{"id":8657,"date":"2016-03-14T19:13:05","date_gmt":"2016-03-14T19:13:05","guid":{"rendered":"https:\/\/lpfch.org\/stephen-and-edwards-story\/"},"modified":"2024-01-31T23:11:12","modified_gmt":"2024-01-31T23:11:12","slug":"stephen-and-edwards-story","status":"publish","type":"post","link":"https:\/\/lpfch.org\/ko\/impact-stories\/stephen-and-edwards-story\/","title":{"rendered":"&quot;\uc81c \uc544\ub4e4\ub4e4\uc740 \uc774\ubbf8 \uc601\ud5a5\uc744 \ubbf8\ucce4\uc2b5\ub2c8\ub2e4.&quot;"},"content":{"rendered":"<h2>\uce98\ub9ac\ud3ec\ub2c8\uc544\uc8fc \uc54c\ub77c\uba54\ub2e4 \uce74\uc6b4\ud2f0\uc758 \uc2a4\ud2f0\ube10\uacfc \uc5d0\ub4dc\uc6cc\ub4dc\ub97c \ub9cc\ub098\ubcf4\uc138\uc694.<\/h2>\n<p>\uc2a4\ud2f0\ube10\uacfc \uc5d0\ub4dc\uc6cc\ub4dc\ub294 \ud5cc\ud130 \uc99d\ud6c4\uad70\uc744 \uc553\uace0 \uc788\uc2b5\ub2c8\ub2e4.<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/01\/_df36365.jpg\" alt=\"Stephen and Edward\" \/><\/p>\n<p>\ubbf8\uad6d\uc5d0\ub294 \ud5cc\ud130 \uc99d\ud6c4\uad70\uc744 \uc553\uace0 \uc788\ub294 \uc544\uc774\ub4e4\uc774 200~300\uba85 \uc815\ub3c4 \uc788\uc73c\uba70, \uac70\uc758 \ubaa8\ub450 \ub0a8\uc790\uc544\uc774\uc785\ub2c8\ub2e4. \ud398\uc774 \uc655\uc740 \ub450 \uc544\uc774\uc758 \uc5c4\ub9c8\uc774\uba70, \ud604\uc7ac \uac01\uac01 5\uc0b4\uacfc 8\uc0b4\uc785\ub2c8\ub2e4. \uadf8\ub140\ub294 \uc544\uc774\ub4e4\uc758 \uc608\uc0c1 \uc218\uba85\uc740 10~20\ub144\uc774\ub77c\uace0 \ub9d0\ud569\ub2c8\ub2e4. \uc810\uc9c4\uc801\uc73c\ub85c \ud1f4\ud589\ud558\ub294 \uc774 \uc9c8\ud658\uc758 \ud55c \uac00\uc9c0 \uc99d\uc0c1\uc740 \uad00\uc808\uc774 \uad73\ub294 \uac83\uc785\ub2c8\ub2e4. \uc2a4\ud2f0\ube10\uc740 \uc774\ubbf8 \uc2a4\uc2a4\ub85c \uc637\uc744 \uc785\uc744 \uc218 \uc788\ub294 \ub2a5\ub825\uc744 \uc783\uc5c8\uc2b5\ub2c8\ub2e4. (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df36421.jpg\" alt=\"Stephen and Edward\" \/><\/p>\n<p>\ud5cc\ud130 \uc99d\ud6c4\uad70\uc744 \uc553\ub294 \uc18c\ub144\ub4e4\uc740 \uc2e0\uccb4\uc758 \ubaa8\ub4e0 \uc7a5\uae30\uc5d0 \uc601\ud5a5\uc744 \ubbf8\uce58\ub294 \ud575\uc2ec \ub300\uc0ac \ud6a8\uc18c\uac00 \uacb0\ud54d\ub418\uc5b4 \uc788\uc73c\uba70, \uc774\ub85c \uc778\ud574 \ub1cc \uae30\ub2a5\uc774 \uc810\uc9c4\uc801\uc73c\ub85c \uc800\ud558\ub429\ub2c8\ub2e4. \ud5cc\ud130 \uc99d\ud6c4\uad70\uc740 \uacfc\uc789\ud589\ub3d9\uacfc\ub3c4 \uad00\ub828\uc774 \uc788\uc2b5\ub2c8\ub2e4. (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df36472.jpg\" alt=\"Stephen and Edward\" \/><\/p>\n<p>\uc2a4\ud2f0\ube10\uacfc \uc5d0\ub4dc\uc6cc\ub4dc\uc758 \uc11c\ub958 \uc791\uc5c5\ub9cc \ud574\ub3c4 \ud398\uc774\uc758 \uc11c\ub958\ud568 \uc11c\ub78d \ud558\ub098\ub97c \ud1b5\uc9f8\ub85c \ucc28\uc9c0\ud569\ub2c8\ub2e4. \ub450 \uc544\uc774\ub294 \ud559\uad50\uc5d0\uc11c \ud2b9\ubcc4 \uc8fc\uac04\ubc18\uc5d0 \ub2e4\ub2c8\uba70 \uc815\uae30\uc801\uc73c\ub85c \uc791\uc5c5, \ubb3c\ub9ac, \uc5b8\uc5b4, \ud589\ub3d9 \uce58\ub8cc\ub97c \ubc1b\uc2b5\ub2c8\ub2e4. \ub610\ud55c \uac04, \ud3d0, \uc2ec\uc7a5, \ubf08, \uc2e0\uacbd, \ub208, \uccad\ub825 \ub4f1\uc758 \uae30\ub2a5\uc744 \ud655\uc778\ud558\uae30 \uc704\ud574 \uc815\uae30\uc801\uc73c\ub85c \uc5ec\ub7ec \uc804\ubb38\uc758\ub97c \ubc29\ubb38\ud569\ub2c8\ub2e4. (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df36482.jpg\" alt=\"Stephen and Edward\" \/><\/p>\n<p>\ud398\uc774\uc640 \uadf8\ub140\uc758 \ub0a8\ud3b8\uc740 \uc2a4\ud2f0\ube10\uacfc \uc5d0\ub4dc\uc6cc\ub4dc\uac00 \ucc28\ub3c4\ub85c \ub6f0\uc5b4\ub4dc\ub294 \uac83\uc744 \ub9c9\uae30 \uc704\ud574 \ud604\uad00\ubb38\uc5d0 \uc5ec\ub7ec \uac1c\uc758 \ub370\ub4dc\ubcfc\ud2b8\ub97c \uc124\uce58\ud574\uc57c \ud588\uc2b5\ub2c8\ub2e4. \ud398\uc774\ub294 \ub450 \uc544\ub4e4\uc774 \uc704\ud5d8\uc744 \uc804\ud600 \ub290\ub07c\uc9c0 \ubabb\ud55c\ub2e4\uace0 \uc124\uba85\ud569\ub2c8\ub2e4. (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df36611.jpg\" alt=\"Stephen and Edward\" \/><\/p>\n<p>\uc54c\ub77c\uba54\ub2e4 \uce74\uc6b4\ud2f0\uc5d0 \uc788\ub294 \uc9d1 \uadfc\ucc98\uc5d0\uc11c \uc138 \uc544\ub4e4 \uc911 \ub450 \uba85\uacfc \ud568\uaed8 \ucc0d\uc740 \uc0ac\uc9c4\uc785\ub2c8\ub2e4. \ud398\uc774\uc640 \ub0a8\ud3b8\uc5d0\uac8c\ub294 \uc14b\uc9f8 \uc544\ub4e4\uc774 \uc788\ub294\ub370, \uc544\ub4e4\uc740 \uc815\uc0c1\uc801\uc73c\ub85c \uc131\uc7a5\ud558\uace0 \uc788\uc2b5\ub2c8\ub2e4. (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df39589.jpg\" alt=\"Stephen and Edward\" \/><\/p>\n<p>\uce98\ub9ac\ud3ec\ub2c8\uc544 \uc624\ud074\ub79c\ub4dc\uc5d0\uc11c \uc2a4\ud2f0\ube10\uc774 \uce58\uacfc \uc608\uc57d \uc804\uc5d0 \uc6b8\uace0 \uc788\uc2b5\ub2c8\ub2e4. \uc9c4\ub8cc\uac00 \ub108\ubb34 \uc5b4\ub824\uc6cc\uc11c \ud398\uc774\ub294 \ub9c8\ucde8\ub098 \uc81c\uc555\uc744 \ud574 \uc904 \uce58\uacfc \uc758\uc0ac\ub97c \ucc3e\uc544\uc57c \ud569\ub2c8\ub2e4. \uc2ec\uc9c0\uc5b4 \uc2a4\ucf00\uc77c\ub9c1\uc774\ub098 \ucda9\uc804 \uac19\uc740 \uc77c\uc0c1\uc801\uc778 \uce58\uacfc \uce58\ub8cc\ub3c4 \ub9c8\ucc2c\uac00\uc9c0\uc785\ub2c8\ub2e4. \ud398\uc774\ub294 \ubcf4\ud1b5 \uc2a4\ud2f0\ube10\uc758 \uc9c4\ub8cc \uc608\uc57d\uc744 \ubc1b\uae30\uae4c\uc9c0 6\uac1c\uc6d4 \uc774\uc0c1 \uae30\ub2e4\ub824\uc57c \ud569\ub2c8\ub2e4. \uadf8 \uacb0\uacfc, \uc2a4\ud2f0\ube10\uc740 \uc774\ubbf8 \uc5ec\ub7ec \uac1c\uc758 \uce58\uc544\ub97c \ubc1c\uce58\ud588\uc2b5\ub2c8\ub2e4. (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df39632.jpg\" alt=\"Stephen and Edward\" \/><\/p>\n<p>\uc2a4\ud2f0\ube10\uacfc \uc5d0\ub4dc\uc6cc\ub4dc\ub294 \uc624\ud074\ub79c\ub4dc\uc5d0 \uc788\ub294 \uce74\uc774\uc800 \ud37c\uba38\ub10c\ud2b8 \ubcd1\uc6d0\uc5d0\uc11c \ub9e4\uc8fc \ud6a8\uc18c \ub300\uccb4 \uce58\ub8cc\ub97c \ubc1b\uc2b5\ub2c8\ub2e4. \uc774 \uce58\ub8cc\ub294 \uc9c8\ubcd1\uc758 \uc9c4\ud589\uc744 \ub2a6\ucd94\ub294 \ub370 \ub3c4\uc6c0\uc774 \ub418\uc9c0\ub9cc \uc644\uce58\ub294 \uc544\ub2d9\ub2c8\ub2e4. \ud398\uc774\uc640 \uadf8\ub140\uc758 \ub0a8\ud3b8\uc740 \ubaa8\ub450 \uc0dd\ubb3c\ud559 \ubc15\uc0ac \ud559\uc704\ub97c \uac00\uc9c0\uace0 \uc788\uc2b5\ub2c8\ub2e4. &quot;\ud5cc\ud130 \uc99d\ud6c4\uad70\uc758 \uc6d0\uc778\uc740 \uc0ac\uc2e4 \uaf64 \uac04\ub2e8\ud569\ub2c8\ub2e4. \ud558\uc9c0\ub9cc \ud76c\uadc0 \uc9c8\ud658\uc774\uae30 \ub54c\ubb38\uc5d0 \ub354 \ub098\uc740 \uce58\ub8cc\ubc95\uc744 \uac1c\ubc1c\ud558\ub824\ub294 \uc0c1\uc5c5\uc801 \uad00\uc2ec\uc740 \ud06c\uc9c0 \uc54a\uc2b5\ub2c8\ub2e4.&quot; (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df39660-2.jpg\" alt=\"Stephen and Edward\" \/><\/p>\n<p>\ud398\uc774\ub294 \uc624\ub79c \uc784\uc0c1 \ubcf4\uc870\uc778 \uba54\ub9ac \ubaa8\ub370\uc2a4\ud1a0(\ub9e8 \uc67c\ucabd)\uc758 \ub3c4\uc6c0\uc744 \ubc1b\uc544 \uc138 \uc2dc\uac04 \ub3d9\uc548 \uc9c4\ud589\ub418\ub294 \ud6a8\uc18c \ubcf4\ucda9 \uce58\ub8cc \ub3d9\uc548 \uc544\uc774\ub4e4\uc5d0\uac8c \ubc25\uc744 \uba39\uc774\uace0 \uc990\uac81\uac8c \ub180\uc544\uc90d\ub2c8\ub2e4. 4\ub144 \ub3d9\uc548 \ub9e4\uc8fc \uc774 \uc9c4\ub8cc\ub97c \ubc1b\uc73c\uba74\uc11c \uadf8\ub140\ub294 \ud6a8\uc18c \uc218\uce58\uc640 \uc544\ub4e4\ub4e4\uc758 \ud749\ubd80 \ud3ec\ud2b8(\ud53c\ud558 \uc8fc\uc0ac\ub098 \ucc44\ud608\uc744 \ub354 \uc27d\uac8c \ud560 \uc218 \uc788\ub3c4\ub85d \ud558\ub294 \uc791\uc740 \uc7a5\uce58)\ub97c \ud655\uc778\ud558\ub294 \ub370 \ub2a5\uc219\ud574\uc84c\uc2b5\ub2c8\ub2e4. \uadf8\ub140\ub294 \ubcd1\uc6d0\uae4c\uc9c0 \uac00\ub294 \ubc88\uac70\ub85c\uc6b4 \uc808\ucc28\ub97c \uc0dd\ub7b5\ud558\uace0 \uc9d1\uc5d0\uc11c\ub3c4 \uc774 \uce58\ub8cc\ub97c \ubc1b\uc744 \uc218 \uc788\uae30\ub97c \uafc8\uafc9\ub2c8\ub2e4. (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df39780-2.jpg\" alt=\"Stephen and Edward\" \/><\/p>\n<p>\ud398\uc774\ub294 \ub458\uc9f8 \uc544\ub4e4 \uc5d0\ub4dc\uc6cc\ub4dc\uc5d0\uac8c \uc785\uc744 \ub9de\ucda5\ub2c8\ub2e4. &quot;\uc5b4\uca4c\uba74 \ub2f9\uc2e0\uc774 \ub9cc\ub4dc\ub294 \uc601\ud5a5\uc774 \uad81\uadf9\uc801\uc73c\ub85c \uc0b6\uc758 \uc758\ubbf8\uc77c\uc9c0\ub3c4 \ubab0\ub77c\uc694.