{"id":3691,"date":"2015-09-17T16:06:06","date_gmt":"2015-09-17T16:06:06","guid":{"rendered":"https:\/\/lpfch.org\/one-mothers-words-our-familys-journey\/"},"modified":"2024-02-14T14:07:07","modified_gmt":"2024-02-14T14:07:07","slug":"one-mothers-words-our-familys-journey","status":"publish","type":"post","link":"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/","title":{"rendered":"L\u1eddi c\u1ee7a m\u1ed9t ng\u01b0\u1eddi m\u1eb9: H\u00e0nh tr\u00ecnh c\u1ee7a gia \u0111\u00ecnh ch\u00fang t\u00f4i"},"content":{"rendered":"<p><em>Zoie Farmer, m\u1eb9 c\u1ee7a b\u00e9 Hyrum, 10 tu\u1ed5i, \u0111\u00e3 chia s\u1ebb h\u00e0nh tr\u00ecnh c\u1ee7a gia \u0111\u00ecnh m\u00ecnh khi Hyrum chi\u1ebfn \u0111\u1ea5u v\u1edbi b\u1ec7nh b\u1ea1ch c\u1ea7u nh\u1edd s\u1ef1 gi\u00fap \u0111\u1ee1 c\u1ee7a b\u1ec7nh vi\u1ec7n ch\u00fang t\u00f4i. Sau \u0111\u00e2y l\u00e0 b\u00e0i ph\u00e1t bi\u1ec3u c\u1ee7a Zoie v\u00e0o ng\u00e0y 2 th\u00e1ng 9, khi Hyundai Hope on Wheels t\u1ed5 ch\u1ee9c s\u1ef1 ki\u1ec7n &quot;M\u1ed7i d\u1ea5u tay k\u1ec3 m\u1ed9t c\u00e2u chuy\u1ec7n&quot; v\u00e0 trao t\u1eb7ng b\u1ec7nh vi\u1ec7n ch\u00fang t\u00f4i kho\u1ea3n t\u00e0i tr\u1ee3 $250.000 cho nghi\u00ean c\u1ee9u ung th\u01b0 tr\u1ebb em.<\/em><\/p>\n<p>\u201cM\u1ed7i d\u1ea5u tay \u0111\u1ec1u k\u1ec3 m\u1ed9t c\u00e2u chuy\u1ec7n\u201d, v\u00e0 \u0111\u00e2y l\u00e0 c\u00e2u chuy\u1ec7n c\u1ee7a ch\u00fang t\u00f4i:<\/p>\n<p>V\u00e0o s\u00e1ng s\u1edbm ng\u00e0y 20 th\u00e1ng 12 n\u0103m 2012, gia \u0111\u00ecnh s\u00e1u ng\u01b0\u1eddi ch\u00fang t\u00f4i \u0111\u00e3 l\u00e1i xe hai ti\u1ebfng \u0111\u1ed3ng h\u1ed3 \u0111\u1ebfn B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford. Ch\u1ed3ng t\u00f4i th\u1ea3 Hyrum v\u00e0 t\u00f4i \u1edf ngay tr\u01b0\u1edbc c\u1eeda nh\u00e0 n\u00e0y, ngay \u0111\u00e2y, v\u00e0 t\u00f4i n\u00f3i: &quot;G\u1eb7p l\u1ea1i anh sau v\u00e0i ti\u1ebfng n\u1eefa nh\u00e9.&quot;<\/p>\n<p>B\u1ea1n th\u1ea5y \u0111\u1ea5y, ch\u00fang t\u00f4i ch\u1ec9 c\u1ea7n l\u00e0m v\u00e0i x\u00e9t nghi\u1ec7m r\u1ed3i l\u00ean \u0111\u01b0\u1eddng. L\u00fac \u0111\u00f3 l\u00e0 7 gi\u1edd s\u00e1ng. \u0110\u1ebfn 10 gi\u1edd, Hyrum \u0111ang \u0111\u01b0\u1ee3c h\u00f3a tr\u1ecb. Cu\u1ed9c s\u1ed1ng m\u00e0 ch\u00fang t\u00f4i t\u1eebng bi\u1ebft \u0111\u00e3 thay \u0111\u1ed5i.      &nbsp;<\/p>\n<p>Hyrum m\u1edbi 7 tu\u1ed5i khi \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n m\u1eafc m\u1ed9t d\u1ea1ng b\u1ec7nh b\u1ea1ch c\u1ea7u hi\u1ebfm g\u1eb7p g\u1ecdi l\u00e0 biphenotypic. Ch\u00fang t\u00f4i kh\u00f4ng bi\u1ebft m\u00ecnh \u0111ang ph\u1ea3i \u0111\u1ed1i m\u1eb7t v\u1edbi \u0111i\u1ec1u g\u00ec. Ngay c\u1ea3 c\u00e1c b\u00e1c s\u0129 c\u0169ng kh\u00f4ng ch\u1eafc ch\u1eafn n\u00ean ti\u1ebfp t\u1ee5c \u0111i\u1ec1u tr\u1ecb cho ch\u00e1u nh\u01b0 th\u1ebf n\u00e0o. Ch\u00fang t\u00f4i c\u1ea7u nguy\u1ec7n cho h\u1ecd, mong h\u1ecd \u0111\u01b0a ra quy\u1ebft \u0111\u1ecbnh \u0111\u00fang \u0111\u1eafn v\u1ec1 vi\u1ec7c ch\u0103m s\u00f3c ch\u00e1u.<\/p>\n<p>V\u00e0o ng\u00e0y Hyrum \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n, t\u00f4i kh\u00f4ng ngh\u0129 \u0111\u1ebfn nghi\u00ean c\u1ee9u hay ti\u1ec1n b\u1ea1c. T\u00f4i kh\u00f4ng ngh\u0129 \u0111\u1ebfn ch\u1ea5t l\u01b0\u1ee3ng ch\u0103m s\u00f3c, b\u00e1o c\u00e1o b\u1ec7nh l\u00fd hay c\u00e1c d\u1ef1 \u00e1n nghi\u00ean c\u1ee9u m\u1edbi nh\u1ea5t\u2026 s\u1ef1 th\u1eadt l\u00e0 t\u00f4i kh\u00f4ng ngh\u0129 \u0111\u1ebfn b\u1ea5t c\u1ee9 \u0111i\u1ec1u g\u00ec t\u01b0\u01a1ng t\u1ef1.<\/p>\n<p>T\u00f4i ngh\u0129 v\u1ec1 con trai, gia \u0111\u00ecnh v\u00e0 vi\u1ec7c ch\u00fang t\u00f4i s\u1ebd v\u01b0\u1ee3t qua ba n\u0103m \u0111i\u1ec1u tr\u1ecb s\u1eafp t\u1edbi v\u1ec1 c\u1ea3 th\u1ec3 ch\u1ea5t l\u1eabn tinh th\u1ea7n nh\u01b0 th\u1ebf n\u00e0o. T\u00f4i c\u1ea3m th\u1ea5y cho\u00e1ng ng\u1ee3p, nh\u01b0ng c\u0169ng tr\u00e0n \u0111\u1ea7y hy v\u1ecdng. T\u00f4i c\u1ea3m th\u1ea5y Ch\u00faa \u0111\u00e3 \u0111\u01b0a ch\u00fang t\u00f4i \u0111\u1ebfn b\u1ec7nh vi\u1ec7n n\u00e0y, n\u01a1i c\u00f3 nh\u1eefng b\u00e1c s\u0129, y t\u00e1 tuy\u1ec7t v\u1eddi v\u00e0 v\u00f4 s\u1ed1 ng\u01b0\u1eddi kh\u00e1c lu\u00f4n d\u00f5i theo ch\u00fang t\u00f4i. Nhi\u1ec7m v\u1ee5 c\u1ee7a t\u00f4i l\u00e0 lo l\u1eafng cho \u0111i\u1ec1u quan tr\u1ecdng nh\u1ea5t \u0111\u1ed1i v\u1edbi t\u00f4i: gia \u0111\u00ecnh.