{"id":18705,"date":"2024-10-07T23:29:22","date_gmt":"2024-10-07T23:29:22","guid":{"rendered":"https:\/\/lpfch.org\/?p=18705"},"modified":"2025-05-22T21:10:47","modified_gmt":"2025-05-22T21:10:47","slug":"the-sweet-sound-of-music-therapy","status":"publish","type":"post","link":"https:\/\/lpfch.org\/vi\/impact-stories\/the-sweet-sound-of-music-therapy\/","title":{"rendered":"\u00c2m thanh ng\u1ecdt ng\u00e0o c\u1ee7a li\u1ec7u ph\u00e1p \u00e2m nh\u1ea1c"},"content":{"rendered":"

N\u1ebfu b\u1ea1n \u0111\u00e3 g\u1eb7p Ryan 8 tu\u1ed5i, ch\u1eafc h\u1eb3n b\u1ea1n c\u0169ng \u0111\u00e3 g\u1eb7p Serafina. Serafina l\u00e0 m\u1ed9t ch\u00fa m\u00e8o v\u1eb1n m\u00e0u cam nh\u1ed3i b\u00f4ng to b\u1eb1ng ng\u01b0\u1eddi th\u1eadt, c\u00f3 ch\u00fat tinh ngh\u1ecbch, gi\u1ed1ng h\u1ec7t Ryan.\u00a0<\/strong><\/p>\n

Khi Ryan nh\u1eadn \u0111\u01b0\u1ee3c m\u1ed9t chuy\u1ebfn th\u0103m b\u00ean gi\u01b0\u1eddng b\u1ec7nh t\u1eeb Andrew M. Levy Chuy\u00ean gia tr\u1ecb li\u1ec7u \u00e2m nh\u1ea1c <\/em>Emily Offenkrantz, MT-BC, NICU-MT, Serafina \u0111\u00e3 nh\u1ea3y m\u00faa v\u00e0 ch\u01a1i \u0111\u00e0n xylophone m\u1ed9t c\u00e1ch say m\u00ea. Ryan v\u00e0 Emily c\u01b0\u1eddi kh\u00fac kh\u00edch khi Emily g\u1ea3y \u0111\u00e0n guitar v\u00e0 h\u1ecd s\u00e1ng t\u00e1c m\u1ed9t b\u00e0i h\u00e1t ng\u1edb ng\u1ea9n v\u1ec1 Serafina.<\/p>\n

Emily v\u00e0 \u00e2m nh\u1ea1c c\u1ee7a c\u00f4 \u0111\u00e3 thay \u0111\u1ed5i m\u1ecdi th\u1ee9 \u0111\u1ed1i v\u1edbi Ryan.<\/p>\n

Ryan \u0111\u00e3 tr\u1ea3i qua r\u1ea5t nhi\u1ec1u kh\u00f3 kh\u0103n trong cu\u1ed9c \u0111\u1eddi. \u0110\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n m\u1eafc b\u1ec7nh thi\u1ebfu m\u00e1u Fanconi (FA) l\u00fac 18 th\u00e1ng tu\u1ed5i, m\u1ed9t t\u00ecnh tr\u1ea1ng do \u0111\u1ed9t bi\u1ebfn gen \u0111\u00f3ng vai tr\u00f2 trong qu\u00e1 tr\u00ecnh s\u1eeda ch\u1eefa DNA, Ryan ph\u1ea3i s\u1ed1ng trong nguy c\u01a1 suy t\u1ee7y x\u01b0\u01a1ng, ung th\u01b0 v\u00e0 nhi\u1ec1u v\u1ea5n \u0111\u1ec1 to\u00e0n th\u00e2n kh\u00e1c.<\/p>\n

