{"id":3723,"date":"2015-11-13T01:27:39","date_gmt":"2015-11-13T01:27:39","guid":{"rendered":"https:\/\/lpfch.org\/a-lifetime-of-extraordinary-care\/"},"modified":"2024-02-14T14:07:12","modified_gmt":"2024-02-14T14:07:12","slug":"a-lifetime-of-extraordinary-care","status":"publish","type":"post","link":"https:\/\/lpfch.org\/vi\/impact-stories\/a-lifetime-of-extraordinary-care\/","title":{"rendered":"M\u1ed9t \u0111\u1eddi ch\u0103m s\u00f3c \u0111\u1eb7c bi\u1ec7t"},"content":{"rendered":"

V\u00e0o th\u00e1ng 8, Ti\u1ebfn s\u0129 George Lui \u0111\u00e3 th\u00f4ng b\u00e1o cho gia \u0111\u00ecnh Stone \u1edf Aptos m\u1ed9t tin t\u1ee9c m\u00e0 kh\u00f4ng ai trong s\u1ed1 h\u1ecd, k\u1ec3 c\u1ea3 ch\u00ednh Lui, mong \u0111\u1ee3i.<\/p>\n

Brooke Stone, 27 tu\u1ed5i, \u0111\u00e3 d\u00e0nh c\u1ea3 ng\u00e0y \u0111\u1ec3 \u0111\u01b0\u1ee3c \u0111\u00e1nh gi\u00e1 ch\u1ee9c n\u0103ng tim m\u1ed9t c\u00e1ch nghi\u00eam ng\u1eb7t. Gi\u1edd \u0111\u00e2y, Lui, gi\u00e1m \u0111\u1ed1c y khoa c\u1ee7a Ch\u01b0\u01a1ng tr\u00ecnh Tim b\u1ea9m sinh d\u00e0nh cho ng\u01b0\u1eddi l\u1edbn t\u1ea1i Stanford, m\u1ed9t ch\u01b0\u01a1ng tr\u00ecnh h\u1ee3p t\u00e1c gi\u1eefa B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford v\u00e0 Trung t\u00e2m Ch\u0103m s\u00f3c S\u1ee9c kh\u1ecfe Stanford, \u0111\u00e3 c\u00f9ng Brooke v\u00e0 cha m\u1eb9 c\u00f4, Barb v\u00e0 George, v\u00e0o ph\u00f2ng kh\u00e1m.<\/p>\n

\u201c\u0110i kh\u00e1m b\u1ec7nh l\u00fac n\u00e0o c\u0169ng \u0111\u00e1ng s\u1ee3, v\u00ec tr\u01b0\u1edbc \u0111\u00e2y h\u1ecd lu\u00f4n ph\u00e1t hi\u1ec7n ra \u0111i\u1ec1u g\u00ec \u0111\u00f3 m\u1edbi,\u201d Brooke n\u00f3i. \u201cV\u00ec v\u1eady, l\u1ea7n n\u00e0y ch\u00fang t\u00f4i c\u0169ng r\u1ea5t lo l\u1eafng.\u201d<\/p>\n

Nh\u01b0ng l\u1ea7n n\u00e0y th\u00ec kh\u00e1c. Lui, hi\u1ec7n l\u00e0 ph\u00f3 gi\u00e1o s\u01b0 l\u00e2m s\u00e0ng v\u1ec1 y h\u1ecdc tim m\u1ea1ch v\u00e0 tim m\u1ea1ch nhi khoa t\u1ea1i Khoa Y \u0110\u1ea1i h\u1ecdc Stanford, l\u1eb7ng l\u1ebd ng\u1ed3i xu\u1ed1ng. \u201c\u00d4ng \u1ea5y nh\u00ecn ch\u00fang t\u00f4i v\u00e0 n\u00f3i, 'M\u1ecdi th\u1ee9 \u0111\u1ec1u r\u1ea5t t\u1ed1t. Ch\u1ee9c n\u0103ng tim c\u1ee7a c\u00e1c ch\u00e1u \u0111ang \u1edf m\u1ee9c b\u00ecnh th\u01b0\u1eddng. Ch\u00fang t\u00f4i r\u1ea5t ph\u1ea5n kh\u1edfi v\u1ec1 \u0111i\u1ec1u n\u00e0y.' B\u1ed1 m\u1eb9 t\u00f4i v\u00e0 t\u00f4i \u0111\u1ec1u kh\u00f4ng n\u00f3i n\u00ean l\u1eddi, r\u1ea5t x\u00fac \u0111\u1ed9ng, v\u00e0 t\u00f4i ngh\u0129 \u00f4ng \u1ea5y c\u0169ng v\u1eady,\u201d Brooke n\u00f3i. \u201cTh\u1eadt tuy\u1ec7t v\u1eddi. T\u00f4i ngh\u0129 r\u1eb1ng ch\u01b0a bao gi\u1edd ch\u1ee9c n\u0103ng tim c\u1ee7a t\u00f4i tr\u1edf l\u1ea1i b\u00ecnh th\u01b0\u1eddng trong \u0111\u1eddi.\u201d<\/p>\n

Ba n\u0103m tr\u01b0\u1edbc, v\u00e0o th\u00e1ng 9 n\u0103m 2012, Brooke \u0111\u00e3 tr\u1ea3i qua m\u1ed9t ca ph\u1eabu thu\u1eadt c\u1ee9u s\u1ed1ng nguy c\u01a1 cao, ch\u1ec9 \u0111\u01b0\u1ee3c th\u1ef1c hi\u1ec7n t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford, ch\u1ec9 d\u00e0nh cho m\u1ed9t nh\u00f3m nh\u1ecf b\u1ec7nh nh\u00e2n \u0111\u1ee7 \u0111i\u1ec1u ki\u1ec7n y t\u1ebf v\u00e0 \u0111\u01b0\u1ee3c \u0111\u00e1nh gi\u00e1 k\u1ef9 l\u01b0\u1ee1ng, v\u00e0 ch\u1ec9 \u0111\u01b0\u1ee3c th\u1ef1c hi\u1ec7n b\u1edfi Ti\u1ebfn s\u0129 Frank Hanley, gi\u00e1m \u0111\u1ed1c \u0111i\u1ec1u h\u00e0nh Trung t\u00e2m Tim m\u1ea1ch Nhi t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford v\u00e0 gi\u00e1o s\u01b0 ph\u1eabu thu\u1eadt tim m\u1ea1ch t\u1ea1i Stanford. Ca ph\u1eabu thu\u1eadt bao g\u1ed3m vi\u1ec7c th\u1ef1c hi\u1ec7n m\u1ed9t th\u1ee7 thu\u1eadt chuy\u1ec3n \u0111\u1ed9ng m\u1ea1ch, \u0111\u1ed3ng th\u1eddi kh\u00f4i ph\u1ee5c l\u1ea1i m\u1ed9t ca ph\u1eabu thu\u1eadt c\u1ee9u s\u1ed1ng nh\u01b0ng kh\u00f4ng ch\u1eefa kh\u1ecfi b\u1ec7nh tr\u01b0\u1edbc \u0111\u00f3 \u0111\u00e3 \u0111\u01b0\u1ee3c th\u1ef1c hi\u1ec7n khi Brooke m\u1edbi sinh. \u0110\u00f3 l\u00e0 hy v\u1ecdng duy nh\u1ea5t c\u1ee7a Brooke.<\/p>\n

