{"id":3563,"date":"2014-08-25T20:29:17","date_gmt":"2014-08-25T20:29:17","guid":{"rendered":"https:\/\/lpfch.org\/all-grown-up-from-tiny-transplant-patient-to-thriving-young-adult\/"},"modified":"2024-02-14T14:06:45","modified_gmt":"2024-02-14T14:06:45","slug":"all-grown-up-from-tiny-transplant-patient-to-thriving-young-adult","status":"publish","type":"post","link":"https:\/\/lpfch.org\/vi\/impact-stories\/all-grown-up-from-tiny-transplant-patient-to-thriving-young-adult\/","title":{"rendered":"\u0110\u00e3 tr\u01b0\u1edfng th\u00e0nh: T\u1eeb b\u1ec7nh nh\u00e2n gh\u00e9p t\u1ea1ng nh\u1ecf b\u00e9 \u0111\u1ebfn thanh ni\u00ean tr\u01b0\u1edfng th\u00e0nh"},"content":{"rendered":"

Miranda Ashland l\u00e0 m\u1ed9t c\u00f4 g\u00e1i v\u00f4 c\u00f9ng b\u1eadn r\u1ed9n. L\u00e0 m\u1ed9t h\u1ecdc sinh l\u1edbp 12 xu\u1ea5t s\u1eafc \u0111\u1ebfn t\u1eeb Saratoga, c\u00f4 \u1ea5y \u0111ang \u0111i\u1ec1n \u0111\u01a1n xin nh\u1eadp h\u1ecdc \u0111\u1ea1i h\u1ecdc v\u00e0 \u0111\u00f3ng vai ch\u00ednh trong v\u1edf nh\u1ea1c k\u1ecbch Oliver! c\u1ee7a tr\u01b0\u1eddng \u2014 v\u00e0 th\u1eadm ch\u00ed g\u1ea7n \u0111\u00e2y c\u00f2n gi\u00e0nh chi\u1ebfn th\u1eafng trong cu\u1ed9c thi \u0103n b\u00e1nh trong tu\u1ea7n l\u1ec5 tinh th\u1ea7n tr\u01b0\u1eddng h\u1ecdc.
V\u1edbi l\u1ecbch tr\u00ecnh b\u1eadn r\u1ed9n nh\u01b0 v\u1eady, Miranda v\u1eabn d\u00e0nh th\u1eddi gian cho m\u1ed9t \u01b0u ti\u00ean quan tr\u1ecdng kh\u00e1c: h\u1ed7 tr\u1ee3 B\u1ec7nh vi\u1ec7n Nhi Lucile Packard t\u1ea1i Stanford, n\u01a1i \u0111\u00e3 cho c\u00f4 c\u01a1 h\u1ed9i th\u1ee9 hai trong cu\u1ed9c s\u1ed1ng.<\/p>\n

L\u00fd do \u0111\u1ec3 hy v\u1ecdng<\/h2>\n

Gia \u0111\u00ecnh Ashland l\u1ea7n \u0111\u1ea7u ti\u00ean \u0111\u1ebfn B\u1ec7nh vi\u1ec7n Nhi Packard v\u00e0o n\u0103m 1995, khi Miranda m\u1edbi ch\u1ec9 2 th\u00e1ng tu\u1ed5i v\u00e0 b\u1ecb b\u1ec7nh n\u1eb7ng do teo \u0111\u01b0\u1eddng m\u1eadt, m\u1ed9t c\u0103n b\u1ec7nh b\u1ea9m sinh nghi\u00eam tr\u1ecdng d\u1eabn \u0111\u1ebfn suy gan. Sau khi g\u1eb7p c\u00e1c chuy\u00ean gia gh\u00e9p t\u1ea1ng, cha m\u1eb9 c\u00f4 b\u00e9, Michele v\u00e0 Tom, \u0111\u00e3 tr\u1ea3i nghi\u1ec7m m\u1ed9t c\u1ea3m x\u00fac m\u1edbi: s\u1ef1 nh\u1eb9 nh\u00f5m.<\/p>\n

