{"id":8642,"date":"2016-01-26T21:46:04","date_gmt":"2016-01-26T21:46:04","guid":{"rendered":"https:\/\/lpfch.org\/daniels-story\/"},"modified":"2024-01-31T23:36:34","modified_gmt":"2024-01-31T23:36:34","slug":"daniels-story","status":"publish","type":"post","link":"https:\/\/lpfch.org\/ko\/impact-stories\/daniels-story\/","title":{"rendered":"&quot;\uc2dc\ud55c\ud3ed\ud0c4\uacfc \uac19\uc544\uc694. \uc5b8\uc81c\ub4e0 \uc0c1\ud669\uc774 \uaf2c\uc77c \uc218 \uc788\ub2e4\ub294 \uac78 \uc54c\uba74\uc11c \uc77c\uc0c1\uc0dd\ud65c\uc744 \ud574\uc57c \ud558\ub2c8\uae4c\uc694.&quot;"},"content":{"rendered":"<h2>\uce98\ub9ac\ud3ec\ub2c8\uc544\uc8fc \uc628\ud0c0\ub9ac\uc624 \ucd9c\uc2e0\uc758 \ub2e4\ub2c8\uc5d8\uc744 \ub9cc\ub098\ubcf4\uc138\uc694.<\/h2>\n<p>\ub2e4\ub2c8\uc5d8\uc740 \uc2e0\uacbd\uc12c\uc720\uc885\uc99d\uc744 \uc553\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/01\/_df38246.jpg\" alt=\"Daniel Iniguez\" \/><\/p>\n<p>\uc624\uc804 5\uc2dc 30\ubd84, \ub9c8\ub204\uc5d8 \uc774\ub2c8\uac8c\uc2a4\ub294 \ub124 \uc790\ub140 \uc911 \ub9c9\ub0b4\uc778 \ub2e4\ub2c8\uc5d8\uc744 \uae68\uc6c1\ub2c8\ub2e4. &quot;\ub2e4\ub9ac\ub294 \uc5b4\ub54c?&quot; \ub9c8\ub204\uc5d8\uc774 \ubb3b\uc2b5\ub2c8\ub2e4. &quot;\uc544\uc774\ub4e4\uc774 \uae68\ub824\uace0 \ud558\uc9c0 \uc54a\uc558\uc5b4\uc694.&quot; \ub2e4\ub2c8\uc5d8\uc774 \ub300\ub2f5\ud569\ub2c8\ub2e4. \ucd5c\uadfc \uadf8\uc758 \uc885\uc544\ub9ac\uac00 \ubee3\ubee3\ud574\uc9c0\uae30 \uc2dc\uc791\ud574\uc11c 2\uce35 \uc9d1 \uacc4\ub2e8\uc744 \uc624\ub974\ub0b4\ub9ac\ub294 \uac83\uc774 \ud798\ub4e4\uc5b4\uc84c\uc2b5\ub2c8\ub2e4. \uadf8\ub294 \ub2e4\ub9ac \uc2a4\ud2b8\ub808\uce6d\uc744 \uc704\ud574 \ub2e4\ub9ac \ubcf4\uc870\uae30\ub97c \ucc29\uc6a9\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4. (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df38296.jpg\" alt=\"Daniel Iniguez\" \/><\/p>\n<p>\ub9c8\ub204\uc5d8\uc740 \uce98\ub9ac\ud3ec\ub2c8\uc544 \uc628\ud0c0\ub9ac\uc624\uc5d0 \uc788\ub294 \uc790\ud0dd\uc5d0\uc11c \ub2e4\ub2c8\uc5d8\uc5d0\uac8c \uc57d\uc744 \uc8fc\uace0 \uc788\uc2b5\ub2c8\ub2e4. \ub2e4\ub2c8\uc5d8\uc758 \uc2e0\uacbd\uc12c\uc720\uc885\uc99d\uc73c\ub85c \uc778\ud574 \ub1cc, \uc704, \ucc99\ucd94\uc5d0 \uc885\uc591\uc774 \uc0dd\uacbc\uc2b5\ub2c8\ub2e4. \uc885\uc591\uc740 \uc5b8\uc81c\ub4e0 \uc545\uc131\uc73c\ub85c \ubcc0\ud560 \uc218 \uc788\uae30 \ub54c\ubb38\uc5d0 \ub9c8\ub204\uc5d8\uacfc \uadf8\uc758 \uc544\ub0b4 \ub370\uc774\ub098(Dana)\ub294 \ub9e4\uc77c \ubc24 \ub2e4\ub2c8\uc5d8\uc758 \ubab8\uc5d0 \ud754\uc801\uc774\ub098 \ud639\uc774 \uc788\ub294\uc9c0 \ud655\uc778\ud569\ub2c8\ub2e4. \ub9c8\ub204\uc5d8\uc740 &quot;\uc2dc\ud55c\ud3ed\ud0c4\uacfc \uac19\uc544\uc694.