{"id":21390,"date":"2025-06-23T18:30:19","date_gmt":"2025-06-23T18:30:19","guid":{"rendered":"https:\/\/lpfch.org\/?p=21390"},"modified":"2025-07-15T23:19:55","modified_gmt":"2025-07-15T23:19:55","slug":"donor-support-advances-new-treatment-for-eb-a-rare-and-painful-skin-disease","status":"publish","type":"post","link":"https:\/\/lpfch.org\/ru\/impact-stories\/donor-support-advances-new-treatment-for-eb-a-rare-and-painful-skin-disease\/","title":{"rendered":"\u041f\u043e\u0434\u0434\u0435\u0440\u0436\u043a\u0430 \u0434\u043e\u043d\u043e\u0440\u043e\u0432 \u0441\u043f\u043e\u0441\u043e\u0431\u0441\u0442\u0432\u0443\u0435\u0442 \u0440\u0430\u0437\u0440\u0430\u0431\u043e\u0442\u043a\u0435 \u043d\u043e\u0432\u043e\u0433\u043e \u043c\u0435\u0442\u043e\u0434\u0430 \u043b\u0435\u0447\u0435\u043d\u0438\u044f \u0411\u042d \u2014 \u0440\u0435\u0434\u043a\u043e\u0433\u043e \u0438 \u0431\u043e\u043b\u0435\u0437\u043d\u0435\u043d\u043d\u043e\u0433\u043e \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u044f \u043a\u043e\u0436\u0438"},"content":{"rendered":"

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\n \u041d\u0430\u0448\u0435 \u0441\u043e\u043e\u0431\u0449\u0435\u0441\u0442\u0432\u043e \u0434\u043e\u043d\u043e\u0440\u043e\u0432 \u0434\u0435\u043b\u0430\u0435\u0442 \u043f\u043e\u0434\u043e\u0431\u043d\u044b\u0435 \u043f\u0440\u043e\u0440\u044b\u0432\u044b \u0432\u043e\u0437\u043c\u043e\u0436\u043d\u044b\u043c\u0438. \u0421\u0442\u0438\u043c\u0443\u043b\u0438\u0440\u0443\u0439\u0442\u0435 \u0440\u0430\u0437\u0432\u0438\u0442\u0438\u0435 \u0438\u043d\u043d\u043e\u0432\u0430\u0446\u0438\u0439 \u0432 \u043e\u0431\u043b\u0430\u0441\u0442\u0438 \u0434\u0435\u0442\u0441\u043a\u043e\u0433\u043e \u0437\u0434\u043e\u0440\u043e\u0432\u044c\u044f.\n <\/p>\n \n

\n \n \u041f\u043e\u0436\u0435\u0440\u0442\u0432\u043e\u0432\u0430\u0442\u044c \u0441\u0435\u0439\u0447\u0430\u0441\n \n <\/a>\n \n <\/div>\n <\/div>\n\n <\/div>\n <\/div>\n<\/section>\n\n

