{"id":22634,"date":"2025-12-09T15:26:03","date_gmt":"2025-12-09T23:26:03","guid":{"rendered":"https:\/\/lpfch.org\/?p=22634"},"modified":"2025-12-09T17:20:28","modified_gmt":"2025-12-10T01:20:28","slug":"2025-year-in-review","status":"publish","type":"post","link":"https:\/\/lpfch.org\/vi\/impact-stories\/2025-year-in-review\/","title":{"rendered":"Nh\u00ecn l\u1ea1i n\u0103m 2025"},"content":{"rendered":"<p><a href=\"https:\/\/lpfch.org\/impact-stories\/donor-support-advances-new-treatment-for-eb-a-rare-and-painful-skin-disease\/'\" target=\"_blank\" rel=\"noopener\"><strong>Hy v\u1ecdng, \u0111\u00e3 \u0111\u01b0\u1ee3c ch\u1eefa l\u00e0nh: \u0110\u1ed9t ph\u00e1 c\u1ee7a li\u1ec7u ph\u00e1p gen \u0111\u1ed1i v\u1edbi ch\u1ee9ng bong bi\u1ec3u b\u00ec b\u1ecdng n\u01b0\u1edbc<\/strong><\/a><\/p>\n<figure class=\"no-caption\">\n<p><figure id=\"attachment_21463\" aria-describedby=\"caption-attachment-21463\" style=\"width: 300px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-21463 size-medium\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/07\/Charlotte-Brown_2-e1751401704481-300x297.png\" alt=\"\" width=\"300\" height=\"297\" srcset=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/07\/Charlotte-Brown_2-e1751401704481-300x297.png 300w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/07\/Charlotte-Brown_2-e1751401704481-1024x1014.png 1024w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/07\/Charlotte-Brown_2-e1751401704481-150x150.png 150w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/07\/Charlotte-Brown_2-e1751401704481-768x760.png 768w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/07\/Charlotte-Brown_2-e1751401704481.png 1227w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><figcaption id=\"caption-attachment-21463\" class=\"wp-caption-text\">Charlotte Brown \u0111\u00e3 tham gia v\u00e0o m\u1ed9t th\u1eed nghi\u1ec7m c\u1ea5y gh\u00e9p da bi\u1ebfn \u0111\u1ed5i gen \u0111\u1ec3 \u0111i\u1ec1u tr\u1ecb c\u0103n b\u1ec7nh da hi\u1ebfm g\u1eb7p c\u1ee7a c\u00f4.<\/figcaption><\/figure><\/figure>\n<p>C\u00e1c gia \u0111\u00ecnh b\u1ecb \u1ea3nh h\u01b0\u1edfng b\u1edfi c\u0103n b\u1ec7nh da g\u00e2y \u0111au \u0111\u1edbn v\u00e0 h\u1ea1n ch\u1ebf tu\u1ed5i th\u1ecd, b\u1ec7nh ly th\u01b0\u1ee3ng b\u00ec b\u1ecdng n\u01b0\u1edbc (EB), hi\u1ec7n \u0111ang c\u00f3 hy v\u1ecdng m\u1edbi: m\u1ed9t th\u1eed nghi\u1ec7m l\u00e2m s\u00e0ng giai \u0111o\u1ea1n 3 cho th\u1ea5y ph\u01b0\u01a1ng ph\u00e1p gh\u00e9p da b\u1eb1ng li\u1ec7u ph\u00e1p gen c\u00f3 th\u1ec3 ch\u1eefa l\u00e0nh \u0111\u00e1ng k\u1ec3 c\u00e1c v\u1ebft th\u01b0\u01a1ng do EB g\u00e2y ra. B\u1ec7nh vi\u1ec7n Nhi Packard l\u00e0 m\u1ed9t trong s\u1ed1 \u00edt b\u1ec7nh vi\u1ec7n, v\u00e0 l\u00e0 b\u1ec7nh vi\u1ec7n duy nh\u1ea5t \u1edf ph\u00eda t\u00e2y Colorado, \u0111\u01b0\u1ee3c ph\u00e9p cung c\u1ea5p ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb \u0111\u1ed9t ph\u00e1 n\u00e0y. D\u01b0\u1edbi s\u1ef1 d\u1eabn d\u1eaft c\u1ee7a Ti\u1ebfn