\ub2e4. <\/p>\n

\uc18c\uc544 \ud749\ubd80\uc678\uacfc \uc758\uc0ac\uc778 \ubaa8\ud55c \ub808\ub514 \ubc15\uc0ac\ub97c \ub9cc\ub0ac\ub294\ub370, \uadf8\ub294 \ub2e4\uc2dc \ud55c\ubc88 \uc9c4\ub2e8\uc744 \ub4b7\ubc1b\uce68\ud574 \uc8fc\uc5c8\uc2b5\ub2c8\ub2e4. \uadf8\ub294 \uc6b0\ub9ac \uc544\uae30\ub4e4\uc5d0\uac8c \ud544\uc694\ud55c \ub2e4\uc591\ud55c \uc218\uc220 \uc720\ud615\uc744 \uc124\uba85\ud574 \uc8fc\uc5c8\uace0, \uc6b0\ub9ac \ub538\ub4e4\uc774 \ud0dc\uc5b4\ub09c \uc9c0 \uc5bc\ub9c8\ub098 \ube68\ub9ac \uac1c\uc2ec\uc220\uc744 \ubc1b\uc544\uc57c \ud560\uc9c0 \uc54c \uc218 \uc5c6\uc5c8\uae30 \ub54c\ubb38\uc5d0 \ud328\ucee4\ub4dc \uc5b4\ub9b0\uc774 \ubcd1\uc6d0\uc5d0\uc11c \ucd9c\uc0b0\ud558\ub294 \uac83\uc774 \ucd5c\uc120\uc774\ub77c\uace0 \ub9d0\ud588\uc2b5\ub2c8\ub2e4.<\/p>\n

\uc783\uc5b4\ubc84\ub9b0 \uc870\uac01 \ucc3e\uae30<\/h3>\n

\uba70\uce60 \ub9cc\uc5d0 \uc6b0\ub9ac \uc0b6\uc744 \uc601\uc6d0\ud788 \ubc14\uafd4\ub193\uc744 \ubcd1\uc6d0 \ubb38\uc744 \uc5f4\uace0 \ub4e4\uc5b4\uc130\uc2b5\ub2c8\ub2e4. \uc5ec\ub7ec \ucc28\ub840\uc758 \uc9c4\ub8cc \uc911 \uccab \ubc88\uc9f8\uc600\uc2b5\ub2c8\ub2e4. \uc0b0\ubd80\uc778\uacfc, \uc2e0\uc0dd\uc544\uacfc, \uc720\uc804\ud559\uacfc, \uadf8\ub9ac\uace0 \uc2e0\uc7a5\ub0b4\uacfc \uc804\ubb38\uc758\ub97c \ub9cc\ub0ac\uc2b5\ub2c8\ub2e4. \uadf8\ub4e4\uc740 \uc800\uc5d0\uac8c \ud608\uc561 \uac80\uc0ac\uc640 \uc18c\ubcc0 \uac80\uc0ac\ub97c \uc9c4\ud589\ud588\uace0, \ud0dc\uc544 \uc131\uc7a5\uc744 \uce21\uc815\ud558\ub294 \ucd08\uc74c\ud30c \uac80\uc0ac\ub97c \ubc1b\uc558\uc2b5\ub2c8\ub2e4. \uadf8\ub9ac\uace0 \ub9c8\uce68\ub0b4 \uae30\ub300\ud588\ub358 \uc2ec\uc7a5 \uae30\ud615 \uac80\uc0ac\ub97c \ubc1b\uc558\uc2b5\ub2c8\ub2e4. <\/p>\n

\ub9c8\uce68\ub0b4 \uadf8\ub4e4\uc774 "FISH(\ud615\uad11 \ud604\uc7a5 \uad50\uc7a1\ubc95) \uac80\uc0ac\ub97c \ubc1b\uc544\ubcf8 \uc801\uc774 \uc788\ub098\uc694?"\ub77c\uace0 \ubb3c\uc5c8\uc744 \ub54c \uc800\ub294 \uc721\uccb4\uc801\uc73c\ub85c\ub098 \uc815\uc2e0\uc801\uc73c\ub85c \uc9c0\uccd0 \uc788\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n