\u0412 \u0421\u0428\u0410 \u0411\u042d \u0441\u0442\u0440\u0430\u0434\u0430\u044e\u0442 \u0434\u043e 5000 \u0447\u0435\u043b\u043e\u0432\u0435\u043a, \u0431\u043e\u043b\u044c\u0448\u0438\u043d\u0441\u0442\u0432\u043e \u0438\u0437 \u043a\u043e\u0442\u043e\u0440\u044b\u0445 \u2013 \u0434\u0435\u0442\u0438 \u0438\u0437-\u0437\u0430 \u0441\u043e\u043a\u0440\u0430\u0449\u0435\u043d\u0438\u044f \u043f\u0440\u043e\u0434\u043e\u043b\u0436\u0438\u0442\u0435\u043b\u044c\u043d\u043e\u0441\u0442\u0438 \u0436\u0438\u0437\u043d\u0438, \u0441\u0432\u044f\u0437\u0430\u043d\u043d\u043e\u0433\u043e \u0441 \u044d\u0442\u0438\u043c \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0435\u043c. \u0417\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0435 \u0432\u044b\u0437\u0432\u0430\u043d\u043e \u0434\u0435\u0444\u0435\u043a\u0442\u043e\u043c \u0433\u0435\u043d\u0430 \u043a\u043e\u043b\u043b\u0430\u0433\u0435\u043d\u0430 VII, \u043d\u0435\u0437\u0430\u043c\u0435\u043d\u0438\u043c\u043e\u0433\u043e \u0431\u0435\u043b\u043a\u0430, \u043a\u043e\u0442\u043e\u0440\u044b\u0439 \u0441\u0432\u044f\u0437\u044b\u0432\u0430\u0435\u0442 \u0432\u0435\u0440\u0445\u043d\u0438\u0435 \u0438 \u043d\u0438\u0436\u043d\u0438\u0435 \u0441\u043b\u043e\u0438 \u043a\u043e\u0436\u0438. \u0423 \u043f\u0430\u0446\u0438\u0435\u043d\u0442\u043e\u0432 \u0441 \u0442\u044f\u0436\u0451\u043b\u043e\u0439 \u0444\u043e\u0440\u043c\u043e\u0439 \u0411\u042d \u043a\u043e\u0436\u0430 \u043d\u0430\u0441\u0442\u043e\u043b\u044c\u043a\u043e \u0447\u0443\u0432\u0441\u0442\u0432\u0438\u0442\u0435\u043b\u044c\u043d\u0430, \u0447\u0442\u043e \u043c\u0430\u043b\u0435\u0439\u0448\u0435\u0435 \u043f\u0440\u0438\u043a\u043e\u0441\u043d\u043e\u0432\u0435\u043d\u0438\u0435 \u043c\u043e\u0436\u0435\u0442 \u043f\u0440\u0438\u0432\u0435\u0441\u0442\u0438 \u043a \u043e\u0431\u0440\u0430\u0437\u043e\u0432\u0430\u043d\u0438\u044e \u0432\u043e\u043b\u0434\u044b\u0440\u0435\u0439 \u0438, \u0432 \u043a\u043e\u043d\u0435\u0447\u043d\u043e\u043c \u0438\u0442\u043e\u0433\u0435, \u043a \u043e\u0431\u0448\u0438\u0440\u043d\u044b\u043c \u043e\u0442\u043a\u0440\u044b\u0442\u044b\u043c \u0440\u0430\u043d\u0430\u043c, \u043a\u043e\u0442\u043e\u0440\u044b\u0435 \u043d\u0435 \u0437\u0430\u0436\u0438\u0432\u0430\u044e\u0442 \u0438 \u043f\u0440\u0438\u0447\u0438\u043d\u044f\u044e\u0442 \u0441\u0438\u043b\u044c\u043d\u0443\u044e \u0431\u043e\u043b\u044c.\u00a0<\/span>\u00a0<\/span><\/p>\n