Brooke sinh n\u0103m 1988 v\u1edbi ch\u1ee9ng chuy\u1ec3n v\u1ecb \u0111\u1ea1i \u0111\u1ed9ng m\u1ea1ch (TGA), m\u1ed9t d\u1ecb t\u1eadt tim b\u1ea9m sinh trong \u0111\u00f3 hai \u0111\u1ed9ng m\u1ea1ch ch\u00ednh mang m\u00e1u ra kh\u1ecfi tim\u2014\u0111\u1ed9ng m\u1ea1ch ph\u1ed5i v\u00e0 \u0111\u1ed9ng m\u1ea1ch ch\u1ee7\u2014\u0111\u01b0\u1ee3c k\u1ebft n\u1ed1i v\u1edbi c\u00e1c bu\u1ed3ng b\u01a1m m\u00e1u kh\u00f4ng \u0111\u00fang c\u1ee7a tim, khi\u1ebfn m\u00e1u ch\u1ea3y kh\u00f4ng \u0111\u00fang c\u00e1ch. Khi Brooke m\u1edbi sinh t\u1ea1i \u0110\u1ea1i h\u1ecdc California, San Francisco, m\u1ed9t nh\u00f3m bao g\u1ed3m Hanley\u2014l\u00fac \u0111\u00f3 l\u00e0 m\u1ed9t nghi\u00ean c\u1ee9u sinh ph\u1eabu thu\u1eadt tr\u1ebb t\u1ea1i \u0111\u00f3\u2014\u0111\u00e3 th\u1ef1c hi\u1ec7n m\u1ed9t ca ph\u1eabu thu\u1eadt ph\u1ee9c t\u1ea1p gi\u00fap \u1ed5n \u0111\u1ecbnh c\u00f4 b\u00e9 v\u00e0 cho ph\u00e9p c\u00f4 b\u00e9 l\u1edbn l\u00ean v\u00e0 ph\u00e1t tri\u1ec3n, nh\u01b0ng kh\u00f4ng ch\u1eefa kh\u1ecfi b\u1ec7nh cho c\u00f4 b\u00e9. Ca ph\u1eabu thu\u1eadt \u0111\u00f3, \u0111\u01b0\u1ee3c g\u1ecdi l\u00e0 ph\u1eabu thu\u1eadt Senning, l\u00e0 th\u1ee7 thu\u1eadt \u0111\u00e1ng tin c\u1eady nh\u1ea5t \u0111\u1ed1i v\u1edbi TGA v\u00e0o th\u1eddi \u0111i\u1ec3m \u0111\u00f3. V\u00ec kh\u00f4ng th\u1ec3 ch\u1eefa kh\u1ecfi, c\u00e1c b\u00e1c s\u0129 \u0111\u00e3 \u0111\u1ea3m b\u1ea3o r\u1eb1ng cha m\u1eb9 c\u1ee7a Brooke hi\u1ec3u r\u1eb1ng c\u00f4 b\u00e9 s\u1ebd kh\u00f4ng c\u00f3 tu\u1ed5i th\u1ecd ho\u1eb7c ch\u1ea5t l\u01b0\u1ee3ng cu\u1ed9c s\u1ed1ng b\u00ecnh th\u01b0\u1eddng.<\/p>\n

Barb Stone l\u00e0 ng\u01b0\u1eddi h\u1ebft l\u00f2ng \u1ee7ng h\u1ed9 con g\u00e1i m\u00ecnh, ti\u1ebfp t\u1ee5c theo d\u00f5i v\u00e0 ch\u0103m s\u00f3c tim m\u1ea1ch cho con, \u0111\u1ed3ng th\u1eddi t\u00ecm ki\u1ebfm nh\u1eefng ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb ti\u00ean ti\u1ebfn. "T\u00f4i \u0111\u00e3 t\u00ecm ki\u1ebfm kh\u1eafp n\u01a1i," Barb n\u00f3i, "t\u1eeb Denver \u0111\u1ebfn \u0110\u1ee9c. T\u00f4i c\u00f3 th\u1ec3 \u0111\u01b0a Brooke \u0111i b\u1ea5t c\u1ee9 \u0111\u00e2u."<\/p>\n

Cu\u1ed1i c\u00f9ng, ch\u1ec9 c\u00f3 m\u1ed9t n\u01a1i d\u00e0nh cho Brooke: B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford, n\u01a1i m\u00e0 Hanley, v\u00e0o th\u1eddi \u0111i\u1ec3m \u0111\u00f3, l\u00e0 b\u00e1c s\u0129 ph\u1eabu thu\u1eadt duy nh\u1ea5t t\u1ea1i Hoa K\u1ef3 v\u1eabn th\u1ef1c hi\u1ec7n ph\u1eabu thu\u1eadt chuy\u1ec3n \u0111\u1ed9ng m\u1ea1ch cho nh\u1eefng b\u1ec7nh nh\u00e2n nh\u01b0 Brooke, ng\u01b0\u1eddi \u0111\u00e1p \u1ee9ng c\u00e1c ti\u00eau chu\u1ea9n y t\u1ebf nghi\u00eam ng\u1eb7t c\u1ee7a \u00f4ng.<\/p>\n

Brooke \u0111\u1ee7 \u0111i\u1ec1u ki\u1ec7n ph\u1eabu thu\u1eadt kh\u00f4ng ch\u1ec9 v\u00ec nh\u1eefng \u0111\u1eb7c \u0111i\u1ec3m gi\u1ea3i ph\u1eabu tim \u0111\u1eb7c bi\u1ec7t c\u1ee7a c\u00f4, m\u00e0 c\u00f2n v\u00ec c\u00f4 \u0111\u00e3 \u0111\u01b0\u1ee3c b\u00e1c s\u0129 tim m\u1ea1ch theo d\u00f5i c\u1ea9n th\u1eadn su\u1ed1t cu\u1ed9c \u0111\u1eddi. Nh\u1eefng l\u1ea7n kh\u00e1m \u0111\u1ecbnh k\u1ef3 h\u00e0ng n\u0103m n\u00e0y \u0111\u1ea3m b\u1ea3o r\u1eb1ng b\u1ea5t k\u1ef3 s\u1ef1 suy gi\u1ea3m ch\u1ee9c n\u0103ng tim n\u00e0o c\u1ee7a c\u00f4 \u0111\u1ec1u c\u00f3 th\u1ec3 \u0111\u01b0\u1ee3c ph\u00e1t hi\u1ec7n v\u00e0 \u0111i\u1ec1u tr\u1ecb y t\u1ebf tr\u01b0\u1edbc khi c\u00f4 b\u1ecb suy tim, v\u00e0 r\u1eb1ng c\u00f4 s\u1ebd \u0111\u1ee7 kh\u1ecfe m\u1ea1nh \u0111\u1ec3 ph\u1eabu thu\u1eadt khi c\u1ea7n thi\u1ebft. Nhi\u1ec1u b\u1ec7nh nh\u00e2n \u0111\u00e3 b\u1ecb suy tim c\u00f3 th\u1ec3 qu\u00e1 y\u1ebfu \u1edbt \u0111\u1ec3 \u0111\u01b0\u1ee3c can thi\u1ec7p c\u1ee9u s\u1ed1ng m\u00e0 h\u1ecd c\u1ea7n.<\/p>\n

T\u00e1m th\u00e1ng sau ca ph\u1eabu thu\u1eadt chuy\u1ec3n \u0111\u1ed9ng m\u1ea1ch ch\u1ee7 n\u0103m 2012 v\u00e0 th\u00e1o van Senning, Hanley \u0111\u00e3 th\u1ef1c hi\u1ec7n th\u00e0nh c\u00f4ng ca ph\u1eabu thu\u1eadt th\u1ee9 ba \u0111\u1ec3 thay van \u0111\u1ed9ng m\u1ea1ch ch\u1ee7 cho Brooke do t\u00ecnh tr\u1ea1ng tr\u00e0o ng\u01b0\u1ee3c \u0111\u1ed9ng m\u1ea1ch ch\u1ee7 c\u00f2n s\u00f3t l\u1ea1i sau ca ph\u1eabu thu\u1eadt chuy\u1ec3n \u0111\u1ed9ng m\u1ea1ch. Hi\u1ec7n t\u1ea1i, Brooke l\u00e0 m\u1ed9t c\u00f4 g\u00e1i 27 tu\u1ed5i kh\u1ecfe m\u1ea1nh, c\u00f3 s\u1ef1 nghi\u1ec7p trong ng\u00e0nh th\u00fa y, d\u00e0nh th\u1eddi gian cho vi\u1ec7c t\u1eadp th\u1ec3 d\u1ee5c v\u00e0 l\u1eafc v\u00f2ng, d\u00e0nh th\u1eddi gian cho b\u1ea1n trai 10 n\u0103m c\u1ee7a m\u00ecnh, v\u00e0, c\u00f4 n\u00f3i, "ch\u1ec9 \u0111\u01a1n gi\u1ea3n l\u00e0 t\u1eadn h\u01b0\u1edfng m\u1ed9t cu\u1ed9c s\u1ed1ng b\u00ecnh th\u01b0\u1eddng \u0111\u1ec3 thay \u0111\u1ed5i".<\/p>\n