s\u0129 Jean Tang, \u0111\u00e2y l\u00e0 li\u1ec7u ph\u00e1p \u0111\u1ea7u ti\u00ean \u0111\u01b0\u1ee3c FDA ph\u00ea duy\u1ec7t t\u1eeb Trung t\u00e2m Y h\u1ecdc Ch\u1eefa tr\u1ecb v\u00e0 \u0110i\u1ec1u tr\u1ecb D\u1ee9t \u0111i\u1ec3m c\u1ee7a Stanford v\u00e0 d\u1ef1a tr\u00ean hai th\u1eadp k\u1ef7 \u0111\u1ed5i m\u1edbi, m\u1edf \u0111\u01b0\u1eddng cho vi\u1ec7c \u0111i\u1ec1u tr\u1ecb c\u00e1c r\u1ed1i lo\u1ea1n \u0111\u01a1n gen kh\u00e1c, t\u1eeb x\u01a1 nang \u0111\u1ebfn c\u00e1c b\u1ec7nh tim v\u00e0 th\u1ea7n kinh di truy\u1ec1n.<\/p>\n<p><a href=\"https:\/\/news.stanford.edu\/stories\/2025\/06\/blood-vessels-3d-printed-heart-organs\" target=\"_blank\" rel=\"noopener\"><strong>Ti\u1ebfn th\u00eam m\u1ed9t b\u01b0\u1edbc g\u1ea7n h\u01a1n \u0111\u1ebfn tr\u00e1i tim \u0111\u01b0\u1ee3c in 3D<\/strong><\/a><\/p>\n<figure id=\"attachment_22649\" aria-describedby=\"caption-attachment-22649\" style=\"width: 300px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-22649 size-medium\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-300x200.jpg\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-300x200.jpg 300w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-1024x683.jpg 1024w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-768x512.jpg 768w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-1536x1025.jpg 1536w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-18x12.jpg 18w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-1440x960.jpg 1440w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-575x384.jpg 575w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5.jpg 2000w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><figcaption id=\"caption-attachment-22649\" class=\"wp-caption-text\">Ti\u1ebfn s\u0129 Mark Skylar-Scott c\u1ea7m m\u00f4 h\u00ecnh c\u00e2y m\u1ea1ch m\u00e1u \u0111\u01b0\u1ee3c in b\u1eb1ng m\u00e1y in sinh h\u1ecdc 3D. \u1ea2nh c\u1ee7a Andrew Brodhead.<\/figcaption><\/figure>\n<p>Ti\u1ebfn s\u0129 Alison Marsden v\u00e0 Ti\u1ebfn s\u0129 Mark Skylar-Scott t\u1eeb S\u00e1ng ki\u1ebfn Khoa h\u1ecdc v\u00e0 K\u1ef9 thu\u1eadt C\u01a1 b\u1ea3n (BASE) c\u1ee7a \u0110\u1ea1i h\u1ecdc Stanford \u0111ang ti\u1ebfn g\u1ea7n h\u01a1n m\u1ed9t b\u01b0\u1edbc \u0111\u1ebfn vi\u1ec7c in 3D tr\u00e1i tim ng\u01b0\u1eddi b\u1eb1ng t\u1ebf b\u00e0o g\u1ed1c c\u1ee7a ch\u00ednh tr\u1ebb em \u2013 m\u1ed9t b\u01b0\u1edbc \u0111\u1ed9t ph\u00e1 mang t\u00ednh c\u00e1ch m\u1ea1ng \u0111\u1ed1i v\u1edbi tr\u1ebb em m\u1eafc c\u00e1c b\u1ec7nh tim \u0111e d\u1ecda t\u00ednh m\u1ea1ng. C\u00e1c c\u00f4ng c\u1ee5 m\u00f4 h\u00ecnh h\u00f3a m\u00e1y t\u00ednh ti\u00ean ti\u1ebfn c\u1ee7a h\u1ecd thi\u1ebft k\u1ebf v\u00e0 in ra \u201cc\u00e2y m\u1ea1ch m\u00e1u\u201d \u2013 m\u1ea1ng l\u01b0\u1edbi m\u1ea1ch m\u00e1u ph\u1ee9c t\u1ea1p c\u1ea7n thi\u1ebft \u0111\u1ec3 duy tr\u00ec m\u1ed9t c\u01a1 quan s\u1ed1ng \u0111\u01b0\u1ee3c in 3D \u2013 h\u00ecnh dung ra m\u1ed9t t\u01b0\u01a1ng lai kh\u00f4ng c\u00f2n t\u00ecnh tr\u1ea1ng thi\u1ebfu n\u1ed9i t\u1ea1ng, danh s\u00e1ch ch\u1edd \u0111\u1ee3i d\u00e0i ho\u1eb7c nguy c\u01a1 b\u1ecb \u0111\u00e0o th\u1ea3i.