\u0414\u0432\u0430\u0434\u0446\u0430\u0442\u0438\u043b\u0435\u0442\u043d\u044f\u044f \u0428\u0430\u0440\u043b\u043e\u0442\u0442\u0430 \u0411\u0440\u0430\u0443\u043d \u0438\u0437 \u0411\u0438\u0440\u043c\u0438\u043d\u0433\u0435\u043c\u0430, \u0448\u0442\u0430\u0442 \u0410\u043b\u0430\u0431\u0430\u043c\u0430, \u0438\u0441\u043f\u044b\u0442\u044b\u0432\u0430\u0435\u0442 \u0433\u043e\u0440\u0430\u0437\u0434\u043e \u043c\u0435\u043d\u044c\u0448\u0435 \u0431\u043e\u043b\u0438 \u043e\u0442 \u0411\u042d, \u0447\u0435\u043c \u0434\u043e \u0435\u0451 \u0443\u0447\u0430\u0441\u0442\u0438\u044f \u0432 \u0438\u0441\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u043d\u0438\u0438 \u0442\u0440\u0435\u0442\u044c\u0435\u0439 \u0444\u0430\u0437\u044b \u0432 2021 \u0433\u043e\u0434\u0443. \u0413\u0435\u043d\u0435\u0442\u0438\u0447\u0435\u0441\u043a\u0438 \u043c\u043e\u0434\u0438\u0444\u0438\u0446\u0438\u0440\u043e\u0432\u0430\u043d\u043d\u044b\u0435 \u0442\u0440\u0430\u043d\u0441\u043f\u043b\u0430\u043d\u0442\u0430\u0442\u044b, \u043f\u043e\u043b\u0443\u0447\u0435\u043d\u043d\u044b\u0435 \u0432 \u0445\u043e\u0434\u0435 \u0438\u0441\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u043d\u0438\u044f, \u0437\u043d\u0430\u0447\u0438\u0442\u0435\u043b\u044c\u043d\u043e \u0441\u043d\u0438\u0437\u0438\u043b\u0438 \u0442\u044f\u0436\u0435\u0441\u0442\u044c \u043d\u0435\u0441\u043a\u043e\u043b\u044c\u043a\u0438\u0445 \u0445\u0440\u043e\u043d\u0438\u0447\u0435\u0441\u043a\u0438\u0445 \u0440\u0430\u043d. \u041e\u043d\u0430 \u0434\u0430\u0436\u0435 \u0441\u043c\u043e\u0433\u043b\u0430 \u0441\u043e\u0445\u0440\u0430\u043d\u0438\u0442\u044c \u043b\u044e\u0431\u0438\u043c\u0443\u044e \u0440\u0430\u0431\u043e\u0442\u0443 \u2014 \u0444\u0430\u0440\u043c\u0430\u0446\u0435\u0432\u0442\u0430.\u00a0<\/span>\u00a0<\/span><\/p>\n

\u00ab\u042d\u0442\u043e, \u0447\u0435\u0441\u0442\u043d\u043e \u0433\u043e\u0432\u043e\u0440\u044f, \u043c\u0435\u043d\u044f\u0435\u0442 \u043c\u043e\u044e \u0436\u0438\u0437\u043d\u044c\u00bb, \u2014 \u0433\u043e\u0432\u043e\u0440\u0438\u0442 \u0411\u0440\u0430\u0443\u043d. \u00ab\u042f \u0447\u0443\u0432\u0441\u0442\u0432\u0443\u044e \u0441\u0435\u0431\u044f \u043d\u0430\u043c\u043d\u043e\u0433\u043e \u043b\u0443\u0447\u0448\u0435\u00bb.<\/span>\u00a0<\/span><\/p>\n

\u0411\u0440\u0430\u0443\u043d \u2014 \u043e\u0434\u0438\u043d \u0438\u0437 11 \u0443\u0447\u0430\u0441\u0442\u043d\u0438\u043a\u043e\u0432 \u0438\u0441\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u043d\u0438\u044f, \u0431\u043e\u043b\u044c\u0448\u0438\u043d\u0441\u0442\u0432\u043e \u0438\u0437 \u043a\u043e\u0442\u043e\u0440\u044b\u0445 \u043f\u043e\u043b\u0443\u0447\u0438\u043b\u0438 \u043b\u0438\u0441\u0442\u044b \u0433\u0435\u043d\u043d\u043e\u0439 \u0442\u0435\u0440\u0430\u043f\u0438\u0438 \u043d\u0430 \u043d\u0435\u0441\u043a\u043e\u043b\u044c\u043a\u0438\u0445 \u0443\u0447\u0430\u0441\u0442\u043a\u0430\u0445 \u043a\u043e\u0436\u0438.<\/span>\u00a0<\/span><\/p>\n

