{"id":21149,"date":"2025-05-22T22:29:16","date_gmt":"2025-05-22T22:29:16","guid":{"rendered":"https:\/\/lpfch.org\/?p=21149"},"modified":"2025-05-22T22:31:50","modified_gmt":"2025-05-22T22:31:50","slug":"two-families-with-one-goal-find-bpan-treatments","status":"publish","type":"post","link":"https:\/\/lpfch.org\/ru\/impact-stories\/two-families-with-one-goal-find-bpan-treatments\/","title":{"rendered":"\u0414\u0432\u0435 \u0441\u0435\u043c\u044c\u0438 \u0441 \u043e\u0434\u043d\u043e\u0439 \u0446\u0435\u043b\u044c\u044e: \u043d\u0430\u0439\u0442\u0438 \u043b\u0435\u0447\u0435\u043d\u0438\u0435 BPAN"},"content":{"rendered":"<p><span data-contrast=\"auto\">\u0427\u0435\u0442\u044b\u0440\u0435\u0445\u043b\u0435\u0442\u043d\u044f\u044f \u0417\u043e\u0438 \u043e\u0431\u043e\u0436\u0430\u0435\u0442 \u0433\u043e\u043b\u043e\u0432\u043e\u043b\u043e\u043c\u043a\u0438, \u043a\u0430\u0442\u0430\u043d\u0438\u0435 \u043d\u0430 \u0432\u0435\u043b\u043e\u0441\u0438\u043f\u0435\u0434\u0435 \u0438 \u043c\u0443\u043b\u044c\u0442\u0444\u0438\u043b\u044c\u043c\u044b \u0414\u0438\u0441\u043d\u0435\u044f. <\/span><i><span data-contrast=\"auto\">\u0417\u0430\u043c\u043e\u0440\u043e\u0436\u0435\u043d\u043d\u044b\u0439<\/span><\/i><span data-contrast=\"auto\">, \u0430 11-\u043b\u0435\u0442\u043d\u044f\u044f \u0418\u0437\u0430\u0431\u0435\u043b\u044c \u043e\u0431\u043e\u0436\u0430\u0435\u0442 \u0432\u0435\u0440\u0445\u043e\u0432\u0443\u044e \u0435\u0437\u0434\u0443, \u041c\u0438\u043d\u043d\u0438 \u041c\u0430\u0443\u0441 \u0438 \u0441\u0432\u043e\u0438\u0445 \u043c\u043b\u0430\u0434\u0448\u0438\u0445 \u0431\u0440\u0430\u0442\u0430 \u0438 \u0441\u0435\u0441\u0442\u0440\u0443. \u0425\u043e\u0442\u044f \u0417\u043e\u0438 \u0438 \u0418\u0437\u0430\u0431\u0435\u043b\u044c \u0438\u0437 \u0440\u0430\u0437\u043d\u044b\u0445 \u0441\u0435\u043c\u0435\u0439, \u0438\u0445 \u043e\u0431\u044a\u0435\u0434\u0438\u043d\u044f\u0435\u0442 \u043d\u0435 \u0442\u043e\u043b\u044c\u043a\u043e \u044f\u0440\u043a\u0438\u0439 \u0438 \u0440\u0435\u0448\u0438\u0442\u0435\u043b\u044c\u043d\u044b\u0439 \u0445\u0430\u0440\u0430\u043a\u0442\u0435\u0440.<\/span><span data-contrast=\"auto\">\u041e\u043d\u0438 \u043e\u0431\u0430 \u0431\u043e\u0440\u044e\u0442\u0441\u044f \u0441 \u043d\u0435\u0439\u0440\u043e\u0434\u0435\u0433\u0435\u043d\u0435\u0440\u0430\u0446\u0438\u0435\u0439, \u0441\u0432\u044f\u0437\u0430\u043d\u043d\u043e\u0439 \u0441 \u0431\u0435\u0442\u0430-\u043f\u0440\u043e\u043f\u0435\u043b\u043b\u0435\u0440\u043d\u044b\u043c \u0431\u0435\u043b\u043a\u043e\u043c (BPAN), \u0440\u0435\u0434\u043a\u0438\u043c \u0438 \u043f\u0440\u043e\u0433\u0440\u0435\u0441\u0441\u0438\u0440\u0443\u044e\u0449\u0438\u043c \u043d\u0435\u0439\u0440\u043e\u0434\u0435\u0433\u0435\u043d\u0435\u0440\u0430\u0442\u0438\u0432\u043d\u044b\u043c \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0435\u043c.