{"id":3639,"date":"2015-02-25T17:05:04","date_gmt":"2015-02-25T17:05:04","guid":{"rendered":"https:\/\/lpfch.org\/diabetes-one-familys-fight-for-normal\/"},"modified":"2024-02-14T14:06:57","modified_gmt":"2024-02-14T14:06:57","slug":"diabetes-one-familys-fight-for-normal","status":"publish","type":"post","link":"https:\/\/lpfch.org\/tl\/impact-stories\/diabetes-one-familys-fight-for-normal\/","title":{"rendered":"Diabetes: Paglaban ng Isang Pamilya para sa \u201cNormal\u201d"},"content":{"rendered":"

Si Tierra Bergh, isang abalang ina ng limang anak, ay malinaw pa ring naaalala ang sandaling ito siyam na taon na ang nakalilipas: \u201cNagising si Maleki, tumingin sa akin, at tinanong kung bakit kami nasa ospital.\u201d<\/p>\n

Ang kanyang anak na si Maleki, na noon ay 3 taong gulang, ay dumating sa Lucile Packard Children's Hospital Stanford nang umagang iyon noong Marso 2006 na halos walang malay. Dahil sa mabilis na pagtugon ni Darrell Wilson, MD, pinuno ng pediatric endocrinology at propesor ng endocrinology sa Stanford University School of Medicine, sinimulan ni Maleki ang paggamot para sa type 1 diabetes. Biglang natagpuan nina Tierra at ng kanyang asawang si Michael ang kanilang mga sarili sa isang bagong mundo ng mga tusok sa daliri at mga iniksiyon ng insulin.<\/p>\n

Gumugol si Maleki at ang kanyang pamilya ng limang araw sa ospital, kung saan nalaman din nila ang tungkol sa isang bagong pagsusuri para sa mga antibody na makakatulong na mahulaan kung magkakaroon ng type 1 diabetes ang isang bata.<\/p>\n

May limang porsyentong posibilidad na magkaroon din ng sakit ang isa sa mga kapatid ni Maleki. Sa kabila ng posibilidad, nalaman ng mga Bergh na ang kapatid ni Maleki na si Marae ay may dala rin ng mga antibody.<\/p>\n

Habang natututo ang pamilya na pangalagaan si Maleki at umayon sa kanilang bagong "normal," buong pasasalamat silang umasa kay Wilson at sa kanyang kasamahan, si Bruce Buckingham, MD, propesor ng pediatric endocrinology, para sa patuloy na payo at suporta.<\/p>\n

Noong 2010, sabi ni Tierra, ang pamilya ay nasa isang kasal nang mapansin niya na madalas mag-banyo si Marae at uhaw na uhaw. Ginamit ni Tierra ang sugar meter ng kanyang anak at nakita niya na ang antas ng glucose sa dugo ni Marae ay nasa 403 \u2014 halos doble ng threshold para sa diabetes.<\/p>\n

\"\"<\/p>\n

"Ginawa ko ang ginagawa ng karamihan sa mga ina \u2014 umiyak nang isang minuto \u2014 at pagkatapos ay tinawagan ko si Dr. Buckingham," paggunita ni Tierra.<\/p>\n

Pinasasalamatan ng mga Bergh ang pangkat sa aming ospital sa pagtulong sa kanilang pamilya hindi lamang upang mabuhay, kundi upang umunlad din, kahit na ang isa pang bata, ang 6 na taong gulang na si Jaeda, ay nagpositibo rin sa mga antibody. <\/p>\n

\u201cPalagi kaming may dalang lunch box na puno ng mga suplay para sa diabetes at pagkain para sa mga kaso ng mababang blood sugar,\u201d sabi ni Tierra. \u201cNasanay na ang mga bata na suriin ang kanilang blood sugar nang 15 beses sa isang araw at iniiniksyonan ang kanilang sarili ng insulin nang anim na beses sa isang araw, kahit sa pampublikong lugar. Likas na sa kanila iyon ngayon.\u201d<\/p>\n

Sa kasalukuyan, ang 12-taong-gulang na si Maleki ay nagpi-pitch at naglalaro ng shortstop para sa isang naglalakbay na koponan ng baseball, at nagsilbi bilang youth ambassador para sa American Diabetes Association. <\/p>\n

Si Marae, na ngayon ay 9 na taong gulang, ay umibig sa pagsakay sa kabayo. "Napaka-therapeutic nito para sa kanya," sabi ni Tierra. <\/p>\n

Ang pamilya ay nakatuon sa pagtulong sa paghahanap ng lunas para sa diabetes. Kamakailan ay dumalo sina Maleki at Marae sa isang espesyal na summer camp kung saan sila lumahok sa isang pag-aaral na pinangunahan ni Buckingham. Ang mga camper \u2014 na pawang mga batang may diabetes \u2014 ay nilagyan ng mga tuloy-tuloy na glucose meter na nagpapahintulot sa mga medical staff at mananaliksik na subaybayan ang bawat bata nang malayuan at pag-aralan ang bisa ng isang automated insulin system. <\/p>\n

At kahit lumipat ang pamilyang Bergh sa Idaho noong nakaraang taon, patuloy pa rin silang nakikilahok sa mga pag-aaral sa Stanford, at bumabalik sa Bay Area para sa mga pagsusuri at pag-scan. <\/p>\n

\u201cNakakagawa ng mga kamangha-manghang bagay ang mga doktor na ito,\u201d sabi ni Tierra. \u201cUmaasa lang ako na balang araw ay magkakaroon ng lunas.\u201d<\/p>\n

Kredito ng larawan: Heather Walker ng Heather Walker Photography heatherwalkerphotography.blogspot.com<\/a><\/em><\/p>\n

Ang artikulong ito ay unang lumabas sa Spring 2015 na isyu ng Update sa Pondo ng mga Bata<\/a>.<\/em><\/p>","protected":false},"excerpt":{"rendered":"

Si Tierra Bergh, isang abalang ina ng limang anak, ay malinaw na naaalala pa rin ang sandaling ito mula sa siyam na taon na ang nakalilipas: "Nagising si Maleki, tumingin sa akin, at nagtanong kung bakit ...<\/p>","protected":false},"author":17,"featured_media":10483,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148,22],"class_list":["post-3639","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news","category-patient-stories"],"acf":[],"yoast_head":"\nDiabetes: One Family’s Fight for “Normal” - 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