Tuy nhi\u00ean, ngay c\u1ea3 b\u00e2y gi\u1edd, \u0111\u01b0\u1ee3c ti\u1ebfp th\u00eam s\u1ee9c m\u1ea1nh b\u1edfi tin vui r\u1eb1ng tim c\u00f4 \u0111ang ho\u1ea1t \u0111\u1ed9ng trong ph\u1ea1m vi b\u00ecnh th\u01b0\u1eddng, Brooke \u0111\u00e3 l\u00ean l\u1ecbch t\u00e1i kh\u00e1m \u0111\u1ec3 x\u00e1c nh\u1eadn k\u1ebft qu\u1ea3 b\u1eb1ng c\u00e1c x\u00e9t nghi\u1ec7m s\u00e2u h\u01a1n v\u00e0 s\u1ebd ti\u1ebfp t\u1ee5c ki\u1ec3m tra tim h\u00e0ng n\u0103m.<\/p>\n

L\u1edbn l\u00ean v\u1edbi b\u1ec7nh tim <\/h2>\n

Ng\u00e0y nay, theo Hi\u1ec7p h\u1ed9i Tim m\u1ea1ch Hoa K\u1ef3, 1,3 tri\u1ec7u ng\u01b0\u1eddi l\u1edbn v\u00e0 m\u1ed9t tri\u1ec7u tr\u1ebb em \u0111ang s\u1ed1ng chung v\u1edbi b\u1ec7nh tim b\u1ea9m sinh (CHD) t\u1ea1i Hoa K\u1ef3. M\u1ed7i n\u0103m, c\u00f3 kho\u1ea3ng 40.000 tr\u1ebb em sinh ra m\u1eafc b\u1ec7nh tim b\u1ea9m sinh (CHD), v\u00e0 kho\u1ea3ng m\u1ed9t n\u1eeda trong s\u1ed1 \u0111\u00f3 s\u1ed1ng s\u00f3t \u0111\u1ebfn tu\u1ed5i tr\u01b0\u1edfng th\u00e0nh. Nh\u01b0ng s\u1ed1ng s\u00f3t \u0111\u1ebfn tu\u1ed5i tr\u01b0\u1edfng th\u00e0nh kh\u00f4ng ph\u1ea3i l\u00e0 \u0111i\u1ec1u ng\u1eabu nhi\u00ean. \u0110\u1ed1i v\u1edbi t\u1ea5t c\u1ea3 nh\u1eefng ng\u01b0\u1eddi sinh ra m\u1eafc b\u1ec7nh tim b\u1ea9m sinh, nh\u01b0 Brooke, vi\u1ec7c bi\u1ebft r\u1eb1ng tr\u00e1i tim c\u1ee7a h\u1ecd kh\u00f4ng bao gi\u1edd \u0111\u01b0\u1ee3c "ch\u1eefa kh\u1ecfi", ngh\u1ecbch l\u00fd thay, l\u1ea1i ch\u00ednh l\u00e0 \u0111i\u1ec1u c\u1ee9u s\u1ed1ng h\u1ecd.<\/p>\n

\u201cNhi\u1ec1u b\u1eadc cha m\u1eb9 c\u1ee7a tr\u1ebb m\u1eafc b\u1ec7nh tim b\u1ea9m sinh (CHD) kh\u00f4ng nh\u1eadn ra r\u1eb1ng con m\u00ecnh c\u1ea7n \u0111\u01b0\u1ee3c ch\u0103m s\u00f3c tim m\u1ea1ch su\u1ed1t \u0111\u1eddi\u201d, Susan Fernandes, LPD, PA-C, gi\u00e1m \u0111\u1ed1c ch\u01b0\u01a1ng tr\u00ecnh c\u1ee7a Ch\u01b0\u01a1ng tr\u00ecnh Tim b\u1ea9m sinh d\u00e0nh cho ng\u01b0\u1eddi l\u1edbn t\u1ea1i Stanford, \u0111\u1ed3ng th\u1eddi l\u00e0 t\u00e1c gi\u1ea3 ch\u00ednh c\u1ee7a m\u1ed9t nghi\u00ean c\u1ee9u n\u0103m 2011 v\u1ec1 ch\u1ee7 \u0111\u1ec1 n\u00e0y, cho bi\u1ebft. \u201c\u01af\u1edbc t\u00ednh h\u01a1n 50% ng\u01b0\u1eddi l\u1edbn m\u1eafc b\u1ec7nh tim b\u1ea9m sinh (CHD) kh\u00f4ng \u0111\u01b0\u1ee3c ch\u0103m s\u00f3c tim b\u1ea9m sinh chuy\u00ean khoa d\u00e0nh cho ng\u01b0\u1eddi l\u1edbn ho\u1eb7c kh\u00f4ng \u0111\u01b0\u1ee3c theo d\u00f5i, h\u1ea7u h\u1ebft \u0111\u1ec1u kh\u00f4ng \u0111\u01b0\u1ee3c ch\u0103m s\u00f3c ph\u00f9 h\u1ee3p tr\u01b0\u1edbc tu\u1ed5i v\u1ecb th\u00e0nh ni\u00ean.\u201d<\/p>\n

B\u00e1c s\u0129 tim m\u1ea1ch chuy\u00ean v\u1ec1 b\u1ec7nh tim b\u1ea9m sinh \u1edf ng\u01b0\u1eddi l\u1edbn l\u00e0 l\u1ef1a ch\u1ecdn t\u1ed1t nh\u1ea5t v\u00ec b\u00e1c s\u0129 ch\u0103m s\u00f3c s\u1ee9c kh\u1ecfe ban \u0111\u1ea7u c\u00f3 th\u1ec3 kh\u00f4ng bi\u1ebft v\u1ec1 c\u00e1c bi\u1ebfn ch\u1ee9ng ti\u1ec1m \u1ea9n c\u1ee7a b\u1ec7nh tim b\u1ea9m sinh (CHD), v\u00e0 b\u00e1c s\u0129 tim m\u1ea1ch ng\u01b0\u1eddi l\u1edbn c\u00f3 nhi\u1ec1u kinh nghi\u1ec7m h\u01a1n v\u1edbi c\u00e1c b\u1ec7nh tim m\u1eafc ph\u1ea3i sau n\u00e0y, r\u1ea5t kh\u00e1c so v\u1edbi c\u00e1c b\u1ec7nh tim b\u1ea9m sinh. Tim c\u1ee7a ng\u01b0\u1eddi m\u1eafc b\u1ec7nh tim b\u1ea9m sinh c\u00f3 th\u1ec3 b\u1ecb suy y\u1ebfu (suy tim) v\u00e0 g\u1eb7p ph\u1ea3i c\u00e1c nh\u1ecbp tim b\u1ea5t th\u01b0\u1eddng, c\u00f3 kh\u1ea3 n\u0103ng g\u00e2y t\u1eed vong, \u0111\u01b0\u1ee3c g\u1ecdi l\u00e0 lo\u1ea1n nh\u1ecbp tim, m\u00e0 kh\u00f4ng c\u00f3 b\u1ea5t k\u1ef3 d\u1ea5u hi\u1ec7u ho\u1eb7c tri\u1ec7u ch\u1ee9ng n\u00e0o b\u00ean ngo\u00e0i.<\/p>\n