<\/span><span data-ccp-props=\"{&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u0421\u043e \u0432\u0440\u0435\u043c\u0435\u043d\u0435\u043c \u0434\u0435\u0442\u0438 \u0441 \u0411\u041f\u0410\u041d \u043f\u043e\u0441\u0442\u0435\u043f\u0435\u043d\u043d\u043e \u0442\u0435\u0440\u044f\u044e\u0442 \u043d\u0430\u0432\u044b\u043a\u0438, \u043a\u043e\u0442\u043e\u0440\u044b\u0435 \u043e\u043d\u0438 \u0442\u0430\u043a \u0443\u043f\u043e\u0440\u043d\u043e \u0440\u0430\u0437\u0432\u0438\u0432\u0430\u043b\u0438, \u0440\u0430\u0437\u0432\u0438\u0432\u0430\u044f \u0434\u0438\u0441\u0442\u043e\u043d\u0438\u044e, \u043f\u0430\u0440\u043a\u0438\u043d\u0441\u043e\u043d\u0438\u0437\u043c \u0438 \u0434\u0435\u043c\u0435\u043d\u0446\u0438\u044e. \u041e\u0431\u0435 \u0441\u0435\u043c\u044c\u0438 \u0431\u044b\u043b\u0438 \u043f\u043e\u043b\u043d\u044b \u0440\u0435\u0448\u0438\u043c\u043e\u0441\u0442\u0438 \u043d\u0430\u0439\u0442\u0438 \u043e\u0442\u0432\u0435\u0442\u044b \u0438 \u043f\u0443\u0442\u044c \u043a \u0432\u044b\u0437\u0434\u043e\u0440\u043e\u0432\u043b\u0435\u043d\u0438\u044e \u043f\u043e\u0441\u043b\u0435 \u0442\u043e\u0433\u043e, \u043a\u0430\u043a \u0438\u0445 \u0434\u043e\u0447\u0435\u0440\u0438 \u043f\u043e\u043b\u0443\u0447\u0438\u043b\u0438 \u0434\u0438\u0430\u0433\u043d\u043e\u0437.<\/span><span data-ccp-props=\"{&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u00ab\u041c\u044b \u0443\u0437\u043d\u0430\u043b\u0438, \u0447\u0442\u043e, \u043f\u043e\u0441\u043a\u043e\u043b\u044c\u043a\u0443 BPAN \u0432\u0441\u0442\u0440\u0435\u0447\u0430\u0435\u0442\u0441\u044f \u0440\u0435\u0434\u043a\u043e, \u043e\u043d \u0441\u0447\u0438\u0442\u0430\u0435\u0442\u0441\u044f \u201e\u043e\u0440\u0444\u0430\u043d\u043d\u044b\u043c \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0435\u043c\u201c\u00bb, \u2014 \u0433\u043e\u0432\u043e\u0440\u044f\u0442 \u0440\u043e\u0434\u0438\u0442\u0435\u043b\u0438 \u0418\u0437\u0430\u0431\u0435\u043b\u044c, \u041a\u044d\u0442\u0440\u0438\u043d \u0438 \u0420\u043e\u0431\u0435\u0440\u0442. \u00ab\u041c\u0430\u043b\u043e \u043a\u0442\u043e \u0438\u0437 \u0432\u0440\u0430\u0447\u0435\u0439 \u0432\u043e\u043e\u0431\u0449\u0435 \u0437\u043d\u0430\u043b \u043e\u0431 \u044d\u0442\u043e\u043c, \u0438 \u043f\u0440\u0430\u043a\u0442\u0438\u0447\u0435\u0441\u043a\u0438 \u043d\u0435 \u043f\u0440\u043e\u0432\u043e\u0434\u0438\u043b\u043e\u0441\u044c \u0438\u0441\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u043d\u0438\u0439 \u043f\u043e \u0440\u0430\u0437\u0440\u0430\u0431\u043e\u0442\u043a\u0435 \u043c\u0435\u0442\u043e\u0434\u043e\u0432 \u043b\u0435\u0447\u0435\u043d\u0438\u044f\u00bb.<\/span><span data-ccp-props=\"{&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u0412 \u043e\u0442\u0432\u0435\u0442 \u043d\u0430 \u044d\u0442\u043e \u043f\u0430\u0440\u0430 \u043e\u0441\u043d\u043e\u0432\u0430\u043b\u0430 \u043d\u0435\u043a\u043e\u043c\u043c\u0435\u0440\u0447\u0435\u0441\u043a\u0443\u044e \u043e\u0440\u0433\u0430\u043d\u0438\u0437\u0430\u0446\u0438\u044e Isabel&#039;s Chance, \u0446\u0435\u043b\u044c\u044e \u043a\u043e\u0442\u043e\u0440\u043e\u0439 \u044f\u0432\u043b\u044f\u0435\u0442\u0441\u044f \u0441\u0431\u043e\u0440 \u0441\u0440\u0435\u0434\u0441\u0442\u0432 \u043d\u0430 \u0438\u0441\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u043d\u0438\u044f BPAN.