<\/p>\n<p><a href=\"https:\/\/stanmed.stanford.edu\/immune-therapy-rare-pediatric-brain-tumors\/\"><strong>Ni\u1ec1m hy v\u1ecdng cho tr\u1ebb em m\u1eafc u n\u00e3o<\/strong><\/a><\/p>\n<figure id=\"attachment_22639\" aria-describedby=\"caption-attachment-22639\" style=\"width: 300px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-22639\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/570A5328-resized-300x200.jpg\" alt=\"Two female doctors stand side by side in a lab. Each is wearing a white lab coat.\" width=\"300\" height=\"200\" \/><figcaption id=\"caption-attachment-22639\" class=\"wp-caption-text\">Ti\u1ebfn s\u0129 Crystal Mackall (b\u00ean tr\u00e1i) v\u00e0 Ti\u1ebfn s\u0129 Michelle Monje (b\u00ean ph\u1ea3i)<\/figcaption><\/figure>\n<p>M\u1ed9t li\u1ec7u ph\u00e1p t\u1ebf b\u00e0o CAR-T m\u1edbi \u0111\u01b0\u1ee3c ph\u00e1t tri\u1ec3n b\u1edfi Ti\u1ebfn s\u0129 Michelle Monje v\u00e0 Ti\u1ebfn s\u0129 Crystal Mackall \u0111\u00e3 cho th\u1ea5y tri\u1ec3n v\u1ecdng th\u1ef1c s\u1ef1 \u0111\u1ed1i v\u1edbi tr\u1ebb em m\u1eafc u t\u1ebf b\u00e0o th\u1ea7n kinh \u0111\u1ec7m lan t\u1ecfa v\u00f9ng gi\u1eefa, bao g\u1ed3m c\u1ea3 u t\u1ebf b\u00e0o th\u1ea7n kinh \u0111\u1ec7m c\u1ea7u n\u00e3o lan t\u1ecfa n\u1ed9i t\u1ea1i (DIPG) \u2013 m\u1ed9t c\u0103n b\u1ec7nh nguy hi\u1ec3m v\u00e0 cho \u0111\u1ebfn nay v\u1eabn lu\u00f4n g\u00e2y t\u1eed vong. Trong m\u1ed9t th\u1eed nghi\u1ec7m nh\u1ecf, ch\u00edn ng\u01b0\u1eddi tham gia \u0111\u00e3 c\u00f3 nh\u1eefng c\u1ea3i thi\u1ec7n v\u1ec1 kh\u1ea3 n\u0103ng \u0111i l\u1ea1i, nu\u1ed1t v\u00e0\/ho\u1eb7c n\u00f3i chuy\u1ec7n. Kh\u1ed1i u \u1edf b\u1ed1n tr\u1ebb \u0111\u00e3 gi\u1ea3m k\u00edch th\u01b0\u1edbc h\u01a1n m\u1ed9t n\u1eeda \u2013 v\u00e0 m\u1ed9t b\u1ec7nh nh\u00e2n v\u1eabn kh\u00f4ng c\u00f2n kh\u1ed1i u sau b\u1ed1n n\u0103m k\u1ec3 t\u1eeb khi \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n. V\u00e0o th\u00e1ng Hai, <a href=\"https:\/\/med.stanford.edu\/news\/topics\/stanford-medicine\/awards-honors\/2025\/02\/michelle-monje--md--phd.html\">Ti\u1ebfn s\u0129 Monje \u0111\u00e3 \u0111\u01b0\u1ee3c trao t\u1eb7ng Gi\u1ea3i th\u01b0\u1edfng N\u00e3o b\u1ed9.<\/a>\u2014gi\u1ea3i th\u01b0\u1edfng danh gi\u00e1 nh\u1ea5t trong l\u0129nh v\u1ef1c khoa h\u1ecdc th\u1ea7n kinh\u2014cho c\u00f4ng tr\u00ecnh ti\u00ean phong c\u1ee7a b\u00e0 v\u1ec1 DIPG v\u00e0 li\u1ec7u ph\u00e1p c\u00f3 kh\u1ea3 n\u0103ng c\u1ee9u s\u1ed1ng n\u00e0y.