\uc18c\ub140\ub4e4\uc758 \uc2ec\uc7a5, \uc2e0\uc7a5, \ud0ef\uc904\uc5d0\uc11c \uad00\ucc30\ub41c \uc77c\ubd80 \uc774\uc0c1 \uc18c\uacac\uc740 \uc2e0\uccb4 \uac70\uc758 \ubaa8\ub4e0 \ubd80\uc704\uc5d0 \uc601\ud5a5\uc744 \ubbf8\uce60 \uc218 \uc788\ub294 \uc5fc\uc0c9\uccb4 \uc9c8\ud658\uc778 22q11.2 \uacb0\uc2e4 \uc99d\ud6c4\uad70\uacfc \uc77c\uce58\ud55c\ub2e4\ub294 \ub9d0\uc744 \ub4e4\uc5c8\uc2b5\ub2c8\ub2e4. FISH \uac80\uc0ac\uac00 \uc591\uc131\uc774\uba74, 22\ubc88 \uc5fc\uc0c9\uccb4 \uc30d \uc911 \ud558\ub098\uac00 \ud2b9\uc815 \ubd80\uc704\uc5d0\uc11c \ubc1d\uc544\uc9c0\uc9c0 \uc54a\uc544 \ud574\ub2f9 \ubd80\uc704\uac00 "\uacb0\uc2e4"\ub418\uc5c8\uc74c\uc744 \ub098\ud0c0\ub0c5\ub2c8\ub2e4. \ub450 \uc18c\ub140 \ubaa8\ub450 \uc774 \uc720\uc804 \uc9c8\ud658\uc5d0 \uc591\uc131 \ubc18\uc751\uc744 \ubcf4\uc600\uc2b5\ub2c8\ub2e4. <\/p>\n

\uc784\uc2e0\uc774 \uc9c4\ud589\ub418\uba74\uc11c \uc800\ud76c\ub294 \uc7a0\uc2dc \ubca0\uc774 \uc9c0\uc5ed\uc73c\ub85c \uc774\uc0ac\ud588\uc2b5\ub2c8\ub2e4. \ub9e4\ubc88 \ubc29\ubb38\ud558\uae30 \uc804\uc5d0 \uac71\uc815\ud588\uc9c0\ub9cc, \ub538\ub4e4\uc744 \ub3cc\ubcf4\uae30\uc5d0 \uac00\uc7a5 \uc88b\uc740 \uacf3\uc5d0 \uc788\ub2e4\ub294 \uac83\uc744 \ud56d\uc0c1 \uc54c\uace0 \uc788\uc5c8\uc2b5\ub2c8\ub2e4. \uadf8 \ubaa8\ub4e0 \uacfc\uc815\uc5d0\uc11c \uac04\ud638\uc0ac\ub4e4\uacfc \uc800\ud76c \ucf00\uc5b4\ud300\uc758 \ub2e4\ub978 \uc9c1\uc6d0\ub4e4\uc740 \ud658\uc790 \uce58\ub8cc\uc5d0 \ud5cc\uc2e0\uc801\uc778 \ubaa8\uc2b5\uc744 \ubcf4\uc5ec\uc8fc\uc5c8\uc2b5\ub2c8\ub2e4. <\/p>\n