Nguy c\u01a1 ti\u1ec1m \u1ea9n n\u00e0y cho th\u1ea5y c\u1ea7n ph\u1ea3i theo d\u00f5i chuy\u00ean s\u00e2u su\u1ed1t \u0111\u1eddi, c\u00f3 th\u1ec3 bao g\u1ed3m si\u00eau \u00e2m tim h\u00e0ng n\u0103m, th\u00f4ng tim, ch\u1ee5p c\u1ed9ng h\u01b0\u1edfng t\u1eeb (MRI) ho\u1eb7c ch\u1ee5p c\u1eaft l\u1edbp vi t\u00ednh (CT) tim, v\u00e0 c\u00f3 th\u1ec3 c\u1ea3 ph\u1eabu thu\u1eadt b\u1ed5 sung trong t\u01b0\u01a1ng lai. Ph\u01b0\u01a1ng ph\u00e1p ti\u1ebfp c\u1eadn tr\u1ecdn \u0111\u1eddi n\u00e0y, c\u00f9ng v\u1edbi nh\u1eefng ti\u1ebfn b\u1ed9 v\u01b0\u1ee3t b\u1eadc trong \u0111i\u1ec1u tr\u1ecb, \u0111\u00e3 gi\u00fap nhi\u1ec1u tr\u1ebb em m\u1eafc b\u1ec7nh tim b\u1ea9m sinh (CHD) l\u00e0m \u0111\u01b0\u1ee3c \u0111i\u1ec1u m\u00e0 tr\u01b0\u1edbc \u0111\u00e2y kh\u00f4ng th\u1ec3 t\u01b0\u1edfng t\u01b0\u1ee3ng \u0111\u01b0\u1ee3c: ph\u00e1t tri\u1ec3n kh\u1ecfe m\u1ea1nh \u0111\u1ebfn t\u1eadn tu\u1ed5i tr\u01b0\u1edfng th\u00e0nh.<\/p>\n

Trong Ch\u01b0\u01a1ng tr\u00ecnh Tim B\u1ea9m Sinh Ng\u01b0\u1eddi L\u1edbn t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Lucile Packard Stanford, d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c tr\u1ecdn \u0111\u1eddi ch\u00ednh l\u00e0 nh\u01b0 v\u1eady. \u201cB\u1ea1n sinh ra t\u1ea1i b\u1ec7nh vi\u1ec7n c\u1ee7a ch\u00fang t\u00f4i v\u1edbi m\u1ed9t khuy\u1ebft t\u1eadt tim b\u1ea9m sinh, b\u1ea1n s\u1ebd \u0111\u01b0\u1ee3c ph\u1eabu thu\u1eadt tim t\u1ea1i \u0111\u00e2y; c\u00e1c b\u00e1c s\u0129 tim m\u1ea1ch v\u00e0 \u0111i\u1ec1u d\u01b0\u1ee1ng c\u1ee7a ch\u00fang t\u00f4i s\u1ebd theo d\u00f5i b\u1ea1n trong su\u1ed1t nh\u1eefng n\u0103m th\u00e1ng tu\u1ed5i thi\u1ebfu ni\u00ean, h\u01b0\u1edbng d\u1eabn b\u1ea1n c\u00e1ch t\u1ef1 b\u1ea3o v\u1ec7 s\u1ee9c kh\u1ecfe c\u1ee7a m\u00ecnh v\u00e0 h\u01b0\u1edbng d\u1eabn b\u1ea1n c\u00e1ch tr\u1edf th\u00e0nh m\u1ed9t ng\u01b0\u1eddi tr\u01b0\u1edfng th\u00e0nh v\u1edbi CHD. Sau \u0111\u00f3, ch\u00fang t\u00f4i gi\u1edbi thi\u1ec7u v\u00e0 chuy\u1ec3n b\u1ea1n \u0111\u1ebfn m\u1ed9t b\u00e1c s\u0129 chuy\u00ean khoa ng\u01b0\u1eddi l\u1edbn t\u1ea1i Stanford Health Care, v\u00e0 n\u1ebfu b\u1ea1n mu\u1ed1n mang thai, ch\u00fang t\u00f4i s\u1ebd h\u1ed7 tr\u1ee3 b\u1ea1n trong su\u1ed1t thai k\u1ef3 v\u00e0 sinh con t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Lucile Packard Stanford. Sau \u0111\u00f3, khi b\u1ea1n 40 tu\u1ed5i v\u00e0 c\u1ea7n ph\u1eabu thu\u1eadt tim m\u1ed9t l\u1ea7n n\u1eefa, ch\u00fang t\u00f4i s\u1ebd th\u1ef1c hi\u1ec7n ph\u1eabu thu\u1eadt tim cho b\u1ea1n\u201d, Lui n\u00f3i. \u201cV\u00ec v\u1eady, vi\u1ec7c h\u1ee3p t\u00e1c ch\u1eb7t ch\u1ebd gi\u1eefa hai b\u1ec7nh vi\u1ec7n s\u1ebd l\u00e0 gia \u0111\u00ecnh ch\u0103m s\u00f3c b\u1ea1n t\u1eeb l\u00fac sinh ra \u0111\u1ebfn khi tr\u01b0\u1edfng th\u00e0nh.\u201d<\/p>\n

Khi n\u00f3i \u0111\u1ebfn s\u1ed1 0, Lui \u0111ang \u0111\u1ec1 c\u1eadp \u0111\u1ebfn vi\u1ec7c s\u00e0ng l\u1ecdc, ch\u1ea9n \u0111o\u00e1n v\u00e0 ch\u0103m s\u00f3c to\u00e0n di\u1ec7n m\u00e0 b\u1ec7nh nh\u00e2n nh\u1eadn \u0111\u01b0\u1ee3c t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford ngay c\u1ea3 tr\u01b0\u1edbc khi ch\u00e0o \u0111\u1eddi. "Ch\u00fang t\u00f4i khuy\u1ebfn kh\u00edch t\u1ea5t c\u1ea3 b\u1ec7nh nh\u00e2n hi\u1ec3u r\u00f5 t\u00e1c \u0111\u1ed9ng c\u1ee7a b\u1ec7nh tim b\u1ea9m sinh (CHD) \u0111\u1ed1i v\u1edbi con c\u00e1i t\u01b0\u01a1ng lai c\u1ee7a h\u1ecd", Fernandes n\u00f3i. "Ch\u00fang t\u00f4i cung c\u1ea5p d\u1ecbch v\u1ee5 t\u01b0 v\u1ea5n di truy\u1ec1n v\u00e0 t\u1ea5t c\u1ea3 c\u00e1c b\u1ec7nh nh\u00e2n mang thai c\u1ee7a ch\u00fang t\u00f4i \u0111\u1ec1u \u0111\u01b0\u1ee3c si\u00eau \u00e2m tim thai \u0111\u1ec3 ph\u00e1t hi\u1ec7n CHD trong thai k\u1ef3." <\/p>\n

Ti\u1ebfn s\u0129 Theresa Tacy, gi\u00e1m \u0111\u1ed1c ch\u01b0\u01a1ng tr\u00ecnh tim m\u1ea1ch thai nhi v\u00e0 ph\u00f2ng si\u00eau \u00e2m tim t\u1ea1i B\u1ec7nh vi\u1ec7n nhi Lucile Packard Stanford v\u00e0 ph\u00f3 gi\u00e1o s\u01b0 nhi khoa t\u1ea1i Stanford, \u0111i\u1ec1u ph\u1ed1i vi\u1ec7c ch\u0103m s\u00f3c cho thai nhi c\u00f3 nguy c\u01a1 m\u1eafc ho\u1eb7c \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n m\u1eafc b\u1ec7nh tim b\u1ea9m sinh\u2014b\u1ea5t k\u1ec3 ng\u01b0\u1eddi m\u1eb9 c\u00f3 m\u1eafc b\u1ec7nh tim b\u1ea9m sinh hay kh\u00f4ng.<\/p>\n

