{"id":4322,"date":"2023-03-17T22:57:50","date_gmt":"2023-03-17T22:57:50","guid":{"rendered":"https:\/\/lpfch.org\/you-helped-ceces-family-keep-the-faith\/"},"modified":"2025-07-16T23:06:07","modified_gmt":"2025-07-16T23:06:07","slug":"you-helped-ceces-family-keep-the-faith","status":"publish","type":"post","link":"https:\/\/lpfch.org\/tl\/impact-stories\/you-helped-ceces-family-keep-the-faith\/","title":{"rendered":"Tinulungan Mo ang Pamilya ni Cece na Panatilihin ang Pananampalataya"},"content":{"rendered":"

Para kay Liz, ang Araw ng Ina ay palaging naka-link sa Lucile Packard Children's Hospital Stanford.<\/p>\n

Nagsimula ang lahat sa isang springtime family outing noong 2014.<\/p>\n

Ipinagdiriwang ni Liz ang Araw ng Ina kasama ang kanyang 3 taong gulang na anak na lalaki, si Martin, at 9 na buwang gulang na anak na babae, si Cece.<\/p>\n

Pag-uwi nila, napansin ni Liz na matamlay si Cece at nahihirapang iangat ang ulo.<\/p>\n

"Akala ko pagod na siya. Ngunit kinaumagahan ay mas malala ito," paggunita ni Liz.<\/p>\n

Dinala ni Liz si Cece sa kanyang pediatrician, si Lloyd Brown, MD, isang adjunct clinical associate professor sa Stanford School of Medicine, na naghinala ng nakakagulat na dahilan ng kahinaan ni Cece: infant botulism.<\/p>\n

Ang infant botulism ay nangyayari kapag ang Clostridium botulinum bacteria, na matatagpuan sa lupa at alikabok, ay nakapasok sa digestive system ng sanggol. Ang mga matatandang bata at matatanda ay mabilis na nagpapasa ng bakterya sa kanilang sistema upang maiwasan ang pinsala, ngunit sa mga sanggol, ang bakterya ay maaaring magtagal at makagawa ng lason na nagpapahina sa mga kalamnan. Kapag ang mga kalamnan sa paghinga ay naapektuhan, ang isang sanggol ay maaaring nasa panganib.<\/p>\n

"Inirerekomenda ni Dr. Brown na dumiretso kami sa Packard Children's Hospital, at ginawa namin," sabi ni Liz.<\/p>\n

Kinumpirma ang infant botulism bilang sanhi ng pagkabalisa ni Cece, at siya ay na-admit sa Pediatric Intensive Care Unit (PICU). Natakot si Liz nang makitang bumababa nang husto ang oxygen level ng kanyang maliit na babae. Inilagay ng mga doktor si Cece sa isang ventilator.<\/p>\n

Isang Kamay na Hahawakan<\/h3>\n

"Mayroong maraming beses na hinawakan ko ang kamay ng isang nars, pinapanood ang nangyayari at iniisip kung makakarating si Cece," sabi ni Liz<\/p>\n

Natukoy ng mga doktor ang antitoxin na kailangan ni Cece para mabuhay at ipinadala ito sa aming ospital.<\/p>\n

"Ito ay isang napakahirap na oras, ngunit isang magandang panahon din sa PICU," naaalala ni Liz. "Lahat ay nag-uugat para sa kanilang mga anak at sa mga anak ng lahat. Ito ay isang tunay na komunidad sa mga pasyenteng pamilya at kawani."<\/p>\n

Sinabi ni Liz na ang pangkat ng pangangalaga sa Packard Children's Hospital ay nagbigay ng mahusay na pangangalaga, hindi lamang para kay Cece, ngunit para rin sa kanya. Ang isang partikular na malakas na koneksyon na kanyang binuo ay sa PICU chaplain, Rev. Wally Bryen, MDiv.<\/p>\n

\u201cNagdala si Reverend Wally ng kailangang-kailangan na espirituwal na pangangalaga sa buong buwan naming pamamalagi sa ospital,\u201d sabi ni Liz. "Hiniling ko sa kanya na manalangin kasama ako, at ginawa niya ito araw-araw. Hindi ko alam kung paano ko malalampasan ang lahat ng ito nang wala siyang araw-araw na pagbisita."<\/p>\n

Pagkatapos ng dalawang linggo sa aming PICU, inilipat si Cece sa isa pang unit kung saan tumanggap siya ng physical therapy upang mabawi ang lakas ng kalamnan.<\/p>\n

Mga Regalo mo kina Liz at Cece<\/h3>\n

Nakatanggap si Liz ng mga pagbisita mula sa Family Resource Librarian at naaalalang binigyan siya ng isang kit ng shampoo at mga supply. Sa malabo ng pagkaka-ospital ni Cece, hindi nag-impake ng anumang mahahalagang gamit si Liz. Tinulungan siya ng kit na pangalagaan ang sarili at magkaroon ng lakas ng loob na makasama kay Cece.<\/p>\n

Salamat sa pagtiyak sa mga pamilyang tulad ni Cece's kung ano ang kailangan nila para harapin ang mga krisis sa kalusugan.<\/p>\n

Lubos ang pasasalamat ni Liz sa espirituwal na pangangalaga na natanggap niya kung kaya't bininyagan niya si Cece sa Packard Children's Hospital ni Rev. Bryen bago sila umalis.<\/p>\n

Ngayon, si Cece ay isang maunlad na 9 na taong gulang! Mahilig siya sa sining, at nagdedekorasyon at nagbebenta ng mga bato bilang fundraiser para sa Packard Children's Hospital. Ang kanyang kapatid na si Martin ay naging inspirasyon na sumali sa mga pagsisikap sa pangangalap ng pondo.<\/p>\n

\u201cTaon-taon tuwing Mother's Day, naiisip ko ang panahon namin sa ospital at kung gaano kalayo na ang narating namin,\u201d sabi ni Liz. "May isang nurse, si Aliza Cheslow, na kausap ko pa rin, at inaabot ko siya. Napakahalaga sa amin ng ospital. Pinahahalagahan ko ang kahanga-hangang pangkat ng pangangalaga ni Cece at lahat ng nakilala ko sa aming pamamalagi. Bukod dito, lubos akong nagpapasalamat sa mga donor na ginagawang posible ang mga serbisyo kabilang ang chaplaincy. Ginagawa nitong lahat ng pagkakaiba sa mundo sa mga pasyente at kanilang mga pamilya."<\/p>\n

Gustong Tulungan ang Higit pang Mga Bata tulad ni Cece?<\/h3>\n

Mga serbisyo ng suporta tulad ng mga chaplain, child life specialist, art at music therapist, at higit pa ay umaasa sa pagkakawanggawa upang mapanatili ang kanilang trabaho. Para mabigyan ng access ang mas maraming pamilya sa mga serbisyong ito, magbigay ng regalo sa Pondo ng mga Bata.<\/a><\/span><\/p>\n

 <\/p>\n

Ang artikulong ito ay orihinal na lumabas sa newsletter ng Spring 2023 Children's Fund Update.<\/em><\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

Para kay Liz, ang Araw ng Ina ay palaging naka-link sa Lucile Packard Children's Hospital Stanford. Nagsimula ang lahat sa isang springtime family outing noong 2014. 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