{"id":3530,"date":"2014-08-20T23:32:30","date_gmt":"2014-08-20T23:32:30","guid":{"rendered":"https:\/\/lpfch.org\/special-delivery\/"},"modified":"2024-09-13T20:54:57","modified_gmt":"2024-09-13T20:54:57","slug":"special-delivery","status":"publish","type":"post","link":"https:\/\/lpfch.org\/vi\/impact-stories\/special-delivery\/","title":{"rendered":"Giao h\u00e0ng \u0111\u1eb7c bi\u1ec7t"},"content":{"rendered":"

G\u1eb7p g\u1ee1 Elena<\/h2>\n

M\u1eb7c d\u00f9 nhi\u1ec1u ph\u1ee5 n\u1eef mang thai v\u1ed9i v\u00e3 \u0111\u1ebfn b\u1ec7nh vi\u1ec7n trong l\u00fac chuy\u1ec3n d\u1ea1, nh\u01b0ng \u00edt ai \u0111\u1ebfn \u0111\u01b0\u1ee3c nh\u01b0 Tara Sharp, ng\u01b0\u1eddi \u0111\u00e3 bay 90 d\u1eb7m b\u1eb1ng tr\u1ef1c th\u0103ng c\u1ea5p c\u1ee9u t\u1eeb Sebastopol \u0111\u1ebfn Palo Alto. C\u00e1c b\u00e1c s\u0129 t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Lucile Packard, nh\u1eefng ng\u01b0\u1eddi \u0111\u00e3 bi\u1ebft v\u1ec1 d\u1ecb t\u1eadt tim hi\u1ebfm g\u1eb7p c\u1ee7a con c\u00f4 th\u00f4ng qua ch\u1ea9n \u0111o\u00e1n tr\u01b0\u1edbc sinh, \u0111\u00e3 s\u1eb5n s\u00e0ng ch\u00e0o \u0111\u00f3n c\u00f4.<\/p>\n

\u201cNgay khi \u0111\u1ebfn Stanford, t\u00f4i \u0111\u00e3 c\u1ea3m th\u1ea5y nh\u1eb9 nh\u00f5m,\u201d Tara n\u00f3i. C\u00f4 kh\u00f4ng ng\u1edd m\u00ecnh s\u1ebd chuy\u1ec3n d\u1ea1 s\u1edbm ba tu\u1ea7n. Nh\u01b0ng c\u00f4 \u0111\u00e3 l\u00ean k\u1ebf ho\u1ea1ch sinh con t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard, n\u01a1i b\u00e1c s\u0129 ph\u1eabu thu\u1eadt tim m\u1ea1ch nhi khoa Frank Hanley, Ti\u1ebfn s\u0129, s\u1ebd nhanh ch\u00f3ng \u0111\u00e1nh gi\u00e1 xem con c\u00f4 c\u00f3 c\u1ea7n ph\u1eabu thu\u1eadt tim hay kh\u00f4ng. \u201cCh\u00fang t\u00f4i \u0111ang \u1edf trong tay nh\u1eefng ng\u01b0\u1eddi gi\u1ecfi nh\u1ea5t c\u00f3 th\u1ec3,\u201d c\u00f4 nh\u1edb l\u1ea1i. \u201cGi\u1edd th\u00ec m\u1ecdi chuy\u1ec7n \u0111\u00e3 n\u1eb1m ngo\u00e0i t\u1ea7m ki\u1ec3m so\u00e1t c\u1ee7a t\u00f4i r\u1ed3i.\u201d<\/p>\n

L\u1ecbch s\u1eed gia \u0111\u00ecnh<\/h2>\n

H\u00e0nh tr\u00ecnh c\u1ee7a Tara \u0111\u1ebfn Packard b\u1eaft \u0111\u1ea7u v\u1edbi k\u1ebft qu\u1ea3 si\u00eau \u00e2m b\u1ea5t ng\u1edd. Tara k\u1ec3: "B\u00e1c s\u0129 n\u00f3i, 'Tim c\u1ee7a con ch\u1ecb c\u00f3 v\u1ea5n \u0111\u1ec1, v\u00e0 ch\u00fang t\u00f4i kh\u00f4ng bi\u1ebft li\u1ec7u con b\u00e9 c\u00f3 s\u1ed1ng s\u00f3t \u0111\u01b0\u1ee3c kh\u00f4ng.'"<\/p>\n