\u201cT\u00f4i bi\u1ebft m\u00ecnh \u0111ang \u1edf gi\u1eefa nh\u1eefng chuy\u00ean gia,\u201d Michele nh\u1edb l\u1ea1i. \u201cKhi b\u1ea1n \u0111\u1ebfn Packard, b\u1ea1n s\u1ebd nghe th\u1ea5y m\u1ed9t gi\u1ecdng \u0111i\u1ec7u ng\u1ea7m r\u1eb1ng, \u2018Ch\u00fang t\u00f4i bi\u1ebft ph\u1ea3i l\u00e0m g\u00ec v\u00e0 ch\u00fang t\u00f4i s\u1ebd ch\u0103m s\u00f3c con b\u1ea1n.\u2019\u201d
B\u00e9 Miranda \u0111\u00e3 tr\u1ea3i qua ca gh\u00e9p gan th\u00e0nh c\u00f4ng v\u00e0 d\u00e0nh g\u1ea7n m\u1ed9t th\u00e1ng h\u1ed3i ph\u1ee5c t\u1ea1i b\u1ec7nh vi\u1ec7n. \u0110\u1ed9i ng\u0169 ch\u0103m s\u00f3c t\u1eadn t\u00e2m t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard \u0111\u00e3 tr\u1edf th\u00e0nh nh\u01b0 ng\u01b0\u1eddi th\u00e2n trong gia \u0111\u00ecnh, theo d\u00f5i s\u00e1t sao b\u00e9 qua c\u00e1c l\u1ea7n kh\u00e1m \u0111\u1ecbnh k\u1ef3 v\u00e0 gi\u00fap b\u00e9 v\u01b0\u1ee3t qua nh\u1eefng bi\u1ebfn ch\u1ee9ng sau gh\u00e9p gan m\u00e0 l\u1ebd ra c\u00f3 th\u1ec3 d\u1eabn \u0111\u1ebfn h\u1eadu qu\u1ea3 bi th\u1ea3m. Ng\u00e0y nay, Miranda cho r\u1eb1ng s\u1ee9c kh\u1ecfe t\u1ed1t c\u1ee7a m\u00ecnh l\u00e0 nh\u1edd 18 n\u0103m \u0111\u01b0\u1ee3c ch\u0103m s\u00f3c chu \u0111\u00e1o.<\/p>\n

Gia \u0111\u00ecnh l\u00e0 tr\u00ean h\u1ebft<\/h2>\n

T\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard, vi\u1ec7c ch\u0103m s\u00f3c b\u1ec7nh nh\u00e2n kh\u00f4ng ch\u1ec9 \u0111\u01a1n thu\u1ea7n l\u00e0 cung c\u1ea5p n\u1ec1n y t\u1ebf \u0111\u1eb3ng c\u1ea5p th\u1ebf gi\u1edbi. B\u1ec7nh vi\u1ec7n \u0111\u1ec1 cao gi\u00e1 tr\u1ecb c\u1ee7a ch\u0103m s\u00f3c l\u1ea5y gia \u0111\u00ecnh l\u00e0m trung t\u00e2m, coi gia \u0111\u00ecnh l\u00e0 \u0111\u1ed1i t\u00e1c trong vi\u1ec7c ch\u0103m s\u00f3c s\u1ee9c kh\u1ecfe c\u1ee7a con em m\u00ecnh. B\u00e0 Michele l\u01b0u \u00fd r\u1eb1ng, c\u00e1ch ti\u1ebfp c\u1eadn n\u00e0y gi\u00fap gia \u0111\u00ecnh hi\u1ec3u r\u00f5 h\u01a1n v\u1ec1 qu\u00e1 tr\u00ecnh \u0111i\u1ec1u tr\u1ecb c\u1ee7a con m\u00ecnh, \u0111\u1ed3ng th\u1eddi cho ph\u00e9p c\u00e1c b\u00e1c s\u0129 th\u1ea5u hi\u1ec3u h\u01a1n quan \u0111i\u1ec3m c\u1ee7a gia \u0111\u00ecnh.
Michele r\u1ea5t \u1ea5n t\u01b0\u1ee3ng v\u1edbi m\u00f4 h\u00ecnh n\u00e0y \u0111\u1ebfn n\u1ed7i c\u00f4 b\u1eaft \u0111\u1ea7u tham gia H\u1ed9i \u0111\u1ed3ng C\u1ed1 v\u1ea5n Gia \u0111\u00ecnh, v\u00e0 cu\u1ed1i c\u00f9ng gia nh\u1eadp \u0111\u1ed9i ng\u0169 nh\u00e2n vi\u00ean c\u1ee7a Packard.<\/p>\n