\u201cCh\u00fang t\u00f4i ch\u1ea9n \u0111o\u00e1n thai nhi m\u1eafc b\u1ec7nh tim,\u201d Tacy n\u00f3i. \u201cQuan tr\u1ecdng kh\u00f4ng k\u00e9m, ch\u00fang t\u00f4i t\u01b0 v\u1ea5n cho c\u00e1c gia \u0111\u00ecnh v\u00e0 x\u00e2y d\u1ef1ng m\u1ed1i quan h\u1ec7 r\u1ea5t g\u1ea7n g\u0169i v\u1edbi h\u1ecd \u0111\u1ec3 h\u1ecd hi\u1ec3u r\u00f5 t\u1ea5t c\u1ea3 c\u00e1c l\u1ef1a ch\u1ecdn c\u1ee7a m\u00ecnh v\u00e0 nh\u1eefng g\u00ec s\u1eafp t\u1edbi.\u201d \u0110\u1ed9i ng\u0169 c\u1ee7a Tacy c\u0169ng t\u1eadp h\u1ee3p c\u00e1c nh\u00f3m \u0111a chuy\u00ean khoa \u0111\u1ec3 l\u00ean k\u1ebf ho\u1ea1ch v\u00e0 chu\u1ea9n b\u1ecb cho ca sinh n\u1edf c\u00f3 nguy c\u01a1 cao c\u1ee7a em b\u00e9. \u201cKhi em b\u00e9 ch\u00e0o \u0111\u1eddi, ch\u00fang t\u00f4i \u0111\u00e3 chu\u1ea9n b\u1ecb m\u1ecdi th\u1ee9 v\u00e0 bi\u1ebft ch\u00ednh x\u00e1c nh\u1eefng g\u00ec em b\u00e9 s\u1ebd c\u1ea7n.\u201d<\/p>\n

Ph\u1ee5 n\u1eef mang thai \u0111\u01b0\u1ee3c chuy\u1ec3n \u0111\u1ebfn khoa tim thai nhi khi si\u00eau \u00e2m \u0111\u1ecbnh k\u1ef3 ph\u00e1t hi\u1ec7n b\u1ea5t th\u01b0\u1eddng \u1edf tim thai. Nh\u1eefng ph\u1ee5 n\u1eef kh\u00e1c \u0111\u01b0\u1ee3c chuy\u1ec3n \u0111\u1ebfn \u0111\u1ec3 s\u00e0ng l\u1ecdc c\u1ea9n th\u1eadn khi t\u00ecnh tr\u1ea1ng s\u1ee9c kh\u1ecfe hi\u1ec7n t\u1ea1i c\u1ee7a h\u1ecd - ch\u1eb3ng h\u1ea1n nh\u01b0 b\u1ec7nh tim b\u1ea9m sinh \u1edf m\u1eb9 ho\u1eb7c cha, ti\u1ec3u \u0111\u01b0\u1eddng thai k\u1ef3, b\u00e9o ph\u00ec ho\u1eb7c lupus - c\u00f3 li\u00ean quan \u0111\u1ebfn nguy c\u01a1 cao m\u1eafc c\u00e1c khuy\u1ebft t\u1eadt ho\u1eb7c r\u1ed1i lo\u1ea1n ch\u1ee9c n\u0103ng tim c\u1ee7a thai nhi.<\/p>\n

M\u1ed9t s\u1ed1 b\u1ec7nh tim b\u1ea9m sinh ph\u1ee9c t\u1ea1p nh\u1ea5t kh\u00f4ng th\u1ec3 \u0111i\u1ec1u tr\u1ecb tr\u01b0\u1edbc khi sinh, \u0111\u00f3 l\u00e0 l\u00fd do t\u1ea1i sao nh\u00f3m c\u1ee7a Tacy h\u1ee3p t\u00e1c ch\u1eb7t ch\u1ebd v\u1edbi nh\u00f3m Y h\u1ecdc M\u1eb9-Thai t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford, \u0111\u1ea3m b\u1ea3o t\u01b0 v\u1ea5n, ph\u1ed1i h\u1ee3p v\u00e0 \u0111\u1ea3m b\u1ea3o ca sinh an to\u00e0n nh\u1ea5t c\u00f3 th\u1ec3 cho c\u00e1c ca sinh nguy c\u01a1 cao. Vi\u1ec7c gi\u00fap \u0111\u1ee1 tr\u1ebb s\u01a1 sinh y\u1ebfu \u1edbt m\u1eafc b\u1ec7nh tim ph\u1ee9c t\u1ea1p s\u1ed1ng s\u00f3t qua nh\u1eefng ng\u00e0y v\u00e0 tu\u1ea7n \u0111\u1ea7u ti\u00ean l\u00e0 c\u00f4ng vi\u1ec7c c\u1ee7a nhi\u1ec1u chuy\u00ean gia, c\u00f3 th\u1ec3 bao g\u1ed3m thu\u1ed1c men, ph\u1eabu thu\u1eadt, v\u00e0 th\u01b0\u1eddng xuy\u00ean h\u01a1n l\u00e0 k\u1ebft h\u1ee3p c\u1ea3 hai. Khi l\u1edbn l\u00ean, nh\u1eefng \u0111\u1ee9a tr\u1ebb n\u00e0y c\u0169ng s\u1ebd c\u1ea7n \u0111\u01b0\u1ee3c theo d\u00f5i su\u1ed1t \u0111\u1eddi.<\/p>\n

L\u1ea5p \u0111\u1ea7y kho\u1ea3ng tr\u1ed1ng ch\u0103m s\u00f3c cho ng\u01b0\u1eddi l\u1edbn <\/h2>\n

Vi\u1ec7c theo d\u00f5i c\u1ea9n th\u1eadn, v\u1ed1n \u0111\u1ea3m b\u1ea3o s\u1ee9c kh\u1ecfe t\u1ed1t cho Brooke v\u00e0 m\u1edf \u0111\u01b0\u1eddng cho ca ph\u1eabu thu\u1eadt c\u1ee9u s\u1ed1ng th\u1ee9 hai c\u1ee7a c\u00f4, th\u1eadt \u0111\u00e1ng bu\u1ed3n, l\u1ea1i kh\u00f4ng ph\u1ea3i l\u00e0 chuy\u1ec7n th\u01b0\u1eddng t\u00ecnh. Christy Sillman, RN, \u0111i\u1ec1u d\u01b0\u1ee1ng vi\u00ean c\u1ee7a Ch\u01b0\u01a1ng tr\u00ecnh Tim b\u1ea9m sinh Ng\u01b0\u1eddi l\u1edbn, sinh n\u0103m 1980 v\u1edbi b\u1ec7nh t\u1ee9 ch\u1ee9ng Fallot k\u00e8m teo ph\u1ed5i - m\u1ed9t t\u00ecnh tr\u1ea1ng \u0111e d\u1ecda t\u00ednh m\u1ea1ng bao g\u1ed3m nhi\u1ec1u d\u1ecb t\u1eadt tim, bao g\u1ed3m c\u1ea3 vi\u1ec7c thi\u1ebfu m\u1ea1ch m\u00e1u d\u1eabn m\u00e1u t\u1eeb tim \u0111\u1ebfn ph\u1ed5i. C\u00f4 b\u00e9 \u0111\u00e3 s\u1ed1ng s\u00f3t qua th\u1eddi th\u01a1 \u1ea5u nh\u1edd \u0111\u01b0\u1ee3c \u0111\u1eb7t \u1ed1ng th\u00f4ng, sau \u0111\u00f3 tr\u1ea3i qua nhi\u1ec1u l\u1ea7n \u0111i\u1ec1u tr\u1ecb v\u00e0 ph\u1eabu thu\u1eadt kh\u00e1c cho \u0111\u1ebfn tu\u1ed5i thi\u1ebfu ni\u00ean.<\/p>\n

