{"id":3775,"date":"2016-04-25T21:03:50","date_gmt":"2016-04-25T21:03:50","guid":{"rendered":"https:\/\/lpfch.org\/a-story-of-survival\/"},"modified":"2024-02-14T14:07:21","modified_gmt":"2024-02-14T14:07:21","slug":"a-story-of-survival","status":"publish","type":"post","link":"https:\/\/lpfch.org\/vi\/impact-stories\/a-story-of-survival\/","title":{"rendered":"M\u1ed9t c\u00e2u chuy\u1ec7n sinh t\u1ed3n"},"content":{"rendered":"<p>M\u1ecdi chuy\u1ec7n b\u1eaft \u0111\u1ea7u v\u00e0o ng\u00e0y 5 th\u00e1ng 4 n\u0103m 2011, khi ch\u00fang t\u00f4i \u0111\u1ebfn g\u1eb7p m\u1ed9t b\u00e1c s\u0129 tim m\u1ea1ch nhi khoa \u1edf Sacramento \u0111\u1ec3 xin \u00fd ki\u1ebfn th\u1ee9 hai. Khi \u0111ang mang thai hai c\u00f4 con g\u00e1i sinh \u0111\u00f4i gi\u1ed1ng h\u1ec7t nhau, Alexia v\u00e0 Celeste, t\u00f4i \u0111\u01b0\u1ee3c b\u00e1c s\u0129 \u1edf Roseville th\u00f4ng b\u00e1o r\u1eb1ng c\u1ea3 hai \u0111\u1ee9a con c\u1ee7a ch\u00fang t\u00f4i \u0111\u1ec1u c\u00f3 d\u1ea5u hi\u1ec7u d\u1ecb t\u1eadt tim b\u1ea9m sinh. B\u00e1c s\u0129 tim m\u1ea1ch m\u1edbi \u0111\u00e3 x\u00e1c nh\u1eadn \u0111i\u1ec1u ch\u00fang t\u00f4i lo s\u1ee3.<\/p>\n<p>Gi\u1eefa l\u00fac \u0111au bu\u1ed3n v\u00ec ch\u1ea9n \u0111o\u00e1n, t\u00f4i c\u0169ng nh\u1eadn ra v\u1eabn c\u00f2n hy v\u1ecdng: b\u00e1c s\u0129 tim m\u1ea1ch khuy\u00ean ch\u00fang t\u00f4i n\u00ean t\u00ecm \u0111\u1ebfn s\u1ef1 gi\u00fap \u0111\u1ee1 c\u1ee7a \u0111\u1ed9i ng\u0169 ch\u0103m s\u00f3c chuy\u00ean gia t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford. Kh\u00f4ng ch\u00fat do d\u1ef1, ch\u00fang t\u00f4i \u0111\u1eb7t l\u1ecbch h\u1eb9n.&nbsp;<\/p>\n<p>Ch\u00fang t\u00f4i \u0111\u00e3 g\u1eb7p b\u00e1c s\u0129 Mohan Reddy, m\u1ed9t b\u00e1c s\u0129 ph\u1eabu thu\u1eadt tim l\u1ed3ng ng\u1ef1c nhi khoa, ng\u01b0\u1eddi \u0111\u00e3 m\u1ed9t l\u1ea7n n\u1eefa kh\u1eb3ng \u0111\u1ecbnh ch\u1ea9n \u0111o\u00e1n c\u1ee7a ch\u00fang t\u00f4i l\u00e0 \u0111\u00fang. \u00d4ng gi\u1ea3i th\u00edch c\u00e1c lo\u1ea1i ph\u1eabu thu\u1eadt kh\u00e1c nhau c\u1ea7n thi\u1ebft cho nh\u1eefng em b\u00e9 nh\u01b0 con g\u00e1i ch\u00fang t\u00f4i v\u00e0 n\u00f3i r\u1eb1ng vi\u1ec7c sinh con t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard l\u00e0 v\u00ec l\u1ee3i \u00edch t\u1ed1t nh\u1ea5t c\u1ee7a ch\u00fang t\u00f4i, v\u00ec ch\u00fang t\u00f4i kh\u00f4ng bi\u1ebft bao l\u00e2u sau khi sinh, c\u00e1c con g\u00e1i c\u1ee7a ch\u00fang t\u00f4i s\u1ebd ph\u1ea3i tr\u1ea3i qua ph\u1eabu thu\u1eadt tim h\u1edf.