M\u1ed9t em b\u00e9 ch\u00e0o \u0111\u1eddi g\u1ea7n th\u00e0nh ph\u1ed1 New York. B\u00e9 m\u1eafc ch\u1ee9ng teo ph\u1ed5i k\u00e8m theo tu\u1ea7n ho\u00e0n b\u00e0ng h\u1ec7 \u0111\u1ed9ng m\u1ea1ch ch\u1ee7 - ph\u1ed5i, m\u1ed9t trong nh\u1eefng d\u1ecb t\u1eadt tim b\u1ea9m sinh ph\u1ee9c t\u1ea1p nh\u1ea5t. \u0110\u1ed9ng m\u1ea1ch ph\u1ed5i c\u1ee7a b\u00e9 ch\u01b0a bao gi\u1edd h\u00ecnh th\u00e0nh trong su\u1ed1t thai k\u1ef3, v\u00e0 kh\u1ea3 n\u0103ng h\u1ea5p th\u1ee5 oxy v\u00e0o m\u00e1u c\u1ee7a b\u00e9 b\u1ecb suy gi\u1ea3m nghi\u00eam tr\u1ecdng.<\/p>\n
X\u00e9t v\u1ec1 m\u1ed9t m\u1eb7t n\u00e0o \u0111\u00f3, em b\u00e9 th\u1eadt may m\u1eafn. Em b\u00e9 t\u00ecnh c\u1edd \u0111\u01b0\u1ee3c sinh ra g\u1ea7n m\u1ed9t b\u1ec7nh vi\u1ec7n nhi uy t\u00edn. M\u1eb7c d\u00f9 b\u1ec7nh vi\u1ec7n c\u00f3 ch\u01b0\u01a1ng tr\u00ecnh tim m\u1ea1ch nhi khoa r\u1ea5t t\u1ed1t, c\u00e1c b\u00e1c s\u0129 \u1edf \u0111\u00f3 v\u1eabn n\u00f3i v\u1edbi cha m\u1eb9 em b\u00e9 r\u1eb1ng t\u00ecnh tr\u1ea1ng c\u1ee7a em qu\u00e1 ph\u1ee9c t\u1ea1p \u0111\u1ebfn m\u1ee9c h\u1ecd kh\u00f4ng c\u00f3 ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb hi\u1ec7u qu\u1ea3 n\u00e0o.<\/p>\n
B\u1ed1 m\u1eb9 \u0111\u01b0\u1ee3c \u0111\u01b0a ra hai l\u1ef1a ch\u1ecdn. M\u1ed9t l\u00e0 \u0111\u01b0a con v\u1ec1 nh\u00e0, an \u1ee7i v\u00e0 y\u00eau th\u01b0\u01a1ng con, \u0111\u1ed3ng th\u1eddi chu\u1ea9n b\u1ecb tinh th\u1ea7n cho th\u1ef1c t\u1ebf r\u1eb1ng con ch\u1ec9 c\u00f3 50% c\u01a1 h\u1ed9i s\u1ed1ng s\u00f3t \u0111\u1ebfn sinh nh\u1eadt \u0111\u1ea7u ti\u00ean. V\u00e0 n\u1ebfu con s\u1ed1ng s\u00f3t, con s\u1ebd ph\u1ea3i \u0111\u1ed1i m\u1eb7t v\u1edbi ch\u1ea5t l\u01b0\u1ee3ng cu\u1ed9c s\u1ed1ng r\u1ea5t k\u00e9m v\u00e0 g\u1ea7n nh\u01b0 ch\u1eafc ch\u1eafn s\u1ebd t\u1eed vong v\u00e0o n\u0103m 10 tu\u1ed5i. L\u1ef1a ch\u1ecdn c\u00f2n l\u1ea1i l\u00e0 \u0111\u01b0a con \u0111\u1ebfn m\u1ed9t b\u1ec7nh vi\u1ec7n kh\u00e1c, n\u01a1i n\u1ed5i ti\u1ebfng v\u1edbi vi\u1ec7c th\u1ef1c hi\u1ec7n m\u1ed9t s\u1ed1 ca ph\u1eabu thu\u1eadt tim ph\u1ee9c t\u1ea1p nh\u1ea5t th\u1ebf gi\u1edbi.<\/p>\n
B\u1ec7nh vi\u1ec7n \u0111\u00f3 kh\u00f4ng n\u1eb1m \u1edf New York, Chicago hay Boston. C\u00e1c b\u00e1c s\u0129 c\u1ee7a b\u00e9 khuy\u00ean b\u1ea1n n\u00ean \u0111i kh\u1eafp \u0111\u1ea5t n\u01b0\u1edbc \u0111\u1ebfn B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford, n\u01a1i \u0111\u1ed9i ng\u0169 Trung t\u00e2m Tim m\u1ea1ch Nhi c\u1ee7a ch\u00fang t\u00f4i \u0111\u00e3 ph\u00e1t tri\u1ec3n