&quot; \uc544\ub4e4\ub4e4\uacfc \ub2e4\ub978 \ud2b9\uc218\uc544\ub3d9\ub4e4\uc744 \uc704\ud574 \ud5cc\uc2e0\ud558\ub294 \ud398\uc774\ub294 \ub9d0\ud569\ub2c8\ub2e4. &quot;\uadf8\ub807\uac8c \uc0dd\uac01\ud558\uba74 \uc778\uc0dd\uc774 \uc9e7\ub4e0 \uae38\ub4e0 \uc0c1\uad00\uc5c6\uc5b4\uc694. \uc81c \uc544\ub4e4\ub4e4\uc740 \uc774\ubbf8 \uc601\ud5a5\uc744 \ubbf8\ucce4\uc73c\ub2c8\uae4c\uc694.&quot; (\uc0ac\uc9c4: \ub514\uc564 \ud53c\uce20\ubaa8\ub9ac\uc2a4)<\/p>\n<p>&nbsp;<\/p>\n<h2>\uc2a4\ud2f0\ube10\uacfc \uc5d0\ub4dc\uc6cc\ub4dc\uc758 \ucf00\uc5b4 \ub9f5<\/h2>\n<p><img decoding=\"async\" src=\"\/wp-content\/uploads\/wpallimport\/files\/_df39753_crop.jpg\" alt=\"\" \/><\/p>\n<p>\uc2a4\ud2f0\ube10\uacfc \uc5d0\ub4dc\uc6cc\ub4dc\uc758 &quot;\ucf00\uc5b4 \ub9f5&quot;\uc740 \uc758\ub8cc\uc801 \ubcf5\uc7a1\uc131\uc744 \uc9c0\ub2cc \uc5b4\ub9b0\uc774\uc640 \uadf8 \uac00\uc871\uc5d0\uac8c \ud544\uc694\ud55c \uc758\ub8cc \uc11c\ube44\uc2a4\uc640 \ubcf4\uc7a5 \ubc94\uc704, \uad50\uc721 \ubc0f \uc9c0\uc6d0 \uc11c\ube44\uc2a4\uc758 \ubcf5\uc7a1\ud55c \uad6c\uc870\ub97c \ubcf4\uc5ec\uc90d\ub2c8\ub2e4.<\/p>","protected":false},"excerpt":{"rendered":"<p>\uce98\ub9ac\ud3ec\ub2c8\uc544\uc8fc \uc54c\ub77c\uba54\ub2e4 \uce74\uc6b4\ud2f0\uc5d0 \uc0ac\ub294 \uc2a4\ud2f0\ube10\uacfc \uc5d0\ub4dc\uc6cc\ub4dc\ub97c \ub9cc\ub098\ubcf4\uc138\uc694. \uc2a4\ud2f0\ube10\uacfc \uc5d0\ub4dc\uc6cc\ub4dc\ub294 \ud5cc\ud130 \uc99d\ud6c4\uad70\uc744 \uc553\uace0 \uc788\uc2b5\ub2c8\ub2e4. \ud5cc\ud130 \uc99d\ud6c4\uad70\uc744 \uc553\uace0 \uc788\ub294 \uc544\uc774\ub4e4\uc740 200~300\uba85 \uc815\ub3c4\uc774\uba70, \uac70\uc758 \ubaa8\ub450 \ub0a8\uc790\uc544\uc774\ub4e4\uc785\ub2c8\ub2e4.<\/p>","protected":false},"author":17,"featured_media":10569,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[20],"class_list":["post-8657","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-cyshcn-stories"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>&quot;My boys have already made an impact.&quot; - Lucile Packard Foundation for Children&#039;s Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/ko\/impact-stories\/stephen-and-edwards-story\/\" \/>\n<meta property=\"og:locale\" content=\"ko_KR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"&quot;My boys have already made an impact.&quot;\" \/>\n<meta property=\"og:description\" content=\"Meet Stephen and Edward from Alameda County, CA. Stephen and Edward live with Hunter syndrome. 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