Hi\u1ec7n nay, b\u00e0 \u0111ang l\u00e0m vi\u1ec7c v\u1edbi c\u00e1c b\u1eadc ph\u1ee5 huynh kh\u00e1c c\u1ee7a b\u1ec7nh vi\u1ec7n Packard \u0111\u1ec3 \u0111\u00f3ng g\u00f3p \u00fd ki\u1ebfn nh\u1eb1m c\u1ea3i thi\u1ec7n c\u00e1c ch\u00ednh s\u00e1ch v\u00e0 quy tr\u00ecnh c\u1ee7a b\u1ec7nh vi\u1ec7n, \u0111\u1ed3ng th\u1eddi gi\u00fap c\u00e1c gia \u0111\u00ecnh c\u00f3 \u0111\u01b0\u1ee3c th\u00f4ng tin c\u1ea7n thi\u1ebft \u0111\u1ec3 ch\u0103m s\u00f3c con c\u00e1i t\u1ed1t h\u01a1n.<\/p>\n

\u00d4ng b\u00e0 c\u1ee7a Miranda, Marilyn v\u00e0 Arden Anderson, c\u0169ng \u0111\u01b0\u1ee3c truy\u1ec1n c\u1ea3m h\u1ee9ng \u0111\u1ec3 \u0111\u00f3ng g\u00f3p cho c\u1ed9ng \u0111\u1ed3ng. C\u1ea3 hai \u0111\u1ec1u l\u00e0 t\u00ecnh nguy\u1ec7n vi\u00ean l\u00e2u n\u0103m t\u1ea1i b\u1ec7nh vi\u1ec7n, v\u00e0 Marilyn l\u00e0 th\u00e0nh vi\u00ean c\u1ee7a H\u1ed9i ph\u1ee5 n\u1eef Palo Alto, m\u1ed9t t\u1ed5 ch\u1ee9c gi\u00fap g\u00e2y qu\u1ef9 h\u1ed7 tr\u1ee3 cho B\u1ec7nh vi\u1ec7n Nhi Packard.<\/p>\n

T\u1ea1 \u01a1n<\/h2>\n

V\u00e0o th\u00e1ng 9, Miranda \u0111\u00e3 ph\u00e1t bi\u1ec3u t\u1ea1i l\u1ec5 kh\u1edfi c\u00f4ng d\u1ef1 \u00e1n m\u1edf r\u1ed9ng B\u1ec7nh vi\u1ec7n Nhi Packard.<\/p>\n

\u201cT\u00f4i r\u1ea5t vui m\u1eebng v\u1ec1 vi\u1ec7c m\u1edf r\u1ed9ng b\u1ec7nh vi\u1ec7n n\u00e0y,\u201d b\u00e0 n\u00f3i tr\u01b0\u1edbc m\u1ed9t \u0111\u00e1m \u0111\u00f4ng ch\u1eadt k\u00edn ng\u01b0\u1eddi. \u201c\u0110i\u1ec1u \u0111\u00f3 c\u00f3 ngh\u0129a l\u00e0 nhi\u1ec1u gia \u0111\u00ecnh h\u01a1n s\u1ebd c\u00f3 th\u1ec3 b\u01b0\u1edbc qua c\u00e1nh c\u1eeda n\u00e0y, nh\u1eadn \u0111\u01b0\u1ee3c s\u1ef1 ch\u0103m s\u00f3c m\u00e0 h\u1ecd c\u1ea7n v\u00e0 \u0111\u01b0\u1ee3c trao hy v\u1ecdng s\u1ebd gi\u00fap h\u1ecd v\u01b0\u1ee3t qua ph\u1ea7n \u0111\u1eddi c\u00f2n l\u1ea1i.\u201d<\/p>\n

Miranda l\u1edbn l\u00ean t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard. C\u00f4 v\u1eabn nh\u1edb nh\u1eefng l\u1ea7n th\u01b0\u1eddng xuy\u00ean \u0111\u1ebfn c\u0103ng tin \u0111\u1ec3 \u0103n s\u1eefa chua \u0111\u00f4ng l\u1ea1nh \u2014 \u201cc\u00f3 r\u1eafc th\u00eam k\u1eb9o\u201d, c\u00f4 c\u01b0\u1eddi n\u00f3i. Ng\u00e0y nay, khi b\u01b0\u1edbc v\u00e0o tu\u1ed5i tr\u01b0\u1edfng th\u00e0nh, c\u00f4 \u0111\u00e3 t\u1ef1 ch\u1ee7 trong vi\u1ec7c ch\u0103m s\u00f3c s\u1ee9c kh\u1ecfe c\u1ee7a m\u00ecnh, t\u1eeb vi\u1ec7c theo d\u00f5i \u0111\u01a1n thu\u1ed1c \u0111\u1ebfn vi\u1ec7c g\u1eedi email cho \u0111\u1ed9i ng\u0169 y t\u1ebf.<\/p>\n