Mang thai \u0111\u01b0\u1ee3c s\u00e1u th\u00e1ng, Tara v\u00e0 ch\u1ed3ng c\u00f4, Ben, \u0111ang h\u00e1o h\u1ee9c ch\u1edd \u0111\u1ee3i \u0111\u1ee9a con th\u1ee9 hai. Gi\u1edd \u0111\u00e2y, thay v\u00ec b\u1ea3o con g\u00e1i l\u1edbn chu\u1ea9n b\u1ecb ch\u00e0o \u0111\u00f3n m\u1ed9t em g\u00e1i, h\u1ecd l\u1ea1i t\u1ef1 h\u1ecfi li\u1ec7u em b\u00e9 c\u00f3 s\u1ed1ng s\u00f3t hay kh\u00f4ng.<\/p>\n

M\u1ed9t chuy\u00ean gia t\u01b0 v\u1ea5n di truy\u1ec1n \u0111\u00e3 h\u1ecfi v\u1ec1 ti\u1ec1n s\u1eed b\u1ec7nh tim c\u1ee7a gia \u0111\u00ecnh. M\u1ed9t ng\u01b0\u1eddi d\u00ec, Tara, \u0111\u01b0\u1ee3c m\u1eb9 cho bi\u1ebft, m\u1eafc ch\u1ee9ng t\u1ee9 ch\u1ee9ng Fallot th\u1ec3 nh\u1eb9, m\u1ed9t d\u1ecb t\u1eadt \u0111\u01b0\u1ee3c ph\u00e1t hi\u1ec7n \u1edf d\u1ea1ng n\u1eb7ng tr\u00ean si\u00eau \u00e2m c\u1ee7a ch\u00ednh con m\u00ecnh. Sau \u0111\u00f3, m\u1eb9 c\u1ee7a Tara, Heather, ti\u1ebft l\u1ed9 th\u00eam m\u1ed9t \u0111i\u1ec1u n\u1eefa: H\u01a1n 50 \u0111\u1ee9a tr\u1ebb trong gia \u0111\u00ecnh c\u00f4, bao g\u1ed3m c\u1ea3 m\u1ed9t trong nh\u1eefng anh ch\u1ecb em ru\u1ed9t c\u1ee7a Heather, \u0111\u00e3 ch\u1ebft khi c\u00f2n nh\u1ecf do c\u00f9ng m\u1ed9t d\u1ecb t\u1eadt tim th\u1ec3 n\u1eb7ng. \u0110\u00f3 l\u00e0 l\u1ea7n \u0111\u1ea7u ti\u00ean Tara nghe v\u1ec1 kh\u00eda c\u1ea1nh n\u00e0y trong qu\u00e1 kh\u1ee9 c\u1ee7a gia \u0111\u00ecnh m\u00ecnh.<\/p>\n

Nh\u01b0ng b\u00e1c s\u0129 tim m\u1ea1ch nhi khoa c\u1ee7a Tara \u1edf Santa Rosa \u0111\u00e3 mang \u0111\u1ebfn hy v\u1ecdng. "C\u00f4 \u1ea5y n\u00f3i v\u1edbi ch\u00fang t\u00f4i r\u1eb1ng b\u00e1c s\u0129 ph\u1eabu thu\u1eadt t\u1ee9 ch\u1ee9ng Fallot gi\u1ecfi nh\u1ea5t th\u1ebf gi\u1edbi l\u00e0 b\u00e1c s\u0129 Hanley, v\u00e0 \u00f4ng \u1ea5y \u0111ang h\u00e0nh ngh\u1ec1 ngay t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard", c\u00f4 n\u00f3i.<\/p>\n

C\u00f4 m\u1ec9m c\u01b0\u1eddi, nh\u1edb l\u1ea1i c\u1ea3m gi\u00e1c nh\u1eb9 nh\u00f5m c\u1ee7a m\u00ecnh. "Ch\u00fang t\u00f4i r\u1ea5t vui khi bi\u1ebft b\u00e1c s\u0129 Hanley t\u00ecnh c\u1edd t\u1ea1o ra ca ph\u1eabu thu\u1eadt cho t\u00ecnh tr\u1ea1ng \u0111\u1eb7c bi\u1ec7t n\u00e0y."<\/p>\n