C\u00f4 \u0111\u00e3 ph\u1eabu thu\u1eadt van tim b\u1ecb h\u1edf khi 17 tu\u1ed5i - m\u1ed9t ca ph\u1eabu thu\u1eadt c\u0169ng do Hanley th\u1ef1c hi\u1ec7n - v\u00e0 m\u1ed9t n\u0103m sau, b\u00e1c s\u0129 tim m\u1ea1ch nhi khoa \u0111\u00e3 cho c\u00f4 v\u1ec1 v\u1edbi gi\u1ea5y ch\u1ee9ng nh\u1eadn s\u1ee9c kh\u1ecfe t\u1ed1t v\u00e0 d\u1eb7n d\u00f2 r\u1eb1ng c\u00f4 kh\u00f4ng bao gi\u1edd c\u1ea7n ph\u1ea3i g\u1eb7p b\u00e1c s\u0129 tim m\u1ea1ch n\u1eefa.<\/p>\n

\u201c\u00d4ng \u1ea5y b\u1ea3o t\u00f4i h\u00e3y s\u1ed1ng t\u1ed1t,\u201d Sillman nh\u1edb l\u1ea1i.<\/p>\n

Nh\u01b0ng 10 n\u0103m sau, khi Sillman k\u1ebft h\u00f4n v\u00e0 \u0111ang \u1edf tam c\u00e1 nguy\u1ec7t th\u1ee9 hai c\u1ee7a thai k\u1ef3, c\u00f4 b\u1eaft \u0111\u1ea7u b\u1ecb lo\u1ea1n nh\u1ecbp tim. M\u1eb7c d\u00f9 s\u1ee9c kh\u1ecfe \u0111\u00e3 \u1ed5n \u0111\u1ecbnh v\u00e0 c\u00f3 th\u1ec3 sinh m\u1ed9t b\u00e9 trai kh\u1ecfe m\u1ea1nh, nh\u01b0ng ch\u1ec9 hai th\u00e1ng sau, t\u00ecnh tr\u1ea1ng c\u1ee7a c\u00f4 tr\u1edf n\u00ean t\u1ed3i t\u1ec7 h\u01a1n nhi\u1ec1u. Sillman \u0111\u01b0\u1ee3c ph\u00e1t hi\u1ec7n m\u1eafc b\u1ec7nh c\u01a1 tim, m\u1ed9t b\u1ec7nh l\u00fd v\u1ec1 c\u01a1 tim, v\u00e0 \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n suy tim. May m\u1eafn thay, vi\u1ec7c d\u00f9ng thu\u1ed1c v\u00e0 t\u1eadp th\u1ec3 d\u1ee5c \u0111\u00e3 mang l\u1ea1i k\u1ebft qu\u1ea3 \u0111i\u1ec1u tr\u1ecb th\u00e0nh c\u00f4ng. Hi\u1ec7n t\u1ea1i, Sillman \u0111\u01b0\u1ee3c theo d\u00f5i tim th\u01b0\u1eddng xuy\u00ean.<\/p>\n

Ng\u00e0y nay, trong vai tr\u00f2 \u0111i\u1ec1u d\u01b0\u1ee1ng t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford, Sillman \u0111\u00e3 bi\u1ebfn m\u1ed1i nguy hi\u1ec3m c\u1ee7a tr\u1ea3i nghi\u1ec7m \u0111\u00f3 th\u00e0nh l\u1ee3i \u00edch cho b\u1ec7nh nh\u00e2n c\u1ee7a m\u00ecnh\u2014v\u00e0 c\u00f4 l\u00e0 ng\u01b0\u1eddi \u0111\u01b0\u1ee3c h\u1ecd y\u00eau m\u1ebfn nh\u1ea5t. "Nhi\u1ec1u l\u1ea7n b\u1ec7nh nh\u00e2n c\u1ee7a t\u00f4i \u0111\u1ebfn v\u00e0 h\u1ecfi, 'T\u00f4i c\u00f3 th\u1ec3 g\u1eb7p Christy kh\u00f4ng?'", Lui n\u00f3i. "\u0110i\u1ec1u \u0111\u00f3 cho th\u1ea5y m\u1ed1i li\u00ean h\u1ec7 m\u00e0 Christy mang l\u1ea1i cho h\u1ecd v\u1ec1 tr\u1ea3i nghi\u1ec7m c\u1ee7a h\u1ecd."<\/p>\n

Sillman nh\u00ecn nh\u1eadn l\u1ee3i th\u1ebf c\u1ee7a m\u00ecnh theo c\u1ea3 hai h\u01b0\u1edbng. \u201cT\u00f4i kh\u00f4ng ch\u1ec9 gi\u00fap \u0111\u1ee1 b\u1ec7nh nh\u00e2n m\u00e0 c\u00f2n gi\u00fap \u0111\u1ee1 c\u1ea3 c\u00e1c nh\u00e0 cung c\u1ea5p d\u1ecbch v\u1ee5 n\u1eefa,\u201d c\u00f4 n\u00f3i. \u201cH\u1ecd c\u00f3 th\u1ec3 h\u1ecfi t\u00f4i, 'T\u00f4i ph\u1ea3i th\u00f4ng b\u00e1o m\u1ed9t tin x\u1ea5u v\u00e0 t\u00f4i \u0111\u1ecbnh n\u00f3i th\u1ebf n\u00e0y. Anh\/ch\u1ecb ngh\u0129 sao?' T\u00f4i c\u00f3 th\u1ec3 chia s\u1ebb quan \u0111i\u1ec3m t\u1eeb kinh nghi\u1ec7m c\u1ee7a m\u00ecnh v\u1edbi t\u01b0 c\u00e1ch l\u00e0 m\u1ed9t b\u1ec7nh nh\u00e2n. V\u00e0 v\u1edbi t\u01b0 c\u00e1ch l\u00e0 m\u1ed9t nh\u00e0 cung c\u1ea5p d\u1ecbch v\u1ee5, t\u00f4i c\u00f3 th\u1ec3 h\u1ecfi xem h\u1ecd c\u00f3 mu\u1ed1n t\u00f4i tham gia th\u1ea3o lu\u1eadn hay kh\u00f4ng. T\u00f4i \u0111\u1ee9ng gi\u1eefa c\u1ea3 hai ranh gi\u1edbi, b\u1ec7nh nh\u00e2n v\u00e0 nh\u00e0 cung c\u1ea5p d\u1ecbch v\u1ee5.\u201d<\/p>\n

\u0110\u1ed1i v\u1edbi Sillman, m\u1ed9t trong nh\u1eefng l\u1ee3i th\u1ebf \u0111\u1ed9c \u0111\u00e1o c\u1ee7a Ch\u01b0\u01a1ng tr\u00ecnh Tim b\u1ea9m sinh Ng\u01b0\u1eddi l\u1edbn c\u1ee7a ch\u00fang t\u00f4i l\u00e0 s\u1ef1 k\u1ebft n\u1ed1i v\u1eadt l\u00fd gi\u1eefa b\u1ec7nh vi\u1ec7n nhi v\u00e0 b\u1ec7nh vi\u1ec7n ng\u01b0\u1eddi l\u1edbn. Theo Sillman, s\u1ef1 k\u1ebft n\u1ed1i v\u1eadt l\u00fd \u0111\u00f3 c\u0169ng th\u1ec3 hi\u1ec7n s\u1ef1 k\u1ebft n\u1ed1i v\u00e0 h\u1ee3p t\u00e1c s\u00e2u s\u1eafc gi\u1eefa chuy\u00ean m\u00f4n v\u1ec1 b\u1ec7nh tim b\u1ea9m sinh ng\u01b0\u1eddi l\u1edbn v\u00e0 tr\u1ebb em. "Ch\u00fang t\u00f4i th\u1ef1c s\u1ef1 \u0111\u01b0\u1ee3c t\u1ea1o th\u00e0nh t\u1eeb c\u1ea3 hai t\u1ed5 ch\u1ee9c v\u00e0 t\u00ecm ki\u1ebfm s\u1ef1 t\u01b0 v\u1ea5n t\u1eeb c\u1ea3 hai ph\u00eda", Sillman n\u00f3i. "\u0110\u00f3 th\u1ef1c s\u1ef1 l\u00e0 l\u1ee3i th\u1ebf \u0111\u1ed9c \u0111\u00e1o c\u1ee7a ch\u01b0\u01a1ng tr\u00ecnh c\u1ee7a ch\u00fang t\u00f4i, gi\u00fap ch\u00fang t\u00f4i kh\u00e1c bi\u1ec7t so v\u1edbi c\u00e1c ch\u01b0\u01a1ng tr\u00ecnh kh\u00e1c."<\/p>\n