Gia \u0111\u00ecnh c\u00f4, s\u1ed1ng t\u1ea1i Chandler, Arizona, bi\u1ebft r\u1eb1ng c\u00e1c nh\u00e0 nghi\u00ean c\u1ee9u t\u1ea1i Stanford \u0111ang ti\u00ean phong trong m\u1ed9t ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb bao g\u1ed3m c\u1ea5y gh\u00e9p t\u1ebf b\u00e0o g\u1ed1c t\u1eeb ng\u01b0\u1eddi th\u00e2n c\u1ee7a b\u1ec7nh nh\u00e2n v\u00e0 kh\u00f4ng c\u1ea7n x\u1ea1 tr\u1ecb, ph\u01b0\u01a1ng ph\u00e1p \u0111\u1eb7c bi\u1ec7t nguy hi\u1ec3m \u0111\u1ed1i v\u1edbi nh\u1eefng ng\u01b0\u1eddi m\u1eafc b\u1ec7nh FA.<\/p>\n

\u201cT\u1ea5t c\u1ea3 nh\u1eefng ng\u01b0\u1eddi ch\u00fang t\u00f4i \u0111\u1ecdc v\u1ec1 \u1edf Stanford \u0111\u1ec1u l\u00e0 nh\u1eefng nh\u00e0 khoa h\u1ecdc xu\u1ea5t s\u1eafc v\u00e0 ng\u00f4i sao s\u00e1ng trong nghi\u00ean c\u1ee9u n\u00e0y,\u201d m\u1eb9 c\u1ee7a Ryan, Carly, chia s\u1ebb. \u201cCh\u00fang t\u00f4i \u0111\u00e3 li\u00ean h\u1ec7 \u0111\u1ec3 \u0111\u01b0\u1ee3c t\u01b0 v\u1ea5n tr\u1ef1c tuy\u1ebfn v\u00e0 sau \u0111\u00f3 \u0111\u00e3 \u0111\u1ebfn b\u1ec7nh vi\u1ec7n v\u00e0o n\u0103m 2021 \u0111\u1ec3 \u0111\u01b0\u1ee3c th\u0103m kh\u00e1m to\u00e0n di\u1ec7n v\u1edbi c\u00e1c b\u00e1c s\u0129 huy\u1ebft h\u1ecdc, b\u00e1c s\u0129 th\u00ednh h\u1ecdc, b\u00e1c s\u0129 tim m\u1ea1ch, b\u00e1c s\u0129 n\u1ed9i ti\u1ebft, v\u00e0 nhi\u1ec1u b\u00e1c s\u0129 kh\u00e1c.\u201d<\/p>\n

M\u1ed9t k\u1ebf ho\u1ea1ch \u0111\u00e3 \u0111\u01b0\u1ee3c l\u1eadp ra<\/strong><\/p>\n

Ryan l\u00fac \u0111\u00f3 \u0111ang h\u1ed3i ph\u1ee5c t\u1ed1t, v\u00e0 c\u00e1c b\u00e1c s\u0129 khuy\u1ebfn kh\u00edch em tr\u1edf v\u1ec1 nh\u00e0 v\u00e0 ti\u1ebfp t\u1ee5c t\u1eadn h\u01b0\u1edfng c\u00e1c ho\u1ea1t \u0111\u1ed9ng b\u00ecnh th\u01b0\u1eddng c\u1ee7a tr\u1ebb th\u01a1 nh\u01b0 ch\u01a1i v\u1edbi anh trai Christian, hay \u00e2u y\u1ebfm ch\u00fa m\u00e8o Bridger. Trong khi \u0111\u00f3, nh\u00f3m nghi\u00ean c\u1ee9u, do b\u00e1c s\u0129 Rajni Agarwal d\u1eabn \u0111\u1ea7u, \u0111\u00e3 l\u00ean k\u1ebf ho\u1ea1ch ph\u00f2ng tr\u01b0\u1eddng h\u1ee3p t\u00ecnh tr\u1ea1ng c\u1ee7a Ryan c\u00f3 th\u1ec3 x\u1ea5u \u0111i v\u00e0 em s\u1ebd c\u1ea7n gh\u00e9p t\u1ebf b\u00e0o g\u1ed1c.<\/p>\n