B\u00e1c s\u0129 Hanley, gi\u00e1m \u0111\u1ed1c Trung t\u00e2m Tim m\u1ea1ch Nhi khoa t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard, \u0111\u00e3 ph\u00e1t minh ra ph\u01b0\u01a1ng ph\u00e1p ph\u1eabu thu\u1eadt s\u1eeda ch\u1eefa g\u1ecdi l\u00e0 \u0111\u1ed3ng ti\u00eau \u0111i\u1ec3m (unifocalization), ph\u01b0\u01a1ng ph\u00e1p n\u00e0y \u0111\u00e3 gi\u00fap h\u00e0ng tr\u0103m tr\u1ebb em v\u01b0\u1ee3t qua b\u1ec7nh t\u1ee9 ch\u1ee9ng Fallot ph\u1ee9c t\u1ea1p. D\u1ecb t\u1eadt n\u00e0y bao g\u1ed3m m\u1ed9t s\u1ed1 b\u1ea5t th\u01b0\u1eddng v\u1ec1 c\u1ea5u tr\u00fac trong v\u00e0 xung quanh tim, bao g\u1ed3m m\u1ed9t \u0111\u1ed9ng m\u1ea1ch ph\u1ed5i b\u1ecb m\u1ea5t ho\u1eb7c b\u1ecb d\u1ecb d\u1ea1ng, \u0111\u1ed9ng m\u1ea1ch n\u00e0y d\u1eabn m\u00e1u \u0111\u1ebfn ph\u1ed5i. \u0110\u1ec3 b\u00f9 \u0111\u1eafp, c\u01a1 th\u1ec3 ph\u00e1t tri\u1ec3n c\u00e1c \u0111\u1ed9ng m\u1ea1ch "ph\u1ee5" nh\u1ecf \u0111i t\u1eeb \u0111\u1ed9ng m\u1ea1ch ch\u1ee7 \u0111\u1ebfn ph\u1ed5i. C\u1ea5u tr\u00fac gi\u1ea3i ph\u1eabu b\u1ea5t th\u01b0\u1eddng n\u00e0y l\u00e0m t\u0103ng huy\u1ebft \u00e1p v\u00e0 g\u00e2y t\u1ed5n th\u01b0\u01a1ng ph\u1ed5i. D\u1ecb t\u1eadt n\u00e0y c\u0169ng ng\u0103n c\u01a1 th\u1ec3 nh\u1eadn \u0111\u01b0\u1ee3c m\u00e1u gi\u00e0u oxy. N\u1ebfu kh\u00f4ng \u0111\u01b0\u1ee3c ph\u1eabu thu\u1eadt s\u1eeda ch\u1eefa, h\u1ea7u h\u1ebft b\u1ec7nh nh\u00e2n t\u1eed vong trong giai \u0111o\u1ea1n s\u01a1 sinh ho\u1eb7c th\u1eddi th\u01a1 \u1ea5u.<\/p>\n

Hanley khuy\u00ean Tara n\u00ean sinh \u0111\u1ee9a b\u00e9, \u0111\u1ee9a b\u00e9 s\u1ebd \u0111\u01b0\u1ee3c \u0111\u1eb7t t\u00ean l\u00e0 Elena, t\u1ea1i B\u1ec7nh vi\u1ec7n nhi Packard.<\/p>\n

\u201cCh\u00fang t\u00f4i s\u1ebd kh\u00f4ng bi\u1ebft chi ti\u1ebft v\u1ec1 c\u00e1c m\u1ea1ch m\u00e1u ph\u1ee5 c\u1ee7a Elena cho \u0111\u1ebfn khi b\u00e9 ch\u00e0o \u0111\u1eddi v\u00e0 c\u00f3 th\u1ec3 \u0111\u01b0\u1ee3c \u0111\u1eb7t \u1ed1ng th\u00f4ng tim,\u201d Hanley, \u0111\u1ed3ng th\u1eddi l\u00e0 Ti\u1ebfn s\u0129 Y khoa Lawrence Crowley, Gi\u00e1o s\u01b0 S\u1ee9c kh\u1ecfe Tr\u1ebb em t\u1ea1i Tr\u01b0\u1eddng Y Stanford, cho bi\u1ebft. \u201cH\u1ea7u h\u1ebft tr\u1ebb s\u01a1 sinh m\u1eafc b\u1ec7nh n\u00e0y kh\u00f4ng c\u1ea7n ph\u1eabu thu\u1eadt s\u01a1 sinh, nh\u01b0ng kho\u1ea3ng 10% c\u1ea7n ph\u1eabu thu\u1eadt. V\u00ec v\u1eady, ch\u00fang t\u00f4i mu\u1ed1n \u0111\u00e1nh gi\u00e1 t\u00ecnh tr\u1ea1ng c\u1ee7a Elena m\u1ed9t c\u00e1ch nhanh ch\u00f3ng.\u201d
\nCh\u0103m s\u00f3c ph\u1ed1i h\u1ee3p<\/p>\n