<\/p>\n<p>C\u00e1i hay c\u1ee7a ch\u1ea5t l\u01b0\u1ee3ng ch\u0103m s\u00f3c l\u00e0 b\u1ea1n kh\u00f4ng bi\u1ebft \u0111\u01b0\u1ee3c s\u1ef1 v\u0129 \u0111\u1ea1i c\u1ee7a n\u00f3 b\u1edfi v\u00ec n\u00f3 \u0111ang v\u1eadn h\u00e0nh tr\u01a1n tru \u1edf h\u1eadu tr\u01b0\u1eddng. N\u00f3 gi\u1ed1ng nh\u01b0 m\u1ed9t m\u1ea1ng l\u01b0\u1edbi kh\u1ed5ng l\u1ed3 \u0111ang h\u1ed7 tr\u1ee3 b\u1ea1n. \u0110\u00f3 l\u00e0 c\u00e1c d\u1ef1 \u00e1n nghi\u00ean c\u1ee9u, thi\u1ebft b\u1ecb v\u00e0 c\u01a1 s\u1edf v\u1eadt ch\u1ea5t y t\u1ebf. \u0110\u00f3 l\u00e0 \u0111\u1ed9i ng\u0169 b\u00e1c s\u0129 v\u00e0 y t\u00e1 \u0111\u00e3 \u0111\u01b0\u1ee3c b\u1ed5 nhi\u1ec7m nhi\u1ec1u n\u0103m tr\u01b0\u1edbc khi con b\u1ea1n \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n. M\u1ed7i ng\u01b0\u1eddi trong s\u1ed1 h\u1ecd \u0111\u1ec1u r\u1ea5t quan tr\u1ecdng \u0111\u1ed1i v\u1edbi tr\u1ea3i nghi\u1ec7m c\u1ee7a b\u1ea1n.<\/p>\n<p>Ph\u1ea3i \u0111\u1ebfn g\u1ea7n \u0111\u00e2y t\u00f4i m\u1edbi nh\u1eadn ra r\u1eb1ng kh\u00f4ng ch\u1ec9 c\u00e1c b\u00e1c s\u0129 v\u00e0 y t\u00e1 t\u1ea1i Stanford \u0111\u00e3 \u0111\u00f3ng g\u00f3p \u0111\u00e1ng k\u1ec3 v\u00e0o qu\u00e1 tr\u00ecnh \u0111i\u1ec1u tr\u1ecb c\u1ee7a ch\u00fang t\u00f4i, m\u00e0 nh\u1eefng n\u0103m th\u00e1ng nghi\u00ean c\u1ee9u v\u00e0 t\u00e0i tr\u1ee3 cho nghi\u00ean c\u1ee9u \u0111\u00f3 c\u0169ng \u0111\u00f3ng vai tr\u00f2 quan tr\u1ecdng trong qu\u00e1 tr\u00ecnh h\u1ed3i ph\u1ee5c c\u1ee7a con trai t\u00f4i. Ch\u00fang t\u00f4i s\u1ebd ra sao n\u1ebfu kh\u00f4ng c\u00f3 s\u1ef1 gi\u00fap \u0111\u1ee1 c\u1ee7a c\u00e1c b\u1ea1n?<\/p>\n<p>B\u1ea1n th\u1ea5y \u0111\u1ea5y, Hyundai Hope on Wheels \u0111\u00e3 t\u00e0i tr\u1ee3 cho nghi\u00ean c\u1ee9u ung th\u01b0 tr\u1ebb em t\u1ea1i Hoa K\u1ef3 t\u1eeb n\u0103m 1998\u2014t\u1ee9c l\u00e0 b\u1ea3y n\u0103m tr\u01b0\u1edbc khi con trai t\u00f4i ch\u00e0o \u0111\u1eddi! Nghi\u00ean c\u1ee9u \u0111\u00f3 \u0111\u00e3 gi\u00fap con t\u00f4i nh\u1eadn \u0111\u01b0\u1ee3c s\u1ef1 ch\u0103m s\u00f3c t\u1ed1t nh\u1ea5t v\u00e0o bu\u1ed5i s\u00e1ng th\u00e1ng 12 n\u0103m 2012 \u1ea5y. M\u01b0\u1eddi b\u1ed1n n\u0103m tr\u01b0\u1edbc khi ch\u00fang t\u00f4i b\u01b0\u1edbc qua c\u00e1nh c\u1eeda \u1ea5y, \u0111\u00e3 c\u00f3 ng\u01b0\u1eddi quan t\u00e2m \u0111\u1ebfn ch\u00fang t\u00f4i. C\u00f3 ng\u01b0\u1eddi \u0111\u00e3 gi\u00fap \u0111\u1ee1 ch\u00fang t\u00f4i m\u1ed9t c\u00e1ch m\u00e0 ch\u00fang t\u00f4i ch\u01b0a t\u1eebng bi\u1ebft \u0111\u1ebfn.