<\/p>\n<h3>T\u00ecm m\u1ea3nh gh\u00e9p c\u00f2n thi\u1ebfu<\/h3>\n<p>Ch\u1ec9 v\u00e0i ng\u00e0y sau, t\u00f4i \u0111\u00e3 b\u01b0\u1edbc qua c\u00e1nh c\u1eeda b\u1ec7nh vi\u1ec7n, n\u01a1i s\u1ebd thay \u0111\u1ed5i cu\u1ed9c \u0111\u1eddi ch\u00fang t\u00f4i m\u00e3i m\u00e3i. \u0110\u00f3 l\u00e0 bu\u1ed5i h\u1eb9n \u0111\u1ea7u ti\u00ean trong chu\u1ed7i c\u00e1c bu\u1ed5i h\u1eb9n. Ch\u00fang t\u00f4i g\u1eb7p c\u00e1c b\u00e1c s\u0129 s\u1ea3n khoa, b\u00e1c s\u0129 s\u01a1 sinh, b\u00e1c s\u0129 di truy\u1ec1n h\u1ecdc v\u00e0 m\u1ed9t b\u00e1c s\u0129 chuy\u00ean khoa th\u1eadn, ng\u01b0\u1eddi \u0111\u00e3 cho t\u00f4i l\u00e0m m\u1ed9t lo\u1ea1t x\u00e9t nghi\u1ec7m m\u00e1u v\u00e0 m\u1eabu n\u01b0\u1edbc ti\u1ec3u, si\u00eau \u00e2m \u0111\u1ec3 \u0111\u00e1nh gi\u00e1 s\u1ef1 ph\u00e1t tri\u1ec3n c\u1ee7a thai nhi, v\u00e0 cu\u1ed1i c\u00f9ng l\u00e0 bu\u1ed5i si\u00eau \u00e2m r\u1ea5t \u0111\u01b0\u1ee3c mong \u0111\u1ee3i \u0111\u1ec3 xem x\u00e9t c\u00e1c khuy\u1ebft t\u1eadt tim c\u1ee7a b\u00e9.&nbsp;<\/p>\n<p>T\u00f4i \u0111\u00e3 ki\u1ec7t s\u1ee9c v\u1ec1 th\u1ec3 ch\u1ea5t v\u00e0 tinh th\u1ea7n khi cu\u1ed1i c\u00f9ng h\u1ecd h\u1ecfi: &quot;B\u1ea1n \u0111\u00e3 t\u1eebng l\u00e0m x\u00e9t nghi\u1ec7m FISH (Lai t\u1ea1o hu\u1ef3nh quang t\u1ea1i ch\u1ed7) ch\u01b0a?&quot;<\/p>\n<p>Ch\u00fang t\u00f4i \u0111\u01b0\u1ee3c cho bi\u1ebft m\u1ed9t s\u1ed1 b\u1ea5t th\u01b0\u1eddng th\u1ea5y \u1edf tim, th\u1eadn v\u00e0 d\u00e2y r\u1ed1n c\u1ee7a c\u00e1c b\u00e9 g\u00e1i ph\u00f9 h\u1ee3p v\u1edbi H\u1ed9i ch\u1ee9ng m\u1ea5t \u0111o\u1ea1n 22q11.2, m\u1ed9t r\u1ed1i lo\u1ea1n nhi\u1ec5m s\u1eafc th\u1ec3 c\u00f3 th\u1ec3 \u1ea3nh h\u01b0\u1edfng \u0111\u1ebfn h\u1ea7u h\u1ebft m\u1ecdi b\u1ed9 ph\u1eadn c\u1ee7a c\u01a1 th\u1ec3. N\u1ebfu x\u00e9t nghi\u1ec7m FISH d\u01b0\u01a1ng t\u00ednh, m\u1ed9t trong hai nhi\u1ec5m s\u1eafc th\u1ec3 22 s\u1ebd kh\u00f4ng s\u00e1ng \u1edf m\u1ed9t v\u00f9ng c\u1ee5 th\u1ec3, cho th\u1ea5y v\u00f9ng \u0111\u00f3 \u0111\u00e3 b\u1ecb &quot;m\u1ea5t \u0111o\u1ea1n&quot;. C\u1ea3 hai b\u00e9 g\u00e1i \u0111\u1ec1u c\u00f3 k\u1ebft qu\u1ea3 x\u00e9t nghi\u1ec7m d\u01b0\u01a1ng t\u00ednh v\u1edbi t\u00ecnh tr\u1ea1ng di truy\u1ec1n n\u00e0y.