Ch\u1ecb g\u00e1i c\u1ee7a Ryan, Mikayla, kh\u00f4ng ng\u1ea7n ng\u1ea1i khi bi\u1ebft m\u00ecnh c\u00f3 th\u1ec3 cung c\u1ea5p t\u1ebf b\u00e0o g\u1ed1c c\u1ee9u s\u1ed1ng.<\/p>\n

V\u00e0o th\u00e1ng 7 n\u0103m 2023, t\u00ecnh tr\u1ea1ng c\u1ee7a Ryan thay \u0111\u1ed5i. C\u00f4 b\u00e9 \u0111\u00e3 b\u1ecb c\u00fam v\u00e0i th\u00e1ng tr\u01b0\u1edbc \u0111\u00f3, v\u00e0 v\u00ec c\u00fam th\u01b0\u1eddng li\u00ean quan \u0111\u1ebfn vi\u1ec7c \u1ee9c ch\u1ebf s\u1ea3n xu\u1ea5t t\u1ee7y x\u01b0\u01a1ng, n\u00ean s\u1ed1 l\u01b0\u1ee3ng t\u1ebf b\u00e0o m\u00e1u c\u1ee7a c\u00f4 b\u00e9 r\u1ea5t kh\u00f3 ph\u1ee5c h\u1ed3i.<\/p>\n

Gia \u0111\u00ecnh ch\u1ea5t \u0111\u1ed3 l\u00ean xe v\u00e0 l\u00e1i t\u1eeb Arizona \u0111\u1ebfn Palo Alto \u0111\u1ec3 Ryan c\u00f3 th\u1ec3 tham gia th\u1eed nghi\u1ec7m l\u00e2m s\u00e0ng d\u01b0\u1edbi s\u1ef1 gi\u00e1m s\u00e1t ch\u1eb7t ch\u1ebd c\u1ee7a Agarwal v\u00e0 c\u00e1c b\u00e1c s\u0129 - nh\u00e0 khoa h\u1ecdc n\u1ed5i ti\u1ebfng kh\u00e1c l\u00e0 Agnieszka Czechowicz, MD, PhD, v\u00e0 Alice Bertaina, MD, PhD.<\/p>\n

Ryan g\u1eb7p Emily<\/strong><\/p>\n

C\u00e1c nh\u00e0 tr\u1ecb li\u1ec7u \u00e2m nh\u1ea1c \u0111\u01b0\u1ee3c ch\u1ee9ng nh\u1eadn b\u1edfi h\u1ed9i \u0111\u1ed3ng qu\u1ea3n tr\u1ecb nh\u01b0 Offenkrantz\u2014\u0111\u01b0\u1ee3c h\u1ed7 tr\u1ee3 b\u1edfi ho\u1ea1t \u0111\u1ed9ng t\u1eeb thi\u1ec7n, bao g\u1ed3m c\u1ea3 nh\u1eefng m\u00f3n qu\u00e0 c\u1ee7a b\u1ea1n cho Qu\u1ef9 tr\u1ebb em<\/em>\u2014l\u00e0 nh\u1eefng th\u00e0nh vi\u00ean ch\u1ee7 ch\u1ed1t c\u1ee7a nh\u00f3m ch\u0103m s\u00f3c tr\u1ebb em Packard. <\/strong>H\u1ecd s\u1eed d\u1ee5ng nh\u1ea1c c\u1ee5 v\u00e0 k\u1ef9 thu\u1eadt \u0111\u1ec3 an \u1ee7i b\u1ec7nh nh\u00e2n v\u00e0 gia \u0111\u00ecnh, gi\u1ea3m lo l\u1eafng v\u00e0 c\u0103ng th\u1eb3ng, h\u1ed7 tr\u1ee3 c\u00e1c th\u1ee7 thu\u1eadt y t\u1ebf kh\u00f3 kh\u0103n, v.v.<\/p>\n

