{"id":4282,"date":"2022-06-23T05:54:58","date_gmt":"2022-06-23T05:54:58","guid":{"rendered":"https:\/\/lpfch.org\/new-heart-new-start-ten-years-after-her-double-transplant-amanda-sechrest-is-living-life-to-the-fullest\/"},"modified":"2024-02-22T17:25:49","modified_gmt":"2024-02-22T17:25:49","slug":"new-heart-new-start-ten-years-after-her-double-transplant-amanda-sechrest-is-living-life-to-the-fullest","status":"publish","type":"post","link":"https:\/\/lpfch.org\/tl\/impact-stories\/new-heart-new-start-ten-years-after-her-double-transplant-amanda-sechrest-is-living-life-to-the-fullest\/","title":{"rendered":"Bagong Puso, Bagong Simula: Sampung taon pagkatapos ng kanyang double transplant, si Amanda Sechrest ay nabubuhay nang lubos."},"content":{"rendered":"

Humiga si Amanda Sechrest sa kanyang kama, pagod na pagod pagkatapos ng gabing pag-aaral para sa finals sa Saint Mary's College of California. Para sa ilang kadahilanan, sa partikular na gabing ito noong Mayo 2012, naramdaman ng unang taon na estudyante na panatilihing naka-on ang ringer ng kanyang telepono, sa halip na i-on ito ng tahimik.<\/p>\n

Nang gabing iyon ay nakatanggap siya ng tawag mula sa Lucile Packard Children's Hospital Stanford na magliligtas sa kanyang buhay. Isang donor na puso at atay ang magagamit para sa transplant na lubhang kailangan niya.<\/p>\n

"Natahimik ako," sabi niya tungkol sa sandaling iyon, 10 taon na ang nakakaraan. \u201cSabi nila, 'Pumunta sa Packard Children's nang mabilis hangga't maaari.'\u201d<\/p>\n

Ipinanganak si Amanda na may isang pusong ventricle, sa halip na dalawa. Ang isang uri ng open-heart surgery na tinatawag na Fontan procedure ay nagpahaba ng kanyang buhay ng dalawang dekada, ngunit ngayon ang cardiac failure at nauugnay na liver dysfunction ay naglagay sa kanya sa listahan ng paghihintay ng transplant.<\/p>\n

Ang pagtitistis ng heart-liver transplant ay isang masalimuot, walong hanggang 12-oras na pamamaraan na nangangailangan ng kahanga-hangang kadalubhasaan sa pag-opera at tumpak na koreograpia sa pagitan ng mga pangkat ng atay at puso, na gumagana nang sabay.<\/p>\n

"Sinisikap ng pangkat ng atay na tiyakin na ang atay ay gumagana nang maayos, at sinisikap naming tiyakin na ang puso ay gumagana nang maayos, kaya kailangan naming makahanap ng mga tamang punto ng balanse," sabi ng cardiologist na si David Rosenthal, MD, na naging mahalagang miyembro ng pangkat ng pangangalaga ni Amanda sa halos buong buhay niya.<\/p>\n

Dahil ang mga transplant ng puso-atay ay napakasalimuot, karamihan sa mga ospital ng mga bata ay hindi nagagawa ang mga ito. Sa kabutihang palad para kay Amanda at sa mga pasyenteng tulad niya, ang Packard Children's Hospital ay nagsagawa ng higit sa 15 mga transplant sa puso-atay sa nakalipas na tatlong dekada. Ito ay isang pambansang pinuno para sa pediatric organ transplant at kinilala para sa mga natitirang resulta ng kumbinasyon ng transplant.<\/p>\n

Pagbuo ng Mga Espesyal na Koneksyon<\/p>\n

Tulad ng mismong operasyon, ang pagbawi mula sa isang heart-liver transplant ay kumplikado. Kaya lingguhang nakipagpulong si Amanda sa kanyang multidisciplinary medical team, na nauunawaan ang kanyang mga pangangailangan, nagbigay ng suporta, at naging parang pamilya. Pinasigla nila ang kanyang espiritu nang humarap siya sa mga pag-urong at ginugol ang halos lahat ng susunod na dalawang taon sa ospital, pinapanood ang ilang iba pang mga pasyente na umuwi upang ipagpatuloy ang mga normal na aktibidad habang siya ay nahaharap sa mahabang paggaling. Ang koponan ay determinado na palakasin si Amanda, bumalik sa mabuting kalusugan, at masiyahan sa buhay.<\/p>\n

"Nakabuo si Amanda ng isang espesyal na koneksyon sa kanyang mga nars at doktor," sabi ni Lisa Hofmann Morgan, ina ni Amanda. "Sa palagay ko hindi ito magiging isang positibong resulta kung wala ang kanilang pangangalaga at pagmamahal, pangako, at hilig para sa kanilang mahalagang gawain."<\/p>\n

Sa kanyang pananatili, dumalo si Amanda sa Hospital School prom, isang espesyal na gabi para sa mga pasyente sa lahat ng edad at kanilang mga pamilya. Nakatagpo rin siya ng kaaliwan sa Forever Young Zone ng aming ospital, isang playroom kung saan maaari siyang makipag-ugnayan sa mga child life specialist, na nagbigay ng masasayang aktibidad para tulungan siyang ipahayag ang kanyang sarili at makahanap ng kagalakan sa gitna ng pagkaka-ospital. Doon siya nakipag-ugnayan kina Sierra, Lindsey, at Gage Bingham\u2014mga kapatid na nagkaroon din ng mga transplant sa puso.<\/p>\n

\u201cSila lang ang pinakamatamis na pamilya at isinama ako sa lahat ng bagay,\u201d sabi ni Amanda.<\/p>\n

Ngayon, si Amanda, 30, ay nakatira sa Idaho at binibilang ang mga araw sa isa pang milestone: ang kanyang kasal! Mahilig siyang mag-hiking kasama ang kanyang kasintahang si Danny, at nakikipagpalitan pa rin siya ng mensahe sa mga miyembro ng kanyang pangkat ng pangangalaga at sa Binghams. "Nasasabik ako para sa susunod na kabanata ng buhay," sabi niya, "at sana magkaroon ng mga anak."<\/p>\n

Dahil pinahahalagahan nila ang pangangalaga na natanggap ni Amanda, gumawa ang kanyang pamilya ng regalo para suportahan ang pagsasaliksik ng pediatric transplant sa Packard Children's Hospital. Ngayon sa ika-10 anibersaryo ng transplant ni Amanda, umaasa si Lisa na makakasama sila ng ibang mga donor.<\/p>\n

\u201cSa pag-abot natin sa milestone na ito,\u201d sabi ni Lisa, \u201ctalagang maliwanag ang hinaharap!\u201d<\/p>\n

Ang artikulong ito ay orihinal na lumabas sa Summer 2021 na isyu ng\u00a0Balitang Pambata ng Packard<\/a>.<\/em><\/h6>","protected":false},"excerpt":{"rendered":"

Humiga si Amanda Sechrest sa kanyang kama, pagod na pagod pagkatapos ng gabing pag-aaral para sa finals sa Saint Mary's College of California. 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