m\u1ed9t ch\u01b0\u01a1ng tr\u00ecnh qu\u1ea3n l\u00fd v\u1ea5n \u0111\u1ec1 n\u00e0y, bao g\u1ed3m c\u00e1c k\u1ef9 thu\u1eadt ch\u1ea9n \u0111o\u00e1n v\u00e0 h\u00ecnh \u1ea3nh chuy\u00ean s\u00e2u, ph\u1eabu thu\u1eadt ch\u1ec9nh s\u1eeda ph\u1ee9c t\u1ea1p v\u00e0 ti\u00ean ti\u1ebfn, c\u00f9ng v\u1edbi d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c \u0111a chuy\u00ean khoa xu\u1ea5t s\u1eafc.<\/p>\n
V\u1edbi s\u1ef1 h\u1ed7 tr\u1ee3 h\u00e0o ph\u00f3ng t\u1eeb c\u1ed9ng \u0111\u1ed3ng t\u1eeb thi\u1ec7n v\u00e0 s\u1ef1 l\u00e3nh \u0111\u1ea1o c\u1ee7a c\u00e1c chuy\u00ean gia tim m\u1ea1ch nhi khoa n\u1ed5i ti\u1ebfng bao g\u1ed3m b\u00e1c s\u0129 ph\u1eabu thu\u1eadt, b\u00e1c s\u0129 tim m\u1ea1ch, b\u00e1c s\u0129 g\u00e2y m\u00ea, b\u00e1c s\u0129 h\u1ed3i s\u1ee9c t\u00edch c\u1ef1c, b\u00e1c s\u0129 ch\u1ea9n \u0111o\u00e1n h\u00ecnh \u1ea3nh v\u00e0 y t\u00e1, ch\u01b0\u01a1ng tr\u00ecnh c\u1ee7a ch\u00fang t\u00f4i \u0111\u00e3 ph\u00e1t tri\u1ec3n trong 15 n\u0103m qua v\u00e0 tr\u1ebb s\u01a1 sinh m\u1eafc b\u1ec7nh tim n\u1eb7ng \u0111\u01b0\u1ee3c \u0111i\u1ec1u tr\u1ecb t\u1ea1i b\u1ec7nh vi\u1ec7n c\u1ee7a ch\u00fang t\u00f4i hi\u1ec7n c\u00f3 t\u1ef7 l\u1ec7 s\u1ed1ng s\u00f3t l\u00e0 98% sau ph\u1eabu thu\u1eadt v\u00e0 t\u1ef7 l\u1ec7 s\u1ed1ng s\u00f3t l\u00e2u d\u00e0i \u0111\u1ebfn tu\u1ed5i tr\u01b0\u1edfng th\u00e0nh l\u00e0 h\u01a1n 90%.<\/p>\n
Tr\u00ean to\u00e0n th\u1ebf gi\u1edbi, h\u00e0ng ng\u00e0n tr\u1ebb em ch\u00e0o \u0111\u1eddi v\u1edbi d\u1ecb t\u1eadt tim m\u1ed7i n\u0103m. T\u1ea1i Trung t\u00e2m Tim m\u1ea1ch Nhi, ch\u00fang t\u00f4i cung c\u1ea5p d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c ti\u00ean ti\u1ebfn kh\u00f4ng ch\u1ec9 cho nh\u1eefng b\u1ec7nh nh\u00e2n nh\u01b0 em b\u00e9 n\u00e0y m\u00e0 c\u00f2n cho nh\u1eefng tr\u1ebb c\u00f3 nhi\u1ec1u nhu c\u1ea7u kh\u00e1c nhau, bao g\u1ed3m suy tim v\u00e0 gh\u00e9p tim, b\u1ec7nh tim m\u1ed9t t\u00e2m th\u1ea5t, b\u1ec7nh tim \u1edf thai nhi v\u00e0 tr\u1ebb sinh non, v\u00e0 b\u1ec7nh tim b\u1ea9m sinh \u1edf ng\u01b0\u1eddi l\u1edbn.<\/p>\n
C\u00e1c gia \u0111\u00ecnh t\u00ecm \u0111\u1ebfn b\u1ec7nh vi\u1ec7n c\u1ee7a ch\u00fang t\u00f4i b\u1eb1ng nhi\u1ec1u c\u00e1ch. Con c\u1ee7a h\u1ecd c\u00f3 th\u1ec3 \u0111\u01b0\u1ee3c sinh ra trong khu v\u1ef1c c\u1ee7a ch\u00fang t\u00f4i v\u00e0 \u0111\u01b0\u1ee3c \u0111\u00e1nh gi\u00e1 ch\u1ee7 y\u1ebfu t\u1ea1i b\u1ec7nh vi\u1ec7n, ho\u1eb7c c\u00f3 th\u1ec3 \u0111\u01b0\u1ee3c sinh ra t\u1ea1i m\u1ed9t b\u1ec7nh vi\u1ec7n nhi