&quot;\ub77c\uace0 \ub9d0\ud569\ub2c8\ub2e4. &quot;\uc5b8\uc81c\ub4e0 \uc77c\uc774 \uaf2c\uc77c \uc218 \uc788\ub2e4\ub294 \uac83\uc744 \uc54c\uba74\uc11c \uc77c\uc0c1\uc0dd\ud65c\uc744 \ud574\uc57c \ud558\ub2c8\uae4c\uc694.&quot; (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df38357.jpg\" alt=\"Daniel Iniguez\" \/><\/p>\n<p>\ub2e4\ub2c8\uc5d8\uc740 \ub9e4\uc77c \uc544\uce68 \ub124\ubdf8\ub77c\uc774\uc800\ub97c \uc0ac\uc6a9\ud574 \uc57d\uc744 \ud761\uc785\ud569\ub2c8\ub2e4. (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df38393.jpg\" alt=\"Daniel Iniguez\" \/><\/p>\n<p>\uc624\uc804 6\uc2dc 30\ubd84, \ub2e4\ub2c8\uc5d8\uc744 \ud559\uad50\ub85c \ub370\ub824\ub2e4\uc904 \ubc84\uc2a4\uac00 \ub3c4\ucc29\ud588\uc2b5\ub2c8\ub2e4. (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df38402.jpg\" alt=\"Daniel Iniguez\" \/><\/p>\n<p>\ub2e4\ub2c8\uc5d8\uc758 \uc5b4\uba38\ub2c8 \ub2e4\ub098\ub294 \ub2e4\ub2c8\uc5d8\uc758 \uc720\uc804 \uc9c8\ud658\uacfc \uc774\ub97c \uad00\ub9ac\ud558\ub294 \ub370 \ud544\uc694\ud55c \uce58\ub8cc\uc5d0 \ub300\ud574 \ub9ce\uc740 \uac83\uc744 \ubc30\uc6b0\uace0, \ub2e4\ub978 \uac00\uc871\ub4e4\ub3c4 \ub2f5\uc744 \ucc3e\uc744 \uc218 \uc788\ub3c4\ub85d \ub3d5\uae30 \uc704\ud574 \uc2e0\uacbd\uc12c\uc720\uc885\uc99d \uac00\uc871 \uc7ac\ub2e8\uc744 \uc124\ub9bd\ud588\uc2b5\ub2c8\ub2e4. (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df38502.jpg\" alt=\"Daniel Iniguez\" \/><\/p>\n<p>\ub2e4\ub2c8\uc5d8\uc740 \uce98\ub9ac\ud3ec\ub2c8\uc544\uc8fc \ubabd\ud074\ub808\uc5b4\uc5d0\uc11c \ud2b9\uc218\uad50\uc721\uc774 \ud544\uc694\ud55c \uc544\ub3d9\ub4e4\uc744 \uc704\ud55c \uc218\uc5c5\uc5d0 \ucc38\uc5ec\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uc624\ub298 \uc218\uc5c5\uc740 \ud3ad\uadc4\uc5d0 \uad00\ud55c \uac83\uc785\ub2c8\ub2e4. &quot;\uc810\uc2ec\uc2dc\uac04\uc5d0 \ud3ad\uadc4\uc5d0 \ub300\ud574 \ub354 \uc0dd\uac01\ud574 \ubcf8 \uc0ac\ub78c \uc788\ub098\uc694?