<\/p>\n<p>T\u00f4i bi\u1ebft Ch\u00faa hi\u1ec7n di\u1ec7n trong t\u1eebng chi ti\u1ebft nh\u1ecf c\u1ee7a cu\u1ed9c s\u1ed1ng ch\u00fang ta. Ch\u00fang t\u00f4i \u0111\u00e3 th\u1ea5y b\u00e0n tay Ng\u00e0i qua c\u00e1c b\u1ea1n dang r\u1ed9ng v\u00f2ng tay gi\u00fap \u0111\u1ee1. Nhi\u1ec1u ng\u01b0\u1eddi trong s\u1ed1 c\u00e1c b\u1ea1n ch\u00fang t\u00f4i ch\u01b0a t\u1eebng g\u1eb7p m\u1eb7t tr\u1ef1c ti\u1ebfp. Nh\u01b0ng c\u00e1c b\u1ea1n \u0111\u00e3 t\u1ea1o n\u00ean s\u1ef1 kh\u00e1c bi\u1ec7t trong cu\u1ed9c s\u1ed1ng c\u1ee7a ch\u00fang t\u00f4i. C\u00e1c b\u1ea1n \u0111\u00e3 t\u1ea1o n\u00ean s\u1ef1 kh\u00e1c bi\u1ec7t trong nh\u1eefng gia \u0111\u00ecnh \u0111ang b\u01b0\u1edbc qua c\u00e1nh c\u1eeda \u1ea5y h\u00f4m nay. M\u1ed7i ng\u01b0\u1eddi ch\u00fang ta \u0111\u1ec1u \u0111\u00f3ng g\u00f3p m\u1ed9t ph\u1ea7n v\u00e0o m\u1ea1ng l\u01b0\u1edbi h\u1ed7 tr\u1ee3 v\u00e0 hy v\u1ecdng to l\u1edbn \u1ea5y.<\/p>\n<p>L\u00e0m sao \u0111\u1ec3 n\u00f3i l\u1eddi c\u1ea3m \u01a1n \u0111\u1ebfn nh\u1eefng ng\u01b0\u1eddi \u0111\u00e3 c\u1ee9u m\u1ea1ng ng\u01b0\u1eddi kh\u00e1c? L\u00e0m sao \u0111\u1ec3 n\u00f3i l\u1eddi c\u1ea3m \u01a1n \u0111\u1ebfn nh\u1eefng ng\u01b0\u1eddi \u0111\u00e3 c\u1ee9u m\u1ea1ng con b\u1ea1n?<\/p>\n<p>H\u00f4m nay Hyrum kh\u1ecfe m\u1ea1nh. Ch\u00e1u \u0111\u00e3 10 tu\u1ed5i r\u1ed3i. Ch\u00e1u n\u00f3i mu\u1ed1n tr\u1edf th\u00e0nh k\u1ef9 s\u01b0 t\u00e0u h\u1ecfa ho\u1eb7c ki\u1ebfn tr\u00fac s\u01b0. Ch\u00e1u r\u1ea5t th\u00edch ch\u01a1i Lego. V\u00e0 ch\u00e1u th\u00edch tr\u00eau ch\u1ecdc ba c\u00f4 em g\u00e1i nh\u1ecf c\u1ee7a m\u00ecnh. V\u00e0 ch\u00e1u bi\u1ebft m\u00ecnh may m\u1eafn th\u1ebf n\u00e0o khi c\u00f2n s\u1ed1ng. V\u00e0 gia \u0111\u00ecnh ch\u00fang ta \u0111\u00e3 m\u1ea1nh m\u1ebd h\u01a1n. Ch\u00fang ta \u0111\u00e3 \u0111\u01b0\u1ee3c ban ph\u01b0\u1edbc l\u00e0nh qua nh\u1eefng kho\u1ea3nh kh\u1eafc ng\u1ecdt ng\u00e0o l\u1eabn \u0111\u1eafng cay c\u1ee7a h\u00e0nh tr\u00ecnh n\u00e0y l\u00e0 nh\u1edd c\u00f3 c\u00e1c b\u1ea1n.<\/p>\n<p>Sau h\u00f4m nay, Hyrum s\u1ebd ho\u00e0n th\u00e0nh g\u1ea7n 140 tu\u1ea7n h\u00f3a tr\u1ecb. Ngh\u0129 m\u00e0 xem. 140 tu\u1ea7n! V\u00e0 ch\u1ec9 c\u00f2n t\u00e1m tu\u1ea7n n\u1eefa th\u00f4i! H\u00f4m nay, ch\u00fang ta s\u1ebd l\u1ea1i b\u01b0\u1edbc qua c\u00e1nh c\u1eeda \u0111\u00f3 m\u1ed9t l\u1ea7n n\u1eefa v\u00e0 b\u1eaft \u0111\u1ea7u h\u00f3a tr\u1ecb.