\u201cKhi ch\u00fang t\u00f4i \u0111\u1ebfn B\u1ec7nh vi\u1ec7n Nhi Packard, Ryan \u0111\u00e3 ph\u1ea3i v\u1eadt l\u1ed9n v\u1edbi vi\u1ec7c kh\u00f4ng th\u1ec3 ki\u1ec3m so\u00e1t \u0111\u01b0\u1ee3c nh\u1eefng g\u00ec \u0111ang x\u1ea3y ra,\u201d Carly k\u1ec3. \u201cCon b\u00e9 kh\u00f4ng ch\u1ecbu u\u1ed1ng b\u1ea5t k\u1ef3 lo\u1ea1i thu\u1ed1c n\u00e0o. Emily \u0111\u00e3 \u0111\u1ebfn, gi\u00e0nh \u0111\u01b0\u1ee3c l\u00f2ng tin c\u1ee7a Ryan v\u00e0 gi\u00fap con b\u00e9 v\u01b0\u1ee3t qua nh\u1eefng kho\u1ea3nh kh\u1eafc kh\u00f3 kh\u0103n \u0111\u00f3.\u201d<\/p>\n

M\u00f3n qu\u00e0 c\u1ee7a cu\u1ed9c \u0111\u1eddi<\/strong><\/p>\n

V\u00e0o ng\u00e0y 2 th\u00e1ng 8 n\u0103m 2023, Ryan \u0111\u00e3 nh\u1eadn \u0111\u01b0\u1ee3c t\u1ebf b\u00e0o c\u1ee7a ch\u1ecb g\u00e1i m\u00ecnh. \u0110\u1ed9i ng\u0169 ch\u0103m s\u00f3c \u0111\u00e3 l\u00e0m m\u1ed9t t\u1ea5m bi\u1ec3n "Ch\u00fac m\u1eebng Ng\u00e0y Gh\u00e9p t\u1ea1ng!" v\u1edbi nh\u1eefng l\u1eddi \u0111\u1ed9ng vi\u00ean.<\/p>\n

Su\u1ed1t 100 ng\u00e0y c\u00e1ch ly sau \u0111\u00f3, Ryan \u0111\u00e3 tr\u1ea3i qua nhi\u1ec1u \u0111\u00eam m\u1ea5t ng\u1ee7. Emily \u0111\u00e3 t\u1ed5 ch\u1ee9c nh\u1eefng bu\u1ed5i tr\u1ecb li\u1ec7u, \u0111i\u1ec1u n\u00e0y tr\u1edf n\u00ean quan tr\u1ecdng h\u01a1n bao gi\u1edd h\u1ebft \u0111\u1ec3 gi\u00fap Ryan v\u01a1i \u0111i n\u1ed7i c\u00f4 \u0111\u01a1n v\u00e0 kh\u00f3 ch\u1ecbu, \u0111\u1ed3ng th\u1eddi gi\u00fap c\u00f4 b\u00e9 l\u1ea5y l\u1ea1i s\u1ee9c l\u1ef1c \u0111\u00e3 hao h\u1ee5t sau qu\u00e1 tr\u00ecnh \u0111i\u1ec1u tr\u1ecb.<\/p>\n

Khi nh\u00f3m ch\u0103m s\u00f3c cho ph\u00e9p Ryan tr\u1edf v\u1ec1 nh\u00e0, c\u00f4 b\u00e9 nhanh ch\u00f3ng l\u1ea5y l\u1ea1i s\u1ef1 y\u00eau th\u01b0\u01a1ng v\u00e0 tr\u1edf th\u00e0nh c\u00f4 b\u00e9 bi\u1ebft \u0111\u1ed3ng c\u1ea3m, quan t\u00e2m, y\u00eau \u0111\u1ed9ng v\u1eadt v\u00e0 vi\u1ebft th\u01b0 cho anh trai m\u00ecnh.<\/p>\n

V\u00e0o th\u00e1ng 8, Ryan quay l\u1ea1i \u0111\u1ec3 t\u00e1i kh\u00e1m sau m\u1ed9t n\u0103m gh\u00e9p t\u1ea1ng. C\u00f4 v\u00f4 c\u00f9ng x\u00fac \u0111\u1ed9ng khi g\u1eb7p l\u1ea1i \u0111\u1ed9i ng\u0169 ch\u0103m s\u00f3c t\u1eadn t\u00e2m v\u00e0 xu\u1ea5t s\u1eafc, nh\u1eefng ng\u01b0\u1eddi \u0111\u00e3 \u0111\u00f3ng g\u00f3p m\u1ecdi th\u1ee9, t\u1eeb c\u00e1c ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb \u0111\u1ed9t ph\u00e1 \u0111\u1ebfn nh\u1eefng b\u00e0i h\u00e1t an \u1ee7i.<\/p>\n