\ubc30\uc1a1\uc77c<\/h3>\n

\uc6b0\ub9ac \uc544\uae30\ub4e4\uc774 \ud0dc\uc5b4\ub09c \ub0a0\uc740 \ub9c8\uce68\ub0b4 2011\ub144 7\uc6d4 6\uc77c\uc774\uc5c8\uc2b5\ub2c8\ub2e4. \uc6b0\ub9ac\uc758 \uadc0\uc5ec\uc6b4 \uacf5\uc8fc\ub4e4\uc774 \uc624\ub7ab\ub3d9\uc548 \uae30\ub2e4\ub9ac\ub358 \ubaa8\uc2b5\uc73c\ub85c \ub098\ud0c0\ub0ac\uc744 \ub54c, \uc2e0\uc0dd\uc544 \uc911\ud658\uc790\uc2e4(NICU)\uc758 \uc758\ub8cc\uc9c4\uc740 \uc544\uae30\ub4e4\uc5d0\uac8c \ud544\uc694\ud55c \ubaa8\ub4e0 \uac83\uc744 \uc900\ube44\ud574 \ub450\uc5c8\uc2b5\ub2c8\ub2e4.<\/p>\n

\uc544\uae30\ub4e4\uc774 NICU\uc758 \uc804\ubb38\uac00\ub4e4\uc5d0 \uc758\ud574 \uce58\ub8cc\ubc1b\ub294 \ub3d9\uc548, \ub2e4\ub978 \ud300\uc740 \uc800\uc5d0\uac8c \uc9d1\uc911\ud588\uc2b5\ub2c8\ub2e4. <\/p>\n

\uc800\ub294 \ube60\ub974\uac8c \ud53c\ub97c \ud758\ub9ac\uace0 \uc788\uc5c8\uace0 \uc774\ubbf8 \ub450 \ubc88\uc9f8 \uc218\ud608\uc744 \ubc1b\uace0 \uc788\uc5c8\uc2b5\ub2c8\ub2e4. <\/p>\n

\ub098\uc911\uc5d0 \uc54c\uace0 \ubcf4\ub2c8 1\ub9ac\ud130\uac00 \ub118\ub294 \ud53c\ub97c \ud758\ub9b0 \uac83\uc774\uc5c8\uc2b5\ub2c8\ub2e4. \ub2f9\uc2dc\uc5d0\ub294 \uc81c \uc0c1\ud669\uc774 \uc5bc\ub9c8\ub098 \uc2ec\uac01\ud55c\uc9c0 \uae68\ub2eb\uc9c0 \ubabb\ud588\uace0, \uc774 \ubaa8\ub4e0 \uac83\uc740 \uc758\ub8cc\uc9c4 \ub355\ubd84\uc785\ub2c8\ub2e4. \uc758\ub8cc\uc9c4\uc774 \uc804\ubb38\uc801\uc774\uace0 \uce68\ucc29\ud558\uba70 \ub530\ub73b\ud55c \ub9c8\uc74c\uc73c\ub85c \uc800\ub97c \ub300\ud574\uc900 \ub355\ubd84\uc5d0 \uac71\uc815\ud560 \ud544\uc694\uac00 \uc5c6\uc5c8\uc2b5\ub2c8\ub2e4.  <\/p>\n

\uc54c\uc544\ucc28\ub9ac\uae30\ub3c4 \uc804\uc5d0 \ub098\ub294 \ud68c\ubcf5\uc2e4\uc5d0 \uc788\uc5c8\uace0, \ub0b4 \ub538\ub4e4\uc774 \ucd5c\uace0\uc758 \uc190\uc5d0 \ub9e1\uaca8\uc84c\ub2e4\ub294 \uc548\ub3c4\uac10\uc744 \ub290\uaf08\uc2b5\ub2c8\ub2e4. <\/p>\n

\uc720\uc804\ud559\uc790\ub4e4\uc740 \uc800\ud76c\uc640 \uc774\uc57c\uae30\ud558\uace0 \uc2f6\uc5b4 \ud588\uc2b5\ub2c8\ub2e4. 22q \uacb0\uc190 \uc99d\ud6c4\uad70\uc5d0 \ub300\ud574, \uadf8\ub9ac\uace0 \uadf8\uac83\uc774 \uc54c\ub809\uc2dc\uc544\uc640 \uc140\ub808\uc2a4\ud2b8\uc5d0\uac8c \uc5b4\ub5a4 \uc758\ubbf8\ub97c \uac16\ub294\uc9c0 \uc800\ud76c\uac00 \uc644\uc804\ud788 \uc774\ud574\ud558\uace0 \uc788\ub294\uc9c0 \ud655\uc778\ud558\uace0 \uc2f6\uc5b4 \ud588\uc2b5\ub2c8\ub2e4. <\/p>\n

