{"id":3924,"date":"2018-01-08T19:04:01","date_gmt":"2018-01-08T19:04:01","guid":{"rendered":"https:\/\/lpfch.org\/alexandras-quinceaera-giving-back-on-a-birthday\/"},"modified":"2024-02-14T14:07:44","modified_gmt":"2024-02-14T14:07:44","slug":"alexandras-quinceaera-giving-back-on-a-birthday","status":"publish","type":"post","link":"https:\/\/lpfch.org\/vi\/impact-stories\/alexandras-quinceaera-giving-back-on-a-birthday\/","title":{"rendered":"L\u1ec5 Quincea\u00f1era c\u1ee7a Alexandra: \u0110\u00e1p l\u1ea1i ng\u00e0y sinh nh\u1eadt"},"content":{"rendered":"<p>Alexandra m\u1edbi ch\u1ec9 10 ng\u00e0y tu\u1ed5i khi \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n m\u1eafc ch\u1ee9ng thi\u1ebfu h\u1ee5t ornithine transcarbamylase (OTC), m\u1ed9t c\u0103n b\u1ec7nh hi\u1ebfm g\u1eb7p m\u00e0 trong tr\u01b0\u1eddng h\u1ee3p c\u1ee7a c\u00f4 b\u00e9, ch\u1ec9 c\u00f3 th\u1ec3 ch\u1eefa kh\u1ecfi b\u1eb1ng gh\u00e9p gan. C\u00e1c b\u00e1c s\u0129 t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford \u0111\u00e3 ph\u1ed1i h\u1ee3p ch\u1eb7t ch\u1ebd v\u1edbi gia \u0111\u00ecnh Alexandra \u0111\u1ec3 gi\u00fap ki\u1ec3m so\u00e1t t\u00ecnh tr\u1ea1ng c\u1ee7a em cho \u0111\u1ebfn khi h\u1ecd c\u00f3 th\u1ec3 ti\u1ebfn h\u00e0nh ca ph\u1eabu thu\u1eadt gh\u00e9p gan khi Alexandra \u0111\u01b0\u1ee3c 4 tu\u1ed5i. K\u1ec3 t\u1eeb \u0111\u00f3, Alexandra \u0111\u00e3 h\u1ed3i ph\u1ee5c r\u1ea5t t\u1ed1t.&nbsp;<\/p>\n<p>N\u0103m ngo\u00e1i, nh\u00e2n d\u1ecbp sinh nh\u1eadt l\u1ea7n th\u1ee9 15, Alexandra \u0111\u00e3 t\u1ed5 ch\u1ee9c m\u1ed9t s\u1ef1 ki\u1ec7n g\u00e2y qu\u1ef9 \u0111\u1ec3 h\u1ed7 tr\u1ee3 b\u1ec7nh vi\u1ec7n ch\u00fang t\u00f4i. Thay v\u00ec t\u1eb7ng qu\u00e0 trong ng\u00e0y \u0111\u1eb7c bi\u1ec7t n\u00e0y, Alexandra \u0111\u00e3 k\u00eau g\u1ecdi b\u1ea1n b\u00e8 v\u00e0 gia \u0111\u00ecnh quy\u00ean g\u00f3p v\u00e0o qu\u1ef9 d\u1ecbch v\u1ee5 x\u00e3 h\u1ed9i c\u1ee7a b\u1ec7nh vi\u1ec7n.&nbsp;<\/p>\n<p>Alexandra \u0111\u00e3 quy\u00ean g\u00f3p \u0111\u01b0\u1ee3c $2.255 \u0111\u1ec3 h\u1ed7 tr\u1ee3 \u0111\u1ed9i ng\u0169 d\u1ecbch v\u1ee5 x\u00e3 h\u1ed9i c\u1ee7a ch\u00fang t\u00f4i trong n\u1ed7 l\u1ef1c h\u1ed7 tr\u1ee3 c\u00e1c gia \u0111\u00ecnh khi con em h\u1ecd \u0111\u01b0\u1ee3c ch\u0103m s\u00f3c t\u1ea1i b\u1ec7nh vi\u1ec7n. D\u1ecbch v\u1ee5 x\u00e3 h\u1ed9i s\u1eed d\u1ee5ng c\u00e1c kho\u1ea3n quy\u00ean g\u00f3p nh\u01b0 c\u1ee7a Alexandra \u0111\u1ec3 h\u1ed7 tr\u1ee3 \u0111i l\u1ea1i v\u00e0 mua th\u1ebb qu\u00e0 t\u1eb7ng mua th\u1ef1c ph\u1ea9m v\u00e0 x\u0103ng d\u1ea7u cho gia \u0111\u00ecnh b\u1ec7nh nh\u00e2n.<\/p>\n<p>Denise Alloway, LCSW, m\u1ed9t nh\u00e2n vi\u00ean x\u00e3 h\u1ed9i l\u00e2m s\u00e0ng h\u1ed7 tr\u1ee3 b\u1ec7nh nh\u00e2n gh\u00e9p gan v\u00e0 ru\u1ed9t t\u1ea1i b\u1ec7nh vi\u1ec7n c\u1ee7a ch\u00fang t\u00f4i, chia s\u1ebb: \u201cNh\u1eefng m\u00f3n qu\u00e0 t\u1eeb c\u00e1c nh\u00e0 t\u00e0i tr\u1ee3 h\u00e0o ph\u00f3ng nh\u01b0 Alexandra gi\u00fap gia \u0111\u00ecnh ch\u00fang t\u00f4i chuy\u1ec3n h\u01b0\u1edbng t\u1eadp trung t\u1eeb vi\u1ec7c lo l\u1eafng v\u1ec1 nh\u1eefng nhu c\u1ea7u th\u1ef1c t\u1ebf sang vi\u1ec7c gi\u00fap con m\u00ecnh h\u1ed3i ph\u1ee5c\u201d.