M\u1ed1i li\u00ean h\u1ec7 \u0111\u00f3 l\u00e0 m\u1ed9t ph\u1ea7n trong ph\u1ea1m vi ch\u0103m s\u00f3c m\u00e0 Ch\u01b0\u01a1ng tr\u00ecnh Tim b\u1ea9m sinh d\u00e0nh cho ng\u01b0\u1eddi l\u1edbn cung c\u1ea5p, v\u1edbi m\u1ed9t \u0111\u1ed9i ng\u0169 \u0111a d\u1ea1ng bao g\u1ed3m c\u1ea3 ch\u0103m s\u00f3c nhi khoa v\u00e0 ng\u01b0\u1eddi l\u1edbn, bao g\u1ed3m b\u00e1c s\u0129 ph\u1eabu thu\u1eadt, b\u00e1c s\u0129 tim b\u1ea9m sinh ng\u01b0\u1eddi l\u1edbn, chuy\u00ean gia tim thai nhi, nh\u00e0 cung c\u1ea5p d\u1ecbch v\u1ee5 th\u1ef1c h\u00e0nh n\u00e2ng cao, y t\u00e1, nh\u00e2n vi\u00ean x\u00e3 h\u1ed9i v\u00e0 nh\u00e0 t\u00e2m l\u00fd h\u1ecdc.<\/p>\n

\u1ede \u0111\u1ea7u kia c\u1ee7a ph\u1ed5 tu\u1ed5i th\u1ecd, c\u00e1c nh\u00f3m ch\u0103m s\u00f3c trong Ch\u01b0\u01a1ng tr\u00ecnh Tim B\u1ea9m sinh Ng\u01b0\u1eddi l\u1edbn c\u0169ng \u0111\u00e3 nghi\u00ean c\u1ee9u b\u1ec7nh nh\u00e2n m\u1eafc b\u1ec7nh m\u1ea1ch v\u00e0nh v\u1ec1 nguy c\u01a1 m\u1eafc b\u1ec7nh tim m\u1eafc ph\u1ea3i - nguy\u00ean nh\u00e2n g\u00e2y t\u1eed vong h\u00e0ng \u0111\u1ea7u tr\u00ean to\u00e0n th\u1ebf gi\u1edbi, bao g\u1ed3m c\u00e1c t\u00ecnh tr\u1ea1ng nh\u01b0 b\u1ec7nh \u0111\u1ed9ng m\u1ea1ch v\u00e0nh, \u0111\u1ed9t qu\u1ef5 v\u00e0 b\u1ec7nh m\u1ea1ch m\u00e1u ngo\u1ea1i bi\u00ean. "Tr\u01b0\u1edbc \u0111\u00e2y, ch\u00fang t\u00f4i kh\u00f4ng ngh\u0129 r\u1eb1ng b\u1ec7nh nh\u00e2n m\u1eafc b\u1ec7nh tim b\u1ea9m sinh \u1edf ng\u01b0\u1eddi l\u1edbn s\u1ebd s\u1ed1ng \u0111\u1ee7 l\u00e2u \u0111\u1ec3 c\u00f3 nguy c\u01a1 m\u1eafc c\u00e1c b\u1ec7nh n\u00e0y", Fernandes n\u00f3i. "Nghi\u00ean c\u1ee9u c\u1ee7a ch\u00fang t\u00f4i cho th\u1ea5y ch\u00fang ta c\u1ea7n b\u1eaft \u0111\u1ea7u gi\u00e1o d\u1ee5c c\u00e1c nh\u00e0 cung c\u1ea5p d\u1ecbch v\u1ee5 y t\u1ebf \u0111\u1ec3 b\u1eaft \u0111\u1ea7u s\u00e0ng l\u1ecdc c\u00e1c y\u1ebfu t\u1ed1 nguy c\u01a1 n\u00e0y cho b\u1ec7nh nh\u00e2n tim b\u1ea9m sinh \u1edf ng\u01b0\u1eddi l\u1edbn v\u00e0 th\u1ef1c hi\u1ec7n c\u00e1c bi\u1ec7n ph\u00e1p \u0111\u1ec3 gi\u1ea3m thi\u1ec3u nguy c\u01a1 cho h\u1ecd."<\/p>\n

Trong khi c\u00e1c nh\u00f3m ch\u0103m s\u00f3c v\u00e0 c\u00e1c nh\u00e0 nghi\u00ean c\u1ee9u y khoa c\u1ee7a ch\u00fang t\u00f4i gi\u00fap ng\u00e0y c\u00e0ng nhi\u1ec1u tr\u1ebb s\u01a1 sinh s\u1ed1ng s\u00f3t qua giai \u0111o\u1ea1n s\u01a1 sinh, th\u1eddi th\u01a1 \u1ea5u v\u00e0 tu\u1ed5i v\u1ecb th\u00e0nh ni\u00ean, th\u00ec v\u1eabn c\u00f2n m\u1ed9t th\u00e1ch th\u1ee9c n\u1eefa: li\u1ec7u c\u00f3 \u0111\u1ee7 b\u00e1c s\u0129 tim m\u1ea1ch chuy\u00ean v\u1ec1 b\u1ec7nh tim b\u1ea9m sinh \u1edf ng\u01b0\u1eddi l\u1edbn \u0111\u1ec3 ch\u0103m s\u00f3c cho h\u1ecd hay kh\u00f4ng?<\/p>\n

"V\u00ec \u0111\u00e2y l\u00e0 m\u1ed9t chuy\u00ean khoa t\u01b0\u01a1ng \u0111\u1ed1i m\u1edbi, hi\u1ec7n t\u1ea1i ch\u1ec9 c\u00f3 16 c\u01a1 s\u1edf \u0111\u00e0o t\u1ea1o t\u1ea1i Hoa K\u1ef3 \u0111\u00e0o t\u1ea1o nh\u1eefng ng\u01b0\u1eddi n\u00e0y trong c\u00e1c ch\u01b0\u01a1ng tr\u00ecnh h\u1ecdc b\u1ed5ng y khoa, bao g\u1ed3m c\u1ea3 Tr\u01b0\u1eddng Y \u0110\u1ea1i h\u1ecdc Stanford", Lui n\u00f3i. C\u00f3 h\u01a1n 1.000 b\u00e1c s\u0129 tim m\u1ea1ch nhi khoa cho 1 tri\u1ec7u tr\u1ebb em m\u1eafc b\u1ec7nh tim b\u1ea9m sinh, v\u00e0 ch\u1ec9 c\u00f3 h\u01a1n 100 b\u00e1c s\u0129 chuy\u00ean khoa tim b\u1ea9m sinh ng\u01b0\u1eddi l\u1edbn \u0111\u01b0\u1ee3c \u0111\u00e0o t\u1ea1o cho 1,3 tri\u1ec7u ng\u01b0\u1eddi l\u1edbn. H\u1ea7u h\u1ebft c\u00e1c c\u01a1 s\u1edf ch\u1ec9 \u0111\u00e0o t\u1ea1o m\u1ed9t ho\u1eb7c hai b\u00e1c s\u0129 chuy\u00ean khoa tim b\u1ea9m sinh ng\u01b0\u1eddi l\u1edbn m\u1ed7i n\u0103m, ho\u1eb7c trong m\u1ed9t s\u1ed1 tr\u01b0\u1eddng h\u1ee3p, hai n\u0103m m\u1ed9t l\u1ea7n.<\/p>\n