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\u041f\u0435\u0440\u0435\u043d\u0435\u0441\u0451\u043c\u0441\u044f \u0432 2017 \u0433\u043e\u0434, \u043a\u043e\u0433\u0434\u0430 \u0431\u044b\u043b \u043e\u0441\u043d\u043e\u0432\u0430\u043d \u0426\u0435\u043d\u0442\u0440 \u043f\u043e \u043a\u043e\u043d\u0442\u0440\u043e\u043b\u044e \u0438 \u043f\u0440\u043e\u0444\u0438\u043b\u0430\u043a\u0442\u0438\u043a\u0435 \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0439 (CDCM) \u0441 \u043c\u0438\u0441\u0441\u0438\u0435\u0439 \u043f\u0435\u0440\u0435\u043d\u043e\u0441\u0430 \u043e\u0442\u043a\u0440\u044b\u0442\u0438\u0439 \u0438\u0437 \u043b\u0430\u0431\u043e\u0440\u0430\u0442\u043e\u0440\u0438\u0438 \u0432 \u0441\u0442\u0430\u0446\u0438\u043e\u043d\u0430\u0440. \u0422\u0430\u043d, \u0438\u0441\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u0442\u0435\u043b\u044c \u0438\u0437 CDCM, \u043d\u0430\u0447\u0430\u043b\u0430 \u0441\u0432\u043e\u0451 \u043a\u043b\u0438\u043d\u0438\u0447\u0435\u0441\u043a\u043e\u0435 \u0438\u0441\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u043d\u0438\u0435 \u0442\u0440\u0435\u0442\u044c\u0435\u0439 \u0444\u0430\u0437\u044b \u043d\u0435\u0441\u043a\u043e\u043b\u044c\u043a\u043e \u043b\u0435\u0442 \u0441\u043f\u0443\u0441\u0442\u044f. \u041a\u043e\u0436\u043d\u044b\u0435 \u0442\u0440\u0430\u043d\u0441\u043f\u043b\u0430\u043d\u0442\u0430\u0442\u044b\u2026<\/span>\u041f\u0435\u0440\u0432\u044b\u0439 \u043e\u0434\u043e\u0431\u0440\u0435\u043d\u043d\u044b\u0439 FDA \u043f\u0440\u043e\u0434\u0443\u043a\u0442, \u0432\u044b\u043f\u0443\u0449\u0435\u043d\u043d\u044b\u0439 CDCM, \u0441\u0442\u0430\u043b \u0432\u0430\u0436\u043d\u043e\u0439 \u0432\u0435\u0445\u043e\u0439 \u0434\u043b\u044f \u0443\u0447\u0440\u0435\u0436\u0434\u0435\u043d\u0438\u044f.<\/span>\u00a0<\/span><\/p>\n

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\u00ab\u041b\u044e\u0431\u043e\u0439 \u0443\u0441\u043f\u0435\u0445, \u043b\u044e\u0431\u043e\u0435 \u043b\u0435\u0447\u0435\u043d\u0438\u0435, \u043b\u044e\u0431\u043e\u0435 \u0438\u0437\u043b\u0435\u0447\u0435\u043d\u0438\u0435 \u0411\u042d \u043e\u0442\u043a\u0440\u043e\u0435\u0442 \u043d\u043e\u0432\u044b\u0435 \u0432\u043e\u0437\u043c\u043e\u0436\u043d\u043e\u0441\u0442\u0438 \u0434\u043b\u044f \u043b\u0435\u0447\u0435\u043d\u0438\u044f \u0434\u0440\u0443\u0433\u0438\u0445 \u0441\u043b\u043e\u0436\u043d\u044b\u0445 \u0433\u0435\u043d\u0435\u0442\u0438\u0447\u0435\u0441\u043a\u0438\u0445 \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0439\u00bb, \u2014 \u0433\u043e\u0432\u043e\u0440\u0438\u0442 \u0422\u0430\u043d. \u00ab\u0411\u042d \u0441\u0442\u0430\u043d\u0435\u0442 \u043b\u0438\u0434\u0435\u0440\u043e\u043c \u0432 \u043e\u0431\u043b\u0430\u0441\u0442\u0438 \u0433\u0435\u043d\u043d\u043e\u0439 \u0442\u0435\u0440\u0430\u043f\u0438\u0438!\u00bb\u00a0<\/span>\u00a0<\/span><\/p>\n