<\/p>\n<p><a href=\"https:\/\/lpfch.org\/impact-stories\/thank-you-for-making-the-15th-annual-summer-scamper-unforgettable\/\" target=\"_blank\" rel=\"noopener\"><strong>Ch\u01b0\u01a1ng tr\u00ecnh Summer Scamper 2025: L\u1ec5 h\u1ed9i v\u00ec c\u1ed9ng \u0111\u1ed3ng v\u00e0 s\u1ee9c kh\u1ecfe tr\u1ebb em<\/strong><\/a><\/p>\n<p>G\u1ea7n 3.000 ng\u01b0\u1eddi tham gia s\u1ef1 ki\u1ec7n Summer Scamper th\u01b0\u1eddng ni\u00ean l\u1ea7n th\u1ee9 15 c\u1ee7a ch\u00fang t\u00f4i, quy\u00ean g\u00f3p \u0111\u01b0\u1ee3c s\u1ed1 ti\u1ec1n k\u1ef7 l\u1ee5c 1930.000 b\u1ea3ng Anh cho B\u1ec7nh vi\u1ec7n Nhi Packard v\u00e0 c\u00e1c ch\u01b0\u01a1ng tr\u00ecnh ch\u0103m s\u00f3c s\u1ee9c kh\u1ecfe b\u00e0 m\u1eb9 v\u00e0 tr\u1ebb em t\u1ea1i Tr\u01b0\u1eddng Y khoa Stanford. K\u1ec3 t\u1eeb n\u0103m 2011, s\u1ef1 ki\u1ec7n c\u1ed9ng \u0111\u1ed3ng vui v\u1ebb n\u00e0y \u0111\u00e3 quy\u00ean g\u00f3p \u0111\u01b0\u1ee3c h\u01a1n 7 tri\u1ec7u b\u1ea3ng Anh, tr\u1ef1c ti\u1ebfp h\u1ed7 tr\u1ee3 ch\u0103m s\u00f3c c\u1ee9u s\u1ed1ng, nghi\u00ean c\u1ee9u ti\u00ean ti\u1ebfn v\u00e0 c\u00e1c d\u1ecbch v\u1ee5 h\u01b0\u1edbng \u0111\u1ebfn gia \u0111\u00ecnh - t\u1eeb c\u00e1c bu\u1ed5i g\u1eb7p g\u1ee1 v\u1edbi chuy\u00ean gia Ch\u0103m s\u00f3c Tr\u1ebb em \u0111\u1ebfn vi\u1ec7c ti\u1ebfp c\u1eadn v\u1edbi phi\u00ean d\u1ecbch vi\u00ean l\u00e0m vi\u1ec7c b\u1eb1ng h\u01a1n 50 ng\u00f4n ng\u1eef.<\/p>\n<p><iframe loading=\"lazy\" title=\"Gi\u1ea3i ch\u1ea1y b\u1ed9 Summer Scamper 5k v\u00e0 Kids&#039; Fun Run l\u1ea7n th\u1ee9 15 t\u1ea1i \u0110\u1ea1i h\u1ecdc Stanford\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/orB1VKtQSv8?start=47&#038;feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p><strong><u>Khai tr\u01b0\u01a1ng hai kh\u00f4ng gian hi\u1ec7n \u0111\u1ea1i b\u1eadc nh\u1ea5t d\u00e0nh cho ch\u0103m s\u00f3c v\u00e0 \u0111\u1ed5i m\u1edbi.<\/u><\/strong><\/p>\n<figure id=\"attachment_18955\" aria-describedby=\"caption-attachment-18955\" style=\"width: 300px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-18955 size-medium\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/10\/NICU_MarlaAufmuth__MCA9898_jpg-300x200.jpg\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/10\/NICU_MarlaAufmuth__MCA9898_jpg-300x200.jpg 300w, https:\/\/lpfch.org\/wp-content\/uploads\/2024\/10\/NICU_MarlaAufmuth__MCA9898_jpg-1024x683.jpg 1024w, https:\/\/lpfch.org\/wp-content\/uploads\/2024\/10\/NICU_MarlaAufmuth__MCA9898_jpg-768x512.jpg 768w, https:\/\/lpfch.org\/wp-content\/uploads\/2024\/10\/NICU_MarlaAufmuth__MCA9898_jpg-1536x1024.jpg 1536w, https:\/\/lpfch.org\/wp-content\/uploads\/2024\/10\/NICU_MarlaAufmuth__MCA9898_jpg-2048x1365.jpg 2048w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><figcaption id=\"caption-attachment-18955\" class=\"wp-caption-text\">B\u00e9 Austen ch\u00e0o \u0111\u1eddi v\u1edbi d\u1ecb t\u1eadt tim b\u1ea9m sinh r\u1ea5t nghi\u00eam tr\u1ecdng v\u00e0 \u0111\u00e3 ph\u1ea3i n\u1eb1m \u0111i\u1ec1u tr\u1ecb t\u1ea1i ph\u00f2ng ch\u0103m s\u00f3c s\u01a1 sinh \u0111\u1eb7c bi\u1ec7t (NICU) c\u1ee7a b\u1ec7nh vi\u1ec7n ch\u00fang t\u00f4i.