{"id":15500,"date":"2018-03-09T19:14:20","date_gmt":"2018-03-09T19:14:20","guid":{"rendered":"https:\/\/lpfch.org\/meet-koen-your-2018-patient-hero-for-the-childrens-fund\/"},"modified":"2024-10-24T22:45:53","modified_gmt":"2024-10-24T22:45:53","slug":"meet-koen-your-2018-patient-hero-for-the-childrens-fund","status":"publish","type":"post","link":"https:\/\/lpfch.org\/tl\/impact-stories\/meet-koen-your-2018-patient-hero-for-the-childrens-fund\/","title":{"rendered":"Kilalanin si Koen, ang iyong 2018 Patient Hero para sa Children's Fund"},"content":{"rendered":"

 <\/p>\n

Si Koen (kaliwa) kasama ang kanyang nakababatang kapatid na si Kody sa Summer Scamper noong nakaraang taon.<\/p>\n

Tinawag ng pamilya Gilliam ang Summer Scamper na \u201cLahi ni Koen.\u201d Pinahahalagahan nila ang kaganapan bilang isang taunang milestone na nagmamarka kung gaano kalayo ang kanilang minamahal na Little Dude.<\/p>\n

Ipinanganak na may depressed heart rate na nagdudulot ng pinsala sa kanyang utak, si Koen ay isinugod sa aming ospital sa loob ng isang oras ng kanyang kapanganakan upang makakuha ng access sa life-saving technology, cutting-edge research, at expert care na kailangan niya. Ginugol niya ang unang buwan ng kanyang buhay sa aming neonatal intensive care unit at intermediate nursery.<\/p>\n

Hindi kaagad siya nahawakan ng mga magulang ni Koen na sina Nickole at Ryan, ngunit araw-araw ay hinihikayat sila ng mga nars na makibahagi at alagaan ang maliliit na Koen.<\/p>\n

\u201cTinigurado nila na parang mga magulang pa rin kami sa pamamagitan ng pagpayag sa amin na magpalit ng diaper, maghugas ng mukha, at magpakain sa kanya ng kaunting patak ng gatas,\u201d naaalala ni Nickole. "Mula sa simula, ang mga doktor at nars ay nagbigay sa amin ng dahilan upang umasa. Patuloy kaming nabubuhay sa pamamagitan ng payo na aming natanggap mula sa kanyang neurologist na nagsabing ang mga utak ay maaaring gumawa ng mga kamangha-manghang bagay kapag ang mga bata ay bata pa, kaya huwag maglagay ng anumang mga limitasyon sa kung ano ang posible."<\/p>\n

Unti-unting bumuti ang kalusugan ni Koen at nakauwi na siya kasama ang kanyang mga magulang. Nagpapatuloy ang kanyang medikal na paglalakbay, at tumatanggap siya ng patuloy na pangangalaga mula sa aming radiology, neurology, ophthalmology, at orthopedic team.<\/p>\n

Ang iyong suporta sa Children's Fund ay nangangahulugan na ang mga pasyenteng tulad ni Koen ay nakikinabang sa pinakamahusay na pangangalaga at nakapagliligtas-buhay na pananaliksik na magagamit. Lahat ng kontribusyon, kahit anong laki, ay may pagkakaiba. Matuto pa tungkol sa Children's Fund dito<\/a>.<\/p>\n

Ngayon ay isang napaka-abala na 5-taong-gulang, gustung-gusto ni Koen na sumakay sa kanyang paboritong pony, si Buster, at lumangoy anumang pagkakataon na makuha niya. Siya ay isang napakagandang kapatid na lalaki sa 3-taong-gulang na si Kody at siya rin ay talagang sa pagbuo ng mga circuit. "At si Koen ay dalawang beses ding naging ring bearer at ipinagmamalaki iyon!" sabi ni Nickole.<\/p>\n

Ang fan club ni Koen ay sumasaklaw sa malayo at malawak, at taun-taon ang mga miyembro ng pamilya sa labas ng bayan ay sumusuporta sa paglahok ni Koen sa Summer Scamper kids' fun run sa pamamagitan ng pagiging aktibo saanman sila naroroon at pagtakbo "kasama" niya. "Karaniwan kaming may mga taong nakikipagsapalaran sa amin mula sa hindi bababa sa 10 lungsod sa buong North America," dagdag ni Nickole.<\/p>\n

Salamat sa pagsuporta sa Summer Scamper at sa Children's Fund, na ginagawang magagamit ang mahahalagang pananaliksik, mga programa sa komunidad, at pangangalagang nakasentro sa pamilya sa mga bata tulad ni Koen.<\/p>\n

Si Koen ay #WhyWeScamper.<\/p>\n

Magrehistro ngayon para sa ika-8 taunang Summer Scamper<\/a>\u00a0sa Linggo, Hunyo 24, 2018, at suportahan ang pangangalaga, kaginhawahan, at pagpapagaling para sa higit pang mga bata tulad ni Koen.<\/p>","protected":false},"excerpt":{"rendered":"

  Si Koen (kaliwa) kasama ang kanyang nakababatang kapatid na si Kody sa Summer Scamper noong nakaraang taon. Tinawag ng pamilya Gilliam ang Summer Scamper na \u201cLahi ni Koen.\u201d Pinahahalagahan nila ang kaganapan ...<\/p>","protected":false},"author":17,"featured_media":15501,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[23],"class_list":["post-15500","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-summer-scamper-heroes"],"acf":[],"yoast_head":"\nMeet Koen, your 2018 Patient Hero for the Children's Fund - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/tl\/impact-stories\/meet-koen-your-2018-patient-hero-for-the-childrens-fund\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Meet Koen, your 2018 Patient Hero for the Children's Fund\" \/>\n<meta property=\"og:description\" content=\"  Koen (left) with his little brother Kody at last year’s Summer Scamper. 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