<\/p>\n<p>Ban \u0111\u1ea7u, ch\u00fang t\u00f4i kh\u00f4ng ch\u1eafc Hyrum s\u1ebd ti\u1ebfn tri\u1ec3n th\u1ebf n\u00e0o trong qu\u00e1 tr\u00ecnh \u0111i\u1ec1u tr\u1ecb. C\u00f3 qu\u00e1 nhi\u1ec1u \u0111i\u1ec1u ch\u01b0a bi\u1ebft v\u1ec1 b\u1ec7nh b\u1ea1ch c\u1ea7u c\u1ee7a con. Nh\u01b0ng t\u00f4i bi\u1ebft r\u1eb1ng con \u0111\u01b0\u1eddng m\u00e0 c\u00e1c b\u00e1c s\u0129 \u0111\u00e3 \u0111i th\u1eadt s\u1ef1 truy\u1ec1n c\u1ea3m h\u1ee9ng v\u00e0 l\u00e0 con \u0111\u01b0\u1eddng ho\u00e0n h\u1ea3o cho Hyrum c\u1ee7a ch\u00fang t\u00f4i. T\u00f4i v\u00f4 c\u00f9ng bi\u1ebft \u01a1n s\u1ef1 c\u1ed1ng hi\u1ebfn c\u1ee7a h\u1ecd v\u00e0 v\u00f4 s\u1ed1 nh\u1eefng ng\u01b0\u1eddi kh\u00e1c - b\u00e1c s\u0129, y t\u00e1, nh\u00e0 nghi\u00ean c\u1ee9u v\u00e0 nh\u1eefng nh\u00e0 h\u1ea3o t\u00e2m \u0111\u00e3 d\u00e0nh th\u1eddi gian v\u00e0 c\u00f4ng s\u1ee9c \u0111\u1ec3 mang l\u1ea1i ph\u01b0\u1edbc l\u00e0nh cho gia \u0111\u00ecnh t\u00f4i v\u00e0 cu\u1ed9c s\u1ed1ng c\u1ee7a tr\u1ebb em v\u00e0 c\u00e1c gia \u0111\u00ecnh tr\u00ean kh\u1eafp th\u1ebf gi\u1edbi.&nbsp;<\/p>\n<p>C\u1ea3m \u01a1n.&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>Zoie Farmer, m\u1eb9 c\u1ee7a b\u00e9 Hyrum, 10 tu\u1ed5i, \u0111\u00e3 chia s\u1ebb h\u00e0nh tr\u00ecnh c\u1ee7a gia \u0111\u00ecnh m\u00ecnh khi Hyrum chi\u1ebfn \u0111\u1ea5u v\u1edbi b\u1ec7nh b\u1ea1ch c\u1ea7u nh\u1edd s\u1ef1 gi\u00fap \u0111\u1ee1 c\u1ee7a b\u1ec7nh vi\u1ec7n ch\u00fang t\u00f4i. Sau \u0111\u00e2y l\u00e0\u2026<\/p>","protected":false},"author":17,"featured_media":14661,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[22],"class_list":["post-3691","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories","health_topic-pediatric-cancer","engagement_type-corporate-giving"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>One mother&#x2019;s words: Our family&#x2019;s journey - Lucile Packard Foundation for Children&#039;s Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lpfch.org\/vi\/impact-stories\/one-mothers-words-our-familys-journey\/\" \/>\n<meta property=\"og:locale\" content=\"vi_VN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"One mother&#x2019;s words: Our family&#x2019;s journey\" \/>\n<meta property=\"og:description\" content=\"Zoie Farmer, mother of 10-year-old Hyrum, shared her family&rsquo;s journey as Hyrum has battled leukemia with the help of our hospital. 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