\uc5ec\ub7ec\ubd84\uc758 \uc9c0\uc6d0\uc73c\ub85c \uc5ed\uacbd\uc744 \uadf9\ubcf5\ud558\uc138\uc694<\/h3>\n

\ud328\ucee4\ub4dc \uc5b4\ub9b0\uc774 \ubcd1\uc6d0 \ud300\uc774 \uc5c6\uc5c8\ub2e4\uba74 \uc6b0\ub9ac\ub294 \uc5b4\ub5bb\uac8c \uc18c\ub140\ub4e4\uc758 \uac74\uac15 \ubb38\uc81c\ub97c \ud574\uacb0\ud588\uc744\uc9c0 \ubaa8\ub974\uaca0\uc2b5\ub2c8\ub2e4. \uc2a4\ud0e0\ud37c\ub4dc \uc804\ubb38\uac00\ub4e4\uc774 \ubcf4\uc720\ud55c \uc9c0\uc2dd\uc758 \uc591\uc740 \uc815\ub9d0 \ub180\ub78d\uc2b5\ub2c8\ub2e4.  <\/p>\n

\ub8e8\uc2e4 \ud328\ucee4\ub4dc \uc2a4\ud0e0\ud37c\ub4dc \uc5b4\ub9b0\uc774 \ubcd1\uc6d0 \ubb38\uc744 \uc5f4\uace0 \ub4e4\uc5b4\uc624\ub294 \ubaa8\ub4e0 \ubd80\ubaa8\ub2d8\ub4e4\uaed8: \uc138\uacc4\uc801\uc778 \uc218\uc900\uc758 \ubcd1\uc6d0\uc5d0 \ub4e4\uc5b4\uc11c\ub294 \uac83\uc774\uba70, \uc790\ub140\ub294 \ubcf4\uc0b4\ud54c\uc744 \ubc1b\uc744 \uac83\uc774\ub77c\ub294 \uc0ac\uc2e4\uc744 \uae30\uc5b5\ud558\uc2ed\uc2dc\uc624. \ubcd1\uc6d0\uc740 \uc790\ub140\uc758 \uc0c1\ud0dc\uc5d0 \ub300\ud574 \uc790\uc138\ud788 \uc54c\uc544\ubcf4\uace0 \ud63c\uc790\uac00 \uc544\ub2c8\ub77c\ub294 \uac83\uc744 \ud655\uc2e0\uc2dc\ucf1c \uc904 \uac83\uc785\ub2c8\ub2e4. \ubbf8\ub798\ub97c \uc774\ud574\ud558\ub294 \ub370 \ud544\uc694\ud55c \ubaa8\ub4e0 \uc790\ub8cc\ub97c \uc81c\uacf5\ud574 \uc904 \uac83\uc785\ub2c8\ub2e4. \uac00\uc871 \uad6c\uc131\uc6d0 \ubaa8\ub450\ub97c \ub3cc\ubd10\uc904 \uac83\uc785\ub2c8\ub2e4. \uadf8\ub9ac\uace0 \ub108<\/em>!  <\/p>\n