Tara \u0111\u01b0\u1ee3c gi\u1edbi thi\u1ec7u \u0111\u1ebfn Trung t\u00e2m S\u1ee9c kh\u1ecfe Thai nhi v\u00e0 M\u1eb9 t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard, n\u01a1i \u0111i\u1ec1u ph\u1ed1i vi\u00ean ch\u0103m s\u00f3c b\u1ec7nh nh\u00e2n ki\u00eam c\u1ed1 v\u1ea5n di truy\u1ec1n Meg Homeyer \u0111\u00e3 gi\u00fap c\u00f4 \u0111i\u1ec1u h\u01b0\u1edbng qu\u00e1 tr\u00ecnh ch\u0103m s\u00f3c tr\u01b0\u1edbc sinh c\u00f2n l\u1ea1i, bao g\u1ed3m ch\u1ea9n \u0111o\u00e1n v\u00e0 h\u1eb9n kh\u00e1m t\u01b0 v\u1ea5n v\u1edbi nhi\u1ec1u chuy\u00ean gia. "M\u1ed9t nh\u00f3m ng\u01b0\u1eddi \u0111a chuy\u00ean khoa nh\u01b0 v\u1eady c\u1ea7n \u0111\u01b0\u1ee3c tham gia v\u00e0o nh\u1eefng ca b\u1ec7nh ph\u1ee9c t\u1ea1p n\u00e0y, v\u00ec v\u1eady ch\u00fang t\u00f4i c\u1ed1 g\u1eafng l\u00e0m m\u1ecdi th\u1ee9 c\u00f3 th\u1ec3 \u0111\u1ec3 qu\u00e1 tr\u00ecnh n\u00e0y b\u1edbt kh\u00f3 kh\u0103n h\u01a1n", Homeyer n\u00f3i, \u0111\u1ed3ng th\u1eddi l\u01b0u \u00fd r\u1eb1ng m\u1ed9t s\u1ed1 l\u1ea7n theo d\u00f5i c\u1ee7a Tara \u0111\u01b0\u1ee3c th\u1ef1c hi\u1ec7n \u1edf Santa Rosa \u0111\u1ec3 c\u00f4 kh\u00f4ng ph\u1ea3i \u0111\u1ebfn Palo Alto th\u00eam l\u1ea7n n\u1eefa. "Ch\u00fang t\u00f4i mu\u1ed1n tr\u1ea3i nghi\u1ec7m c\u1ee7a b\u1ec7nh nh\u00e2n c\u00e0ng \u0111\u01a1n gi\u1ea3n, d\u1ec5 hi\u1ec3u v\u00e0 \u0111\u1ed3ng c\u1ea3m c\u00e0ng t\u1ed1t."<\/p>\n

\u201cC\u00f3 m\u1ed9t ng\u01b0\u1eddi nh\u01b0 Meg \u0111\u00e3 gi\u00fap ch\u00fang t\u00f4i c\u00f3 m\u1ed9t trung t\u00e2m h\u1ed7 tr\u1ee3,\u201d Tara, ng\u01b0\u1eddi \u0111\u00e3 \u0111\u01b0\u1ee3c l\u00ean l\u1ecbch sinh m\u1ed5 ngay tr\u01b0\u1edbc ng\u00e0y d\u1ef1 sinh, chia s\u1ebb. Tuy nhi\u00ean, c\u00f4 \u1ea5y \u0111\u00e3 chuy\u1ec3n d\u1ea1 s\u1edbm h\u01a1n ba tu\u1ea7n.<\/p>\n

\u201cT\u1eeb l\u00fac Tara chuy\u1ec3n d\u1ea1, trong su\u1ed1t qu\u00e1 tr\u00ecnh, t\u1eebng b\u01b0\u1edbc m\u1ed9t, ai \u0111\u00f3 \u0111\u00e3 v\u1ea1ch ra r\u00f5 r\u00e0ng nh\u1eefng g\u00ec c\u00f3 th\u1ec3 x\u1ea3y ra, nh\u1eefng l\u1ef1a ch\u1ecdn c\u1ee7a ch\u00fang t\u00f4i, v\u00e0 h\u1eadu qu\u1ea3 c\u00f3 th\u1ec3 x\u1ea3y ra,\u201d Ben nh\u1edb l\u1ea1i. \u201cT\u00f4i kh\u00f4ng th\u1ec3 t\u01b0\u1edfng t\u01b0\u1ee3ng \u0111\u01b0\u1ee3c s\u1ef1 ch\u0103m s\u00f3c v\u00e0 h\u1ed7 tr\u1ee3 n\u00e0o t\u1ed1t h\u01a1n th\u1ebf n\u00e0y. C\u00f3 m\u1ed9t l\u00f2ng tr\u1eafc \u1ea9n v\u00f4 c\u00f9ng, kh\u00e1c th\u01b0\u1eddng m\u00e0 t\u00f4i kh\u00f4ng bi\u1ebft l\u00e0m sao c\u00f3 th\u1ec3 \u0111\u1ec1n \u0111\u00e1p l\u1ea1i.\u201d
\nPh\u1eabu thu\u1eadt v\u00e0 Ph\u1ee5c h\u1ed3i<\/p>\n