\u0411\u043b\u0430\u0433\u043e\u0442\u0432\u043e\u0440\u0438\u0442\u0435\u043b\u044c\u043d\u043e\u0441\u0442\u044c \u0441\u044b\u0433\u0440\u0430\u043b\u0430 \u0440\u0435\u0448\u0430\u044e\u0449\u0443\u044e \u0440\u043e\u043b\u044c \u043d\u0430 \u043f\u0440\u043e\u0442\u044f\u0436\u0435\u043d\u0438\u0438 \u0432\u0441\u0435\u0433\u043e \u044d\u0442\u043e\u0433\u043e \u043f\u0443\u0442\u0438. \u041f\u043e\u0434\u0434\u0435\u0440\u0436\u043a\u0430 \u0434\u043e\u043d\u043e\u0440\u043e\u0432 \u0441\u044b\u0433\u0440\u0430\u043b\u0430 \u043a\u043b\u044e\u0447\u0435\u0432\u0443\u044e \u0440\u043e\u043b\u044c \u0432 \u0437\u0430\u043f\u0443\u0441\u043a\u0435 \u043f\u0435\u0440\u0432\u043e\u0439 \u0444\u0430\u0437\u044b \u043a\u043b\u0438\u043d\u0438\u0447\u0435\u0441\u043a\u043e\u0433\u043e \u0438\u0441\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u043d\u0438\u044f, \u043a\u043e\u0442\u043e\u0440\u043e\u0435 \u043f\u043e\u043a\u0430\u0437\u0430\u043b\u043e \u043f\u0435\u0440\u0432\u043e\u043d\u0430\u0447\u0430\u043b\u044c\u043d\u044b\u0435 \u0440\u0435\u0437\u0443\u043b\u044c\u0442\u0430\u0442\u044b \u0438 \u043f\u043e\u043c\u043e\u0433\u043b\u043e \u043f\u0440\u0438\u0432\u043b\u0435\u0447\u044c \u043a\u0440\u0443\u043f\u043d\u044b\u0445 \u0438\u043d\u0432\u0435\u0441\u0442\u043e\u0440\u043e\u0432, \u0432\u043a\u043b\u044e\u0447\u0430\u044f Abeona Therapeutics, \u0424\u043e\u043d\u0434 \u043c\u0435\u0434\u0438\u0446\u0438\u043d\u0441\u043a\u0438\u0445 \u0438\u0441\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u043d\u0438\u0439 \u0431\u0443\u043b\u043b\u0435\u0437\u043d\u043e\u0433\u043e \u044d\u043f\u0438\u0434\u0435\u0440\u043c\u043e\u043b\u0438\u0437\u0430 \u0438 \u0418\u0441\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u0442\u0435\u043b\u044c\u0441\u043a\u043e\u0435 \u043f\u0430\u0440\u0442\u043d\u0435\u0440\u0441\u0442\u0432\u043e \u043f\u043e \u0431\u0443\u043b\u043b\u0435\u0437\u043d\u043e\u043c\u0443 \u044d\u043f\u0438\u0434\u0435\u0440\u043c\u043e\u043b\u0438\u0437\u0443. \u0420\u0430\u0437\u0432\u0438\u0432\u0430\u044f \u044d\u0442\u043e\u0442 \u0438\u043c\u043f\u0443\u043b\u044c\u0441, \u0441\u0435\u043c\u044c\u044f \u0444\u0438\u043b\u0430\u043d\u0442\u0440\u043e\u043f\u0430 \u0411\u043e\u0443\u044d\u044f \u041b\u0438 \u043d\u0435\u0434\u0430\u0432\u043d\u043e \u0441\u0434\u0435\u043b\u0430\u043b\u0430 \u0437\u043d\u0430\u0447\u0438\u0442\u0435\u043b\u044c\u043d\u043e\u0435 \u043f\u043e\u0436\u0435\u0440\u0442\u0432\u043e\u0432\u0430\u043d\u0438\u0435 \u0432 \u0435\u0433\u043e \u0447\u0435\u0441\u0442\u044c.<\/span>\u043f\u0435\u0440\u0441\u043f\u0435\u043a\u0442\u0438\u0432\u043d\u044b\u0435 \u0438\u0441\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u043d\u0438\u044f \u043f\u043e \u0411\u042d \u0438 \u0440\u0435\u0434\u043a\u0438\u043c \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u044f\u043c.\u00a0\u00a0<\/span>\u00a0<\/span><\/p>\n

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