&nbsp;<\/p>\n<p>Khi thai k\u1ef3 ti\u1ebfn tri\u1ec3n, ch\u00fang t\u00f4i t\u1ea1m th\u1eddi chuy\u1ec3n \u0111\u1ebfn Bay Area. M\u1eb7c d\u00f9 t\u00f4i lo l\u1eafng tr\u01b0\u1edbc m\u1ed7i l\u1ea7n kh\u00e1m, nh\u01b0ng t\u00f4i lu\u00f4n bi\u1ebft m\u00ecnh \u0111ang \u1edf n\u01a1i t\u1ed1t nh\u1ea5t c\u00f3 th\u1ec3 \u0111\u1ec3 ch\u0103m s\u00f3c c\u00e1c con g\u00e1i. Trong su\u1ed1t qu\u00e1 tr\u00ecnh \u0111\u00f3, c\u00e1c y t\u00e1 v\u00e0 nh\u1eefng ng\u01b0\u1eddi kh\u00e1c trong \u0111\u1ed9i ng\u0169 ch\u0103m s\u00f3c c\u1ee7a ch\u00fang t\u00f4i \u0111\u00e3 th\u1ec3 hi\u1ec7n s\u1ef1 t\u1eadn t\u00e2m ch\u0103m s\u00f3c b\u1ec7nh nh\u00e2n c\u1ee7a h\u1ecd.&nbsp;<\/p>\n<h3>Ng\u00e0y giao h\u00e0ng<\/h3>\n<p>Ng\u00e0y sinh c\u1ee7a c\u00e1c con ch\u00fang t\u00f4i cu\u1ed1i c\u00f9ng c\u0169ng \u0111\u1ebfn v\u00e0o ng\u00e0y 6 th\u00e1ng 7 n\u0103m 2011. Khi nh\u1eefng n\u00e0ng c\u00f4ng ch\u00faa nh\u1ecf c\u1ee7a ch\u00fang t\u00f4i ch\u00e0o \u0111\u1eddi nh\u01b0 mong \u0111\u1ee3i, m\u1ed9t nh\u00f3m t\u1eeb \u0110\u01a1n v\u1ecb Ch\u0103m s\u00f3c \u0110\u1eb7c bi\u1ec7t S\u01a1 sinh (NICU) \u0111\u00e3 s\u1eb5n s\u00e0ng cho m\u1ecdi nhu c\u1ea7u c\u1ee7a c\u00e1c b\u00e9.<\/p>\n<p>Trong khi c\u00e1c em b\u00e9 \u0111\u01b0\u1ee3c c\u00e1c chuy\u00ean gia \u1edf NICU ch\u0103m s\u00f3c, m\u1ed9t nh\u00f3m kh\u00e1c t\u1eadp trung v\u00e0o t\u00f4i.&nbsp;<\/p>\n<p>T\u00f4i b\u1ecb m\u1ea5t m\u00e1u r\u1ea5t nhanh v\u00e0 \u0111\u00e3 ph\u1ea3i truy\u1ec1n m\u00e1u l\u1ea7n th\u1ee9 hai.&nbsp;<\/p>\n<p>Sau n\u00e0y t\u00f4i m\u1edbi bi\u1ebft m\u00ecnh \u0111\u00e3 m\u1ea5t h\u01a1n m\u1ed9t l\u00edt m\u00e1u. L\u00fac \u0111\u00f3 t\u00f4i kh\u00f4ng nh\u1eadn th\u1ee9c \u0111\u01b0\u1ee3c m\u1ee9c \u0111\u1ed9 nghi\u00eam tr\u1ecdng c\u1ee7a t\u00ecnh tr\u1ea1ng m\u00ecnh, v\u00e0 t\u00f4i bi\u1ebft \u01a1n t\u1ea5t c\u1ea3 c\u00e1c nh\u00e2n vi\u00ean. S\u1ef1 chuy\u00ean nghi\u1ec7p, b\u00ecnh t\u0129nh v\u00e0 l\u00f2ng tr\u1eafc \u1ea9n c\u1ee7a h\u1ecd \u0111\u00e3 gi\u00fap t\u00f4i kh\u00f4ng c\u00f2n lo l\u1eafng n\u1eefa. &nbsp;<\/p>\n<p>Tr\u01b0\u1edbc khi k\u1ecbp nh\u1eadn ra, t\u00f4i \u0111\u00e3 \u1edf trong ph\u00f2ng h\u1ed3i s\u1ee9c, nh\u1eb9 nh\u00f5m khi bi\u1ebft r\u1eb1ng c\u00e1c con g\u00e1i t\u00f4i \u0111ang \u0111\u01b0\u1ee3c ch\u0103m s\u00f3c t\u1ed1t nh\u1ea5t.