{"id":3924,"date":"2018-01-08T19:04:01","date_gmt":"2018-01-08T19:04:01","guid":{"rendered":"https:\/\/lpfch.org\/alexandras-quinceaera-giving-back-on-a-birthday\/"},"modified":"2024-02-14T14:07:44","modified_gmt":"2024-02-14T14:07:44","slug":"alexandras-quinceaera-giving-back-on-a-birthday","status":"publish","type":"post","link":"https:\/\/lpfch.org\/tl\/impact-stories\/alexandras-quinceaera-giving-back-on-a-birthday\/","title":{"rendered":"Alexandra&#039;s Quincea\u00f1era: Pagbabalik sa Kaarawan"},"content":{"rendered":"<p>10 araw pa lang si Alexandra nang ma-diagnose siya na may ornithine transcarbamylase (OTC) deficiency, isang bihirang sakit na, sa kanyang kaso, ay malulunasan lamang sa pamamagitan ng liver transplant. Ang mga doktor sa Lucile Packard Children&#039;s Hospital Stanford ay nakipagtulungan nang malapit sa pamilya ni Alexandra upang tumulong na pamahalaan ang kanyang kondisyon hanggang sa maisagawa nila ang kanyang liver transplant surgery noong si Alexandra ay 4 na taong gulang. Simula noon, umunlad si Alexandra.&nbsp;<\/p>\n<p>Noong nakaraang taon, sa kanyang quincea\u00f1era, o 15th birthday celebration, nagsagawa si Alexandra ng fundraising event para suportahan ang aming ospital. Bilang kapalit ng mga regalo sa kanyang espesyal na araw, hiniling ni Alexandra ang mga kaibigan at pamilya na mag-donate sa pondo ng mga serbisyong panlipunan ng aming ospital.&nbsp;<\/p>\n<p>Nagtaas si Alexandra ng $2,255 upang tulungan ang aming pangkat ng mga serbisyong panlipunan sa kanilang mga pagsisikap na suportahan ang mga pamilya habang ang kanilang mga anak ay tumatanggap ng pangangalaga sa aming ospital. Ang mga serbisyong panlipunan ay gumagamit ng mga donasyon tulad ng kay Alexandra upang mag-alok ng tulong sa transportasyon at upang bumili ng mga grocery at gas na gift card para sa mga pamilya ng pasyente.<\/p>\n<p>&quot;Ang mga regalo mula sa aming mapagbigay na mga donor tulad ni Alexandra ay tumutulong sa aming mga pamilya na ilipat ang kanilang pagtuon mula sa pag-aalala tungkol sa mga praktikal na pangangailangan sa pagtulong sa kanilang anak na gumaling,&quot; pagbabahagi ni Denise Alloway, LCSW, isang klinikal na social worker na sumusuporta sa mga pasyente ng liver at intestinal transplant sa aming ospital.<\/p>\n<p>\u201cNa-inspire akong magbigay muli sa Packard Children dahil binigyan ako ng higit pa sa naiisip ko,\u201d sabi ni Alexandra. &quot;May nagmagandang loob na nagbigay sa akin ng aking atay, nang walang natatanggap na kapalit. Kung hindi dahil sa kanila, malamang na hindi ako nabubuhay ngayon.&quot;<\/p>\n<p>Ngayon, si Alexandra ay isang malusog, masayang estudyante sa high school. Gustung-gusto niyang gumugol ng oras kasama ang kanyang mga kaibigan, nakikipaglaro sa kanyang dalawang aso (Kira at Murray), lumangoy, skiing, paglalakbay, at pagkanta.&nbsp;<\/p>\n<p>\u201cMagaling si Alexandra\u2014walang salita ang tunay na makapagsasabi kung gaano siya kahusay,\u201d pagbabahagi ng ama ni Alexandra.&nbsp;<\/p>\n<p>&quot;Ang kanyang kalusugan ay malakas at matatag. Alam niya kung sino siya, at komportable siya kung sino siya,&quot; dagdag ng kanyang ina.<\/p>\n<p>Salamat, Alexandra, sa pagsuporta sa aming mga pasyente sa iyong espesyal na araw!&nbsp;<\/p>\n<p><em>Mayroon ka bang ideya para sa isang fundraiser? Simulan ang iyong 2018 nang tama at maging isang <a href=\"http:\/\/championslpch.org\/\">Kampeon para sa mga Bata<\/a>.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>Si Alexandra ay 10 araw pa lamang nang siya ay masuri na may ornithine transcarbamylase (OTC) deficiency, isang bihirang sakit na, sa kanyang kaso, ay maaari lamang\u2026<\/p>","protected":false},"author":17,"featured_media":3925,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[22],"class_list":["post-3924","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - 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