\u201c\u0110i\u1ec1u n\u00e0y c\u00f3 ngh\u0129a l\u00e0 m\u1ed7i n\u0103m ch\u1ec9 c\u00f3 ch\u01b0a \u0111\u1ebfn 15 ng\u01b0\u1eddi \u0111\u01b0\u1ee3c \u0111\u00e0o t\u1ea1o,\u201d Lui l\u01b0u \u00fd. \u201c\u0110\u00f3 l\u00e0 m\u1ed9t v\u1ea5n \u0111\u1ec1 khi c\u00f3 h\u01a1n m\u1ed9t tri\u1ec7u b\u1ec7nh nh\u00e2n nh\u01b0 v\u1eady \u1edf Hoa K\u1ef3, v\u1edbi \u01b0\u1edbc t\u00ednh kho\u1ea3ng 20.000 b\u1ec7nh nh\u00e2n m\u1edbi m\u1eafc b\u1ec7nh tim m\u1ea1ch v\u00e0nh t\u1ed1t nghi\u1ec7p v\u00e0o ng\u00e0nh ch\u0103m s\u00f3c ng\u01b0\u1eddi l\u1edbn m\u1ed7i n\u0103m.\u201d<\/p>\n

Nh\u1edd Gi\u1ea3i th\u01b0\u1edfng H\u1ecdc b\u1ed5ng Actelion c\u1ee7a Hi\u1ec7p h\u1ed9i Tim b\u1ea9m sinh Ng\u01b0\u1eddi l\u1edbn (ACHA) v\u00e0 s\u1ef1 h\u1ed7 tr\u1ee3 t\u1eeb c\u00e1c nh\u00e0 t\u00e0i tr\u1ee3 h\u00e0o ph\u00f3ng, B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford \u0111\u00e3 c\u00f3 kinh ph\u00ed \u0111\u1ec3 c\u1ea5p h\u1ecdc b\u1ed5ng hai n\u0103m cho m\u1ed9t nghi\u00ean c\u1ee9u sinh duy nh\u1ea5t, c\u1ee9 hai n\u0103m m\u1ed9t l\u1ea7n, v\u1ec1 b\u1ec7nh tim b\u1ea9m sinh \u1edf ng\u01b0\u1eddi l\u1edbn. Nghi\u00ean c\u1ee9u sinh \u0111\u1ea7u ti\u00ean c\u1ee7a ch\u00fang t\u00f4i, Ti\u1ebfn s\u0129 Christiane Haeffele, s\u1ebd ho\u00e0n th\u00e0nh ch\u01b0\u01a1ng tr\u00ecnh v\u00e0o m\u00f9a xu\u00e2n n\u0103m 2016. "V\u1edbi th\u00eam kinh ph\u00ed", Lui n\u00f3i, "ch\u00fang t\u00f4i c\u00f3 th\u1ec3 t\u0103ng ch\u01b0\u01a1ng tr\u00ecnh \u0111\u00e0o t\u1ea1o n\u00e0y l\u00ean m\u1ed9t nghi\u00ean c\u1ee9u sinh m\u1ed7i n\u0103m."<\/p>\n

Ch\u01b0\u01a1ng tr\u00ecnh Tim B\u1ea9m Sinh Ng\u01b0\u1eddi L\u1edbn c\u1ee7a ch\u00fang t\u00f4i g\u1ea7n \u0111\u00e2y c\u0169ng \u0111\u00e3 \u0111\u01b0\u1ee3c Hi\u1ec7p h\u1ed9i Tim B\u1ea9m Sinh Ng\u01b0\u1eddi L\u1edbn (ACHA) ch\u1ecdn l\u00e0 m\u1ed9t trong n\u0103m \u0111\u1ecba \u0111i\u1ec3m th\u00ed \u0111i\u1ec3m t\u1ea1i Hoa K\u1ef3 \u0111\u01b0\u1ee3c c\u00f4ng nh\u1eadn l\u00e0 ch\u01b0\u01a1ng tr\u00ecnh B\u1ec7nh Tim B\u1ea9m Sinh Ng\u01b0\u1eddi L\u1edbn, nh\u01b0 m\u1ed9t m\u00f4 h\u00ecnh \u0111\u1ec3 \u0111\u1ea1t \u0111\u01b0\u1ee3c s\u1ef1 nh\u1ea5t qu\u00e1n trong ch\u0103m s\u00f3c v\u00e0 h\u00f2a nh\u1eadp cho c\u1ea3 b\u1ec7nh nh\u00e2n v\u00e0 b\u00e1c s\u0129. V\u00e0o th\u00e1ng 5 n\u0103m 2016, ACHA s\u1ebd m\u1edf r\u1ed9ng quy tr\u00ecnh c\u00f4ng nh\u1eadn tr\u00ean to\u00e0n qu\u1ed1c.<\/p>\n

V\u00e0 vi\u1ec7c \u0111\u00e0o t\u1ea1o \u0111\u00f3 l\u00e0 c\u1ea7n thi\u1ebft cho m\u1ecdi b\u1ec7nh nh\u00e2n m\u1eafc CHD, nh\u01b0 Brooke Stone v\u00e0 Christy Sillman, nh\u1eefng ng\u01b0\u1eddi m\u00e0 cu\u1ed9c s\u1ed1ng kh\u00f4ng ch\u1ec9 ph\u1ee5 thu\u1ed9c v\u00e0o c\u00e1c ca ph\u1eabu thu\u1eadt c\u1ee9u s\u1ed1ng v\u00e0 nh\u1eefng ti\u1ebfn b\u1ed9 y h\u1ecdc, m\u00e0 c\u00f2n ph\u1ee5 thu\u1ed9c v\u00e0o s\u1ef1 t\u1eadn t\u00e2m nh\u1ea5t qu\u00e1n c\u1ee7a m\u1ed9t b\u00e1c s\u0129 tim m\u1ea1ch b\u1ea9m sinh tr\u01b0\u1edfng th\u00e0nh, ng\u01b0\u1eddi c\u00f3 th\u1ec3 l\u00e0 \u0111\u1ed1i t\u00e1c tr\u1ecdn \u0111\u1eddi c\u1ee7a nh\u1eefng b\u1ec7nh nh\u00e2n \u0111\u1eb7c bi\u1ec7t n\u00e0y v\u00e0 l\u00e0 c\u1ea7u n\u1ed1i \u0111\u1ec3 c\u00f3 \u0111\u01b0\u1ee3c s\u1ef1 ch\u0103m s\u00f3c ph\u00f9 h\u1ee3p v\u00e0o \u0111\u00fang th\u1eddi \u0111i\u1ec3m.<\/p>\n

B\u00e0i vi\u1ebft n\u00e0y l\u1ea7n \u0111\u1ea7u ti\u00ean xu\u1ea5t hi\u1ec7n trong \u1ea5n b\u1ea3n M\u00f9a thu n\u0103m 2015 c\u1ee7a Tin t\u1ee9c tr\u1ebb em Lucile Packard<\/a>.<\/em><\/p>","protected":false},"excerpt":{"rendered":"

V\u00e0o th\u00e1ng 8, b\u00e1c s\u0129 George Lui \u0111\u00e3 b\u00e1o cho gia \u0111\u00ecnh Stone \u1edf Aptos m\u1ed9t tin t\u1ee9c m\u00e0 kh\u00f4ng ai trong s\u1ed1 h\u1ecd, k\u1ec3 c\u1ea3 ch\u00ednh Lui, mong \u0111\u1ee3i. Brooke Stone, 27 tu\u1ed5i, \u0111\u00e3\u2026<\/p>","protected":false},"author":17,"featured_media":3724,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148],"class_list":["post-3723","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news","health_topic-heart"],"acf":[],"yoast_head":"\nA Lifetime of Extraordinary Care - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/vi\/impact-stories\/a-lifetime-of-extraordinary-care\/\" \/>\n<meta property=\"og:locale\" content=\"vi_VN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"A Lifetime of Extraordinary Care\" \/>\n<meta property=\"og:description\" content=\"In August, George Lui, MD, gave the Stone family of Aptos news that none of them, including Lui himself, had expected. 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