&nbsp;<\/p>\n<p>C\u00e1c nh\u00e0 di truy\u1ec1n h\u1ecdc r\u1ea5t mu\u1ed1n n\u00f3i chuy\u1ec7n v\u1edbi ch\u00fang t\u00f4i. H\u1ecd mu\u1ed1n \u0111\u1ea3m b\u1ea3o r\u1eb1ng ch\u00fang t\u00f4i hi\u1ec3u \u0111\u1ea7y \u0111\u1ee7 v\u1ec1 H\u1ed9i ch\u1ee9ng m\u1ea5t \u0111o\u1ea1n 22q v\u00e0 \u00fd ngh\u0129a c\u1ee7a n\u00f3 \u0111\u1ed1i v\u1edbi Alexia v\u00e0 Celeste.&nbsp;<\/p>\n<h3>V\u01b0\u1ee3t qua kh\u00f3 kh\u0103n v\u1edbi s\u1ef1 h\u1ed7 tr\u1ee3 c\u1ee7a b\u1ea1n<\/h3>\n<p>N\u1ebfu kh\u00f4ng c\u00f3 \u0111\u1ed9i ng\u0169 t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard, t\u00f4i kh\u00f4ng bi\u1ebft ch\u00fang t\u00f4i s\u1ebd ph\u1ea3i \u0111\u1ed1i m\u1eb7t v\u1edbi nh\u1eefng th\u00e1ch th\u1ee9c v\u1ec1 s\u1ee9c kh\u1ecfe c\u1ee7a c\u00e1c b\u00e9 g\u00e1i nh\u01b0 th\u1ebf n\u00e0o. L\u01b0\u1ee3ng ki\u1ebfn th\u1ee9c m\u00e0 c\u00e1c chuy\u00ean gia t\u1ea1i Stanford t\u00edch l\u0169y th\u1ef1c s\u1ef1 \u0111\u00e1ng kinh ng\u1ea1c. &nbsp;<\/p>\n<p>G\u1eedi \u0111\u1ebfn b\u1ea5t k\u1ef3 b\u1eadc ph\u1ee5 huynh n\u00e0o b\u01b0\u1edbc qua c\u00e1nh c\u1eeda B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford: h\u00e3y bi\u1ebft r\u1eb1ng b\u1ea1n \u0111ang b\u01b0\u1edbc v\u00e0o m\u1ed9t b\u1ec7nh vi\u1ec7n \u0111\u1eb3ng c\u1ea5p th\u1ebf gi\u1edbi v\u00e0 con b\u1ea1n s\u1ebd \u0111\u01b0\u1ee3c ch\u0103m s\u00f3c chu \u0111\u00e1o. H\u1ecd s\u1ebd gi\u00fap b\u1ea1n t\u00ecm hi\u1ec3u v\u1ec1 t\u00ecnh tr\u1ea1ng c\u1ee7a con m\u00ecnh v\u00e0 \u0111\u1ea3m b\u1ea3o b\u1ea1n bi\u1ebft r\u1eb1ng b\u1ea1n kh\u00f4ng \u0111\u01a1n \u0111\u1ed9c. H\u1ecd s\u1ebd cung c\u1ea5p cho b\u1ea1n t\u1ea5t c\u1ea3 c\u00e1c ngu\u1ed3n l\u1ef1c c\u1ea7n thi\u1ebft \u0111\u1ec3 b\u1ea1n hi\u1ec3u \u0111\u01b0\u1ee3c t\u01b0\u01a1ng lai. H\u1ecd s\u1ebd ch\u0103m s\u00f3c m\u1ecdi th\u00e0nh vi\u00ean trong gia \u0111\u00ecnh b\u1ea1n. V\u00e0 h\u1ecd s\u1ebd ch\u0103m s\u00f3c      <em>B\u1ea1n<\/em>! &nbsp;<\/p>\n<p>G\u1eedi \u0111\u1ebfn c\u00e1c nh\u00e0 h\u1ea3o t\u00e2m \u0111\u00e3 h\u1ed7 tr\u1ee3 B\u1ec7nh vi\u1ec7n Nhi Packard: kho\u1ea3n \u0111\u00f3ng g\u00f3p c\u1ee7a c\u00e1c b\u1ea1n