<\/figcaption><\/figure>\n<p>C\u00e1c <a href=\"https:\/\/lpfch.org\/impact-stories\/now-open-private-rooms-for-our-smallest-patients\/\" target=\"_blank\" rel=\"noopener\">\u0110\u01a1n v\u1ecb ch\u0103m s\u00f3c \u0111\u1eb7c bi\u1ec7t s\u01a1 sinh Axe &amp; Blaise Wanstrath<\/a> \u0110\u01b0\u1ee3c kh\u00e1nh th\u00e0nh v\u00e0o m\u00f9a xu\u00e2n n\u0103m 2025, \u0111\u00e2y l\u00e0 khu ch\u0103m s\u00f3c s\u01a1 sinh \u0111\u1eb7c bi\u1ec7t (NICU) \u0111\u1ea7u ti\u00ean t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard c\u00f3 ph\u00f2ng ri\u00eang. NICU m\u1edbi n\u00e0y mang \u0111\u1ebfn m\u00f4i tr\u01b0\u1eddng y\u00ean t\u0129nh h\u01a1n, gi\u1ea3m nguy c\u01a1 nhi\u1ec5m tr\u00f9ng cho tr\u1ebb s\u01a1 sinh d\u1ec5 b\u1ecb t\u1ed5n th\u01b0\u01a1ng, r\u00fat ng\u1eafn th\u1eddi gian n\u1eb1m vi\u1ec7n v\u00e0 t\u0103ng c\u01b0\u1eddng s\u1ef1 tham gia c\u1ee7a cha m\u1eb9. Ph\u00f2ng ri\u00eang c\u0169ng cho ph\u00e9p cha m\u1eb9 \u1edf l\u1ea1i qua \u0111\u00eam v\u00e0 t\u1ea1o kh\u00f4ng gian cho \u0111\u1ed9i ng\u0169 y t\u1ebf cung c\u1ea5p d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c ti\u00ean ti\u1ebfn, c\u1ee9u s\u1ed1ng ngay t\u1ea1i gi\u01b0\u1eddng b\u1ec7nh.<\/p>\n<figure class=\"no-caption\">\n<p><figure id=\"attachment_22642\" aria-describedby=\"caption-attachment-22642\" style=\"width: 300px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-22642 size-medium\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-300x200.jpg\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-300x200.jpg 300w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-1024x683.jpg 1024w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-768x512.jpg 768w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-1536x1025.jpg 1536w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-2048x1366.jpg 2048w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-18x12.jpg 18w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-1440x960.jpg 1440w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-575x384.jpg 575w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><figcaption id=\"caption-attachment-22642\" class=\"wp-caption-text\">B\u1ec7nh nh\u00e2n t\u1ea1i ph\u00f2ng kh\u00e1m ngo\u1ea1i tr\u00fa v\u00e0 trung t\u00e2m truy\u1ec1n d\u1ecbch m\u1edbi c\u1ee7a Trung t\u00e2m Bass d\u00e0nh cho b\u1ec7nh ung th\u01b0 v\u00e0 b\u1ec7nh v\u1ec1 m\u00e1u \u1edf tr\u1ebb em s\u1ebd \u0111\u01b0\u1ee3c t\u1eadn h\u01b0\u1edfng kh\u00f4ng gian hi\u1ec7n \u0111\u1ea1i h\u01a1n.<\/figcaption><\/figure><\/figure>\n<p>B\u1ec7nh vi\u1ec7n Nhi Packard m\u1edbi <a href=\"https:\/\/lpfch.org\/impact-stories\/now-open-the-new-bass-center-clinic-and-infusion-center\/\">Trung t\u00e2m kh\u00e1m ch\u1eefa b\u1ec7nh v\u00e0 truy\u1ec1n d\u1ecbch Bass Center<\/a> \u0110\u01b0\u1ee3c kh\u00e1nh th\u00e0nh v\u00e0o th\u00e1ng 5 n\u0103m 2025, c\u01a1 s\u1edf n\u00e0y cung c\u1ea5p cho tr\u1ebb em v\u00e0 gia \u0111\u00ecnh m\u1ed9t m\u00f4i tr\u01b0\u1eddng \u0111i\u1ec1u tr\u1ecb tho\u1ea3i m\u00e1i h\u01a1n, \u00edt c\u0103ng th\u1eb3ng h\u01a1n v\u00e0 c\u1ea3i thi\u1ec7n vi\u1ec7c ki\u1ec3m so\u00e1t nhi\u1ec5m tr\u00f9ng. Nh\u1edd s\u1ef1 h\u1ed7 tr\u1ee3 h\u00e0o ph\u00f3ng c\u1ee7a c\u00e1c nh\u00e0 h\u1ea3o t\u00e2m, kh\u00f4ng gian hi\u1ec7n \u0111\u1ea1i n\u00e0y c\u00f3 15 ph\u00f2ng truy\u1ec1n d\u1ecbch ri\u00eang t\u01b0 v\u00e0 14 ph\u00f2ng kh\u00e1m, mang \u0111\u1ebfn cho tr\u1ebb em v\u00e0 gia \u0111\u00ecnh s\u1ef1 ri\u00eang t\u01b0 v\u00e0 ch\u0103m s\u00f3c t\u1eadn t\u00e2m, ti\u00ean ti\u1ebfn trong su\u1ed1t qu\u00e1 tr\u00ecnh \u0111i\u1ec1u tr\u1ecb.