Vi\u1ec7c sinh n\u1edf c\u1ee7a Elena di\u1ec5n ra su\u00f4n s\u1ebb, nh\u01b0ng nh\u1eefng ng\u00e0y th\u00e1ng c\u1ee7a c\u00f4 \u1ea5y kh\u00f4ng h\u1ec1 d\u1ec5 d\u00e0ng. "M\u1ecdi th\u1ee9 th\u1eadt mong manh", Tara n\u00f3i. "Ph\u1ea3i m\u1ea5t c\u1ea3 tu\u1ea7n ch\u00fang t\u00f4i m\u1edbi bi\u1ebft con b\u00e9 c\u00f3 th\u1ec3 t\u1ef1 th\u1edf, tr\u01b0\u1edbc khi c\u00e1c b\u00e1c s\u0129 c\u00f3 th\u1ec3 th\u1ef1c hi\u1ec7n th\u00f4ng tim v\u00e0 nh\u1eadn ra r\u1eb1ng h\u1ecd c\u00f3 th\u1ec3 ho\u00e3n ca ph\u1eabu thu\u1eadt.<\/p>\n

Sau 12 ng\u00e0y \u1edf ph\u00f2ng ch\u0103m s\u00f3c \u0111\u1eb7c bi\u1ec7t d\u00e0nh cho tr\u1ebb s\u01a1 sinh, Tara v\u00e0 Ben r\u1ea5t vui m\u1eebng \u0111\u01b0\u1ee3c \u0111\u01b0a Elena v\u1ec1 nh\u00e0 v\u1edbi ch\u1ecb g\u00e1i Cecilia.<\/p>\n

\u0110\u1ed1i v\u1edbi nh\u1eefng b\u1ec7nh nh\u00e2n m\u1eafc t\u1ee9 ch\u1ee9ng Fallot kh\u00f4ng c\u1ea7n ph\u1eabu thu\u1eadt khi m\u1edbi sinh, t\u1ed1t h\u01a1n n\u00ean \u0111\u1ee3i v\u00e0i th\u00e1ng \u0111\u1ec3 s\u1eeda ch\u1eefa tim, Hanley gi\u1ea3i th\u00edch, v\u00ec ph\u1eabu thu\u1eadt \u0111\u1ed3ng ti\u00eau \u0111i\u1ec3m r\u1ea5t ph\u1ee9c t\u1ea1p v\u1ec1 m\u1eb7t k\u1ef9 thu\u1eadt v\u00e0 li\u00ean quan \u0111\u1ebfn ch\u1ea5n th\u01b0\u01a1ng b\u00ean trong l\u1ed3ng ng\u1ef1c. Tuy nhi\u00ean, vi\u1ec7c ch\u1edd \u0111\u1ee3i c\u00f3 nguy c\u01a1 khi\u1ebfn ph\u1ed5i ph\u1ea3i ch\u1ecbu \u00e1p l\u1ef1c m\u00e1u cao nguy hi\u1ec3m. \u0110\u1ec3 c\u00e2n b\u1eb1ng, h\u1ea7u h\u1ebft c\u00e1c ca ph\u1eabu thu\u1eadt \u0111\u1ed3ng ti\u00eau \u0111i\u1ec3m \u0111\u1ec1u \u0111\u01b0\u1ee3c th\u1ef1c hi\u1ec7n khi tr\u1ebb \u0111\u01b0\u1ee3c v\u00e0i th\u00e1ng tu\u1ed5i. Elena \u0111\u00e3 quay l\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard \u0111\u1ec3 ph\u1eabu thu\u1eadt khi g\u1ea7n 6 th\u00e1ng tu\u1ed5i.<\/p>\n