<\/span><span data-ccp-props=\"{&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u0420\u043e\u0434\u0438\u0442\u0435\u043b\u0438 \u0417\u043e\u0438, \u0428\u0435\u0440\u0440\u0438 \u0438 \u041f\u0438\u0442\u0435\u0440, \u0442\u0430\u043a\u0436\u0435 \u0431\u044b\u043b\u0438 \u043f\u043e\u043b\u043d\u044b \u0440\u0435\u0448\u0438\u043c\u043e\u0441\u0442\u0438 \u0434\u0435\u0439\u0441\u0442\u0432\u043e\u0432\u0430\u0442\u044c. \u041e\u043d\u0438 \u043e\u0431\u0440\u0430\u0442\u0438\u043b\u0438\u0441\u044c \u043a \u0414\u0436\u0443\u043b\u044c\u0435\u0442 \u041d\u043e\u0443\u043b\u0437, \u0434\u043e\u043a\u0442\u043e\u0440\u0443 \u043c\u0435\u0434\u0438\u0446\u0438\u043d\u044b \u0438 \u0444\u0438\u043b\u043e\u0441\u043e\u0444\u0438\u0438, \u0443\u0447\u0451\u043d\u043e\u043c\u0443-\u043c\u0435\u0434\u0438\u043a\u0443 \u0438\u0437 \u0421\u0442\u044d\u043d\u0444\u043e\u0440\u0434\u0430, \u043a\u043e\u0442\u043e\u0440\u0430\u044f \u0443\u0445\u0430\u0436\u0438\u0432\u0430\u043b\u0430 \u0437\u0430 \u0417\u043e\u0438. \u00ab\u041c\u044b \u043d\u0435 \u0441\u043e\u0431\u0438\u0440\u0430\u043b\u0438\u0441\u044c \u043c\u0438\u0440\u0438\u0442\u044c\u0441\u044f \u0441 \u0442\u0435\u043c, \u0447\u0442\u043e \u043b\u0435\u0447\u0435\u043d\u0438\u044f \u043d\u0435 \u0441\u0443\u0449\u0435\u0441\u0442\u0432\u0443\u0435\u0442\u00bb, \u2014 \u0433\u043e\u0432\u043e\u0440\u044f\u0442 \u043e\u043d\u0438. \u00ab\u041a \u0441\u0447\u0430\u0441\u0442\u044c\u044e, \u0434\u043e\u043a\u0442\u043e\u0440 \u041d\u043e\u0443\u043b\u0437 \u0440\u0430\u0437\u0434\u0435\u043b\u044f\u043b\u0430 \u043d\u0430\u0448\u0443 \u0440\u0435\u0448\u0438\u043c\u043e\u0441\u0442\u044c \u0438 \u0441\u0442\u0440\u0435\u043c\u043b\u0435\u043d\u0438\u0435 \u043d\u0430\u0439\u0442\u0438 \u0440\u0435\u0448\u0435\u043d\u0438\u0435\u00bb.<\/span><span data-ccp-props=\"{&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u041a \u0428\u0435\u0440\u0440\u0438 \u0438 \u041f\u0438\u0442\u0435\u0440\u0443 \u043f\u0440\u0438\u0441\u043e\u0435\u0434\u0438\u043d\u0438\u043b\u0430\u0441\u044c \u043a\u043e\u043c\u043f\u0430\u043d\u0438\u044f Isabel&#039;s Chance, \u0441\u0434\u0435\u043b\u0430\u0432 \u0437\u043d\u0430\u0447\u0438\u0442\u0435\u043b\u044c\u043d\u043e\u0435 \u043f\u043e\u0436\u0435\u0440\u0442\u0432\u043e\u0432\u0430\u043d\u0438\u0435, \u0447\u0442\u043e\u0431\u044b \u043d\u0430\u0447\u0430\u0442\u044c \u0440\u0430\u0431\u043e\u0442\u0443 \u041d\u043e\u0443\u043b\u0437\u0430 \u043f\u043e \u0431\u043e\u0440\u044c\u0431\u0435 \u0441 BPAN. \u041d\u043e\u0443\u043b\u0437 \u0441\u043e\u0431\u0440\u0430\u043b \u043a\u043e\u043c\u0430\u043d\u0434\u0443 \u0438\u0441\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u0442\u0435\u043b\u0435\u0439 \u043c\u0438\u0440\u043e\u0432\u043e\u0433\u043e \u0443\u0440\u043e\u0432\u043d\u044f \u0434\u043b\u044f \u0438\u0437\u0443\u0447\u0435\u043d\u0438\u044f BPAN \u043d\u0430 \u043a\u043b\u0435\u0442\u043a\u0430\u0445 \u0447\u0435\u043b\u043e\u0432\u0435\u043a\u0430 \u0438 \u0436\u0438\u0432\u043e\u0442\u043d\u044b\u0445 \u043c\u043e\u0434\u0435\u043b\u044f\u0445, \u0440\u0430\u0437\u0440\u0430\u0431\u043e\u0442\u0430\u0432 \u043f\u0435\u0440\u0432\u044b\u0439 \u0432 \u0441\u0432\u043e\u0435\u043c \u0440\u043e\u0434\u0435 \u043f\u043b\u0430\u043d \u043f\u043e \u0432\u044b\u044f\u0432\u043b\u0435\u043d\u0438\u044e <\/span><span data-contrast=\"auto\">\u043f\u043e\u0442\u0435\u043d\u0446\u0438\u0430\u043b\u044c\u043d\u044b\u0435 \u043c\u0435\u0442\u043e\u0434\u044b \u043b\u0435\u0447\u0435\u043d\u0438\u044f, \u043a\u043e\u0442\u043e\u0440\u044b\u0435 \u043c\u043e\u0436\u043d\u043e \u0431\u044b\u0441\u0442\u0440\u043e \u043f\u0435\u0440\u0435\u0432\u0435\u0441\u0442\u0438 \u043d\u0430 \u0441\u0442\u0430\u0434\u0438\u044e \u043a\u043b\u0438\u043d\u0438\u0447\u0435\u0441\u043a\u0438\u0445 \u0438\u0441\u043f\u044b\u0442\u0430\u043d\u0438\u0439.<\/span><span data-ccp-props=\"{&quot;134233118&quot;:false,&quot;201341983&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:240}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">\u041f\u043e\u043c\u0438\u043c\u043e \u043f\u043e\u0434\u0434\u0435\u0440\u0436\u043a\u0438 \u043d\u043e\u0432\u0430\u0442\u043e\u0440\u0441\u043a\u043e\u0433\u043e \u0438\u0441\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u043d\u0438\u044f \u041d\u043e\u0443\u043b\u0437 \u0432 \u043e\u0431\u043b\u0430\u0441\u0442\u0438 BPAN, \u0441\u0435\u043c\u044c\u0438 \u0417\u043e\u0438 \u0438 \u0418\u0437\u0430\u0431\u0435\u043b\u044c \u0441\u0442\u0430\u043b\u0438 \u043d\u0435\u0443\u0442\u043e\u043c\u0438\u043c\u044b\u043c\u0438 \u0430\u043a\u0442\u0438\u0432\u0438\u0441\u0442\u0430\u043c\u0438, \u0434\u0435\u043b\u044f\u0441\u044c \u0441\u0432\u043e\u0438\u043c\u0438 \u0438\u0441\u0442\u043e\u0440\u0438\u044f\u043c\u0438 \u0438 \u0440\u0435\u0437\u0443\u043b\u044c\u0442\u0430\u0442\u0430\u043c\u0438 \u044d\u0442\u043e\u0439 \u0432\u0430\u0436\u043d\u043e\u0439 \u0440\u0430\u0431\u043e\u0442\u044b \u0441\u043e \u0441\u0432\u043e\u0438\u043c\u0438 \u0437\u043d\u0430\u043a\u043e\u043c\u044b\u043c\u0438. \u0421\u043f\u0430\u0441\u0438\u0431\u043e, \u0428\u0435\u0440\u0440\u0438, \u041f\u0438\u0442\u0435\u0440, \u041a\u044d\u0442\u0440\u0438\u043d \u0438 \u0420\u043e\u0431\u0435\u0440\u0442! \u0412\u0430\u0448\u0430 \u043f\u0440\u0435\u0434\u0430\u043d\u043d\u043e\u0441\u0442\u044c \u0434\u0435\u043b\u0443 \u0443\u0441\u043a\u043e\u0440\u044f\u0435\u0442 \u043f\u0440\u043e\u0433\u0440\u0435\u0441\u0441 \u0432 \u043f\u043e\u0438\u0441\u043a\u0435 \u043f\u043e\u0442\u0435\u043d\u0446\u0438\u0430\u043b\u044c\u043d\u044b\u0445 \u043c\u0435\u0442\u043e\u0434\u043e\u0432 \u043b\u0435\u0447\u0435\u043d\u0438\u044f BPAN \u0438 \u0434\u0430\u0451\u0442 \u043d\u0430\u0434\u0435\u0436\u0434\u0443 \u0442\u0430\u043a\u0438\u043c \u0441\u0435\u043c\u044c\u044f\u043c, \u043a\u0430\u043a \u0432\u0430\u0448\u0430.<\/span><span 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