<\/p>\n<figure class=\"no-caption\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-medium wp-image-22644\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/Screenshot-2025-12-09-164543-300x231.png\" alt=\"\" width=\"300\" height=\"231\" srcset=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/Screenshot-2025-12-09-164543-300x231.png 300w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/Screenshot-2025-12-09-164543-1024x789.png 1024w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/Screenshot-2025-12-09-164543-768x591.png 768w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/Screenshot-2025-12-09-164543-16x12.png 16w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/Screenshot-2025-12-09-164543-575x443.png 575w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/Screenshot-2025-12-09-164543.png 1392w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/figure>\n<p><a href=\"https:\/\/www.stanfordchildrens.org\/content\/sch\/us\/en\/about\/government-community\/benefits-reports\" target=\"_blank\" rel=\"noopener\"><strong>Cam k\u1ebft c\u1ee7a ch\u00fang t\u00f4i \u0111\u1ed1i v\u1edbi s\u1ee9c kh\u1ecfe c\u1ed9ng \u0111\u1ed3ng<\/strong><\/a><\/p>\n<p>C\u00e1c \u0111\u1ed1i t\u00e1c t\u00e0i tr\u1ee3 c\u1ee7a ch\u00fang t\u00f4i \u0111\u00f3ng vai tr\u00f2 thi\u1ebft y\u1ebfu trong vi\u1ec7c \u0111\u1ea3m b\u1ea3o tr\u1ebb em, c\u00e1c b\u00e0 m\u1eb9 v\u00e0 gia \u0111\u00ecnh nh\u1eadn \u0111\u01b0\u1ee3c s\u1ef1 ch\u0103m s\u00f3c c\u1ea7n thi\u1ebft v\u00e0o nh\u1eefng th\u1eddi \u0111i\u1ec3m quan tr\u1ecdng nh\u1ea5t. V\u1edbi d\u1ef1 ki\u1ebfn c\u1eaft gi\u1ea3m ng\u00e2n s\u00e1ch Medi-Cal v\u00e0 kinh ph\u00ed nghi\u00ean c\u1ee9u li\u00ean bang, ho\u1ea1t \u0111\u1ed9ng t\u1eeb thi\u1ec7n th\u00fac \u0111\u1ea9y ch\u0103m s\u00f3c nh\u00e2n \u00e1i, nghi\u00ean c\u1ee9u \u0111\u1ed9t ph\u00e1 v\u00e0 c\u00e1c ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb s\u00e1ng t\u1ea1o tr\u1edf n\u00ean quan tr\u1ecdng h\u01a1n bao gi\u1edd h\u1ebft. \u0110\u00f3ng g\u00f3p cho... <em>Lucile Packard<\/em><em> Qu\u1ef9 tr\u1ebb em<\/em> Cung c\u1ea5p s\u1ef1 h\u1ed7 tr\u1ee3 linh ho\u1ea1t cho nhu c\u1ea7u c\u1ee7a b\u1ec7nh vi\u1ec7n v\u00e0 Tr\u01b0\u1eddng Y khoa, bao g\u1ed3m c\u1ea3 c\u00e1c ch\u01b0\u01a1ng tr\u00ecnh quan tr\u1ecdng kh\u00f4ng \u0111\u01b0\u1ee3c b\u1ea3o hi\u1ec3m chi tr\u1ea3, v\u00e0 \u0111\u1ea7u t\u01b0 v\u00e0o c\u00e1c m\u1ed1i quan h\u1ec7 \u0111\u1ed1i t\u00e1c nh\u1eb1m c\u1ea3i thi\u1ec7n k\u1ebft qu\u1ea3 s\u1ee9c kh\u1ecfe, m\u1edf r\u1ed9ng kh\u1ea3 n\u0103ng ti\u1ebfp c\u1eadn d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c s\u1ee9c kh\u1ecfe v\u00e0 gi\u1ea3i quy\u1ebft c\u00e1c y\u1ebfu t\u1ed1 r\u1ed9ng h\u01a1n \u1ea3nh h\u01b0\u1edfng \u0111\u1ebfn s\u1ee9c kh\u1ecfe c\u1ed9ng \u0111\u1ed3ng m\u00e0 ch\u00fang ta ph\u1ee5c v\u1ee5.