Trong ph\u00f2ng ph\u1eabu thu\u1eadt, Hanley \u0111\u00e3 x\u00e1c \u0111\u1ecbnh v\u1ecb tr\u00ed t\u1ea5t c\u1ea3 c\u00e1c \u0111\u1ed9ng m\u1ea1ch ph\u1ee5 d\u1eabn m\u00e1u \u0111\u1ebfn ph\u1ed5i c\u1ee7a Elena v\u00e0 s\u1eed d\u1ee5ng ch\u00fang \u0111\u1ec3 x\u00e2y d\u1ef1ng m\u1ed9t \u0111\u1ed9ng m\u1ea1ch ph\u1ed5i m\u1edbi.<\/p>\n

"Gi\u1ed1ng nh\u01b0 vi\u1ec7c t\u00e1i t\u1ea1o th\u00e2n c\u00e2y s\u1ed3i t\u1eeb nh\u1eefng c\u00e0nh c\u00e2y r\u1ea3i r\u00e1c kh\u1eafp c\u00e1nh \u0111\u1ed3ng v\u1eady", \u00f4ng n\u00f3i. Hanley \u0111\u00e3 thay th\u1ebf m\u1ed9t van tim b\u1ea5t th\u01b0\u1eddng v\u00e0 kh\u00e2u l\u1ea1i l\u1ed7 h\u1ed5ng gi\u1eefa tim ph\u1ea3i v\u00e0 tim tr\u00e1i c\u1ee7a Elena, \u0111\u1ed3ng th\u1eddi ki\u1ec3m tra l\u01b0u l\u01b0\u1ee3ng m\u00e1u qua \u0111\u1ed9ng m\u1ea1ch m\u1edbi \u0111\u1ec3 \u0111\u1ea3m b\u1ea3o n\u00f3 cung c\u1ea5p \u0111\u1ee7 m\u00e1u cho ph\u1ed5i c\u1ee7a c\u00f4 b\u00e9.<\/p>\n

R\u1ea5t \u00edt b\u00e1c s\u0129 ph\u1eabu thu\u1eadt tr\u00ean th\u1ebf gi\u1edbi th\u1ef1c hi\u1ec7n ca ph\u1eabu thu\u1eadt marathon k\u00e9o d\u00e0i kho\u1ea3ng 10 ti\u1ebfng n\u00e0y. \u0110\u1ed1i v\u1edbi Hanley, \u0111\u00e2y g\u1ea7n nh\u01b0 l\u00e0 m\u1ed9t ca ph\u1eabu thu\u1eadt th\u00f4ng th\u01b0\u1eddng.<\/p>\n

\u201cC\u00e1c gia \u0111\u00ecnh \u0111\u1ebfn B\u1ec7nh vi\u1ec7n Nhi Packard t\u1eeb kh\u1eafp n\u01a1i tr\u00ean th\u1ebf gi\u1edbi v\u00ec ch\u00fang t\u00f4i t\u1eadp trung v\u00e0o vi\u1ec7c \u0111i\u1ec1u tr\u1ecb b\u1ec7nh tim b\u1ea9m sinh n\u00e0y,\u201d Hanley n\u00f3i. \u201cTr\u01b0\u1eddng h\u1ee3p c\u1ee7a Elena kh\u00f4ng ph\u1ea3i l\u00e0 ca ph\u1eabu thu\u1eadt \u0111\u01a1n gi\u1ea3n nh\u1ea5t m\u00e0 t\u00f4i t\u1eebng th\u1ef1c hi\u1ec7n, nh\u01b0ng c\u0169ng kh\u00f4ng ph\u1ea3i l\u00e0 ph\u1ee9c t\u1ea1p nh\u1ea5t.\u201d<\/p>\n

Nh\u01b0ng \u0111\u1ed1i v\u1edbi cha m\u1eb9 Elena, \u0111\u00f3 l\u00e0 ca ph\u1eabu thu\u1eadt quan tr\u1ecdng nh\u1ea5t m\u00e0 Hanley t\u1eebng th\u1ef1c hi\u1ec7n. Tara k\u1ec3 l\u1ea1i: "Sau ca ph\u1eabu thu\u1eadt, b\u00e1c s\u0129 Hanley xu\u1ea5t hi\u1ec7n t\u1eeb h\u01b0 kh\u00f4ng, r\u1ea5t b\u00ecnh t\u0129nh, v\u00e0 n\u00f3i r\u1eb1ng m\u1ecdi th\u1ee9 \u0111\u1ec1u di\u1ec5n ra nh\u01b0 mong \u0111\u1ee3i. V\u1ee3 ch\u1ed3ng t\u00f4i ch\u1ec9 bi\u1ebft \u00f4m nhau." C\u00f4 n\u00f3i th\u00eam r\u1eb1ng l\u1eddi "c\u1ea3m \u01a1n" ch\u00e2n th\u00e0nh m\u00e0 h\u1ecd d\u00e0nh cho anh d\u01b0\u1eddng nh\u01b0 v\u1eabn ch\u01b0a \u0111\u1ee7. "L\u00e0m sao c\u00f3 th\u1ec3 c\u1ea3m \u01a1n ng\u01b0\u1eddi \u0111\u00e3 c\u1ee9u s\u1ed1ng con m\u00ecnh?"<\/p>\n