h\u00e0ng \u0111\u1ea7u kh\u00e1c, n\u01a1i h\u1ecd c\u00f3 tr\u00ecnh \u0111\u1ed9 hi\u1ec3u bi\u1ebft \u0111\u1ee7 \u0111\u1ec3 nh\u1eadn th\u1ee9c \u0111\u01b0\u1ee3c kh\u1ea3 n\u0103ng \u0111\u1eb7c bi\u1ec7t c\u1ee7a ch\u00fang t\u00f4i. Ho\u1eb7c ng\u00e0y c\u00e0ng nhi\u1ec1u cha m\u1eb9, khi \u0111\u01b0\u1ee3c th\u00f4ng b\u00e1o r\u1eb1ng con m\u00ecnh kh\u00f4ng c\u00f2n hy v\u1ecdng g\u00ec n\u1eefa, \u0111\u00e3 t\u1ef1 m\u00ecnh t\u00ecm \u0111\u1ebfn ch\u00fang t\u00f4i th\u00f4ng qua m\u1ea1ng x\u00e3 h\u1ed9i v\u00e0 t\u1ef1 t\u00ecm hi\u1ec3u.<\/p>\n
B\u1ea5t ch\u1ea5p nh\u1eefng ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb \u0111\u1ed9t ph\u00e1 m\u00e0 \u0111\u1ed9i ng\u0169 ch\u00fang t\u00f4i \u0111\u00e3 mang l\u1ea1i, v\u1eabn c\u00f2n nhi\u1ec1u th\u00e1ch th\u1ee9c. Vi\u1ec7c \u0111i\u1ec1u tr\u1ecb nh\u1eefng b\u1ec7nh nh\u00e2n ph\u1ee9c t\u1ea1p n\u00e0y \u0111\u00f2i h\u1ecfi r\u1ea5t nhi\u1ec1u c\u00f4ng s\u1ee9c. B\u1ea5t ch\u1ea5p nh\u1eefng k\u1ebft qu\u1ea3 \u0111\u00e3 \u0111\u1ea1t \u0111\u01b0\u1ee3c, ch\u00fang t\u00f4i v\u1eabn ph\u1ea3i ti\u1ebfp t\u1ee5c \u0111\u1ea7u t\u01b0 v\u00e0o \u0111\u1ed9i ng\u0169 nh\u00e2n vi\u00ean v\u00e0 c\u01a1 s\u1edf h\u1ea1 t\u1ea7ng c\u1ee7a trung t\u00e2m. Ch\u00fang t\u00f4i ph\u1ea3i ti\u1ebfp t\u1ee5c tinh ch\u1ec9nh c\u00e1c quy tr\u00ecnh hi\u1ec7n c\u00f3 \u0111\u1ec3 c\u1ee9u s\u1ed1ng nhi\u1ec1u ng\u01b0\u1eddi h\u01a1n, c\u1ea3i thi\u1ec7n h\u01a1n n\u1eefa nh\u1eefng k\u1ebft qu\u1ea3 v\u01b0\u1ee3t tr\u1ed9i hi\u1ec7n c\u00f3 v\u00e0 th\u00fac \u0111\u1ea9y to\u00e0n b\u1ed9 l\u0129nh v\u1ef1c n\u00e0y v\u00ec l\u1ee3i \u00edch c\u1ee7a tr\u1ebb em m\u1eafc b\u1ec7nh tim tr\u00ean to\u00e0n qu\u1ed1c. M\u1ee5c ti\u00eau c\u1ee7a ch\u00fang t\u00f4i l\u00e0 t\u1ef7 l\u1ec7 s\u1ed1ng s\u00f3t 100%.<\/p>\n
Th\u00e0nh c\u00f4ng v\u00e0 v\u1ecb th\u1ebf c\u1ee7a ch\u00fang t\u00f4i, m\u1ed9t ch\u01b0\u01a1ng tr\u00ecnh tim m\u1ea1ch nhi khoa uy t\u00edn, l\u00e0 k\u1ebft qu\u1ea3 c\u1ee7a h\u00e0ng th\u1eadp k\u1ef7 c\u00e1c nh\u00e0 t\u00e0i tr\u1ee3 v\u00e0 \u0111\u1ed1i t\u00e1c tin t\u01b0\u1edfng v\u00e0o ch\u00fang t\u00f4i v\u00e0 b\u1ec7nh nh\u00e2n. V\u1edbi s\u1ef1 \u1ee7ng h\u1ed9 li\u00ean t\u1ee5c c\u1ee7a qu\u00fd v\u1ecb, ch\u00fang t\u00f4i mong mu\u1ed1n v\u01b0\u1ee3t qua m\u1ecdi th\u1eed th\u00e1ch - ti\u1ebfp t\u1ee5c v\u01b0\u1ee3t qua nh\u1eefng gi\u1edbi h\u1ea1n kh\u1ea3 thi v\u00e0 gi\u00fap t\u1ea5t c\u1ea3 tr\u1ebb em m\u1eafc b\u1ec7nh tim \u0111\u1ec1u chi\u1ebfn th\u1eafng.<\/p>\n