<\/p>\n<p><strong><u>Th\u00fac \u0111\u1ea9y nghi\u00ean c\u1ee9u v\u00e0 ch\u0103m s\u00f3c cho tr\u1ebb em m\u1eafc b\u1ec7nh th\u1eadn<\/u><\/strong><\/p>\n<figure id=\"attachment_22055\" aria-describedby=\"caption-attachment-22055\" style=\"width: 300px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-22055\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/09\/Richard_Lafayette_Sophia_Giang_Alice_Bertaina_Mary_Leonard_Paul_Grimm_Douglas-Peck-Photography-1-300x200.jpg\" alt=\"\" width=\"300\" height=\"200\" \/><figcaption id=\"caption-attachment-22055\" class=\"wp-caption-text\">T\u1eeb tr\u00e1i sang ph\u1ea3i: Ti\u1ebfn s\u0129 Richard Lafayette, Ti\u1ebfn s\u0129 Sophia Giang, Ti\u1ebfn s\u0129 Alice Bertaina, Ti\u1ebfn s\u0129 Mary Leonard v\u00e0 Ti\u1ebfn s\u0129 Paul Grimm<\/figcaption><\/figure>\n<p>M\u1ed8T <a href=\"https:\/\/lpfch.org\/press-release\/15-million-gift-from-david-koch-jr-foundation\/\">Kho\u1ea3n quy\u00ean g\u00f3p $15 tri\u1ec7u \u0111\u00f4 la t\u1eeb Qu\u1ef9 David Koch Jr.<\/a> Stanford \u0111ang kh\u1edfi \u0111\u1ed9ng Ch\u01b0\u01a1ng tr\u00ecnh \u0110\u1ed5i m\u1edbi S\u1ee9c kh\u1ecfe Th\u1eadn nh\u1eb1m th\u00fac \u0111\u1ea9y nghi\u00ean c\u1ee9u, n\u00e2ng cao ch\u0103m s\u00f3c l\u00e2m s\u00e0ng v\u00e0 thay \u0111\u1ed5i s\u1ee9c kh\u1ecfe th\u1eadn cho tr\u1ebb em v\u00e0 thanh thi\u1ebfu ni\u00ean. Tr\u1ecdng t\u00e2m c\u1ee7a ch\u01b0\u01a1ng tr\u00ecnh s\u1ebd l\u00e0 Gi\u1ea3i th\u01b0\u1edfng \u0110\u1ed5i m\u1edbi S\u1ee9c kh\u1ecfe Th\u1eadn c\u1ee7a Qu\u1ef9 David Koch Jr., th\u00fac \u0111\u1ea9y nghi\u00ean c\u1ee9u \u0111a ng\u00e0nh \u0111\u1ec3 t\u0103ng c\u01b0\u1eddng hi\u1ec3u bi\u1ebft c\u1ee7a ch\u00fang ta v\u1ec1 b\u1ec7nh th\u1eadn v\u00e0 t\u00ecm ra c\u00e1c ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb m\u1edbi. B\u1ec7nh vi\u1ec7n Nhi Packard, \u0111\u01b0\u1ee3c x\u1ebfp h\u1ea1ng trong s\u1ed1 c\u00e1c b\u1ec7nh vi\u1ec7n h\u00e0ng \u0111\u1ea7u th\u1ebf gi\u1edbi v\u1ec1 s\u1ee9c kh\u1ecfe th\u1eadn, \u0111ang \u0111\u01b0\u1ee3c vinh danh. <a href=\"https:\/\/www.stanfordchildrens.org\/en\/about\/news\/releases\/2025\/us-news.html\" target=\"_blank\" rel=\"noopener\">Top 10 ch\u01b0\u01a1ng tr\u00ecnh \u0111\u00e0o t\u1ea1o chuy\u00ean khoa th\u1eadn nhi h\u00e0ng \u0111\u1ea7u to\u00e0n qu\u1ed1c<\/a>B\u1ec7nh vi\u1ec7n n\u00e0y th\u1ef1c hi\u1ec7n nhi\u1ec1u ca gh\u00e9p th\u1eadn h\u01a1n b\u1ea5t k\u1ef3 b\u1ec7nh vi\u1ec7n nhi n\u00e0o kh\u00e1c \u1edf Hoa K\u1ef3, v\u1edbi t\u1ef7 l\u1ec7 s\u1ed1ng s\u00f3t l\u00e0 100% sau m\u1ed9t v\u00e0 ba n\u0103m.