\u201cNg\u00e0y x\u01b0a, t\u00f4i th\u01b0\u1eddng \u0111\u01b0\u1ee3c m\u1eb9 l\u1ea5y m\u00e1u khi ng\u1ed3i tr\u00ean \u0111\u00f9i b\u00e0 \u1ea5y,\u201d c\u00f4 nh\u1edb l\u1ea1i. \u201c\u0110\u00f3 l\u00e0 chuy\u1ec7n \u0111\u00e3 l\u00e2u r\u1ed3i. Gi\u1edd t\u00f4i \u0111\u00e3 c\u00f3 b\u1eb1ng l\u00e1i xe v\u00e0 t\u1ef1 \u0111i l\u1ea5y m\u00e1u \u0111\u01b0\u1ee3c r\u1ed3i.\u201d<\/p>\n

M\u1eb7c d\u00f9 cu\u1ed9c h\u1eb9n kh\u00e1m nhi cu\u1ed1i c\u00f9ng c\u1ee7a c\u00f4 b\u00e9 t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard s\u1eafp \u0111\u1ebfn, nh\u01b0ng c\u00f4 b\u00e9 r\u1ea5t h\u00e1o h\u1ee9c \u0111\u01b0\u1ee3c tham quan b\u1ec7nh vi\u1ec7n m\u1edbi. Khi \u0111\u1ebfn l\u00fac vi\u1ebft b\u00e0i ph\u00e1t bi\u1ec3u cho l\u1ec5 kh\u1edfi c\u00f4ng, Miranda bi\u1ebft ch\u00ednh x\u00e1c m\u00ecnh mu\u1ed1n n\u00f3i g\u00ec.<\/p>\n

\u201cT\u00f4i \u0111\u00e3 suy ngh\u0129 v\u1ec1 \u00fd ngh\u0129a c\u1ee7a vi\u1ec7c m\u1edf r\u1ed9ng n\u00e0y, v\u00e0 v\u1ec1 \u00fd ngh\u0129a c\u1ee7a b\u1ec7nh vi\u1ec7n n\u00e0y \u0111\u1ed1i v\u1edbi gia \u0111\u00ecnh t\u00f4i. \u0110\u00e2y l\u00e0 c\u01a1 h\u1ed9i \u0111\u1ec3 t\u00f4i n\u00f3i l\u1eddi c\u1ea3m \u01a1n.\u201d<\/p>","protected":false},"excerpt":{"rendered":"

Miranda Ashland l\u00e0 m\u1ed9t c\u00f4 g\u00e1i b\u1eadn r\u1ed9n. L\u00e0 m\u1ed9t h\u1ecdc sinh cu\u1ed1i c\u1ea5p xu\u1ea5t s\u1eafc \u0111\u1ebfn t\u1eeb Saratoga, c\u00f4 \u0111ang \u0111i\u1ec1n \u0111\u01a1n v\u00e0o c\u00e1c tr\u01b0\u1eddng \u0111\u1ea1i h\u1ecdc v\u00e0 tham gia v\u1edf k\u1ecbch c\u1ee7a tr\u01b0\u1eddng m\u00ecnh mang t\u00ean\u2026<\/p>","protected":false},"author":17,"featured_media":3564,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148,22],"class_list":["post-3563","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news","category-patient-stories"],"acf":[],"yoast_head":"\nAll Grown Up: From Tiny Transplant Patient to Thriving Young Adult - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lpfch.org\/vi\/impact-stories\/all-grown-up-from-tiny-transplant-patient-to-thriving-young-adult\/\" \/>\n<meta property=\"og:locale\" content=\"vi_VN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"All Grown Up: From Tiny Transplant Patient to Thriving Young Adult\" \/>\n<meta property=\"og:description\" content=\"Miranda Ashland is one busy girl. 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