Sau ca ph\u1eabu thu\u1eadt, Elena \u0111\u00e3 h\u1ed3i ph\u1ee5c t\u1ea1i khoa H\u1ed3i s\u1ee9c Tim m\u1ea1ch d\u01b0\u1edbi s\u1ef1 gi\u00e1m s\u00e1t c\u1ee7a Ti\u1ebfn s\u0129 Loren Sacks, m\u1ed9t nghi\u00ean c\u1ee9u sinh chuy\u00ean ng\u00e0nh H\u1ed3i s\u1ee9c Nhi khoa. C\u00e1c h\u1ecdc b\u1ed5ng, ph\u1ea7n l\u1edbn \u0111\u01b0\u1ee3c t\u00e0i tr\u1ee3 th\u00f4ng qua ho\u1ea1t \u0111\u1ed9ng t\u1eeb thi\u1ec7n, h\u1ed7 tr\u1ee3 gi\u00e1o d\u1ee5c v\u00e0 \u0111\u00e0o t\u1ea1o cho c\u00e1c nh\u00e0 l\u00e3nh \u0111\u1ea1o t\u01b0\u01a1ng lai c\u1ee7a y khoa nhi.<\/p>\n

\u201cC\u01a1 h\u1ed9i \u0111\u1ebfn \u0111\u00e2y v\u00e0 h\u1ecdc h\u1ecfi t\u1eeb c\u00e1c b\u00e1c s\u0129 n\u00e0y s\u1ebd kh\u00f4ng th\u1ec3 c\u00f3 \u0111\u01b0\u1ee3c n\u1ebfu kh\u00f4ng c\u00f3 nh\u1eefng m\u00f3n qu\u00e0 h\u00e0o ph\u00f3ng m\u00e0 h\u1ecd \u0111\u00e3 d\u00e0nh cho t\u1ed5 ch\u1ee9c n\u00e0y\u201d, Sacks n\u00f3i. Khi l\u00e0m vi\u1ec7c v\u1edbi gia \u0111\u00ecnh Sharp, Sacks \u0111\u00e3 tr\u1ef1c ti\u1ebfp tr\u1ea3i nghi\u1ec7m s\u1ee9c m\u1ea1nh bi\u1ebfn \u0111\u1ed5i c\u1ee7a s\u1ef1 ch\u0103m s\u00f3c \u0111\u1eb7c bi\u1ec7t c\u1ee7a Packard. Khi ng\u1ed3i b\u00ean gi\u01b0\u1eddng b\u1ec7nh c\u1ee7a Elena, anh nh\u1edb l\u1ea1i, Tara \u0111\u00e3 chia s\u1ebb m\u1ed9t nh\u1eadn th\u1ee9c \u0111\u00e1ng kinh ng\u1ea1c.<\/p>\n

\u201cTara n\u00f3i v\u1edbi t\u00f4i r\u1eb1ng Elena s\u1ebd l\u00e0 th\u00e0nh vi\u00ean \u0111\u1ea7u ti\u00ean trong gia \u0111\u00ecnh h\u1ecd \u0111\u01b0\u1ee3c k\u1ef3 v\u1ecdng s\u1ebd s\u1ed1ng s\u00f3t qua c\u0103n b\u1ec7nh n\u00e0y,\u201d Sacks n\u00f3i. \u201cT\u00f4i ngh\u1eb9n ng\u00e0o. Th\u1eadt tuy\u1ec7t v\u1eddi khi \u0111\u01b0\u1ee3c g\u00f3p ph\u1ea7n mang \u0111\u1ebfn \u0111i\u1ec1u n\u00e0y cho gia \u0111\u00ecnh, nh\u1ea5t l\u00e0 khi x\u00e9t \u0111\u1ebfn vi\u1ec7c h\u1ecd \u0111\u00e3 ph\u1ea3i ch\u1ecbu \u0111\u1ef1ng c\u0103n b\u1ec7nh n\u00e0y qua nhi\u1ec1u th\u1ebf h\u1ec7.\u201d<\/p>\n