<\/p>\n<p><strong>Th\u00fac \u0111\u1ea9y qu\u00e1 tr\u00ecnh hi\u1ec7n \u0111\u1ea1i h\u00f3a li\u00ean t\u1ee5c Ng\u00f4i nh\u00e0 d\u00e0nh cho c\u00e1c b\u00e0 m\u1eb9 v\u00e0 tr\u1ebb s\u01a1 sinh c\u1ee7a ch\u00fang t\u00f4i<\/strong><\/p>\n<p><a href=\"https:\/\/lpfch.org\/press-release\/25-million-gift-for-west-building\/\">M\u00f3n qu\u00e0 tr\u1ecb gi\u00e1 $25 tri\u1ec7u c\u1ee7a Carol v\u00e0 Ned Spieker<\/a> B\u1ec7nh vi\u1ec7n Nhi Packard \u0111ang d\u1eabn \u0111\u1ea7u qu\u00e1 tr\u00ecnh t\u00e1i thi\u1ebft li\u00ean t\u1ee5c T\u00f2a nh\u00e0 ph\u00eda T\u00e2y c\u1ee7a b\u1ec7nh vi\u1ec7n \u0111\u1ec3 t\u1ea1o \u0111i\u1ec1u ki\u1ec7n thu\u1eadn l\u1ee3i cho vi\u1ec7c ch\u0103m s\u00f3c c\u00e1c b\u00e0 m\u1eb9 mang thai v\u00e0 tr\u1ebb s\u01a1 sinh g\u1eb7p c\u00e1c v\u1ea5n \u0111\u1ec1 s\u1ee9c kh\u1ecfe. T\u1ea7m nh\u00ecn cho s\u1ef1 chuy\u1ec3n \u0111\u1ed5i c\u1ee7a T\u00f2a nh\u00e0 ph\u00eda T\u00e2y bao g\u1ed3m c\u00e1c ph\u00f2ng sinh v\u00e0 ph\u00f2ng h\u1eadu s\u1ea3n hi\u1ec7n \u0111\u1ea1i, c\u00f9ng v\u1edbi khu ch\u0103m s\u00f3c s\u01a1 sinh \u0111\u1eb7c bi\u1ec7t (NICU) \u0111\u01b0\u1ee3c c\u1ea3i ti\u1ebfn. V\u1eabn c\u00f2n nhi\u1ec1u c\u01a1 h\u1ed9i \u0111\u1ec3 h\u1ed7 tr\u1ee3 qu\u00e1 tr\u00ecnh chuy\u1ec3n \u0111\u1ed5i T\u00f2a nh\u00e0 ph\u00eda T\u00e2y.<\/p>\n<p><iframe loading=\"lazy\" title=\"T\u00f2a nh\u00e0 ph\u00eda T\u00e2y c\u1ee7a T\u01b0\u01a1ng lai t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Lucile Packard Stanford\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/rATmBCkYTGc?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>Ho\u1ea1t \u0111\u1ed9ng thi\u1ec7n nguy\u1ec7n c\u1ed9ng \u0111\u1ed3ng \u0111ang thay \u0111\u1ed5i s\u1ee9c kh\u1ecfe tr\u1ebb em, v\u00e0 ch\u00fang t\u00f4i r\u1ea5t bi\u1ebft \u01a1n s\u1ef1 h\u1ee3p t\u00e1c c\u1ee7a qu\u00fd v\u1ecb \u0111\u00e3 gi\u00fap hi\u1ec7n th\u1ef1c h\u00f3a nh\u1eefng ti\u1ebfn b\u1ed9 n\u00e0y v\u00e0 nhi\u1ec1u ti\u1ebfn b\u1ed9 kh\u00e1c trong n\u0103m nay. Ch\u00fac cho nh\u1eefng th\u00e0nh t\u1ef1u ti\u1ebfp t\u1ee5c \u0111\u01b0\u1ee3c g\u1eb7t h\u00e1i\u2014v\u00e0 t\u00e1c \u0111\u1ed9ng l\u1edbn h\u01a1n n\u1eefa\u2014trong n\u0103m t\u1edbi!<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>Hy v\u1ecdng \u0111\u01b0\u1ee3c ch\u1eefa l\u00e0nh: B\u01b0\u1edbc \u0111\u1ed9t ph\u00e1 trong li\u1ec7u ph\u00e1p gen cho b\u1ec7nh Epidermolysis Bullosa. C\u00e1c gia \u0111\u00ecnh b\u1ecb \u1ea3nh h\u01b0\u1edfng b\u1edfi c\u0103n b\u1ec7nh da g\u00e2y \u0111au \u0111\u1edbn v\u00e0 h\u1ea1n ch\u1ebf tu\u1ed5i th\u1ecd, Epidermolysis Bullosa (EB), gi\u1edd \u0111\u00e2y c\u00f3 hy v\u1ecdng m\u1edbi: m\u1ed9t li\u1ec7u ph\u00e1p gen giai \u0111o\u1ea1n\u2026<\/p>","protected":false},"author":8,"featured_media":22639,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[21,22,164],"class_list":["post-22634","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-donor-stories","category-patient-stories","category-research","health_topic-heart","health_topic-moms-babies","health_topic-pediatric-cancer"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.3 (Yoast SEO v27.3) - 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