\ud328\ucee4\ub4dc \uc5b4\ub9b0\uc774\ubcd1\uc6d0\uc744 \ud6c4\uc6d0\ud574 \uc8fc\uc2dc\ub294 \uae30\ubd80\uc790 \uc5ec\ub7ec\ubd84\uaed8: \uc5ec\ub7ec\ubd84\uc758 \uae30\ubd80\uae08\uc740 \uc911\uc694\ud55c \uc5f0\uad6c\ub97c \uacc4\uc18d\ud560 \uc218 \uc788\ub3c4\ub85d \ud574\uc90d\ub2c8\ub2e4. \uc5ec\ub7ec\ubd84\uc758 \uae30\ubd80\uae08\uc740 \uc800\uc640 \uac19\uc740 \uac00\uc871\ub4e4\uc774 \uc544\uc774\ub4e4\uc744 \uc704\ud574 \ud544\uc218\uc801\uc778 \uc11c\ube44\uc2a4\ub97c \ubc1b\uc744 \uc218 \uc788\ub3c4\ub85d \ub3c4\uc640\uc90d\ub2c8\ub2e4. \uc5ec\ub7ec\ubd84\uc758 \uae30\ubd80\uae08\uc740 \uac00\uc871\ub4e4\uc5d0\uac8c \ud76c\ub9dd\uc744 \uc8fc\uace0, \ub9ce\uc740 \ud658\uc790\ub4e4\uc5d0\uac8c \uc0c8\ub85c\uc6b4 \uc0b6\uc758 \uae30\ud68c\ub97c \uc81c\uacf5\ud569\ub2c8\ub2e4! <\/p>\n

\ud328\ucee4\ub4dc \uc5b4\ub9b0\uc774 \ubcd1\uc6d0\uc740 \uc800\ud76c \uc0b6\uc744 \ubc14\uafd4\ub193\uc558\uc2b5\ub2c8\ub2e4. \uc140\ub808\uc2a4\ud2b8\uc640 \uc54c\ub809\uc2dc\uc544\ub294 \ub180\ub77c\uc6b4 \uac74\uac15 \uc0c1\ud0dc\ub97c \uc720\uc9c0\ud558\uace0 \uc788\uc73c\uba70, \uc62c\uc5ec\ub984 \ub2e4\uc12f \uc0b4\uc774 \ub429\ub2c8\ub2e4. \ub450 \uc544\uc774 \ubaa8\ub450 \ud328\ucee4\ub4dc \uc5b4\ub9b0\uc774 \ubcd1\uc6d0\uc758 \ud6cc\ub96d\ud55c \uc678\uacfc \uc804\ubb38\uc758\ub4e4\uc5d0\uac8c \uac1c\uc2ec\uc220\uc744 \ubc1b\uc558\uace0, \uc774\uc81c 22q \uacb0\uc190 \uc99d\ud6c4\uad70\uc744 \uac00\uc9c4 \uc544\uc774\ub4e4\uc758 \uc5b4\ub824\uc6c0\uc744 \uadf9\ubcf5\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4!<\/p>","protected":false},"excerpt":{"rendered":"

\ubaa8\ub4e0 \uac83\uc740 2011\ub144 4\uc6d4 5\uc77c, \uc0c8\ud06c\ub77c\uba58\ud1a0\uc5d0 \uc788\ub294 \uc18c\uc544 \uc2ec\uc7a5 \uc804\ubb38\uc758\ub97c \ub9cc\ub098 \ub2e4\ub978 \uc758\uc0ac\uc758 \uc18c\uacac\uc744 \ub4e4\uc73c\ub7ec \uac14\uc744 \ub54c\ubd80\ud130 \uc2dc\uc791\ub418\uc5c8\uc2b5\ub2c8\ub2e4. \uc784\uc2e0 23\uc8fc\ucc28\uc600\uc8e0\u2026<\/p>","protected":false},"author":17,"featured_media":3776,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[22],"class_list":["post-3775","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories","health_topic-moms-babies"],"acf":[],"yoast_head":"\nA Story of Survival - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/ko\/impact-stories\/a-story-of-survival\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"A Story of Survival\" \/>\n<meta property=\"og:description\" content=\"It all started on April 5, 2011 when we went to see a pediatric cardiologist in Sacramento to get a second opinion. 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