<\/p>\n<p>\u201cT\u00f4i \u0111\u01b0\u1ee3c truy\u1ec1n c\u1ea3m h\u1ee9ng \u0111\u1ec3 \u0111\u00f3ng g\u00f3p cho B\u1ec7nh vi\u1ec7n Nhi Packard v\u00ec t\u00f4i \u0111\u00e3 nh\u1eadn \u0111\u01b0\u1ee3c nhi\u1ec1u h\u01a1n nh\u1eefng g\u00ec t\u00f4i c\u00f3 th\u1ec3 t\u01b0\u1edfng t\u01b0\u1ee3ng,\u201d Alexandra n\u00f3i. \u201cC\u00f3 ng\u01b0\u1eddi \u0111\u00e3 t\u1eed t\u1ebf hi\u1ebfn gan cho t\u00f4i m\u00e0 kh\u00f4ng c\u1ea7n nh\u1eadn l\u1ea1i b\u1ea5t c\u1ee9 th\u1ee9 g\u00ec. N\u1ebfu kh\u00f4ng c\u00f3 h\u1ecd, c\u00f3 l\u1ebd t\u00f4i \u0111\u00e3 kh\u00f4ng c\u00f2n s\u1ed1ng \u0111\u1ebfn ng\u00e0y h\u00f4m nay.\u201d<\/p>\n<p>Hi\u1ec7n t\u1ea1i, Alexandra l\u00e0 m\u1ed9t h\u1ecdc sinh trung h\u1ecdc kh\u1ecfe m\u1ea1nh, vui v\u1ebb. C\u00f4 b\u00e9 th\u00edch d\u00e0nh th\u1eddi gian cho b\u1ea1n b\u00e8, ch\u01a1i \u0111\u00f9a v\u1edbi hai ch\u00fa ch\u00f3 (Kira v\u00e0 Murray), b\u01a1i l\u1ed9i, tr\u01b0\u1ee3t tuy\u1ebft, du l\u1ecbch v\u00e0 ca h\u00e1t.&nbsp;<\/p>\n<p>\u201cAlexandra \u0111ang r\u1ea5t kh\u1ecfe\u2014kh\u00f4ng t\u1eeb ng\u1eef n\u00e0o c\u00f3 th\u1ec3 di\u1ec5n t\u1ea3 h\u1ebft \u0111\u01b0\u1ee3c t\u00ecnh tr\u1ea1ng c\u1ee7a con b\u00e9\u201d, cha c\u1ee7a Alexandra chia s\u1ebb.&nbsp;<\/p>\n<p>\u201cS\u1ee9c kh\u1ecfe c\u1ee7a con b\u00e9 r\u1ea5t t\u1ed1t v\u00e0 \u1ed5n \u0111\u1ecbnh. Con b\u00e9 bi\u1ebft m\u00ecnh l\u00e0 ai v\u00e0 c\u1ea3m th\u1ea5y tho\u1ea3i m\u00e1i v\u1edbi ch\u00ednh m\u00ecnh,\u201d m\u1eb9 c\u00f4 b\u00e9 n\u00f3i th\u00eam.<\/p>\n<p>C\u1ea3m \u01a1n Alexandra \u0111\u00e3 h\u1ed7 tr\u1ee3 b\u1ec7nh nh\u00e2n c\u1ee7a ch\u00fang t\u00f4i trong ng\u00e0y \u0111\u1eb7c bi\u1ec7t c\u1ee7a b\u1ea1n!&nbsp;<\/p>\n<p><em>B\u1ea1n c\u00f3 \u00fd t\u01b0\u1edfng g\u00e2y qu\u1ef9 n\u00e0o kh\u00f4ng? H\u00e3y b\u1eaft \u0111\u1ea7u n\u0103m 2018 c\u1ee7a b\u1ea1n m\u1ed9t c\u00e1ch su\u00f4n s\u1ebb v\u00e0 tr\u1edf th\u00e0nh m\u1ed9t <a href=\"http:\/\/championslpch.org\/\">Nh\u00e0 v\u00f4 \u0111\u1ecbch cho tr\u1ebb em<\/a>.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>Alexandra m\u1edbi ch\u1ec9 10 ng\u00e0y tu\u1ed5i khi \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n m\u1eafc ch\u1ee9ng thi\u1ebfu h\u1ee5t ornithine transcarbamylase (OTC), m\u1ed9t c\u0103n b\u1ec7nh hi\u1ebfm g\u1eb7p m\u00e0 trong tr\u01b0\u1eddng h\u1ee3p c\u1ee7a c\u00f4 b\u00e9, ch\u1ec9 c\u00f3 th\u1ec3 l\u00e0\u2026<\/p>","protected":false},"author":17,"featured_media":3925,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[22],"class_list":["post-3924","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-stories"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - 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