&quot; \uc120\uc0dd\ub2d8\uc774 \ubb3b\uc2b5\ub2c8\ub2e4. &quot;\uc544\ub2c8\uc694, \uc810\uc2ec \uc0dd\uac01\ud558\ub290\ub77c \ub108\ubb34 \ubc14\ube74\uc5b4\uc694!&quot; \ub2e4\ub2c8\uc5d8\uc774 \ub18d\ub2f4\uc744 \ud569\ub2c8\ub2e4. (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df38510.jpg\" alt=\"Daniel Iniguez\" \/><\/p>\n<p>\ub2e4\ub098\ub294 \ub2e4\ub2c8\uc5d8\uc744 \ub370\ub9ac\ub7ec \ud559\uad50\uc5d0 \uc635\ub2c8\ub2e4. \ub2e4\ub2c8\uc5d8\uc758 \ubaa8\ub4e0 \uc9c4\ub8cc\ub294 \ud559\uad50\uc640 \uc9d1\uc5d0\uc11c 30\ubd84\uc5d0\uc11c 60\ubd84 \uac70\ub9ac\uc5d0 \uc788\uc2b5\ub2c8\ub2e4. \uadf8\ub9ac\uace0 3\uac1c\uc6d4\ub9c8\ub2e4 \ubd80\ubaa8\ub2d8\uacfc \ud568\uaed8 \ubbf8\uad6d \uad6d\ub9bd\ubcf4\uac74\uc6d0(NIH) \uc5f0\uad6c\uc5d0 \ucc38\uc5ec\ud558\uae30 \uc704\ud574 \uba54\ub9b4\ub79c\ub4dc\ub85c \uac11\ub2c8\ub2e4. (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df38560.jpg\" alt=\"Daniel Iniguez\" \/><\/p>\n<p>\uce98\ub9ac\ud3ec\ub2c8\uc544\uc8fc \uc0cc\ubc84\ub108\ub514\ub178\uc5d0\uc11c \uc9c4\ub8cc \uc608\uc57d\uc744 \uae30\ub2e4\ub9ac\ub294 \ub3d9\uc548, \ub2e4\ub098\ub294 \ub2e4\ub2c8\uc5d8\uc758 \uc11c\ub958 \uc791\uc5c5\uc744 \ud558\uace0 \ub9c8\ub204\uc5d8\uc740 \ub2e4\ub2c8\uc5d8\uc758 \uc219\uc81c\ub97c \ub3c4\uc640\uc90d\ub2c8\ub2e4. \ub2e4\ub098\uc640 \ub9c8\ub204\uc5d8\uc740 \ub2e4\ub2c8\uc5d8\uc758 \uac04\ubcd1\uc744 \uc704\ud574 \uc7ac\ud0dd\uadfc\ubb34\ub97c \ud569\ub2c8\ub2e4. \uc624\ub298 \uc9c4\ub8cc \uc608\uc57d\uc5d0 \ubd80\ubaa8\ub2d8\uc774 \ubaa8\ub450 \ucc38\uc11d\ud558\uc2e4 \uc218 \uc788\ub3c4\ub85d, \ub2e4\ub098\uc758 \uc5b4\uba38\ub2c8\ub294 \uc774\ub2c8\uac8c\uc988\uc758 \ub2e4\ub978 \uc138 \uc544\uc774\ub4e4\uc744 \ud559\uad50\uc5d0\uc11c \ub370\ub824\uc624\uae30\ub85c \ud588\uc2b5\ub2c8\ub2e4. (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df38608_crop.jpg\" alt=\"Daniel Iniguez\" \/><\/p>\n<p>\ub2e4\ub2c8\uc5d8\uc774 \uc0cc\ubc84\ub098\ub514\ub178\uc758 \ub85c\ub9c8\ub9b0\ub2e4 \uc885\uc591\ub0b4\uacfc \ubcd1\uc6d0\uc5d0\uc11c \uac04\ud638\uc0ac\uc640 \ud558\uc774\ud30c\uc774\ube0c\ub97c \ud558\uace0 \uc788\ub2e4. \uac04\ud638\uc0ac\ub294 \ub2e4\ub2c8\uc5d8\uc758 \ud3ec\ud2b8\ub97c \uc138\ucc99\ud588\ub294\ub370, \ud3ec\ud2b8\ub294 \ud56d\uc554 \uce58\ub8cc\uac00 \ud544\uc694\ud560 \uacbd\uc6b0\ub97c \ub300\ube44\ud574 \uadf8\uc758 \ubab8\uc5d0 \uc0bd\uc785\ub41c \uac83\uc774\ub2e4. \ud3ec\ud2b8\ub294 \ud53c\ubd80 \uc544\ub798\uc5d0 \uc0bd\uc785\ud558\ub294 \uc791\uc740 \uc7a5\uce58\ub85c, \uc57d\ubb3c\uc744 \uc8fc\uc785\ud558\uac70\ub098 \ucc44\ud608\ud558\ub294 \uc791\uc5c5\uc744 \ub354 \uc27d\uac8c \ud560 \uc218 \uc788\ub3c4\ub85d \ud574\uc900\ub2e4. (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<h2>\ub2e4\ub2c8\uc5d8\uc758 \ucf00\uc5b4 \ub9f5<\/h2>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/iniguez-care-map.jpg\" alt=\"\" \/><\/p>\n<p>\ub2e4\ub2c8\uc5d8\uc758 &quot;\ucf00\uc5b4 \ub9f5&quot;\uc740 \uc758\ub8cc\uc801 \ubcf5\uc7a1\uc131\uc744 \uc9c0\ub2cc \uc5b4\ub9b0\uc774\uc640 \uadf8 \uac00\uc871\uc5d0\uac8c \ud544\uc694\ud55c \uc758\ub8cc \uc11c\ube44\uc2a4\uc640 \ubcf4\uc7a5 \ubc94\uc704, \uad50\uc721 \ubc0f \uc9c0\uc6d0 \uc11c\ube44\uc2a4\uc758 \ubcf5\uc7a1\ud55c \uad6c\uc870\ub97c \ubcf4\uc5ec\uc90d\ub2c8\ub2e4.<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>\uce98\ub9ac\ud3ec\ub2c8\uc544 \uc628\ud0c0\ub9ac\uc624 \ucd9c\uc2e0 \ub2e4\ub2c8\uc5d8\uc744 \ub9cc\ub098\ubcf4\uc138\uc694. \ub2e4\ub2c8\uc5d8\uc740 \uc2e0\uacbd\uc12c\uc720\uc885\uc99d\uc744 \uc553\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uc624\uc804 5\uc2dc 30\ubd84, \ub9c8\ub204\uc5d8 \uc774\ub2c8\uac8c\uc2a4\ub294 \ub124 \uc790\ub140 \uc911 \ub9c9\ub0b4\uc778 \ub2e4\ub2c8\uc5d8\uc744 \uae68\uc6c1\ub2c8\ub2e4. &quot;\uc5b4\ub5bb\uac8c\u2026&quot;<\/p>","protected":false},"author":17,"featured_media":10607,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[20],"class_list":["post-8642","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-cyshcn-stories"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.3 (Yoast SEO v27.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>&quot;It\u2019s a ticking time bomb. We have to live our daily lives knowing that things could go haywire at any time.&quot; - Lucile Packard Foundation for Children&#039;s Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lpfch.org\/ko\/impact-stories\/daniels-story\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"&quot;It\u2019s a ticking time bomb. We have to live our daily lives knowing that things could go haywire at any time.&quot;\" \/>\n<meta property=\"og:description\" content=\"Meet Daniel from Ontario, CA. Daniel lives with neurofibromatosis. 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