Kh\u1ecfe m\u1ea1nh v\u00e0 H\u00e0i l\u00f2ng<\/h2>\n

Elena, hi\u1ec7n 15 th\u00e1ng tu\u1ed5i, v\u1eabn ch\u01b0a nh\u1eadn th\u1ee9c \u0111\u01b0\u1ee3c v\u1ecb tr\u00ed quan tr\u1ecdng c\u1ee7a m\u00ecnh trong l\u1ecbch s\u1eed gia \u0111\u00ecnh. B\u00e9 kh\u1ecfe m\u1ea1nh v\u00e0 vui v\u1ebb, t\u1eadp trung v\u00e0o vi\u1ec7c \u0111i l\u1ea1i, c\u01b0\u1eddi kh\u00fac kh\u00edch v\u00e0 nhai m\u1ecdi th\u1ee9 b\u1eb1ng h\u00e0m r\u0103ng m\u1edbi. Sau n\u0103m \u0111\u1ea7u ti\u00ean \u0111\u1ea7y kh\u00f3 kh\u0103n, b\u00e9 s\u1ebd l\u1edbn l\u00ean v\u00e0 t\u1eadn h\u01b0\u1edfng nh\u1eefng ho\u1ea1t \u0111\u1ed9ng th\u01b0\u1eddng ng\u00e0y c\u1ee7a tr\u1ebb th\u01a1.<\/p>\n

Hanley cho bi\u1ebft: "Con b\u00e9 s\u1ebd c\u00f3 th\u1ec3 ch\u01a1i \u1edf s\u00e2n ch\u01a1i, ch\u1ea1y quanh khu ph\u1ed1 v\u00e0 \u0111\u1ea1p xe nh\u01b0 t\u1ea5t c\u1ea3 nh\u1eefng \u0111\u1ee9a tr\u1ebb kh\u00e1c".<\/p>\n

Trong khi \u0111\u00f3, nh\u00f3m t\u01b0 v\u1ea5n di truy\u1ec1n t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard v\u1eabn \u0111ang nghi\u00ean c\u1ee9u c\u01a1 s\u1edf di truy\u1ec1n c\u1ee7a b\u1ec7nh tim c\u1ee7a Elena. N\u1ebfu h\u1ecd c\u00f3 th\u1ec3 x\u00e1c \u0111\u1ecbnh \u0111\u01b0\u1ee3c c\u00e1c gen li\u00ean quan, tr\u01b0\u1eddng h\u1ee3p c\u1ee7a Elena c\u00f3 th\u1ec3 l\u00e0m s\u00e1ng t\u1ecf ngu\u1ed3n g\u1ed1c c\u1ee7a b\u1ec7nh t\u1ee9 ch\u1ee9ng Fallot \u1edf c\u00e1c gia \u0111\u00ecnh kh\u00e1c.<\/p>\n

\u201cN\u1ebfu Elena \u0111\u01b0\u1ee3c sinh ra c\u00e1ch \u0111\u00e2y 15 n\u0103m, c\u00f3 l\u1ebd con b\u00e9 \u0111\u00e3 kh\u00f4ng th\u1ec3 s\u1ed1ng s\u00f3t,\u201d Tara n\u00f3i. \u201cB\u1ec7nh vi\u1ec7n Nhi Packard \u0111\u00e3 thay \u0111\u1ed5i gia \u0111\u00ecnh ch\u00fang t\u00f4i m\u00e3i m\u00e3i. Nh\u00ecn con b\u00e9, b\u1ea1n s\u1ebd kh\u00f4ng bao gi\u1edd bi\u1ebft \u0111\u01b0\u1ee3c \u0111i\u1ec1u g\u00ec \u0111\u00f3 kh\u00f4ng \u1ed5n.\u201d<\/p>","protected":false},"excerpt":{"rendered":"

G\u1eb7p g\u1ee1 Elena M\u1eb7c d\u00f9 nhi\u1ec1u ph\u1ee5 n\u1eef mang thai v\u1ed9i v\u00e3 \u0111\u1ebfn b\u1ec7nh vi\u1ec7n trong l\u00fac chuy\u1ec3n d\u1ea1, nh\u01b0ng \u00edt ai \u0111\u1ebfn \u0111\u01b0\u1ee3c nh\u01b0 Tara Sharp, ng\u01b0\u1eddi \u0111\u00e3 bay 90 d\u1eb7m b\u1eb1ng tr\u1ef1c th\u0103ng c\u1ea5p c\u1ee9u t\u1eeb\u2026<\/p>","protected":false},"author":17,"featured_media":3531,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148,22],"class_list":["post-3530","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news","category-patient-stories","health_topic-heart"],"acf":[],"yoast_head":"\nSpecial Delivery - 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