Carly n\u00f3i: "B\u1ea1n mu\u1ed1n m\u1ecdi ng\u01b0\u1eddi \u0111\u1ea5u tranh v\u00ec con b\u1ea1n nhi\u1ec1u nh\u01b0 b\u1ea1n v\u1eady".<\/p>\n

C\u1ea2M \u01a0N B\u1ea0N \u0111\u00e3 l\u00e0 m\u1ed9t ph\u1ea7n c\u1ee7a \u0111\u1ed9i ng\u0169 l\u00e0m m\u1ecdi th\u1ee9 c\u00f3 th\u1ec3 cho nh\u1eefng \u0111\u1ee9a tr\u1ebb nh\u01b0 Ryan.<\/strong><\/p>\n

B\u1ea1n c\u00f3 mu\u1ed1n gi\u00fap \u0111\u1ee1 nhi\u1ec1u tr\u1ebb em nh\u01b0 Ryan kh\u00f4ng?<\/strong><\/p>\n

B\u1ec7nh vi\u1ec7n ch\u00fang t\u00f4i r\u1ea5t c\u1ea7n nh\u1eefng nh\u00e0 h\u1ea3o t\u00e2m nh\u01b0 b\u1ea1n \u0111\u1ec3 \u0111\u1ea3m b\u1ea3o t\u1ea5t c\u1ea3 tr\u1ebb em \u0111\u1ec1u nh\u1eadn \u0111\u01b0\u1ee3c s\u1ef1 ch\u0103m s\u00f3c to\u00e0n di\u1ec7n, \u0111\u1eb7c bi\u1ec7t v\u1ec1 c\u1ea3 tinh th\u1ea7n, th\u1ec3 ch\u1ea5t v\u00e0 t\u00e2m h\u1ed3n. \u0110\u1ec3 t\u1ea1o n\u00ean s\u1ef1 kh\u00e1c bi\u1ec7t, h\u00e3y gh\u00e9 th\u0103m https:\/\/lpfch.org\/donate\/<\/strong><\/a>.<\/p>\n

C\u00e2u chuy\u1ec7n n\u00e0y ban \u0111\u1ea7u xu\u1ea5t hi\u1ec7n trong \u1ea5n b\u1ea3n M\u00f9a thu n\u0103m 2024 c\u1ee7a C\u1eadp nh\u1eadt Qu\u1ef9 Tr\u1ebb em<\/em>.<\/p>","protected":false},"excerpt":{"rendered":"

N\u1ebfu b\u1ea1n \u0111\u00e3 g\u1eb7p Ryan 8 tu\u1ed5i, ch\u1eafc h\u1eb3n b\u1ea1n c\u0169ng \u0111\u00e3 g\u1eb7p Serafina. Serafina l\u00e0 m\u1ed9t ch\u00fa m\u00e8o v\u1eb1n m\u00e0u cam nh\u1ed3i b\u00f4ng to b\u1eb1ng ng\u01b0\u1eddi th\u1eadt, c\u00f3 ch\u00fat tinh ngh\u1ecbch,\u2026<\/p>","protected":false},"author":7,"featured_media":18720,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[22],"class_list":["post-18705","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories"],"acf":[],"yoast_head":"\nThe Sweet Sound of Music Therapy - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/vi\/impact-stories\/the-sweet-sound-of-music-therapy\/\" \/>\n<meta property=\"og:locale\" content=\"vi_VN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"The Sweet Sound of Music Therapy\" \/>\n<meta property=\"og:description\" content=\"If you\u2019ve met 8-year-old Ryan, you\u2019ve likely met Serafina, too. 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