gi\u00fap ti\u1ebfp t\u1ee5c nh\u1eefng nghi\u00ean c\u1ee9u quan tr\u1ecdng. Kho\u1ea3n \u0111\u00f3ng g\u00f3p c\u1ee7a c\u00e1c b\u1ea1n gi\u00fap nh\u1eefng gia \u0111\u00ecnh nh\u01b0 t\u00f4i nh\u1eadn \u0111\u01b0\u1ee3c c\u00e1c d\u1ecbch v\u1ee5 thi\u1ebft y\u1ebfu cho con em m\u00ecnh. C\u00e1c b\u1ea1n mang \u0111\u1ebfn hy v\u1ecdng cho c\u00e1c gia \u0111\u00ecnh v\u00e0 c\u01a1 h\u1ed9i th\u1ee9 hai cho nhi\u1ec1u b\u1ec7nh nh\u00e2n!&nbsp;<\/p>\n<p>B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Packard \u0111\u00e3 thay \u0111\u1ed5i cu\u1ed9c \u0111\u1eddi ch\u00fang t\u00f4i. Celeste v\u00e0 Alexia \u0111ang h\u1ed3i ph\u1ee5c r\u1ea5t t\u1ed1t v\u00e0 s\u1ebd tr\u00f2n 5 tu\u1ed5i v\u00e0o m\u00f9a h\u00e8 n\u00e0y. C\u1ea3 hai b\u00e9 \u0111\u1ec1u \u0111\u00e3 \u0111\u01b0\u1ee3c ph\u1eabu thu\u1eadt tim h\u1edf b\u1edfi c\u00e1c b\u00e1c s\u0129 ph\u1eabu thu\u1eadt t\u00e0i n\u0103ng c\u1ee7a B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Packard v\u00e0 hi\u1ec7n \u0111ang chi\u1ebfn th\u1eafng b\u1ec7nh t\u1eadt cho nh\u1eefng tr\u1ebb em m\u1eafc H\u1ed9i ch\u1ee9ng m\u1ea5t \u0111o\u1ea1n 22q!<\/p>","protected":false},"excerpt":{"rendered":"<p>M\u1ecdi chuy\u1ec7n b\u1eaft \u0111\u1ea7u v\u00e0o ng\u00e0y 5 th\u00e1ng 4 n\u0103m 2011 khi ch\u00fang t\u00f4i \u0111\u1ebfn g\u1eb7p m\u1ed9t b\u00e1c s\u0129 tim m\u1ea1ch nhi khoa \u1edf Sacramento \u0111\u1ec3 xin \u00fd ki\u1ebfn th\u1ee9 hai. L\u00fac \u0111\u00f3 t\u00f4i \u0111ang mang thai 23 tu\u1ea7n\u2026<\/p>","protected":false},"author":17,"featured_media":3776,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[22],"class_list":["post-3775","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories","health_topic-moms-babies"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>A Story of Survival - Lucile Packard Foundation for Children&#039;s Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/vi\/impact-stories\/a-story-of-survival\/\" \/>\n<meta property=\"og:locale\" content=\"vi_VN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"A Story of Survival\" \/>\n<meta property=\"og:description\" content=\"It all started on April 5, 2011 when we went to see a pediatric cardiologist in Sacramento to get a second opinion. 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